Every thyroid symptom and no result?: Hi I have... - Thyroid UK

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Every thyroid symptom and no result?

Tuxi1 profile image
10 Replies

Hi

I have been struggling with every thyroid symptom in the book - especially extreme cold hands and feet and a terrible metabolism.

I was on a very small amount of T3 for some years and recently came off due to the Unipharma brand not being produced any more and that even on the T3 I still have all the symptoms of thyroid! (my body didn't like cytomel)

Got my doctor to do some tests these last two months and they have all come out in the "normal" range. Is there anything in my results that could show a thyroid concern? I am wondering where to go from here really as have so many struggles. I was tested a while ago for Lyme through Armin labs and it came back positive if that makes a difference?

And I had an early menopause at 28 and now have osteoporosis. I feel my hormones have always been up the creek and am now pretty desperate to try and sort it out.

Any advise much appreciated - Thank you.

Here are my results...

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10 Replies
SlowDragon profile image
SlowDragonAdministrator

I was on a very small amount of T3 for some years and recently came off

How much T3

And how long ago did you stop

What were results on T3

Taking almost any dose of T3 will significantly lower or completely suppress TSH

It can take many, many months for TSH to recover…..

There’s no Ft4 or vitamin results in July testing

Tuxi1 profile image
Tuxi1 in reply toSlowDragon

Ok- so they didn't take T3 in May so I got them to do it in July then they failed to do the T4!

I was on T3 6ug for about 7 years and stopped due to lack of pills in March this year.

Are you saying my TSH is supressed? What numbers look suppressed and what does this have to do with the thyroid? Does it mean it is not working optimally?

I attatch my results from January when i was on the T3.

I have just had a positive test result for TSH TRAB - which I don't really know how it plays into things as this may be indicative of Graves and hyperthyroid but I have many more hypothyroid symptoms than hyper so that doesn't make sense at all!

Please help if you can as something is very wrong and I really can't work it all out!

results
SlowDragon profile image
SlowDragonAdministrator in reply toTuxi1

Taking any replacement thyroid hormone will lower TSH reducing how much your own thyroid makes

This is why once we start on replacement thyroid hormones we invariably end up on full replacement dose eventually

Taking T3 will lower TSH significantly more than Levo

It’s always important once taking Levo, or T3, or mix of both to be taking high enough dose

On levothyroxine ONLY typically Ft4 will need to be at least 60-70% through range…..that’s likely on average to be around 1.6mcg Levo per kilo of your weight per day…..starting Levo slowly at 50mcg ….retesting 2-3 months after each increase and building up in 25mcg steps…..

T3 is usually only added if, once Ft4 is optimal…..and all vitamins at good levels…..if Ft3 remains low but Ft4 high then adding small dose alongside Levo ….usually 2 x 5mcg initially……and often eventually 3 x 5mcg per day or 20mcg per day in divided dose

If on T3 only, (which is very rare) more likely to eventually be on something between 40mcg - 60mcg daily.

SlowDragon profile image
SlowDragonAdministrator in reply toTuxi1

TRAb antibodies is test for Graves’ disease (autoimmune hyperthyroid)

Your result just above range

I have just had a positive test result for TSH TRAB - which I don't really know how it plays into things as this may be indicative of Graves and hyperthyroid but I have many more hypothyroid symptoms than hyper so that doesn't make sense at all!

It’s possible (but rare) to have Hashimoto’s and Graves’ disease together…..this would be managed by an endocrinologist

You need TPO and TG antibodies tested as well

Tuxi1 profile image
Tuxi1 in reply toSlowDragon

thank you!

humanbean profile image
humanbean

What is "Calc of FAI"?

Tuxi1 profile image
Tuxi1 in reply tohumanbean

no idea sorry

Espeegee profile image
Espeegee in reply tohumanbean

Free Androgen Index! gpnotebook.com/en-GB/pages/... Wonder why it was done? You need to ask

Tuxi1 profile image
Tuxi1 in reply toEspeegee

Must be something to do with me trying to find out what my testosterone is doing since I recently started taking it I suppose.

SlowDragon profile image
SlowDragonAdministrator

Suggest you retested again in another 6-8 weeks

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Also both TPO and TG thyroid antibodies tested at least once to see if your hypothyroidism is autoimmune

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Low vitamin levels are extremely common with any autoimmune thyroid disease

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high TPO and/or high TG thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

Significant minority of Hashimoto’s patients only have high TG antibodies (thyroglobulin)

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Essential to test vitamin D, folate, ferritin and B12

Lower vitamin levels more common as we get older

For good conversion of Ft4 (levothyroxine) to Ft3 (active hormone) we must maintain GOOD vitamin levels

What vitamin supplements are you taking

Also VERY important to test TSH, Ft4 and Ft3 together

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

T3 ….day before test split T3 as 2 or 3 smaller doses spread through the day, with last dose approximately 8-12 hours before test

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Post all about what time of day to test

healthunlocked.com/thyroidu...

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/testing/thyro...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/signs-and-sym...

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

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