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Old Guy Update
I was diagnosed in November 2020 with stage 4 Ductal adenocarcinoma of the prostate. I had EBRT and 24 months of ADT which was terminated in October of 2022. My PSA at that time was undetectable and my Testosterone was also undetectable. It’s now July 2024, and my PSA is 0.2 and my Testosterone is 10
I was diagnosed in November 2020 with stage 4 Ductal adenocarcinoma of the prostate. I had EBRT and 24 months of ADT which was terminated in October of 2022. My PSA at that time was undetectable and my Testosterone was also undetectable. It’s now July 2024, and my PSA is 0.2 and my Testosterone is 10
TottenhamMan
in
Advanced Prostate Cancer
3 months ago
PSA at 0.285
I had my RP last January but the cancers had sneaked out to my lymph node already (no other met) so my PSA was always detectable. I started hormonal therapy last April and my PSA went down right away. It had been that way till this week ( PSA was up and down, the lowest was 0.02, usually was 0.05.).
I had my RP last January but the cancers had sneaked out to my lymph node already (no other met) so my PSA was always detectable. I started hormonal therapy last April and my PSA went down right away. It had been that way till this week ( PSA was up and down, the lowest was 0.02, usually was 0.05.).
Formosan
in
Advanced Prostate Cancer
3 months ago
Can I trust a second opinion?
It's not that I don't trust my MO, but he seems to be quite SOC, and doesn't offer options unless I bring them up. Which I have been doing. I even seem to have a reputation for having good questions. Which I am glad to hear, but frankly I don't feel I'm as well educated as all that 🙄. It could be that
It's not that I don't trust my MO, but he seems to be quite SOC, and doesn't offer options unless I bring them up. Which I have been doing. I even seem to have a reputation for having good questions. Which I am glad to hear, but frankly I don't feel I'm as well educated as all that 🙄. It could be that
Lewellen
in
Advanced Prostate Cancer
3 months ago
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Silent Reflux and B12 Deficiency- Any Link?
Hello! I was diagnosed with low B12 following a blood test in December last year, on injections but only had 3 of the 6 loading doses then was moved on to one every three months due to severe side effects that worried my GP. Had my first of the 3 monthly ones a few weeks ago and all went well. I saw
Hello! I was diagnosed with low B12 following a blood test in December last year, on injections but only had 3 of the 6 loading doses then was moved on to one every three months due to severe side effects that worried my GP. Had my first of the 3 monthly ones a few weeks ago and all went well. I saw
Hidden
in
Pernicious Anaemia Society
3 months ago
Bronscospopy results
Hi There, I had a bronscospopy on Tuesday. I haven't heard anything back yet does that mean it's Not lung cancer. Thorax scan in January showed some abnormalities. Consultant wasn't sure if old infection or fungal disease ect or even TB. Many Thanks Emma
Hi There, I had a bronscospopy on Tuesday. I haven't heard anything back yet does that mean it's Not lung cancer. Thorax scan in January showed some abnormalities. Consultant wasn't sure if old infection or fungal disease ect or even TB. Many Thanks Emma
EmmaB66
in
The Roy Castle Lung Cancer Foundation
7 months ago
Test results advice please
I was diagnosed Type 2 hypothyroid about 10 years ago. I am currently on 150 mg levothyroxine. I am late 40s, and am on HRT daily: oestrogen 5 pumps, testosterone 1/8 packet; double cerelle ( progesterone ). I am absolutely shattered and feeling constantly unwell. I am struggling with everything - physically
I was diagnosed Type 2 hypothyroid about 10 years ago. I am currently on 150 mg levothyroxine. I am late 40s, and am on HRT daily: oestrogen 5 pumps, testosterone 1/8 packet; double cerelle ( progesterone ). I am absolutely shattered and feeling constantly unwell. I am struggling with everything - physically
strawberryflower
in
Thyroid UK
3 months ago
Hormone Therapy
.Hi..So my husband was diagnosed with Prostate Cancer via a routine check during a GPs appointment...It was 2020,and we went into lockdown for Covid not long after..He elected to have a Prostatectomy, but unfortunately his PSA never went to zero...Levels remained low, and he had a PET scan, which
.Hi..So my husband was diagnosed with Prostate Cancer via a routine check during a GPs appointment...It was 2020,and we went into lockdown for Covid not long after..He elected to have a Prostatectomy, but unfortunately his PSA never went to zero...Levels remained low, and he had a PET scan, which
debbiejayn
in
Advanced Prostate Cancer
3 months ago
The continuing saga of Scout and Coco, Not all change is welcome.
