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Ursodiol is working :)
Hi everyone, I was diagnosed with PBC back in May after years of trying to figure out what was wrong. I started on Ursodiol right away and yesterday, I got my bloodwork results back after 3 months of being on it. My liver numbers went from off the charts to practically normal again. The Ursodiol is working
Hi everyone, I was diagnosed with PBC back in May after years of trying to figure out what was wrong. I started on Ursodiol right away and yesterday, I got my bloodwork results back after 3 months of being on it. My liver numbers went from off the charts to practically normal again. The Ursodiol is working
ginabean
in
PBCers Organization
3 years ago
Prednisolone/Vitamin D3 timing
I’ve been suffering symptoms of PMR since June 2020 and started treatment in October 2020. Started on 15mg Pred and now down to 11mg - reducing by 1mg every 6 weeks. So far so good! Following original advice from GP I take all medication at 8am with breakfast - this includes Pred, Vitamin D3, Omeprazole
I’ve been suffering symptoms of PMR since June 2020 and started treatment in October 2020. Started on 15mg Pred and now down to 11mg - reducing by 1mg every 6 weeks. So far so good! Following original advice from GP I take all medication at 8am with breakfast - this includes Pred, Vitamin D3, Omeprazole
Dorothy61
in
PMRGCAuk
3 years ago
After embryo transfer vitamins omega 3 fish oil- cod liver tablets safe? Please advise?
Omega 3 fish oil - cod liver oil safe after embryo transfer please advise iv been taking it for months this is my last FET try i dont want anything to mess up please help xx
Omega 3 fish oil - cod liver oil safe after embryo transfer please advise iv been taking it for months this is my last FET try i dont want anything to mess up please help xx
Rosie90
in
Fertility Network UK
3 years ago
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DEXA Scan Results
Hi I had a Spine T-score of -3.7 on the DEXA scale and have been taking Alendronic Acid on and off for a couple of years, but it causes stomach problems which seem to stop when I'm not taking it. I'm thinking of stopping again but am worried my bone density will get worse if I do, does anyone else have
Hi I had a Spine T-score of -3.7 on the DEXA scale and have been taking Alendronic Acid on and off for a couple of years, but it causes stomach problems which seem to stop when I'm not taking it. I'm thinking of stopping again but am worried my bone density will get worse if I do, does anyone else have
SandyBea
in
PMRGCAuk
3 years ago
Does anyone have advice pls?
I have severe endo which I have been managing best I can with pain killers and by taking the pill to try and get my periods under control. It’s not been perfect but it’s manageable . I was offered a hysterectomy but because of bowel involvement they couldn’t guarantee that I wouldn’t get long term damage
I have severe endo which I have been managing best I can with pain killers and by taking the pill to try and get my periods under control. It’s not been perfect but it’s manageable . I was offered a hysterectomy but because of bowel involvement they couldn’t guarantee that I wouldn’t get long term damage
Bagpuss1848
in
Endometriosis UK
3 years ago
Why can always find issue with having extreme PMS on birth control pill
I am on the birth control to regular my period and did have very heavy period before . I always seem to be struggling with some extreme PMs know that I am on the BC pill. I went to different doctor before that i went BC Pill . one just did blood test . next same doctor put I on tranexamic acid and
I am on the birth control to regular my period and did have very heavy period before . I always seem to be struggling with some extreme PMs know that I am on the BC pill. I went to different doctor before that i went BC Pill . one just did blood test . next same doctor put I on tranexamic acid and
Hidden
in
Women's Health
3 years ago
Help - Supplement advice
Hi lovely people - wanted to check my current list of supplements with you to see if I'm missing any major ones, before I go into my 2nd ivf cycle. I don't want to overload on a million pills, just wanting a good broad supplement supply. Also could some PM me what coq10/ubiquinol they would recommend
Hi lovely people - wanted to check my current list of supplements with you to see if I'm missing any major ones, before I go into my 2nd ivf cycle. I don't want to overload on a million pills, just wanting a good broad supplement supply. Also could some PM me what coq10/ubiquinol they would recommend
Joeysjourney
in
Fertility Network UK
3 years ago
A Few More Weeks
I’m struggling with the side effects of Alendronic Acid, the hardest to cope with is the tiredness it’s overwhelming. I take my tablet on a Wednesday ( I’ve just taken my 4th) and I just sleep. I spoke to my GP the previous two weeks, shortness of breath - given steroids and then stomach pain. Today
I’m struggling with the side effects of Alendronic Acid, the hardest to cope with is the tiredness it’s overwhelming. I take my tablet on a Wednesday ( I’ve just taken my 4th) and I just sleep. I spoke to my GP the previous two weeks, shortness of breath - given steroids and then stomach pain. Today
Elaiworthy
in
Bone Health and Osteoporosis UK
3 years ago
Low lying placenta and circumvallate placenta!
