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Reaching out to find the member who successfully did every other day hormone cycling
Anyone out there know? Someone 💯 mentioned they cycled choices with success. I believe it involved NDT. Or do you? **I fully realize this is a poor choice, just getting cornered due to price. It is not what I want. ** I just had my hormones increased yet again this week & the financial burden has
Anyone out there know? Someone 💯 mentioned they cycled choices with success. I believe it involved NDT. Or do you? **I fully realize this is a poor choice, just getting cornered due to price. It is not what I want. ** I just had my hormones increased yet again this week & the financial burden has
Litatamon
in
Thyroid UK
11 months ago
Enzalutamide (Xtandi): Start at half standard dose to extend efficacy time span?
Good Morning AllI was disgnosed 6 years ago with oligometastic prostate cancer Gleeson 8, PSA 22. Since January 2018 I have been on ADT, had docetaxel chemo in April 2018, radiotherapy to the prostate, seminal vessel and pelvis in November 2018 when PSA dropped to <0.1. PSMA PET CT scan in March 2019
Good Morning AllI was disgnosed 6 years ago with oligometastic prostate cancer Gleeson 8, PSA 22. Since January 2018 I have been on ADT, had docetaxel chemo in April 2018, radiotherapy to the prostate, seminal vessel and pelvis in November 2018 when PSA dropped to <0.1. PSMA PET CT scan in March 2019
KGU1
in
Advanced Prostate Cancer
11 months ago
Help Develop a Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer
Please consider being part of the COMPASS Study here: https://malecare.org/compass-study/ "Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer" This study aims to develop a sexual function survey specific for men who have sex with men
Please consider being part of the COMPASS Study here: https://malecare.org/compass-study/ "Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer" This study aims to develop a sexual function survey specific for men who have sex with men
Darryl
Partner
in
Prostate Cancer Network
11 months ago
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Help Develop a Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer
Please consider being part of the COMPASS Study here: https://malecare.org/compass-study/ "Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer" This study aims to develop a sexual function survey specific for men who have sex with men
Please consider being part of the COMPASS Study here: https://malecare.org/compass-study/ "Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer" This study aims to develop a sexual function survey specific for men who have sex with men
Darryl
Partner
in
Advanced Prostate Cancer
11 months ago
Help Develop a Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer
Please consider being part of the COMPASS Study here: malecare.org/compass-study/ "Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer" This study aims to develop a sexual function survey specific for men who have sex with men (MSM),
Please consider being part of the COMPASS Study here: malecare.org/compass-study/ "Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer" This study aims to develop a sexual function survey specific for men who have sex with men (MSM),
Darryl
Partner
in
Prostate Cancer And Gay Men
11 months ago
PSA still low but cancer progressing
I've been on ADT plus Xtandi for about a year (see my profile) and my PSA has steadily reduced and stayed low. However, my latest CT scan shows that the tumours on my bones and lymph nodes are increasing in size and there are now a few small lesions appearing in my liver for the first time. Not the news
I've been on ADT plus Xtandi for about a year (see my profile) and my PSA has steadily reduced and stayed low. However, my latest CT scan shows that the tumours on my bones and lymph nodes are increasing in size and there are now a few small lesions appearing in my liver for the first time. Not the news
Benkaymel
in
Advanced Prostate Cancer
11 months ago
Purchase NDT?
Hello :) Please can someone private message me if they've experience with either being prescribed or buying NDT? Either UK or Spain Thanks! :)
Hello :) Please can someone private message me if they've experience with either being prescribed or buying NDT? Either UK or Spain Thanks! :)
Quesito2023
in
Thyroid UK
11 months ago
Whole pelvic radiation after testicular cancer?
