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COVID
My husband just had a positive home covid test. My test was negative. I"ve phoned both onc and rad onc and am waiting to hear back about starting Taxol tomorrow and rads to lower spine on Thursday to see if there is any reason for me to delay either of these. I want to scream! Has anybody had
My husband just had a positive home covid test. My test was negative. I"ve phoned both onc and rad onc and am waiting to hear back about starting Taxol tomorrow and rads to lower spine on Thursday to see if there is any reason for me to delay either of these. I want to scream! Has anybody had
PJBinMI
in
SHARE Metastatic Breast Cancer
8 months ago
Rads to spine scheduled
I had an appt at the Rad Center (over 50 miles away) this morning. I don't remember what it's called, but it was for a scan to set things up for radiation for the pain in my lower back. So now I start weekly Taxol IVs at the cancer center on Wed. and have radiation this Thursday and Friday and then
I had an appt at the Rad Center (over 50 miles away) this morning. I don't remember what it's called, but it was for a scan to set things up for radiation for the pain in my lower back. So now I start weekly Taxol IVs at the cancer center on Wed. and have radiation this Thursday and Friday and then
PJBinMI
in
SHARE Metastatic Breast Cancer
8 months ago
Ovarian cancer recurrence
Firstly, hi to anyone who may stumble across my post. Long story short, I was diagnosed with stage 4 ovarian cancer back in 2020. I had an ultra radical debulking surgery in August that year, followed by 6 rounds of carbo/taxol and maintenance via olaparib. I had a CT scan back in August which highlighted
Firstly, hi to anyone who may stumble across my post. Long story short, I was diagnosed with stage 4 ovarian cancer back in 2020. I had an ultra radical debulking surgery in August that year, followed by 6 rounds of carbo/taxol and maintenance via olaparib. I had a CT scan back in August which highlighted
Guitarplayinghobbit
in
My Ovacome
8 months ago
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Fulvestrant and Kisquali
Hi All, I've recently found out I have a regional recurrence of my BC and my oncologist is recommending switching me to Fulvestrant and Kisquali . I was diagnosed 4 years ago with Stage 3 ,due to the size of the tumor and lymph node involvement, HR+ Her2-. I had a bilateral mastectomy with an
Hi All, I've recently found out I have a regional recurrence of my BC and my oncologist is recommending switching me to Fulvestrant and Kisquali . I was diagnosed 4 years ago with Stage 3 ,due to the size of the tumor and lymph node involvement, HR+ Her2-. I had a bilateral mastectomy with an
Jg1960
in
SHARE Breast Cancer Support
8 months ago
Mastectomies
My partner (38) was diagnosed with stage 4 Ovarian cancer in June after many earlier chances of diagnosis. There was also a mass in one of her breasts. She had gene testing and is BRCA 1 positive. She has had 4 doses of chemo, debulking surgery (which went well) and two further doses of chemo. She
My partner (38) was diagnosed with stage 4 Ovarian cancer in June after many earlier chances of diagnosis. There was also a mass in one of her breasts. She had gene testing and is BRCA 1 positive. She has had 4 doses of chemo, debulking surgery (which went well) and two further doses of chemo. She
Kernowafibber
in
My Ovacome
8 months ago
Private health insurance
has anyone been successful in getting a laparoscopy or cystectomy (cyst removal) in uk on private health insurance after already having had fertility treatment? I'm thinking of taking some out to check for silent endometriosis but worried they won't accept me as they will class fertility treatment as
has anyone been successful in getting a laparoscopy or cystectomy (cyst removal) in uk on private health insurance after already having had fertility treatment? I'm thinking of taking some out to check for silent endometriosis but worried they won't accept me as they will class fertility treatment as
Flora14
in
Fertility Network UK
5 months ago
PSA level vs vasectomy question
When I had my tubes cut, they were not sewn up or cauterized which I believe is standard practice (in states), I elected to just have a .375" chunk cut out of each of them then and everything stuffed back inside and sewn back scrotum. I did this so they would never be able to be reconnected or reversed