Hi everyone, I just joined this group. I was member of the fertility group for nearly 2 years. A quick background: Endometriosis and adenomyosis. One laparotomy and one laparoscopy. Removed the tubes. 1st round IVF: MMC at 9 weeks due to SCH 2ed round: no response 3ed round: one egg, one embryo, day
Hi everyone, I just joined this group. I was member of the fertility group for nearly 2 years. A quick background: Endometriosis and adenomyosis. One laparotomy and one laparoscopy. Removed the tubes. 1st round IVF: MMC at 9 weeks due to SCH 2ed round: no response 3ed round: one egg, one embryo, day
Mta209
in
Baby and Us
3 years ago
low lying and circumvallate placenta!
Hi Worries, I have been away for a few months to be able to control and manage my stress and anxiety during this time. A quick update: 1st round IVF: MMC at 9 weeks 2ed round: no response 3ed round: one egg, one embryo, day 2 transfer and positive pregnancy I had my 19 weeks scan on Friday. The baby
Hi Worries, I have been away for a few months to be able to control and manage my stress and anxiety during this time. A quick update: 1st round IVF: MMC at 9 weeks 2ed round: no response 3ed round: one egg, one embryo, day 2 transfer and positive pregnancy I had my 19 weeks scan on Friday. The baby
Mta209
in
Fertility Network UK
3 years ago
Proteolytic Enzymes... Has anyone had any success with them?
I already take Curcumin and Vit K2 on top of ADCAL supplements and wondered if anyone has used Proteolytic Enzymes. Are they worth the money? I am currently on 7.5mg Steriods and taking Alendronic acid too.
I already take Curcumin and Vit K2 on top of ADCAL supplements and wondered if anyone has used Proteolytic Enzymes. Are they worth the money? I am currently on 7.5mg Steriods and taking Alendronic acid too.
Mamamia21
in
PMRGCAuk
3 years ago
Jaw discomfort
Can anyone advise? Onset of PMR was September 2016 and I began prednisolone in January 2017 after a long delay in diagnosis being confirmed. DEXA in August 2020 confirmed osteopenia and I began Alendronic Acid in October. Just in the last couple of weeks or so, I've started to feel a discomfort in
Can anyone advise? Onset of PMR was September 2016 and I began prednisolone in January 2017 after a long delay in diagnosis being confirmed. DEXA in August 2020 confirmed osteopenia and I began Alendronic Acid in October. Just in the last couple of weeks or so, I've started to feel a discomfort in
rosie_jones
in
PMRGCAuk
3 years ago
Which pregnancy supplements?