My husband is 63, dx Oct/2022 with PSA of ~11 and all twelve cores positive with GL 8 and mostly 9’s (4+5). He had SVI, PNI, and probable ECE, but PSMA PET showed no spread. He’s being treated at UCHealth/Denver CO at their urologic cancer center. His treatment consisted of 39 radiation sessions +
My husband is 63, dx Oct/2022 with PSA of ~11 and all twelve cores positive with GL 8 and mostly 9’s (4+5). He had SVI, PNI, and probable ECE, but PSMA PET showed no spread. He’s being treated at UCHealth/Denver CO at their urologic cancer center. His treatment consisted of 39 radiation sessions +
Adendino
in
Advanced Prostate Cancer
11 months ago
QOL Arm wrestling
I am almost 3 months into the Body by Science workouts suggested by (Paul) Mateo Beach. I find my energy level remains high and with the exception of some brain fog and minor emotional mood swings I continue to be avoiding most of the ADT side effects. The essence of the program is very slow lifts
I am almost 3 months into the Body by Science workouts suggested by (Paul) Mateo Beach. I find my energy level remains high and with the exception of some brain fog and minor emotional mood swings I continue to be avoiding most of the ADT side effects. The essence of the program is very slow lifts
Scout4answers
in
Advanced Prostate Cancer
11 months ago
Question about using synthroid and ndt
I was on synthroid for about 6 years I am at 100 mg I am having symptoms again. I asked my doctor about ndt and he gave me a prescription. I have lowered my dose of synthroid slowly to 50 mg and plan on adding in the ndt but I don't know what dose to start at. Any ideas from people that have had success
I was on synthroid for about 6 years I am at 100 mg I am having symptoms again. I asked my doctor about ndt and he gave me a prescription. I have lowered my dose of synthroid slowly to 50 mg and plan on adding in the ndt but I don't know what dose to start at. Any ideas from people that have had success
STANDY9188
in
Thyroid UK
11 months ago
ADT how long
I just started hormone therapy about a month ago on orgovyx pills. They're telling me today I need to stay on this for 2 years. Why so long?
I just started hormone therapy about a month ago on orgovyx pills. They're telling me today I need to stay on this for 2 years. Why so long?
SilverSeppi
in
Advanced Prostate Cancer
11 months ago
Update to: "Newly detectable PSA after prostatectomy: RT + ADT planned; add Erleada?"
Thanks for all the input to my original post. First, here is an administrative posting/question: am I correct to add this as a new post, or should I have posted this as a reply to my original post? Here are some additional details regarding medication side effects and treatment decision-making for
Thanks for all the input to my original post. First, here is an administrative posting/question: am I correct to add this as a new post, or should I have posted this as a reply to my original post? Here are some additional details regarding medication side effects and treatment decision-making for
Brokedown_Palace
in
Advanced Prostate Cancer
11 months ago
declining psa #6
Gm ladies n gentlemen, I’m here to give my results as I stated after stopping adt, post Rp, radiation n solely using ivermectin, cbd, turmeric n fish oil. My latest reading came in 1.34 down from 1.47 and continues to spiral down from starting this regiment at 1.92. Furthermore, prior to starting ivermectin
Gm ladies n gentlemen, I’m here to give my results as I stated after stopping adt, post Rp, radiation n solely using ivermectin, cbd, turmeric n fish oil. My latest reading came in 1.34 down from 1.47 and continues to spiral down from starting this regiment at 1.92. Furthermore, prior to starting ivermectin
Nfler
in
Advanced Prostate Cancer
11 months ago
Throat/Glands Swelling Question
Hi All, Ever since my thyroid went out of balance, for the first time ever I've started to experience strange throat sensations: * Sore throat, like a cold coming, but no cold * A feeling of swollen upper neck glands when they are not really swollen in reality * Voice changes at times The thing
Hi All, Ever since my thyroid went out of balance, for the first time ever I've started to experience strange throat sensations: * Sore throat, like a cold coming, but no cold * A feeling of swollen upper neck glands when they are not really swollen in reality * Voice changes at times The thing
Juliet_22
in
Thyroid UK
11 months ago
Treatment Comparison Tool
Hi All, I stumbled across this prostate treatment comparison tool which seems to be a pretty reasonable method based on a lot of data that could help those of us struggling to know what treatment to have. https://www.prostatecancerfree.org/compare-prostate-cancer-treatments-high-risk/ I listed the
Hi All, I stumbled across this prostate treatment comparison tool which seems to be a pretty reasonable method based on a lot of data that could help those of us struggling to know what treatment to have. https://www.prostatecancerfree.org/compare-prostate-cancer-treatments-high-risk/ I listed the
Mike58
in
Prostate Cancer Network
11 months ago
how to obtain NDT in UK
I currently live in the USA but will be moving to the UK. I have successfully managed my hypothyroidism, with NDT, for many years. Formerly, I did not do well on levothyroxine. Since I will not be able to get prescriptions filled from the US anymore, I am making preliminary enquiries about how I
I currently live in the USA but will be moving to the UK. I have successfully managed my hypothyroidism, with NDT, for many years. Formerly, I did not do well on levothyroxine. Since I will not be able to get prescriptions filled from the US anymore, I am making preliminary enquiries about how I
Greenwichgal
in
Thyroid UK
11 months ago
Degarelix and increased diabetes risk?
