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EVIDENCE NEEDED PLEASE! In the past year, have you been told your T3 will be removed, or you can't start T3 due to national/local policies?
I co-lead ITT Improve Thyroid Treatment group (currently on Facebook, but hopefully a website soon) We work on certain pieces of work with Thyroid UK and The Thyroid Trust. In August 2023 NHSE issued 2 pieces of guidance related to T3 prescribing - They contradicted each other, but one said all patients
I co-lead ITT Improve Thyroid Treatment group (currently on Facebook, but hopefully a website soon) We work on certain pieces of work with Thyroid UK and The Thyroid Trust. In August 2023 NHSE issued 2 pieces of guidance related to T3 prescribing - They contradicted each other, but one said all patients
TaraJR
in
Thyroid UK
2 months ago
Novothyral
Hi all, I am currently in Spain where liothyronine is not offered at all. I have now had my third set of bloods since being on levothyroxine and my T3 has not increased from the very lowest normal lab result. I was wondering if anyone within Europe has got hold of it, it appears to only be available
Hi all, I am currently in Spain where liothyronine is not offered at all. I have now had my third set of bloods since being on levothyroxine and my T3 has not increased from the very lowest normal lab result. I was wondering if anyone within Europe has got hold of it, it appears to only be available
Holaguapa
in
Thyroid UK
2 months ago
reduced T3 and weight gain
I was advised by people on this forum to reduce my T3 slightly and I feel better on the lsightly reduced dose. I have more energy. less need to sleep in the day. The problem is I am getting sudden weight gains. I gained four pound yesterday. i have lost about 9 stone on my previous dose using intermittant
I was advised by people on this forum to reduce my T3 slightly and I feel better on the lsightly reduced dose. I have more energy. less need to sleep in the day. The problem is I am getting sudden weight gains. I gained four pound yesterday. i have lost about 9 stone on my previous dose using intermittant
Hectorsmum2
in
Thyroid UK
2 months ago
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Obtaining T3 in the UK
It appears I am a poor converter of T4 to T3 and would benefit from taking
T3
. I am aware the doctors won’t even
test
for
T3
levels, let alone prescribe it. Can anyone recommend a reliable company that sells T3 or even a way to get prescribed in the UK.
It appears I am a poor converter of T4 to T3 and would benefit from taking
T3
. I am aware the doctors won’t even
test
for
T3
levels, let alone prescribe it. Can anyone recommend a reliable company that sells T3 or even a way to get prescribed in the UK.
DylanA
in
Thyroid UK
9 months ago
Increase prednisone to help pain temporarily
as posted few times have to get MRI done on both hips this Sat, tried to get left hip done about a month ago, couldnt tolerate on MRI table , because if excrutiating pain in right groin, they had to stop process, I was in tears from pain, report to dr said patient needs sedation for pain , now ortho
as posted few times have to get MRI done on both hips this Sat, tried to get left hip done about a month ago, couldnt tolerate on MRI table , because if excrutiating pain in right groin, they had to stop process, I was in tears from pain, report to dr said patient needs sedation for pain , now ortho
arvine
in
PMRGCAuk
2 months ago
Anyone recent experience Carlisle NHS endos?
As a continuation of post the other day re high HR with Long Covid: Gp wants an endo involved to give blessing to his desire to reduce my levo. My private endo who I have seen by zoom during covid is rather expensive and needs paying to get an advisory letter from ( now use Roseway Labs prescriber scheme
As a continuation of post the other day re high HR with Long Covid: Gp wants an endo involved to give blessing to his desire to reduce my levo. My private endo who I have seen by zoom during covid is rather expensive and needs paying to get an advisory letter from ( now use Roseway Labs prescriber scheme
Judithdalston
in
Thyroid UK
2 months ago
Considering roseway labs for t3 mono
I switched to t3 mono therapy back in March from NDT and I’m feeling so much better on it. I am looking for a uk prescriber who will supply. Do Roseway labs work with t3 mono does anyone know please? And how does their system work. I’ve looked on the website and it looks like you have a consultation
I switched to t3 mono therapy back in March from NDT and I’m feeling so much better on it. I am looking for a uk prescriber who will supply. Do Roseway labs work with t3 mono does anyone know please? And how does their system work. I’ve looked on the website and it looks like you have a consultation
Knackeredandcross
in
Thyroid UK
2 months ago
Expensive T3
Just had a phone call from my nhs pharmacy who have stated that they are unable to get Thybon Henning as it costs £1,000.00 a box.Is this true? Or maybe just a ployto get me to use the capsules nhs prescribe?
Just had a phone call from my nhs pharmacy who have stated that they are unable to get Thybon Henning as it costs £1,000.00 a box.Is this true? Or maybe just a ployto get me to use the capsules nhs prescribe?
Geegee777
in
Thyroid UK
2 months ago
goitre scan
A couple of years ago I had a goitre that was obstructing my breathing at night. I was sent for a scan but missed my appointment. It has since I presume got smaller as my breathing is now fine thanks to some T3. I just wondered if it would still be nessasary to get a scan to check for nodules etc.
A couple of years ago I had a goitre that was obstructing my breathing at night. I was sent for a scan but missed my appointment. It has since I presume got smaller as my breathing is now fine thanks to some T3. I just wondered if it would still be nessasary to get a scan to check for nodules etc.
