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Another recurrence
Hey all. This is my first post. But it is the first time in this cancer journey of mine where I am scared. i was originally diagnosed in 2015. It took 5 months to get the diagnosis; the doctors insisted I had acid reflux or gall bladder issues. I kept on insisting I did not. They even told me the mass
Hey all. This is my first post. But it is the first time in this cancer journey of mine where I am scared. i was originally diagnosed in 2015. It took 5 months to get the diagnosis; the doctors insisted I had acid reflux or gall bladder issues. I kept on insisting I did not. They even told me the mass
MaryRay
in
SHARE Ovarian Cancer Support
5 years ago
Waiting for Appointment for Clinical Trial
Hi, I’ve completed 18 weeks of Taxol following first recurrence and unfortunately the end of treatment scan showed disease progression. I had the standard Carbo/Taxol initially, then a recurrence after around 4 months so was started on Caelyx, which didn’t work and was swapped to weekly Taxol. This was
Hi, I’ve completed 18 weeks of Taxol following first recurrence and unfortunately the end of treatment scan showed disease progression. I had the standard Carbo/Taxol initially, then a recurrence after around 4 months so was started on Caelyx, which didn’t work and was swapped to weekly Taxol. This was
Pryced
in
My Ovacome
5 years ago
Topotecan & hair loss
Hello, I’ve just come off the Sierra SRA737 trial which sadly didn’t work for me and next week I start on Topotecan. I’ve read that hair loss is a likely side effect so I enquired about using a cold cap during treatment as it worked really well for me when I was on weekly Taxol. However, the nurses
Hello, I’ve just come off the Sierra SRA737 trial which sadly didn’t work for me and next week I start on Topotecan. I’ve read that hair loss is a likely side effect so I enquired about using a cold cap during treatment as it worked really well for me when I was on weekly Taxol. However, the nurses
jane2014
in
My Ovacome
5 years ago
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Sotalol and Prolonged QTc
Hi ! Hope you are all keeping well. This post is specifically to ask anyone who is or has been on Sotalol or any other drugs that caused PQTc and to know how you are managing the acquired prolonged QT that is caused by the medication? Would really like to know how often do you check for your QT? Don
Hi ! Hope you are all keeping well. This post is specifically to ask anyone who is or has been on Sotalol or any other drugs that caused PQTc and to know how you are managing the acquired prolonged QT that is caused by the medication? Would really like to know how often do you check for your QT? Don
SpritzerAce
in
AF Association
5 years ago
Neuropathy inquiries
Hello all - I finished 18 weeks of carbo/taxol on Nov. 1. Had some tingling in hands and toes before finishing chemo which I was told happens. I did ice hands and feet during Taxol. Has anyone had this continually worsen after finishing chemo? Mine has definitely been more painful the last couple
Hello all - I finished 18 weeks of carbo/taxol on Nov. 1. Had some tingling in hands and toes before finishing chemo which I was told happens. I did ice hands and feet during Taxol. Has anyone had this continually worsen after finishing chemo? Mine has definitely been more painful the last couple
ElayneZ
in
My Ovacome
5 years ago
Pacemaker fitted tuesday
Hi everyone I am new to the forum have had a fib for 5 years started on sotalol ok then bisprolol now having pacemaker and av ablation in 6 weeks time. Worst part of pacemaker op was the local anaesthetic very painful under collarbone. Dr doing it talked to me whole time telling me what he was doing
Hi everyone I am new to the forum have had a fib for 5 years started on sotalol ok then bisprolol now having pacemaker and av ablation in 6 weeks time. Worst part of pacemaker op was the local anaesthetic very painful under collarbone. Dr doing it talked to me whole time telling me what he was doing
Eve164
in
AF Association
5 years ago
Sam2424
Hi everyone, was diagnosed four years ago. Right now I’m on taxol my ca125 is going down which my dr was very happy about but I still don’t feel well. I’m very bloated and no appetite. Getting a ct this Monday to see what is going on. Tge weird thing is that my number ca125 is going down so I should
Hi everyone, was diagnosed four years ago. Right now I’m on taxol my ca125 is going down which my dr was very happy about but I still don’t feel well. I’m very bloated and no appetite. Getting a ct this Monday to see what is going on. Tge weird thing is that my number ca125 is going down so I should
Sam2424
in
SHARE Ovarian Cancer Support
5 years ago
On for a rant
Hi all, I’ve not posted before, although this forum has given me so much. I read it avidly every day. Today I’m incensed and have to rant to people who understand. Sorry for that, and sorry for long post. So, Wednesday stomach issues, probably viral, endless diarrhoea. Saturday afternoon felt really
Hi all, I’ve not posted before, although this forum has given me so much. I read it avidly every day. Today I’m incensed and have to rant to people who understand. Sorry for that, and sorry for long post. So, Wednesday stomach issues, probably viral, endless diarrhoea. Saturday afternoon felt really
dexter8479
in
Atrial Fibrillation Support
5 years ago
Intense pain in arms that is unbearable at night is this connected to AFiB?
