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anyone got experience of private Drs or this reaction to dropping meds?
TO UPDATE, I HAVE BEEN IN TOUCH WITH AN ENDO FROM THE LIST AND AS MY ENDO ALREADY PRESCRIBES T3 ONLY THERAPY FOR ME (long story) HE MADE IT CLEAR THAT I WAS ALREADY GETTING THE BEST I PROBABLY COULD OUT OF AN NHS GP. SO NO NEED TO PAY PRIVATELY. Depressing to know no more nuanced help from anyone, but
TO UPDATE, I HAVE BEEN IN TOUCH WITH AN ENDO FROM THE LIST AND AS MY ENDO ALREADY PRESCRIBES T3 ONLY THERAPY FOR ME (long story) HE MADE IT CLEAR THAT I WAS ALREADY GETTING THE BEST I PROBABLY COULD OUT OF AN NHS GP. SO NO NEED TO PAY PRIVATELY. Depressing to know no more nuanced help from anyone, but
sulamaye
in
Thyroid UK
5 months ago
Low Testosterone and value of continuing Hormone Therapy
83 year old male with a question: My understanding is that the role of hormone therapy is to lower one’s testosterone level. Does hormone therapy provide additional benefits in fighting prostate cancer beyond lowering testosterone levels? I was diagnosed with high grade prostate cancer (Gleason 10
83 year old male with a question: My understanding is that the role of hormone therapy is to lower one’s testosterone level. Does hormone therapy provide additional benefits in fighting prostate cancer beyond lowering testosterone levels? I was diagnosed with high grade prostate cancer (Gleason 10
saniku
in
Advanced Prostate Cancer
5 months ago
Bicalutamide Vs Eligard
I'm just starting my journey which will involve ADT and RT. The RT is scheduled to happen in early July and ADT to start soon. No spread according to Pet scan. Gleason 4+4 and PSA 7.9. Absolutely no symptoms whatsoever, feeling good for a 65yo. RO doesn't seem to be in any hurry. I have a few important
I'm just starting my journey which will involve ADT and RT. The RT is scheduled to happen in early July and ADT to start soon. No spread according to Pet scan. Gleason 4+4 and PSA 7.9. Absolutely no symptoms whatsoever, feeling good for a 65yo. RO doesn't seem to be in any hurry. I have a few important
PJT58
in
Advanced Prostate Cancer
5 months ago
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Wow ! Newly Diagnosed Prostate Cancer. Greatly appreciate some Guidance with all this new Technology. Tampa Bay Area.
72yo – Gleason 7 – (4+3)- Group 3 - PSA 6.456 – PHI 91.7 – Free 12.86% - Localized in Left Lobe – Clean PSMA- 8mm Lesion – 15 cores taken – 5 unfavorable – 36cc PH - Hi All, Recently diagnosed with PC. Had the MRI, Biopsy and Pet PSMA done. Urologist suggested ERT + HT ( 6 mths). Started to research
72yo – Gleason 7 – (4+3)- Group 3 - PSA 6.456 – PHI 91.7 – Free 12.86% - Localized in Left Lobe – Clean PSMA- 8mm Lesion – 15 cores taken – 5 unfavorable – 36cc PH - Hi All, Recently diagnosed with PC. Had the MRI, Biopsy and Pet PSMA done. Urologist suggested ERT + HT ( 6 mths). Started to research
mijona
in
Prostate Cancer Network
5 months ago
Erleada & ADT
just started Erleada with my ADY, I enjoy pot daily, anyone else smoke pot and are on the above. No side effects yet!!!
just started Erleada with my ADY, I enjoy pot daily, anyone else smoke pot and are on the above. No side effects yet!!!
Leaffan57
in
Advanced Prostate Cancer
5 months ago
Is ADT routinely given after prostatectomy
Trying to decide between prostatectomy and radiation (I understand if there was recurrence, I would have to do radiation and ADT) Is surgery the best chance to avoid ADT altogether Also, can anyone recommended a Surgeon at MD Anderson I also have urinary symptoms due to an enlarged prostate, I
Trying to decide between prostatectomy and radiation (I understand if there was recurrence, I would have to do radiation and ADT) Is surgery the best chance to avoid ADT altogether Also, can anyone recommended a Surgeon at MD Anderson I also have urinary symptoms due to an enlarged prostate, I
Vortex12
in
Prostate Cancer Network
5 months ago
Ndt dosing
Hi. I take 1 3/4 grains of thyroid s , 1 grain around 7am. 3/4 grain around 2Pm. To get an accurate reading what time should I take my afternoon dose please?
