Contradictory advice: Hello Over the past few... - Thyroid UK

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Contradictory advice

Newcastle2013 profile image
10 Replies

Hello

Over the past few years I've moved for work so changed endocrinologists, each one offering different advice. Does anyone know of a good specialist (toxic goitre) in the north of England?

I'm really concerned that the current one is pushing RAI as I can't find enough information to make an informed decision.

I said I'd received contradictory advice, and his response was he couldn't speak for them.

Thanks in advance Hx

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Newcastle2013 profile image
Newcastle2013
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10 Replies
Howard39 profile image
Howard39

Hi

I’ve never had one myself but both my neighbours regret having the RAI.

Got to agree “ run” from that. One has had awful side effects.

Newcastle2013 profile image
Newcastle2013 in reply toHoward39

Thanks x

bantam12 profile image
bantam12

Many have RAI and it works a treat, no problems at all.

Newcastle2013 profile image
Newcastle2013 in reply tobantam12

Thanks x

I had thyroidectomy and I wish I ran from this too.... both suck your never right unless your lucky.

Newcastle2013 profile image
Newcastle2013 in reply to

Did you have full or partial? Was it for goitre or regular overactive?

My head's spinning with the doctor's info or lack of x

Newcastle2013 profile image
Newcastle2013

Thanks for the info x

bantam12 profile image
bantam12

There are others on the forum who are doing very well after RAI, as you know. I had Graves for 30 years before RAI so I'm well aware of the problems but it doesn't "cause major damage" to everyone.

Arlenka profile image
Arlenka

Years ago I saw a program that was very negative about RAI and the effects of it years after the fact and because of it I had a total thyroidectomy. One doctor chastised me so much he had me in tears and my blood pressure seriously elevated. Needless to say I ignored him and went through with the surgery and am thankful that I did since it is 40 years on and although I’ve suffered with fluctuations with my medications I feel it is better than the side effects of RAI. Good luck. Research/knowledge is best. x

Newcastle2013 profile image
Newcastle2013 in reply toArlenka

Thank you so much....

I'm so worried, the doctor has sent me an appointment for a radioactive scan; charging ahead without asking x

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