Hi, Does any of you ladies know which pregnancy supplements are best to take after BFP? (IVF)Some contain DHA and Omega 3 and some don’t? Some sites say to take omega 3 from 12 weeks? Is it safe to take at 4 weeks? Any help and advice appreciated. Thank you
Hi, Does any of you ladies know which pregnancy supplements are best to take after BFP? (IVF)Some contain DHA and Omega 3 and some don’t? Some sites say to take omega 3 from 12 weeks? Is it safe to take at 4 weeks? Any help and advice appreciated. Thank you
Baba20
in
Fertility Network UK
3 years ago
Adenomyosis pains and heavy bleeding
Hey I have adenomyosis and I can't put to words the amount of pain and bleeding I have on a monthly basis. I know this group is for endometriosis sufferers but I was just wondering if there's anyone here with adenomyosis having the same experience and what they are taking to relieve the pain and the
Hey I have adenomyosis and I can't put to words the amount of pain and bleeding I have on a monthly basis. I know this group is for endometriosis sufferers but I was just wondering if there's anyone here with adenomyosis having the same experience and what they are taking to relieve the pain and the
Hopeandpray
in
Endometriosis UK
3 years ago
Progesterone only pill
I’ve started taking the POP yesterday, just wondering what people have experienced in terms of timescale before I feel any pain relief? I’m awaiting a lap and have been given the POP on top of the other meds I’m already taking (paracetamol, Mefenamic acid and codeine when needed). Thanks
I’ve started taking the POP yesterday, just wondering what people have experienced in terms of timescale before I feel any pain relief? I’m awaiting a lap and have been given the POP on top of the other meds I’m already taking (paracetamol, Mefenamic acid and codeine when needed). Thanks
Midgetpants87
in
Endometriosis UK
3 years ago
Help for a friend with corticobasal degeneration.
Dear forum friends: I have a friend who has been diagnosed with corticobasal degeneration. I can't find much specific information about this atypical parkinsonism. Except for Dr. Costantini's reference in the famous interview (number 30) or the comments on medical cannabis oil, I can't find any information
Dear forum friends: I have a friend who has been diagnosed with corticobasal degeneration. I can't find much specific information about this atypical parkinsonism. Except for Dr. Costantini's reference in the famous interview (number 30) or the comments on medical cannabis oil, I can't find any information
parkinsonshereandnow
in
Cure Parkinson's
3 years ago
Pred-induced Osteoporosis - Zoledronic acid??
Hi Everyone I was asked to report back after I'd seen my consultant this week, re the ankle fracture I incurred without a fall or trip - you rightly deduced that she said I must have a Dexascan. (I await date and time for that). However, she also said that the weekly Alendronic acid I've been taking
Hi Everyone I was asked to report back after I'd seen my consultant this week, re the ankle fracture I incurred without a fall or trip - you rightly deduced that she said I must have a Dexascan. (I await date and time for that). However, she also said that the weekly Alendronic acid I've been taking
Frewen1
in
PMRGCAuk
3 years ago
Ursodiol and thirst?
I’m almost 60 days into taking Ursodiol and I noticed over the last week in particular that I’m overly thirsty. Has this happened to anyone else? I left a message for my dr about it tonight.
I’m almost 60 days into taking Ursodiol and I noticed over the last week in particular that I’m overly thirsty. Has this happened to anyone else? I left a message for my dr about it tonight.
ginabean
in
PBC Foundation
3 years ago
DEXA Scan Results
I have just received my DEXA Scan results from last Thursday's scan (via text & a download file from my GP). Here is what it said: [i]Total spinal T-score 2.1, mean neck of femur T-score -0.6, mean total [/i] [i]hip T-score -0.4. This gentleman has normal bone density. He is on [/i] [i]steroids for PMR
I have just received my DEXA Scan results from last Thursday's scan (via text & a download file from my GP). Here is what it said: [i]Total spinal T-score 2.1, mean neck of femur T-score -0.6, mean total [/i] [i]hip T-score -0.4. This gentleman has normal bone density. He is on [/i] [i]steroids for PMR
AyJayBass
in
PMRGCAuk
3 years ago
Good results from Omega 3 and 6
Small (n=40) randomized, double-blind, placebo-controlled study of Neuroaspis PLP10™ (nutritional formula of antioxidant vitamins, omega-3 & omega-6 fatty acids) in early #Parkinsons reports significant improvement in ON state UPDRS (18-30 months) https://www.sciencedirect.com/science/article/abs/pii
Small (n=40) randomized, double-blind, placebo-controlled study of Neuroaspis PLP10™ (nutritional formula of antioxidant vitamins, omega-3 & omega-6 fatty acids) in early #Parkinsons reports significant improvement in ON state UPDRS (18-30 months) https://www.sciencedirect.com/science/article/abs/pii
Buckholt
in
Cure Parkinson's
3 years ago
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