Hi. I take 1 3/4 grains of thyroid s , 1 grain around 7am. 3/4 grain around 2Pm. To get an accurate reading what time should I take my afternoon dose please?
Catlover3
in
Thyroid UK
5 months ago
Dental Issues with Finesteride
I am 7 years post full gland HIFU surgery. Quality of life remains good. I've been off ADT all this time. PSA has been slowly rising and hit 2.8. My urologist put me on finesteride. It prevents the conversion of T to DHT. Five weeks after starting on it I experienced an onslaught of dental problems.
I am 7 years post full gland HIFU surgery. Quality of life remains good. I've been off ADT all this time. PSA has been slowly rising and hit 2.8. My urologist put me on finesteride. It prevents the conversion of T to DHT. Five weeks after starting on it I experienced an onslaught of dental problems.
fast_eddie
in
Advanced Prostate Cancer
5 months ago
Intermediate favorable vs. unfavorable Gleason 7 acc.to 2 doctors + CLEAN PSMA, do we need third opinion +where? (Green Bay/Milwaukee areas)
Hello all~ I am writing as spokesperson and chief researcher for my husband, Steve. He is 75 and was dx'ed w/prostate cancer on 11/27 by his urologist after some months following a bad UTI and subsequent catheterization to "rest his bladder" by initial NP (whom we saw upon referral but subsequently
Hello all~ I am writing as spokesperson and chief researcher for my husband, Steve. He is 75 and was dx'ed w/prostate cancer on 11/27 by his urologist after some months following a bad UTI and subsequent catheterization to "rest his bladder" by initial NP (whom we saw upon referral but subsequently
AliceinW57
in
Prostate Cancer Network
5 months ago
Should Perineural Invasion (PNI) change my Radiation Treatment Plan
Hi everyone. A quick background. Age 59. Was diagnosed in Nov 2023 with Gleason 3+4=7 Intermediate Unfavorable (10 of 15 cores positive) and tumor in both side of prostate. PSA 5.9 Decipher .49 Bone Scan showed no metastasis Met with Multi Discipline team at Inova Schar Cancer Institute in Fairfax
Hi everyone. A quick background. Age 59. Was diagnosed in Nov 2023 with Gleason 3+4=7 Intermediate Unfavorable (10 of 15 cores positive) and tumor in both side of prostate. PSA 5.9 Decipher .49 Bone Scan showed no metastasis Met with Multi Discipline team at Inova Schar Cancer Institute in Fairfax
Seminole0412
in
Advanced Prostate Cancer
5 months ago
Hot Flashes and Veozah
I am 19 months into my 2 years on ADT + Zytiga & P. 6 months into it, I started experiencing severe hot flashes. Severe = Full body sweats, dripping off my brow, palms wet and needing to mop it off my chest or change my shirt. Every 1 -2 hours. I tried 4 antidepressants that didn't work. I then
I am 19 months into my 2 years on ADT + Zytiga & P. 6 months into it, I started experiencing severe hot flashes. Severe = Full body sweats, dripping off my brow, palms wet and needing to mop it off my chest or change my shirt. Every 1 -2 hours. I tried 4 antidepressants that didn't work. I then
Huzzah1
in
Advanced Prostate Cancer
5 months ago
Prostate cancer treatment and sexual mutilation
Well well. In the midst of the club no one wants to be a part of and just wanted to add my input. It seems that the treatment of prostate cancer often glazes over the fact that you will be sexually impacted severely. Depending on treatment outcome that could be a 0 to 7. Seems like the topic isn’t really
Well well. In the midst of the club no one wants to be a part of and just wanted to add my input. It seems that the treatment of prostate cancer often glazes over the fact that you will be sexually impacted severely. Depending on treatment outcome that could be a 0 to 7. Seems like the topic isn’t really
Yokohama2023
in
Advanced Prostate Cancer
5 months ago
Names of ADT and antiADT Drugs
I would like a simple list of the medical names and brand names of the various prostate hormone treatment drugs to keep them straight.
I would like a simple list of the medical names and brand names of the various prostate hormone treatment drugs to keep them straight.
