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Hello From Nigel In Cornwall.
Diagnosed with early stage CLL in October 2017. The day my doctor telephoned me to advise of the 5th set of blood test results and confirmed it was CLL, happened to be the very day a very good friend of mine died of ovarian cancer. GP was pretty blunt and unhelpful. "Early stage. No need to worry
Diagnosed with early stage CLL in October 2017. The day my doctor telephoned me to advise of the 5th set of blood test results and confirmed it was CLL, happened to be the very day a very good friend of mine died of ovarian cancer. GP was pretty blunt and unhelpful. "Early stage. No need to worry
OwnedByCockerSpaniel
in
CLL Support
6 years ago
Chemotherapy, a Trusty Weapon Against Cancer, Falls Out of Favor
Interesting read from the Wall Street Journal: some oncologists are no longer recommending chemotherapy as a treatment option. What are your thoughts? Does the article resonate with you in any way? Full article below and here: http://on.wsj.com/2DOOX5y "Chemotherapy, a Trusty Weapon Against Cancer,
Interesting read from the Wall Street Journal: some oncologists are no longer recommending chemotherapy as a treatment option. What are your thoughts? Does the article resonate with you in any way? Full article below and here: http://on.wsj.com/2DOOX5y "Chemotherapy, a Trusty Weapon Against Cancer,
joann86
in
SHARE Breast Cancer Support
6 years ago
New to GCA
Just got diagnosed with Giant cell arteritis. Have so many questions and feeling scared. Did the pills help? How long have you been on them? Do you get to a point that you are good and you are cured? Please advise..
Just got diagnosed with Giant cell arteritis. Have so many questions and feeling scared. Did the pills help? How long have you been on them? Do you get to a point that you are good and you are cured? Please advise..
viamonv
in
PMRGCAuk
6 years ago
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Update on Lymphoma from the 2017 American Society of Hematology (ASH) Annual Meeting by Stephen M. Ansell, MD, PhD & Laurie H. Sehn, MD, MP
Webinar: Update on Lymphoma from the 2017 American Society of Hematology (ASH) Annual Meeting, which took place on January 23. It is now available on telephone replay 24 hours a day, 7 days a week. Just call 1-800-625-5288 and give the code #1151498 or click here http://click.icptrack.com/icp/relay.php
Webinar: Update on Lymphoma from the 2017 American Society of Hematology (ASH) Annual Meeting, which took place on January 23. It is now available on telephone replay 24 hours a day, 7 days a week. Just call 1-800-625-5288 and give the code #1151498 or click here http://click.icptrack.com/icp/relay.php
lankisterguy
Volunteer
in
CLL Support
6 years ago
Multiple autoimmune conditions. Lupus too?
Where to start!I've been quite poorly with scleroderma, and I also have PBC, Sjogrens, and hypothyroidism. I have osteoarthritis and hyper flexibility joint syndrome. I am ACA pos, AMA pos, Igm pos, gastric parietal cell antibody positive, and I have just found out that I'm anti ro pos, and anti sm pos
Where to start!I've been quite poorly with scleroderma, and I also have PBC, Sjogrens, and hypothyroidism. I have osteoarthritis and hyper flexibility joint syndrome. I am ACA pos, AMA pos, Igm pos, gastric parietal cell antibody positive, and I have just found out that I'm anti ro pos, and anti sm pos
MissusTee
in
LUPUS UK
6 years ago
Looks like I need to watch what I say
I like to share my experiences, what I do and how I feel. Whenever that happens it opens up a whole world of replies. It looks like my last post was a step to far for this forum. I am not sorry for what I said, but I will refrain from talking about my experiences in life with PMR. For those of us that
I like to share my experiences, what I do and how I feel. Whenever that happens it opens up a whole world of replies. It looks like my last post was a step to far for this forum. I am not sorry for what I said, but I will refrain from talking about my experiences in life with PMR. For those of us that
JulianJ
in
PMRGCAuk
6 years ago
on prednisone since oct 2016 had pneumonia vaccine side affects
my rhuemy has kept me at 10 mg since july 2017 didn,t want me to reduce until at least feb this year, as my son was diagnosed with multiple myeloma, and having bone marrow transplant, being admitted jan 15, for that, and said with the extra stress, not good idea to reduce, was doing ok with that as far