It is with sadness that I report that My "vacation" may come to an abrupt end . After cruising along with an Undetectable PSA for a little over 2+ years, my recent test results indicate a PSA of 0.03 and my Testosterone jumped from <7 to 13. The good news is my T is coming back but it looks like
It is with sadness that I report that My "vacation" may come to an abrupt end . After cruising along with an Undetectable PSA for a little over 2+ years, my recent test results indicate a PSA of 0.03 and my Testosterone jumped from <7 to 13. The good news is my T is coming back but it looks like
Scout4answers
in
Advanced Prostate Cancer
3 months ago
Need for less thyroid hormone replacement in summer
Hello everyone, Just a general question as to whether any of you find that you need less thyroid hormone in the summer months? I’ve been well on a dose of combination t4/t3 for about 8 months now- having found my sweet spot last October. However over the past couple of weeks I’ve been experiencing
Hello everyone, Just a general question as to whether any of you find that you need less thyroid hormone in the summer months? I’ve been well on a dose of combination t4/t3 for about 8 months now- having found my sweet spot last October. However over the past couple of weeks I’ve been experiencing
LucyYoga
in
Thyroid UK
3 months ago
Are teeth affected by ADT or Xtandi?
after about 2 months of Lupron and Xtandi my teeth are tender and sore. Any correlation?
after about 2 months of Lupron and Xtandi my teeth are tender and sore. Any correlation?
CousinGrandpa
in
Prostate Cancer Network
3 months ago
AB-1005
By posting this I am not necessarily advocating this treatment just trying to find out more information on how it is made and how it is administered [u]Gene therapy AB-1005 found safe in Phase 1b Parkinson’s trial[/u] https://parkinsonsnewstoday.com/news/gene-therapy-ab-1005-safe-phase-1b-trial/?utm_source
By posting this I am not necessarily advocating this treatment just trying to find out more information on how it is made and how it is administered [u]Gene therapy AB-1005 found safe in Phase 1b Parkinson’s trial[/u] https://parkinsonsnewstoday.com/news/gene-therapy-ab-1005-safe-phase-1b-trial/?utm_source
Boscoejean
in
Cure Parkinson's
9 months ago
Elgard v Lupron
I’ve experienced slowly increasing side effects over the past six to nine months. I passed it off to age and time on ADT, but I’ve recently discovered that I was switched from Lupron Depot to Eligard last November. Everything I read says the SEs should be the same. Has anyone else experienced the
I’ve experienced slowly increasing side effects over the past six to nine months. I passed it off to age and time on ADT, but I’ve recently discovered that I was switched from Lupron Depot to Eligard last November. Everything I read says the SEs should be the same. Has anyone else experienced the
Papa1
in
Advanced Prostate Cancer
3 months ago
Advice on blood test results
10 years after full thyroidectomy (goitre with 4 nodules) and years of somewhat very unstable hormone replacement levels (on levothyroxine only), here are my most recent blood tests done early morning without taking Levothyroxine: 0.48TSH and Free T4: 12.4 I had asked a full panel but got this only
10 years after full thyroidectomy (goitre with 4 nodules) and years of somewhat very unstable hormone replacement levels (on levothyroxine only), here are my most recent blood tests done early morning without taking Levothyroxine: 0.48TSH and Free T4: 12.4 I had asked a full panel but got this only
Lily1970
in
Thyroid UK
3 months ago
PSA still undetectable and testosterone doubles to 1.6
Just an update as I yesterday was blood test day. I’m continuing with the Apalutamide monotherapy, still enjoying working full time and just back from an Italian lake holiday. So no movement on my PSA but interesting to see testosterone creeping up ( 11 months since my last Zoledex injection so 8
Just an update as I yesterday was blood test day. I’m continuing with the Apalutamide monotherapy, still enjoying working full time and just back from an Italian lake holiday. So no movement on my PSA but interesting to see testosterone creeping up ( 11 months since my last Zoledex injection so 8