When I had my tubes cut, they were not sewn up or cauterized which I believe is standard practice (in states), I elected to just have a .375" chunk cut out of each of them then and everything stuffed back inside and sewn back scrotum. I did this so they would never be able to be reconnected or reversed
Nwdx
in
Advanced Prostate Cancer
5 months ago
preventative mastectomy
Good afternoon, Not been on here for a while , I was wondering if anyone here with the BRCA gene has had a preventative mastectomy, if so how was your experience? Did you have any regrets? We’re you happy with the surgery? What type ,if any reconstruction did you have? I was diagnosed with BRCA2 in
Good afternoon, Not been on here for a while , I was wondering if anyone here with the BRCA gene has had a preventative mastectomy, if so how was your experience? Did you have any regrets? We’re you happy with the surgery? What type ,if any reconstruction did you have? I was diagnosed with BRCA2 in
March2017
in
My Ovacome
9 months ago
urethral constriction
Had chemo and then cystectomy 10 years ago. Last few years, kidney stones then UTIs, until lithotripsy for the stones. But have urethral constriction, so every 4 month I have stents put through my stoma. Has anyone heard of, or had the procedure done for the constriction using Optilume? Supposedly
Had chemo and then cystectomy 10 years ago. Last few years, kidney stones then UTIs, until lithotripsy for the stones. But have urethral constriction, so every 4 month I have stents put through my stoma. Has anyone heard of, or had the procedure done for the constriction using Optilume? Supposedly
Phillip46
in
Kidney Disease
6 months ago
Connecting with others with metastatic recast cancer.
2019 diagnosed with metastatic breast cancer after 20 years from original diagnosis with 6 months chemo and double mastectomy. Responding well to treatment with no progression and remains stable. Bone Scan of Oct 2023 shows no progression and CT scans done every 3 months show no progression and remain
2019 diagnosed with metastatic breast cancer after 20 years from original diagnosis with 6 months chemo and double mastectomy. Responding well to treatment with no progression and remains stable. Bone Scan of Oct 2023 shows no progression and CT scans done every 3 months show no progression and remain
Harley_31
in
Women's Health
10 months ago
Good morning
Hello … I have been following the group for over 2 years now having been diagnosed with scleroderma and simultaneously breast cancer. I had a mastectomy, chemo etc and have returned to work .. teaching. . Two years on , where I thought I’d done a good job at keeping on track , keeping fit, I have developed
Hello … I have been following the group for over 2 years now having been diagnosed with scleroderma and simultaneously breast cancer. I had a mastectomy, chemo etc and have returned to work .. teaching. . Two years on , where I thought I’d done a good job at keeping on track , keeping fit, I have developed
bananasplits
in
Scleroderma & Raynaud's UK (SRUK)
10 months ago
Not where I expected to be
Hello to all, After my recent dx...shock...I decided to read other posts before I shared my story. I appreciate hearing about the travelling and CTGirl1962 mentioned handling this like a chronic illness... I have been a breast cancer survivor since 2010. That year my birthday present was having a
Hello to all, After my recent dx...shock...I decided to read other posts before I shared my story. I appreciate hearing about the travelling and CTGirl1962 mentioned handling this like a chronic illness... I have been a breast cancer survivor since 2010. That year my birthday present was having a
Hoehn
in
SHARE Metastatic Breast Cancer
10 months ago
Still here & BRCA elective Mastectomy
Hi all! Just thought I’d pop my head up and say hello and that I’m still here. 🎉 As I’m now 6 years 😱 post OC treatment I’ve taken the plunge and am having the operation to remove my potentially life threatening boobs! (I found out post OC that I’m BRCA 1 so have a ridiculously high chance of getting
Hi all! Just thought I’d pop my head up and say hello and that I’m still here. 🎉 As I’m now 6 years 😱 post OC treatment I’ve taken the plunge and am having the operation to remove my potentially life threatening boobs! (I found out post OC that I’m BRCA 1 so have a ridiculously high chance of getting
Emsymits
in
My Ovacome
10 months ago
BC Update with GP.
