Search
Search
About
Log in
Join
Experiences with
Stem cell mobilization
Posts
Communities
926 public posts
Filter results
Sickle cell trait
I have trait of sickle cell and was told that I probably could never travel to Colorado because of the high altitude and that I may get a shortness of breath being that I have sickle cell trait. Is this true and if so what's the worse that can happen
I have trait of sickle cell and was told that I probably could never travel to Colorado because of the high altitude and that I may get a shortness of breath being that I have sickle cell trait. Is this true and if so what's the worse that can happen
Mont107
in
Sickle Cell Society
7 years ago
Sickle trait 's' blood count percentages.
Hi All, it's been a while since I've posted on here :-) I just wondered whether anyone here has had their sickle trait blood [u]percentage[/u] tested? My son has been very lethargic and complaining of leg pains for a number of weeks now. He was anaemic eighteen months ago and his vitamin d levels were
Hi All, it's been a while since I've posted on here :-) I just wondered whether anyone here has had their sickle trait blood [u]percentage[/u] tested? My son has been very lethargic and complaining of leg pains for a number of weeks now. He was anaemic eighteen months ago and his vitamin d levels were
Linda0076
in
Sickle Cell Society
7 years ago
Jeanie 1960
My daughter actually both of them have been diagnosed with fibromyalga but recently found out there is sickle cell trait in the family just wondering if any of you have been doagnosed with fibro or anyone 1 with fragile x carriers ir full blown seems the syptons are quite alike and just so happens we
My daughter actually both of them have been diagnosed with fibromyalga but recently found out there is sickle cell trait in the family just wondering if any of you have been doagnosed with fibro or anyone 1 with fragile x carriers ir full blown seems the syptons are quite alike and just so happens we
Jeanie1960
in
Sickle Cell Society
7 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Stem Cell Transplants
This might be of interest to anybody who has to undergo a stem cell transplant: http://tinyurl.com/mnkrk78
This might be of interest to anybody who has to undergo a stem cell transplant: http://tinyurl.com/mnkrk78
Shar0n
Volunteer
in
Non Hodgkin's Lymphoma Friends
7 years ago
Perplexing
Two painful crisis this year- had to unpaid leave! Why is sickle cell not given the same sort of respect say like diabetes?
Two painful crisis this year- had to unpaid leave! Why is sickle cell not given the same sort of respect say like diabetes?
Darrenmason1978
in
Sickle Cell Society
7 years ago
Bone Marrow Transplant for MCRPC
I have tried everything but chemo, and they haven't worked, so I am getting a new immune system. My next clinical trial is 'Sex-Mismatched Allogeneic Bone Marrow Transplantation for Men With Metastatic Castration-Resistant Prostate Cancer' https://clinicaltrials.gov/ct2/show/NCT02995330 I hear the
I have tried everything but chemo, and they haven't worked, so I am getting a new immune system. My next clinical trial is 'Sex-Mismatched Allogeneic Bone Marrow Transplantation for Men With Metastatic Castration-Resistant Prostate Cancer' https://clinicaltrials.gov/ct2/show/NCT02995330 I hear the
Beauxman
in
Advanced Prostate Cancer
7 years ago
COPD V STAGE, ALPHA-1ANTITYPSN,CGD
Hi my name is Connie Im 45-year-old with Aplha-1 Antitypsn zz Genetic disorder and Chronic Granumotous Disease (CGD) with several other health issues that seem to be connected with two major diseases. Im in my last stage of COPD V. I use oxygen 24/7 My O2 levels are 96-98 with oxygen yet I struggle to
Hi my name is Connie Im 45-year-old with Aplha-1 Antitypsn zz Genetic disorder and Chronic Granumotous Disease (CGD) with several other health issues that seem to be connected with two major diseases. Im in my last stage of COPD V. I use oxygen 24/7 My O2 levels are 96-98 with oxygen yet I struggle to
Cywebber
in
Lung Conditions Community Forum
7 years ago
Bone marrow transplant
