I have been struggling with every thyroid symptom in the book - especially extreme cold hands and feet and a terrible metabolism.
I was on a very small amount of T3 for some years and recently came off due to the Unipharma brand not being produced any more and that even on the T3 I still have all the symptoms of thyroid! (my body didn't like cytomel)
Got my doctor to do some tests these last two months and they have all come out in the "normal" range. Is there anything in my results that could show a thyroid concern? I am wondering where to go from here really as have so many struggles. I was tested a while ago for Lyme through Armin labs and it came back positive if that makes a difference?
And I had an early menopause at 28 and now have osteoporosis. I feel my hormones have always been up the creek and am now pretty desperate to try and sort it out.
Any advise much appreciated - Thank you.
Here are my results...
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Tuxi1
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Ok- so they didn't take T3 in May so I got them to do it in July then they failed to do the T4!
I was on T3 6ug for about 7 years and stopped due to lack of pills in March this year.
Are you saying my TSH is supressed? What numbers look suppressed and what does this have to do with the thyroid? Does it mean it is not working optimally?
I attatch my results from January when i was on the T3.
I have just had a positive test result for TSH TRAB - which I don't really know how it plays into things as this may be indicative of Graves and hyperthyroid but I have many more hypothyroid symptoms than hyper so that doesn't make sense at all!
Please help if you can as something is very wrong and I really can't work it all out!
Taking any replacement thyroid hormone will lower TSH reducing how much your own thyroid makes
This is why once we start on replacement thyroid hormones we invariably end up on full replacement dose eventually
Taking T3 will lower TSH significantly more than Levo
It’s always important once taking Levo, or T3, or mix of both to be taking high enough dose
On levothyroxine ONLY typically Ft4 will need to be at least 60-70% through range…..that’s likely on average to be around 1.6mcg Levo per kilo of your weight per day…..starting Levo slowly at 50mcg ….retesting 2-3 months after each increase and building up in 25mcg steps…..
T3 is usually only added if, once Ft4 is optimal…..and all vitamins at good levels…..if Ft3 remains low but Ft4 high then adding small dose alongside Levo ….usually 2 x 5mcg initially……and often eventually 3 x 5mcg per day or 20mcg per day in divided dose
If on T3 only, (which is very rare) more likely to eventually be on something between 40mcg - 60mcg daily.
TRAb antibodies is test for Graves’ disease (autoimmune hyperthyroid)
Your result just above range
I have just had a positive test result for TSH TRAB - which I don't really know how it plays into things as this may be indicative of Graves and hyperthyroid but I have many more hypothyroid symptoms than hyper so that doesn't make sense at all!
It’s possible (but rare) to have Hashimoto’s and Graves’ disease together…..this would be managed by an endocrinologist
For full Thyroid evaluation you need TSH, FT4 and FT3 tested
Also both TPO and TG thyroid antibodies tested at least once to see if your hypothyroidism is autoimmune
Very important to test vitamin D, folate, ferritin and B12 at least once year minimum
Low vitamin levels are extremely common with any autoimmune thyroid disease
About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high TPO and/or high TG thyroid antibodies
Autoimmune thyroid disease with goitre is Hashimoto’s
Autoimmune thyroid disease without goitre is Ord’s thyroiditis.
Both are autoimmune and generally called Hashimoto’s.
Significant minority of Hashimoto’s patients only have high TG antibodies (thyroglobulin)
20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis
In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)
Essential to test vitamin D, folate, ferritin and B12
Lower vitamin levels more common as we get older
For good conversion of Ft4 (levothyroxine) to Ft3 (active hormone) we must maintain GOOD vitamin levels
What vitamin supplements are you taking
Also VERY important to test TSH, Ft4 and Ft3 together
Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
T3 ….day before test split T3 as 2 or 3 smaller doses spread through the day, with last dose approximately 8-12 hours before test
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
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