Worked_the_World
in
Advanced Prostate Cancer
5 months ago
Back in permanent AF and warfarin dose decrease
Hi All, I used to have paroxysmal AF which was ablated by Prof Schilling back in 2010. I had been in NSR. However I was diagnosed with prostate cancer back in the summer. I had huge delays and postponements before I had a biopsy. I eventually got the results 5 weeks later (rather than the two weeks promised
Hi All, I used to have paroxysmal AF which was ablated by Prof Schilling back in 2010. I had been in NSR. However I was diagnosed with prostate cancer back in the summer. I had huge delays and postponements before I had a biopsy. I eventually got the results 5 weeks later (rather than the two weeks promised
MarkS
in
AF Association
5 months ago
ADT yes or no
My urologist has recommended ADT treatment followed by radiation. I am concerned about the ADT because of the side effects. What are the risks with radiation without ADT?
My urologist has recommended ADT treatment followed by radiation. I am concerned about the ADT because of the side effects. What are the risks with radiation without ADT?
MontanaMan
in
Advanced Prostate Cancer
5 months ago
Orgovyx + Abiaterone?
I have very high risk prostate cancer (Gleason 9, negative PSMA for spread, MRI suggests possible spread to seminal vessel, PSA in 7s before treatment). Due to cardiac history (stroke and heart attack) MO is being cautious and has started dosing Eligard at 1 Month intervals to make sure I am doing ok
I have very high risk prostate cancer (Gleason 9, negative PSMA for spread, MRI suggests possible spread to seminal vessel, PSA in 7s before treatment). Due to cardiac history (stroke and heart attack) MO is being cautious and has started dosing Eligard at 1 Month intervals to make sure I am doing ok
Hope49823
in
Advanced Prostate Cancer
5 months ago
Shoud I be concerned with my PSA rising from .79 to 1.01 in about 10 months?
Diagnosed with prostate cancer in August'18 with PSA of 7.84, Greason score of 7 (4+3) before being treated with SBRT without ADT at UCLA in October'18. Reached nadir at .79 after 4.5 years after SBRT treatment. My latest PSA number as of 01/12/24 is 1.01 as compared to 0.93 (10/16/23), 0.93 (07
Diagnosed with prostate cancer in August'18 with PSA of 7.84, Greason score of 7 (4+3) before being treated with SBRT without ADT at UCLA in October'18. Reached nadir at .79 after 4.5 years after SBRT treatment. My latest PSA number as of 01/12/24 is 1.01 as compared to 0.93 (10/16/23), 0.93 (07
mike2344
in
Prostate Cancer Network
5 months ago
Needing some input after gastroscope
Hi all: So I had a gastroscope yesterday and today I’m riddled with extreme fatigue. I’ve had a gastroscope before and never experienced such fatigue. The other times there was an anesthesiologist that gave me drugs to put me to sleep. This time an egotistic doctor informed me the procedure would be
Hi all: So I had a gastroscope yesterday and today I’m riddled with extreme fatigue. I’ve had a gastroscope before and never experienced such fatigue. The other times there was an anesthesiologist that gave me drugs to put me to sleep. This time an egotistic doctor informed me the procedure would be
Rosebud1955
in
Thyroid UK
5 months ago
Cribiform Prostate Cancer
I have some findings of cribiform cancer in my cancer biopsy. I will start treatment with ADT this mnonth and SBRT in April, 2024. Cribiform cancer in the literature is associated with significantly worse outcomes. Does anyone have experience with this?
I have some findings of cribiform cancer in my cancer biopsy. I will start treatment with ADT this mnonth and SBRT in April, 2024. Cribiform cancer in the literature is associated with significantly worse outcomes. Does anyone have experience with this?
Worked_the_World
in
Advanced Prostate Cancer
5 months ago
TSH rising inexplicably
Hi, I haven’t posted for years because things had been as stable as they could be for someone with ME, but in the last year my TSH has gone from suppressed on T3 only therapy to high ‘normal’ to just over ‘normal’ to my latest blood of TSH 7.86. Sorry this is a long post I am a complicated case.
Hi, I haven’t posted for years because things had been as stable as they could be for someone with ME, but in the last year my TSH has gone from suppressed on T3 only therapy to high ‘normal’ to just over ‘normal’ to my latest blood of TSH 7.86. Sorry this is a long post I am a complicated case.
sulamaye
in
Thyroid UK
5 months ago
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