I just found out from my niece that my brother had a bone marrow transplant. Was shocked no one told me. He had melanoma did a trial drug then got lymphoma.I asked who donor was? Said used own Of course cancer came back with a vengeance and was too late. So my desire to use my own right now doesn't look
I just found out from my niece that my brother had a bone marrow transplant. Was shocked no one told me. He had melanoma did a trial drug then got lymphoma.I asked who donor was? Said used own Of course cancer came back with a vengeance and was too late. So my desire to use my own right now doesn't look
greygirl
in
CLL Support
7 years ago
Jona AML
My son Jonathan 33 yrs old has AML. Is now relapsed after Stem Cell transplant and also has leukemia tumours in his skin and left eye. does any know of 't-cell' treatments /trials in the uk or any other treatments for relapsed AML.He is currently having more chemo to try and achieve remission again
My son Jonathan 33 yrs old has AML. Is now relapsed after Stem Cell transplant and also has leukemia tumours in his skin and left eye. does any know of 't-cell' treatments /trials in the uk or any other treatments for relapsed AML.He is currently having more chemo to try and achieve remission again
Strawson
in
Leukaemia Support
7 years ago
Its been a while hello all
Hi everyone its been a while since i have posted on here but just wanted to update you, I have had my stem cell transplant I won't go into gory details but if you would like to know more here is my blog http://beckyb8.wixsite.com/stemcelltransplant As far as blood clotting goes they are still unsure
Hi everyone its been a while since i have posted on here but just wanted to update you, I have had my stem cell transplant I won't go into gory details but if you would like to know more here is my blog http://beckyb8.wixsite.com/stemcelltransplant As far as blood clotting goes they are still unsure
beckyb
in
Hughes Syndrome APS Forum
7 years ago
MF and bone marrow transplant
Had another hospital appointment today and to our shock and horror Steve is now going to be fast tracked for a bone marrow transplant. His symptoms have increased and his blasts have gone from o% to 5% in three months. We still haven't seen an mpn specialist and I'm starting to lose patience with the
Had another hospital appointment today and to our shock and horror Steve is now going to be fast tracked for a bone marrow transplant. His symptoms have increased and his blasts have gone from o% to 5% in three months. We still haven't seen an mpn specialist and I'm starting to lose patience with the
afonog
in
MPN Voice
7 years ago
CLL / P17 with Mutation
My sister in law who is 60 yrs. old has been diagnosed with CLL / P17 deletion with mutation. She has BWC of 213,000 and swollen lymph nodes. She was put on Hydrea that brought it down to 177,000 then they added Imbruvica. Hopefully this will bring it down until she can have a complete stem cell transplant
My sister in law who is 60 yrs. old has been diagnosed with CLL / P17 deletion with mutation. She has BWC of 213,000 and swollen lymph nodes. She was put on Hydrea that brought it down to 177,000 then they added Imbruvica. Hopefully this will bring it down until she can have a complete stem cell transplant
evetom
in
CLL Support
7 years ago
PMR - Would appreciate feedback.
Hi All, If we wait for science to find a cause and cure for PMR I think we will be waiting a long time! I believe the answer will come from people like you and me, the ones with a vested interested and a motivation to make a break-through for the benefit of all. I should add I have achieved this on
Hi All, If we wait for science to find a cause and cure for PMR I think we will be waiting a long time! I believe the answer will come from people like you and me, the ones with a vested interested and a motivation to make a break-through for the benefit of all. I should add I have achieved this on
hiandri
in
PMRGCAuk
7 years ago
Cause of Hot Flashes?
Are hot flashes caused by PMR or prednisone withdrawal, or can they be caused by either one?
Are hot flashes caused by PMR or prednisone withdrawal, or can they be caused by either one?