Brysonal
in
Fight Prostate Cancer
3 months ago
Docetaxel
Anyone willing to share experiences with Docetaxel? Good, Bad, and Ugly. Any recommendations or advice to help with side effects etc. My husband is in year 7… He has been on the traditional SOC with ADT… Lupron, Firmagon, Nubequa, and lastly Zytiga. All have ceased working. His PSA has risen to
Anyone willing to share experiences with Docetaxel? Good, Bad, and Ugly. Any recommendations or advice to help with side effects etc. My husband is in year 7… He has been on the traditional SOC with ADT… Lupron, Firmagon, Nubequa, and lastly Zytiga. All have ceased working. His PSA has risen to
JolleySprings
in
Advanced Prostate Cancer
3 months ago
10 weeks in, not feeling great
I am a 57 year old woman, and had an Nstemi 10 weeks ago, and one stent fitted. I am on 2.5 bisoprolol, tricagrelor, 10 of ramipril, 80 statins and also aspirin. My ejection fraction was poor at 45 (which I found a bit upsetting when it transpired I was the lowest in the rehab class) I was on HRT before
I am a 57 year old woman, and had an Nstemi 10 weeks ago, and one stent fitted. I am on 2.5 bisoprolol, tricagrelor, 10 of ramipril, 80 statins and also aspirin. My ejection fraction was poor at 45 (which I found a bit upsetting when it transpired I was the lowest in the rehab class) I was on HRT before
Pinksock2
in
British Heart Foundation
3 months ago
New to this group/been dealing with FND for a few years
Hi! I'm Angie and have been battling with weird physical symptoms for 3 1/2 years to Finally get a Functional Neurological Disorder/Functional Movement Disorder diagnosis. I am now in Cognitive Behavioral Therapy to re-train my brain and Physical Therapy to address the physical side of things and it
Hi! I'm Angie and have been battling with weird physical symptoms for 3 1/2 years to Finally get a Functional Neurological Disorder/Functional Movement Disorder diagnosis. I am now in Cognitive Behavioral Therapy to re-train my brain and Physical Therapy to address the physical side of things and it
eclipsetucker
in
Functional Neurological Disorder - FND Hope
3 months ago
Is PSMA PET Scan worth it when PSA<0.2
My MO recommends taking PET CT F18 -DCFPYL in case I want to go intermittent after two years of Lupron and Erleada. My PSA is still less than 0.2. I had one PSMA in March 2022 when PSA was rising to 1.03. Scan show 3 preaortic lymph nodes and two spot on ribs. Then 6 weeks RT and ADT (Lupron, Erleada
My MO recommends taking PET CT F18 -DCFPYL in case I want to go intermittent after two years of Lupron and Erleada. My PSA is still less than 0.2. I had one PSMA in March 2022 when PSA was rising to 1.03. Scan show 3 preaortic lymph nodes and two spot on ribs. Then 6 weeks RT and ADT (Lupron, Erleada
Maxi54
in
Advanced Prostate Cancer
3 months ago
NHS Endo - South East - Pro T3 - Three referral choices...
Hi, I went T3 only 3 weeks ago after trying combination therapy for 6 months. At around the same I had my local surgery test for blood FBC, blood sugar, cholesterol, calcium folate, B12 Iron etc. This was just to check for my self that I wasn't encountering any other issues. To my surprise they also
Hi, I went T3 only 3 weeks ago after trying combination therapy for 6 months. At around the same I had my local surgery test for blood FBC, blood sugar, cholesterol, calcium folate, B12 Iron etc. This was just to check for my self that I wasn't encountering any other issues. To my surprise they also
joey82
in
Thyroid UK
9 months ago
hysterectomy
hi all I’ve just had an appointment with my consultant and looking for some advice..I’m 42 with severe endo and he’s advised a total hysterectomy with hrt.. but he’s advised me the wait will be another yr 😞 AGAIN! Anyway because of the wait he has suggested I start the process early by having an injection
hi all I’ve just had an appointment with my consultant and looking for some advice..I’m 42 with severe endo and he’s advised a total hysterectomy with hrt.. but he’s advised me the wait will be another yr 😞 AGAIN! Anyway because of the wait he has suggested I start the process early by having an injection
Peetzo
in
Endometriosis UK
3 months ago
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