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Help understanding letters from Endocrinologists
Hi everyone , yes , it's the pain in the butt again , hope you are all ok .☺☺ I have now had written results from both Endo's that I have seen , 1 private , 1 NHS. The private endo said , I was fine , blood results were all in normal range , even though he only ran 4 of them TSH ,FT4 , FT3 , and anti
Hi everyone , yes , it's the pain in the butt again , hope you are all ok .☺☺ I have now had written results from both Endo's that I have seen , 1 private , 1 NHS. The private endo said , I was fine , blood results were all in normal range , even though he only ran 4 of them TSH ,FT4 , FT3 , and anti
Sweetpea1157
in
Thyroid UK
5 years ago
Should I ask for PA test?
I’m not sure what to do. In 2016 I had low b12 reading and doc advised loading doses. I have recently had gastro issues and had an endoscopy which looked normal apart from slightly lax valve. I was diagnosed with Graves in 2003 treated with RAI in 2005. I’m worried about PA as Endocrinologist wrote
I’m not sure what to do. In 2016 I had low b12 reading and doc advised loading doses. I have recently had gastro issues and had an endoscopy which looked normal apart from slightly lax valve. I was diagnosed with Graves in 2003 treated with RAI in 2005. I’m worried about PA as Endocrinologist wrote
Sunnydevon
in
Pernicious Anaemia Society
5 years ago
RAI
Hi all, next Tuesday I am going for an uptake test for RAI. Just wondering about the length of time you need to be in isolation for afterward. How have you felt after having RAI? I have been suffering with Graves for twelve months and the Carbimazole is not working. I have a nodule and goitre and antibodies
Hi all, next Tuesday I am going for an uptake test for RAI. Just wondering about the length of time you need to be in isolation for afterward. How have you felt after having RAI? I have been suffering with Graves for twelve months and the Carbimazole is not working. I have a nodule and goitre and antibodies
Nat1972
in
Thyroid UK
5 years ago
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Primary therapy of Graves' disease and cardiovascular morbidity and mortality: a linked-record cohort study
The importance of "early and effective control of hyperthyroidism" is probably of no surprise. Just good that it is in black and white. The difficulty I have is the "early definitive treatment with radioiodine". In the limited abstract, I cannot see anything which explains the apparent recommendation
The importance of "early and effective control of hyperthyroidism" is probably of no surprise. Just good that it is in black and white. The difficulty I have is the "early definitive treatment with radioiodine". In the limited abstract, I cannot see anything which explains the apparent recommendation
helvella
Thyroid UK
in
Thyroid UK
5 years ago
NDT first blood test results
Hi all, I moved to NDT couple months ago. I was on T3. I have no thyroid due to RAI so was keen to try the NDT for all the hormones. I have just had my first blood results back. They look like I’m just in range but still got a suppressed TSH TSH <0.01 (0.35-3.5) Free T4 9 (8.0-21) Free T3 4.1 (3.8
Hi all, I moved to NDT couple months ago. I was on T3. I have no thyroid due to RAI so was keen to try the NDT for all the hormones. I have just had my first blood results back. They look like I’m just in range but still got a suppressed TSH TSH <0.01 (0.35-3.5) Free T4 9 (8.0-21) Free T3 4.1 (3.8
rubyred
in
Thyroid UK
5 years ago
CT Scan with Iodine Contrast
On Tuesday, I will be having my annual follow-up CT scan for lung cancer. My oncologist has ordered it with contrast, which certainly gives a better picture of what is going on. However, a) I have had an allergic reaction to the contrast in the past (hives). The doctor has prescribed desamethasone
On Tuesday, I will be having my annual follow-up CT scan for lung cancer. My oncologist has ordered it with contrast, which certainly gives a better picture of what is going on. However, a) I have had an allergic reaction to the contrast in the past (hives). The doctor has prescribed desamethasone
vocalEK
in
Thyroid UK
5 years ago
No salt? How’s your iodine level?
