Results help: Hi TT 2018 cancer Rai Oct 201... - Thyroid UK

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Results help

paul1979 profile image
5 Replies

Hi

TT 2018 cancer

Rai Oct 2018

TSH need to be under 1

Taking 175mcg levo

TSH 1.83 0.27-4.2

T4 22.4 (10-21)

T3 4.3 (3.5-6.5)

Endo wants me on 200 Tuesday,Thursday,Saturday

And all other days 175

The worry is that I tried 200 every day for 4 weeks and could not control my anxiety and depression

He has said there is nothing more he can do for me??

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paul1979
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5 Replies
SeasideSusie profile image
SeasideSusieRemembering

Paul1979

You had quite a few replies to the same question a few days ago when your results were

T4 23.7. 10-21

T3 4.8. 3.5-6.5

healthunlocked.com/thyroidu...

Your FT4 and FT3 aren't much different now. There really isn't much else that anyone can add to what's already been said. You need T3. If this endo wont help, you have a couple of choices - find another endo who will, or self source T3 and add it yourself to a lower dose of Levo.

You have posted this question twice today, I will delete the other one.

paul1979 profile image
paul1979 in reply toSeasideSusie

Thank you seasidesusie. How do I source T3

SeasideSusie profile image
SeasideSusieRemembering in reply topaul1979

Make a new post asking members to recommend, by private message, where you can source T3.

The post will have to be closed, forum guidelines don't allow us to name sources on the open forum, but it will still be visible and members will resond by PM.

When you have any recommendations, as a precaution, you may wish to check with myself or another one of the Admin team to see if we have feedback on any recommendations you are sent, there are some known unscrupulous suppliers.

SlowDragon profile image
SlowDragonAdministrator in reply topaul1979

Roughly where in the UK are you?

Have you got the list of recommended thyroid specialists from Dionne at Thyroid Uk?

tukadmin@thyroiduk.org

There are several very pro T3 endocrinologists on the list

A private prescription enables access to cheap T3 from Germany

31 Euro for 20mcg Thybon Henning x 100 tablets

UK T3 is £204 for 28 tablets.

Hence why many CCG's have pressurised NHS endocrinologists not to prescribe unless patients kick up huge fuss

SlowDragon profile image
SlowDragonAdministrator

Once on T3, assuming it goes well ......Might be worth looking at DNA tests

If you test positive for DIO2 gene variation this may help in getting T3 on NHS

thyroiduk.org.uk/tuk/testin...

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