My husband had his first Degarelix injection last week. I have been reading that men who get ADT have an increased risk of diabetes. Just wondering because he had a blood test today, and his glucose was high. Diabetes runs in his family as his father, brother and sisters all had/have diabetes. Both father
My husband had his first Degarelix injection last week. I have been reading that men who get ADT have an increased risk of diabetes. Just wondering because he had a blood test today, and his glucose was high. Diabetes runs in his family as his father, brother and sisters all had/have diabetes. Both father
Oatmeal2
in
Prostate Cancer Network
11 months ago
New Study - Men on adt for 6 months- 75% recover Testosterone BUT median time is 18 MONTHS!!!????-Orgovyxx may be different? Yes I Hope??
New Meta Analysis From Marcap Consortium says :
Men on adt for 6 months -75% recover Testosterone BUT the median recovery time is 18 months !!!
AND THE OTHER 25% -NEVER!??
I TOOK ORGOVYXX FOR 4 MONTHS ???? THEY SAY IT MAY BE DIFFERENT FOR ORGOVYXX??
P.S. Any studies
New Meta Analysis From Marcap Consortium says :
Men on adt for 6 months -75% recover Testosterone BUT the median recovery time is 18 months !!!
AND THE OTHER 25% -NEVER!??
I TOOK ORGOVYXX FOR 4 MONTHS ???? THEY SAY IT MAY BE DIFFERENT FOR ORGOVYXX??
P.S. Any studies
JWS13
in
Advanced Prostate Cancer
11 months ago
NDT friendly Endo wanted. Please can you PM me. Many thanks 😊😊
Temporarily on Amiodarone. May well need a NDT friendly doctor to help manage my thyroid hormone levels whilst I'm affected by the impact of Amiodarone.Was stable for years but this may change now. Please don't reply on forum but PM me if you know a knowledgeable one who work with ndt. Many many thanks
Temporarily on Amiodarone. May well need a NDT friendly doctor to help manage my thyroid hormone levels whilst I'm affected by the impact of Amiodarone.Was stable for years but this may change now. Please don't reply on forum but PM me if you know a knowledgeable one who work with ndt. Many many thanks
waveylines
in
Thyroid UK
11 months ago
Your thoughts on next course of action
First, I'd like to thank the many good folks that contribute this forum. Your inputs have been a life send to me over the past several years, especially Tall Allen who recommended UW Medicine where my MO and RO are located. They have been fantastic to work with. The short story - Diagnosed in 2018.
First, I'd like to thank the many good folks that contribute this forum. Your inputs have been a life send to me over the past several years, especially Tall Allen who recommended UW Medicine where my MO and RO are located. They have been fantastic to work with. The short story - Diagnosed in 2018.
GBMV
in
Advanced Prostate Cancer
11 months ago
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