Steve2002
in
PMRGCAuk
7 years ago
Stem cell transplant for AML 8 yrs on
Hi all as you can see from title I have been in remission for 8yrs following a HSCT from my brother. I would like to ask a question. I knew I would get lots of infections early post transplant which is to be expected. Now 8 yrs along I am still getting more than my fair share of colds, so much so I am
Hi all as you can see from title I have been in remission for 8yrs following a HSCT from my brother. I would like to ask a question. I knew I would get lots of infections early post transplant which is to be expected. Now 8 yrs along I am still getting more than my fair share of colds, so much so I am
Shazzzey
in
Leukaemia Support
7 years ago
GIANT CELL TEMPORAL ARTERITIS AND THE LINK TO SEIZURES
It is 4 years plus since I was diagnosed with GCA [double vision etc,etc] and 2 years ago when down to 1mg of Prednisolone I had a relapse. I'm down to 2.5 mg of Pred now and continuing with a slow reduction. However, last year I had a seizure and had three more since. There is a research paper by P.L.Silbert
It is 4 years plus since I was diagnosed with GCA [double vision etc,etc] and 2 years ago when down to 1mg of Prednisolone I had a relapse. I'm down to 2.5 mg of Pred now and continuing with a slow reduction. However, last year I had a seizure and had three more since. There is a research paper by P.L.Silbert
Richard2012
in
PMRGCAuk
7 years ago
Need a little clarity..T cell histiocyte rich B cell lymphoma
I feel like a bit out of place as I'm not a lymphoma suffer. I have a younger brother in his 30s who was diagnosed with: T cell histiocyte rich B cell lymphoma in Sept 2013 He had 6 cycles of RCHOP completed by Jan 2014. Excellent response and PET scan clear. Relapsed in October 2014 Had 4 cycles
I feel like a bit out of place as I'm not a lymphoma suffer. I have a younger brother in his 30s who was diagnosed with: T cell histiocyte rich B cell lymphoma in Sept 2013 He had 6 cycles of RCHOP completed by Jan 2014. Excellent response and PET scan clear. Relapsed in October 2014 Had 4 cycles
1Anj1
in
Non Hodgkin's Lymphoma Friends
7 years ago
Act of Love
Hi I am new to this site and looking for people based in the Uk who have scleroderma. My sister who is also my best friend was diagnosed a year to date with diffuse systematic scleroderma. She is listed as Cole57 and we are both here to read about people's experiences, share what knowledge she has from
Hi I am new to this site and looking for people based in the Uk who have scleroderma. My sister who is also my best friend was diagnosed a year to date with diffuse systematic scleroderma. She is listed as Cole57 and we are both here to read about people's experiences, share what knowledge she has from
Shelley53a
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
#Sickle cell Strong
I have really amazing news which I want to share with everyone! I am one year hospital admissions free! #Sicklestrong As I am sure you all know I have sickle-cell anaemia an inherited blood disorder. Red blood cells which are round and soft become hard and sickle shaped, this causes a multitude of
I have really amazing news which I want to share with everyone! I am one year hospital admissions free! #Sicklestrong As I am sure you all know I have sickle-cell anaemia an inherited blood disorder. Red blood cells which are round and soft become hard and sickle shaped, this causes a multitude of
Anzy
in
Sickle Cell Society
7 years ago
Tocilizumab
Does anyone have any experience of having been given this drug (by intravenous infusion once a month)? Used as steroid sparing agent. also ... does anyone have any blood tests results for Plasma IL-6. (Cost seems to be same as CRP but more sensitive to extent to which Prednisalone is working).
Does anyone have any experience of having been given this drug (by intravenous infusion once a month)? Used as steroid sparing agent. also ... does anyone have any blood tests results for Plasma IL-6. (Cost seems to be same as CRP but more sensitive to extent to which Prednisalone is working).
Tonylynn
in
PMRGCAuk
7 years ago
1
...
32
33
34
...
47
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
PMRGCAuk
200 results
MPN Voice
130 results
CLL Support
118 results
View top 10 communities
Sort by
Most Relevant
Newest