I keep reading about everyone trying to keep their salt to a minimum and that’s understandable, but does anyone worry about their iodine levels, because iodized salt is where most people get iodine, unless you are a big eater of seafood. You can take extra iodine in liquid form or kelp pills but you
I keep reading about everyone trying to keep their salt to a minimum and that’s understandable, but does anyone worry about their iodine levels, because iodized salt is where most people get iodine, unless you are a big eater of seafood. You can take extra iodine in liquid form or kelp pills but you
Momofson
in
Kidney Disease
5 years ago
Daughter 16 had a hemithyroidectomy. The removed nodule was cancerous
Dear Members, Some of you might remember that I had mentioned about my 16 year old daughter has hashis and that she had a nodule. Her her fna biopsy result was thy3f and therefore we were given an option to go for surgery or just wait. We decided to go for a hemithyroidectomy. We had a follow up appointment
Dear Members, Some of you might remember that I had mentioned about my 16 year old daughter has hashis and that she had a nodule. Her her fna biopsy result was thy3f and therefore we were given an option to go for surgery or just wait. We decided to go for a hemithyroidectomy. We had a follow up appointment
Keenbean
in
Thyroid UK
5 years ago
Results help
Hi TT 2018 cancer Rai Oct 2018 TSH need to be under 1 Taking 175mcg levo TSH 1.83 0.27-4.2 T4 22.4 (10-21) T3 4.3 (3.5-6.5) Endo wants me on 200 Tuesday,Thursday,Saturday And all other days 175 The worry is that I tried 200 every day for 4 weeks and could not control my anxiety and depression
Hi TT 2018 cancer Rai Oct 2018 TSH need to be under 1 Taking 175mcg levo TSH 1.83 0.27-4.2 T4 22.4 (10-21) T3 4.3 (3.5-6.5) Endo wants me on 200 Tuesday,Thursday,Saturday And all other days 175 The worry is that I tried 200 every day for 4 weeks and could not control my anxiety and depression
paul1979
in
Thyroid UK
5 years ago
Boils and Abscesses
Hi I Suffer From APS Hughes Syndrome, approximately last 1-2 years I’ve been having Awful Boils and Abscesses mainly on Buttocks and Back , All range from Big to little, Some are full of blood others are quite small in size and mimic ackee , Just wondered if other patients suffer these, just been to
Hi I Suffer From APS Hughes Syndrome, approximately last 1-2 years I’ve been having Awful Boils and Abscesses mainly on Buttocks and Back , All range from Big to little, Some are full of blood others are quite small in size and mimic ackee , Just wondered if other patients suffer these, just been to
Markgammon06
in
Hughes Syndrome APS Forum
5 years ago
Appointment update
I went to see my consultant on Tuesday and she is still insists I have Dermititis See photo of the mountain of medication I now have. Every day for 2 weeks I have to bandage my legs for 24 hours amd re do. First putting on Viscopaste like what you have in if broken your leg or arm and then wrapped in
I went to see my consultant on Tuesday and she is still insists I have Dermititis See photo of the mountain of medication I now have. Every day for 2 weeks I have to bandage my legs for 24 hours amd re do. First putting on Viscopaste like what you have in if broken your leg or arm and then wrapped in
lou1972
in
Vasculitis UK
5 years ago
Advice please
Long one Had TT Rai Oct 18 Was put up to 200 levo in dec. spent 2 months with anxiety and depression was put in antidepressants Dropped my dose to 175 and was a lot better Still tired and gi problems Endo said I am not converting to T3 very well Wants to put me on beta blockers to stop anxiety
Long one Had TT Rai Oct 18 Was put up to 200 levo in dec. spent 2 months with anxiety and depression was put in antidepressants Dropped my dose to 175 and was a lot better Still tired and gi problems Endo said I am not converting to T3 very well Wants to put me on beta blockers to stop anxiety
paul1979
in
Thyroid UK
5 years ago
Radioactive iodine treatment
I have had hyperthyroidism for over two years now and my Endocrinologist wants me to have Radioactive Iodine because i might have low white blood cells seems to me not a good reason to have RAI which usually results in having Hypothyroidism (which most do) is a bad idea anyone else had the same dilemma
I have had hyperthyroidism for over two years now and my Endocrinologist wants me to have Radioactive Iodine because i might have low white blood cells seems to me not a good reason to have RAI which usually results in having Hypothyroidism (which most do) is a bad idea anyone else had the same dilemma
frankmac
in
Thyroid UK
5 years ago
RAI
Hi Would any one know if rai can damage the small intestines? I had the pill in Oct and in November I have lost 2 stone I have had abdominal since then and it won’t go away and Pain killers don’t work Thanks
Hi Would any one know if rai can damage the small intestines? I had the pill in Oct and in November I have lost 2 stone I have had abdominal since then and it won’t go away and Pain killers don’t work Thanks
paul1979
in
Thyroid UK
5 years ago
Iodine in Food
Hey guys, I've been trying to cut out gluten, soy and dairy and up protein and fibre, I eat a lot of prawns, tuna and eggs, but I've just seen that iodine could be bad for thyroid issues - are these things people add to the 'avoid' list? I'd have to totally rehaul my diet again!