my rhuemy has kept me at 10 mg since july 2017 didn,t want me to reduce until at least feb this year, as my son was diagnosed with multiple myeloma, and having bone marrow transplant, being admitted jan 15, for that, and said with the extra stress, not good idea to reduce, was doing ok with that as far
arvine
in
PMRGCAuk
6 years ago
Websites - useful stuff, articles, resources
I've been keeping a Word doc on articles that I knew I'd want to refer back to. Not sure if anyone interested, but here it is. Please forgive the format, I didn't know how to add a Word doc so I copied and pasted. . Articles on: Few side effects due to PMR compared with an age-matched cohort not taking
I've been keeping a Word doc on articles that I knew I'd want to refer back to. Not sure if anyone interested, but here it is. Please forgive the format, I didn't know how to add a Word doc so I copied and pasted. . Articles on: Few side effects due to PMR compared with an age-matched cohort not taking
Insight329
in
PMRGCAuk
6 years ago
SICKLE CELL NEWS (Jan-March 2018)
Here are the stories/articles on the Jan-March 2018 edition: 1. NIGERIA 2019 ELECTIONS: Professor Mrs. Adesanya-Davies blazes the trail for involvement of women with SC in politics - she aims for the highest political office in the land! 2. Barrister Uche Ojukwu suffered a rare SCD complication that
Here are the stories/articles on the Jan-March 2018 edition: 1. NIGERIA 2019 ELECTIONS: Professor Mrs. Adesanya-Davies blazes the trail for involvement of women with SC in politics - she aims for the highest political office in the land! 2. Barrister Uche Ojukwu suffered a rare SCD complication that
scnews
in
Sickle Cell Society
6 years ago
CAR-T Therapy Inquiry
CAR-T Therapy Inquiry Are you a patient or physician interested in CAR-T gene therapy? Call the Stanford Blood and Marrow Transplant Program at 650-723-0822.
CAR-T Therapy Inquiry Are you a patient or physician interested in CAR-T gene therapy? Call the Stanford Blood and Marrow Transplant Program at 650-723-0822.
Naka
in
CLL Support
7 years ago
Losing my friends!
Lost another friend to sickle cell two days ago. I have lost over 10 friends now and I am angry, fed up and upset. It's a feeling of helplessness. I don't know who will go next and it's just too painful. I don't know if I did the right thing having kids because I dont want them to lose me. I don't want
Lost another friend to sickle cell two days ago. I have lost over 10 friends now and I am angry, fed up and upset. It's a feeling of helplessness. I don't know who will go next and it's just too painful. I don't know if I did the right thing having kids because I dont want them to lose me. I don't want
jo19
in
Sickle Cell Society
6 years ago
Steroid withdrawal symptoms
Hi, I'm new to this, came off steroids after three and a half years. I had giant cell arteritis and polymialgia have aching arms and sometimes legs very stiff, seen GP today who suggested it was probably "my age" I'm 72 - do they not accept that it could be withdrawal symptoms.? Anyone else has this
Hi, I'm new to this, came off steroids after three and a half years. I had giant cell arteritis and polymialgia have aching arms and sometimes legs very stiff, seen GP today who suggested it was probably "my age" I'm 72 - do they not accept that it could be withdrawal symptoms.? Anyone else has this
Jcmcd
in
PMRGCAuk
6 years ago
Taking A Deep Breath
Hello everyone, Having taken the plunge and finally signed up to the community at the beginning of the month I thought it was high time that I introduce myself. My name's Andy, I'm 33, and 4 years ago I was diagnosed with a degenerative lung condition called IPPFE (similar to IPF) which doctors believe
Hello everyone, Having taken the plunge and finally signed up to the community at the beginning of the month I thought it was high time that I introduce myself. My name's Andy, I'm 33, and 4 years ago I was diagnosed with a degenerative lung condition called IPPFE (similar to IPF) which doctors believe
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
7 years ago
Bone Marrow Transplant Begins