Hectorsmum2
in
Thyroid UK
2 months ago
Looking for T3 sources
Hi, I am looking for trustworthy sources to get T3 online without prescription, shipping to France. Thanks in advance for the messages
Hi, I am looking for trustworthy sources to get T3 online without prescription, shipping to France. Thanks in advance for the messages
koala46
in
Thyroid UK
2 months ago
Moving to T3 only experience
Hi everyone, Could you please tell me how you moved to t3 only, especially if moving from NDT? How many doses are you taking? Was it easy to move or difficult? Are your symptoms much improved? Thanks 😀
Hi everyone, Could you please tell me how you moved to t3 only, especially if moving from NDT? How many doses are you taking? Was it easy to move or difficult? Are your symptoms much improved? Thanks 😀
Incoguto
in
Thyroid UK
2 months ago
please help in tears - results in for markers PN1P 106 and CTX 0.5
please can someone help me I’m having a panic attack and crying Results PN1P 106 and CTX 0.5 I got them from the hospital by phone and not got my clinic letter as yet. Long history which I will shorten for overview 48 and DEXA -3.4 lower spine No periods for 15 years low bmi I had no oestrogen
please can someone help me I’m having a panic attack and crying Results PN1P 106 and CTX 0.5 I got them from the hospital by phone and not got my clinic letter as yet. Long history which I will shorten for overview 48 and DEXA -3.4 lower spine No periods for 15 years low bmi I had no oestrogen
Chouchou1234
in
Bone Health and Osteoporosis UK
2 months ago
thyroid help
hey guys . so I was diagnosed with hashimotos 6 years ago Iv been on Lavo for this time. But I’m feeling awful my heart is struggling also but my bloods all keep coming back as in good range. . A lady said that may be but it may not be converting to t3 I don’t really understand it all. . I’m thinking
hey guys . so I was diagnosed with hashimotos 6 years ago Iv been on Lavo for this time. But I’m feeling awful my heart is struggling also but my bloods all keep coming back as in good range. . A lady said that may be but it may not be converting to t3 I don’t really understand it all. . I’m thinking
Nejy42
in
Thyroid UK
2 months ago
How long to adjust to lower T3 dosage?
Further to my last post I am just wondering how long it takes for the body to adjust to a lower T3 dosage? I've been on 6.25mcg down from 12.5mcg for 7 days now and am struggling a bit with tiredness washing over me in the afternoons and needing to lie down after walks. I'm going on holiday on Tuesday
Further to my last post I am just wondering how long it takes for the body to adjust to a lower T3 dosage? I've been on 6.25mcg down from 12.5mcg for 7 days now and am struggling a bit with tiredness washing over me in the afternoons and needing to lie down after walks. I'm going on holiday on Tuesday
diamondial
in
Thyroid UK
2 months ago
Update
Hi everyone just to update on my T3, I had to come off it, it was definitely not agreeing with me. I went on it first back in Dec. 23 and started by quarter of pill after a few weeks half but I started to get very distressing breathlessness and I have Asthma so I knew this was a very different breathlessness
Hi everyone just to update on my T3, I had to come off it, it was definitely not agreeing with me. I went on it first back in Dec. 23 and started by quarter of pill after a few weeks half but I started to get very distressing breathlessness and I have Asthma so I knew this was a very different breathlessness
Nicola1964
in
Thyroid UK
2 months ago
Every thyroid symptom and no result?
Hi I have been struggling with every thyroid symptom in the book - especially extreme cold hands and feet and a terrible metabolism. I was on a very small amount of T3 for some years and recently came off due to the Unipharma brand not being produced any more and that even on the T3 I still have all
Hi I have been struggling with every thyroid symptom in the book - especially extreme cold hands and feet and a terrible metabolism. I was on a very small amount of T3 for some years and recently came off due to the Unipharma brand not being produced any more and that even on the T3 I still have all
Tuxi1
in
Thyroid UK
2 months ago
T3 Dose
I've just received my T3 prescription and nervous to start after reading through posts on side effects! I'm on 125mg levo, no thyroid for 13 years and poor converter. My endo put me on 10mg twice a day, but having received good advice on here, I understand that I need to start on a much lower dose. My
I've just received my T3 prescription and nervous to start after reading through posts on side effects! I'm on 125mg levo, no thyroid for 13 years and poor converter. My endo put me on 10mg twice a day, but having received good advice on here, I understand that I need to start on a much lower dose. My
DarkStar85
in
Thyroid UK
2 months ago
T3 and changing surgery/District County UK
Hello It took me years to get on T3 if I change area are the new surgery obligated to carry it over, the only thing written in endocrinologist letter re medical need is in view of symptomatic relief can continue T3
Hello It took me years to get on T3 if I change area are the new surgery obligated to carry it over, the only thing written in endocrinologist letter re medical need is in view of symptomatic relief can continue T3
Stace268
in
Thyroid UK
2 months ago
T3 Dosage
Hi everyone My GP referred me to endocrinology. They called me a few weeks ago & suggested I lower my dose of T3 , I take 75mcg of cytomel. I was advised to take 50mcg. I asked the reason why. He said it was because t3 has long term effects of osteoporosis. I feel like 75mcg is the perfect dose
Hi everyone My GP referred me to endocrinology. They called me a few weeks ago & suggested I lower my dose of T3 , I take 75mcg of cytomel. I was advised to take 50mcg. I asked the reason why. He said it was because t3 has long term effects of osteoporosis. I feel like 75mcg is the perfect dose
Hippyhappy234
in
Thyroid UK
2 months ago
T3 Dose Help
I'm due to see an endocrinologist privately tomorrow for the first time. I've been on levo for 13 years after a TT for ThyCa. I've never taken T3 so I'll be asking to try it since I've felt rubbish for 13 years! So my question is what kind of dose of T3 would I expect to take initially? I'm on 150mg
I'm due to see an endocrinologist privately tomorrow for the first time. I've been on levo for 13 years after a TT for ThyCa. I've never taken T3 so I'll be asking to try it since I've felt rubbish for 13 years! So my question is what kind of dose of T3 would I expect to take initially? I'm on 150mg
DarkStar85
in
Thyroid UK
2 months ago
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