Hey guys, I've been trying to cut out gluten, soy and dairy and up protein and fibre, I eat a lot of prawns, tuna and eggs, but I've just seen that iodine could be bad for thyroid issues - are these things people add to the 'avoid' list? I'd have to totally rehaul my diet again!
xelatropwen
in
Thyroid UK
5 years ago
Non-thyroid supplements
Hi, Do you think this supplement will do anything while I decide how to get tested. THYROID COMPLEX - 60 Premium Supplements with 14 ACTIVE INGREDIENTS, including L-Tyrosine, Iodine, Vitamin B12, Selenium, Kelp & Magnesium for supporting both under/active THYROID
Hi, Do you think this supplement will do anything while I decide how to get tested. THYROID COMPLEX - 60 Premium Supplements with 14 ACTIVE INGREDIENTS, including L-Tyrosine, Iodine, Vitamin B12, Selenium, Kelp & Magnesium for supporting both under/active THYROID
FinneUK
in
Thyroid UK
5 years ago
Allergic reaction no.3. Advice please.
Over a period of years, I’ve had one Avastin, and many Lucentis and latterly Eylea injections. Both eyes are now treated. The injection procedure itself is usually ok, but on 3 occasions the after effects have been agonising. I hesitate to use the word agony, because I don’t want to upset anyone and
Over a period of years, I’ve had one Avastin, and many Lucentis and latterly Eylea injections. Both eyes are now treated. The injection procedure itself is usually ok, but on 3 occasions the after effects have been agonising. I hesitate to use the word agony, because I don’t want to upset anyone and
Shrimpie
in
Macular Society
5 years ago
High Iodine content in NI milk?
Came across this study published March 2018, on iodine levels in Irish schoolgirls, with new research suggesting this population is sufficient. Iodine content within milk was studied and appears to be very high? Can this be correct? https://www.safefood.eu/SafeFood/media/SafeFoodLibrary/Documents/Publications
Came across this study published March 2018, on iodine levels in Irish schoolgirls, with new research suggesting this population is sufficient. Iodine content within milk was studied and appears to be very high? Can this be correct? https://www.safefood.eu/SafeFood/media/SafeFoodLibrary/Documents/Publications
Redpossum2019
in
Thyroid UK
5 years ago
Contradictory advice
Hello Over the past few years I've moved for work so changed endocrinologists, each one offering different advice. Does anyone know of a good specialist (toxic goitre) in the north of England? I'm really concerned that the current one is pushing RAI as I can't find enough information to make an informed
Hello Over the past few years I've moved for work so changed endocrinologists, each one offering different advice. Does anyone know of a good specialist (toxic goitre) in the north of England? I'm really concerned that the current one is pushing RAI as I can't find enough information to make an informed
Newcastle2013
in
Thyroid UK
5 years ago
Clinical Utility of TSH Receptor Antibodies (TRAb)
Incredible piece for those with Graves https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3667257/ Copyright © 2013 by The Endocrine Society 1. In patients on methimazole, a positive TRAb is helpful in suggesting that it is not yet time to stop the medication. 2. TRAb tests are also used in the prediction
Incredible piece for those with Graves https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3667257/ Copyright © 2013 by The Endocrine Society 1. In patients on methimazole, a positive TRAb is helpful in suggesting that it is not yet time to stop the medication. 2. TRAb tests are also used in the prediction
ling
in
Thyroid UK
5 years ago
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