I feel like the past three and a half years have been rehearsal, and it's time for the big show. I will do the steps I have learned, and the result could be glory or disaster. I made a big bet on this new treatment. When I didn't fit the profile, I asked the researcher to change the parameters so
I feel like the past three and a half years have been rehearsal, and it's time for the big show. I will do the steps I have learned, and the result could be glory or disaster. I made a big bet on this new treatment. When I didn't fit the profile, I asked the researcher to change the parameters so
Beauxman
in
Advanced Prostate Cancer
7 years ago
11 year old son ITP
I am seeking some insight. Brief history of my son. He had a bone marrow transplant in 2013..a side effect from it is that he developed ITP and had his spleen removed in 2013 and is currently being treated with 25mg Promacta. His platelets range from 10,000 - 65,000. When he has episodes of bleeding
I am seeking some insight. Brief history of my son. He had a bone marrow transplant in 2013..a side effect from it is that he developed ITP and had his spleen removed in 2013 and is currently being treated with 25mg Promacta. His platelets range from 10,000 - 65,000. When he has episodes of bleeding
Bishoprena
in
ITP Support Association
7 years ago
Stem cell transplant
Hello! So I have just had my monthly visit with my CLL haemotologist. Preparing to go onto a trial with Ibrutinib and Venetoclax. Glands swollen and large all over. I am 11q unmutated lymphocytes trending upwards at 50 and last month were 33. Hb going slightly downwards but not bad. Everything else good
Hello! So I have just had my monthly visit with my CLL haemotologist. Preparing to go onto a trial with Ibrutinib and Venetoclax. Glands swollen and large all over. I am 11q unmutated lymphocytes trending upwards at 50 and last month were 33. Hb going slightly downwards but not bad. Everything else good
DebLeeCox
in
CLL Support
7 years ago
High Homocysteine levels
Hello Mine is a bit of a long story so hope this is ok. I am 58 I had my gallbladder out in 2013 before that I thought I was eating not to bad but obviously I wasn’t. I had lots of gallstones, I got pancaraties and that’s how I knew I had a problem with gallstones. Anyway I got diagnosed with fibromyalgia
Hello Mine is a bit of a long story so hope this is ok. I am 58 I had my gallbladder out in 2013 before that I thought I was eating not to bad but obviously I wasn’t. I had lots of gallstones, I got pancaraties and that’s how I knew I had a problem with gallstones. Anyway I got diagnosed with fibromyalgia
Jan87
in
Pernicious Anaemia Society
7 years ago
Urgent question: low platelets
My husband Murray is in a very precarious state right now and I would sure appreciate your input. Just to summarize - he is 58, diagnosed 3 1/2 years ago but with symptoms for many years before that, 13q, 11q & trisomy 12, relapsed quickly after FCR, on ibrutinib for 9 months, scheduled for stem cell
My husband Murray is in a very precarious state right now and I would sure appreciate your input. Just to summarize - he is 58, diagnosed 3 1/2 years ago but with symptoms for many years before that, 13q, 11q & trisomy 12, relapsed quickly after FCR, on ibrutinib for 9 months, scheduled for stem cell
Glees
in
CLL Support
7 years ago
High Alt, fibroscan 7.7 CT scan now biopsy scared
Hi everyone, I'm hoping you help can ease my mind or help me with these results! back in July I had a bout of gastritis I was in hospital for a week as my ATL was in the 400's eventually it returned to 37 now it's started to rise again. Doctors are worried as they don't know what's causing it. two weeks
Hi everyone, I'm hoping you help can ease my mind or help me with these results! back in July I had a bout of gastritis I was in hospital for a week as my ATL was in the 400's eventually it returned to 37 now it's started to rise again. Doctors are worried as they don't know what's causing it. two weeks
GillyGangGong
in
British Liver Trust
7 years ago
CMV Risk in Donor Stem Cell Transplant
Antiviral drug helped prevent cytomegalovirus in patients with donor bone marrow stem cell transplantation: https://tinyurl.com/yc79ehsg
Antiviral drug helped prevent cytomegalovirus in patients with donor bone marrow stem cell transplantation: https://tinyurl.com/yc79ehsg
Shar0n
Volunteer
in
Non Hodgkin's Lymphoma Friends
7 years ago
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