First I rang Macmillan and they thought it very odd my cancer had gone from high to low. So rang my consultants secretary and she was not there, the people in charge said they were not qualified to help. I saw my GP today and like myself had a letter with no details at the top, this matters because
First I rang Macmillan and they thought it very odd my cancer had gone from high to low. So rang my consultants secretary and she was not there, the people in charge said they were not qualified to help. I saw my GP today and like myself had a letter with no details at the top, this matters because
Ern007
in
Lung Conditions Community Forum
8 months ago
Hello
I was first diagnosed with stage 3 breast cancer in 2001 I had a mastectomy with reconstructive surgery followed by chemo and radiation. Following that I was put on Tamoxifen Arimidex and Taxol. After being off for 5 years last year in 2022 I was diagnosed in the other breast with cancer. I had surgery
I was first diagnosed with stage 3 breast cancer in 2001 I had a mastectomy with reconstructive surgery followed by chemo and radiation. Following that I was put on Tamoxifen Arimidex and Taxol. After being off for 5 years last year in 2022 I was diagnosed in the other breast with cancer. I had surgery
chancemiracle12
in
SHARE Metastatic Breast Cancer
11 months ago
Too much pain
Within under 2 years I've had a broken back, broken sternum, and 3 weeks ago a double mastectomy, and now arthritis of Lower spine, I can't stop and am making everything worse, fibromyalgia, originally diagnosed . So lonely and in pain.
Within under 2 years I've had a broken back, broken sternum, and 3 weeks ago a double mastectomy, and now arthritis of Lower spine, I can't stop and am making everything worse, fibromyalgia, originally diagnosed . So lonely and in pain.
auntysue
in
Fibromyalgia Action UK
11 months ago
ZEJULA PROS AND CONS
Hello, I was diagnosed with stage 3 c ovarian cancer had debulking surgery complete hysterectomy and bowel resection on 11/29/22 did 6 rounds of carbo/paxtel? i think thts how u spell it but im now in remission but also have the brca 1 mutation gene and did lynparza for 3 weeks and was feeling bad brain
Hello, I was diagnosed with stage 3 c ovarian cancer had debulking surgery complete hysterectomy and bowel resection on 11/29/22 did 6 rounds of carbo/paxtel? i think thts how u spell it but im now in remission but also have the brca 1 mutation gene and did lynparza for 3 weeks and was feeling bad brain
Mommashark6
in
SHARE Ovarian Cancer Support
11 months ago
New primary plus first progression
Hi everyone, I was diagnosed de novo ductal carcinoma ER/PR+ and HER2 - June 2021 with bone Mets spine and hip. I had a mastectomy and axillary clearance left side and then palbociclib, letrezole, monthly goserelin and denusamab. I have just found out I have my first progression spine and possible
Hi everyone, I was diagnosed de novo ductal carcinoma ER/PR+ and HER2 - June 2021 with bone Mets spine and hip. I had a mastectomy and axillary clearance left side and then palbociclib, letrezole, monthly goserelin and denusamab. I have just found out I have my first progression spine and possible
RachH20
in
SHARE Metastatic Breast Cancer
11 months ago
sleeve gastrectomy while on Imbruvica for CLL
Dear all, has anyone experienced doing bariatric surgery while on Imbruvica for CLL? many thanks,
Dear all, has anyone experienced doing bariatric surgery while on Imbruvica for CLL? many thanks,
ObiYan
in
CLL Support
6 months ago
Prominent pathologist at Johns Hopkins on leave, facing bullying claims, WaPo, by Steve Thompson & Katie Shepherd, 10/22/23
Looks to be another case of professional success breeding professional arrogance and familial preference. Seems to be a lot of that going around these days - in all sectors of society. BTW, as a patient, my fav reader comment to the article is: "tell someone that they make a nice anecdote". * * *
Looks to be another case of professional success breeding professional arrogance and familial preference. Seems to be a lot of that going around these days - in all sectors of society. BTW, as a patient, my fav reader comment to the article is: "tell someone that they make a nice anecdote". * * *
CaptnMojoe
in
Fight Prostate Cancer
10 months ago
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