Hi there, can anyone advise? Diagnosed with AFIB January 2018 and take Sotalol 80mg morning and night and xarelto. No simple effects other than weight gain but have for the last 2 months had instense pain in left arm mainly between shoulder and elbow. It is unbearable at night. Doctor thinks it
Hi there, can anyone advise? Diagnosed with AFIB January 2018 and take Sotalol 80mg morning and night and xarelto. No simple effects other than weight gain but have for the last 2 months had instense pain in left arm mainly between shoulder and elbow. It is unbearable at night. Doctor thinks it
Deb86290
in
Atrial Fibrillation Support
5 years ago
Sotalol AF
I have read on a US web site that Sotalol AF is specifically for people with AF and is not interchangeable with Sotalol. Does anyone know why Sotalol AF is not available in the UK?
I have read on a US web site that Sotalol AF is specifically for people with AF and is not interchangeable with Sotalol. Does anyone know why Sotalol AF is not available in the UK?
Paperboy
in
AF Association
5 years ago
Anothe tsunami no warning
Last weekend feeling a little bit off colour nothing much this developed into full scale pneumonia very rapidly with nasty rashes up both forearms . So have been in the cancer wards while the drs trying to isolate which bug it was. So having wide range of anti viral antibiotics anti fungus (!!) IV On
Last weekend feeling a little bit off colour nothing much this developed into full scale pneumonia very rapidly with nasty rashes up both forearms . So have been in the cancer wards while the drs trying to isolate which bug it was. So having wide range of anti viral antibiotics anti fungus (!!) IV On
Chick44nzrn
in
My Ovacome
5 years ago
Blocked bile duct & liver mets
Good morning ladies looking for some good tips and advice please I’ve just come out of the Christie after nearly two weeks I was admitted for sickness which was caused by blocked bile ducts which came whilst I was on the Rotterdam Regime my 5th line in four years! I’ve had the works Carbo taxol debunking
Good morning ladies looking for some good tips and advice please I’ve just come out of the Christie after nearly two weeks I was admitted for sickness which was caused by blocked bile ducts which came whilst I was on the Rotterdam Regime my 5th line in four years! I’ve had the works Carbo taxol debunking
Hidden
in
My Ovacome
5 years ago
Sotalol
I had an ablation in October 2016 which was successful until I had a mastectomy in January 2018 when I went into AF. Since then I have had a few episodes of AF which seem to be getting more frequent and lasting longer. I have recently seen a couple of Consultants privately and both are suggesting
I had an ablation in October 2016 which was successful until I had a mastectomy in January 2018 when I went into AF. Since then I have had a few episodes of AF which seem to be getting more frequent and lasting longer. I have recently seen a couple of Consultants privately and both are suggesting
Tricia239
in
Atrial Fibrillation Support
5 years ago
Ascites and drain
Hello lovely ladies I had started olaparib after second line chemotherapy in January I was taking it for 7 weeks and started to feel very bloated. I went for an ultrasound 9 days ago and they said the fluid was moderate and not enough to drain however in the last few days I am in severe pain I look heavily
Hello lovely ladies I had started olaparib after second line chemotherapy in January I was taking it for 7 weeks and started to feel very bloated. I went for an ultrasound 9 days ago and they said the fluid was moderate and not enough to drain however in the last few days I am in severe pain I look heavily
coksd
in
OvaCare
5 years ago
Taxol Top Tips !
Having received so many helpful tips from others in the last 4 months thought some of you girls might find my tips help them too .1. Nausea / metachlopromide excellent for this 3 times daily 2. Mouth ulcers . Loads of coconut water ( sort of oily) pineapple ice blocks to suck / chewing gum and the
Having received so many helpful tips from others in the last 4 months thought some of you girls might find my tips help them too .1. Nausea / metachlopromide excellent for this 3 times daily 2. Mouth ulcers . Loads of coconut water ( sort of oily) pineapple ice blocks to suck / chewing gum and the
Chick44nzrn
in
My Breast Cancer Community
5 years ago
Strange news but a miss diagnosis!
hello all. So after finishing taxol and carbo chemo for
Clear cell adeneacarcinoma
i had my scan results. Waiting for an hour and a half to see prof Jonathon Lederman and UCLH I was in a complete state as you can imagine! Anyway, he said he had lots tell me (ominous) but the good news is that
hello all. So after finishing taxol and carbo chemo for
Clear cell adeneacarcinoma
i had my scan results. Waiting for an hour and a half to see prof Jonathon Lederman and UCLH I was in a complete state as you can imagine! Anyway, he said he had lots tell me (ominous) but the good news is that
NIKKibailie
in
My Ovacome
5 years ago
Repeat surgery after recurrance
Hello Ladies I am interested to know how many have you have been offered or had surgery after recurrance, especially if you recurred less than a year after first line treatment. I recurred after 3 months and am on weekly Taxol due to be reviewed soon. Surgery has not been mentioned and I haven't raised
Hello Ladies I am interested to know how many have you have been offered or had surgery after recurrance, especially if you recurred less than a year after first line treatment. I recurred after 3 months and am on weekly Taxol due to be reviewed soon. Surgery has not been mentioned and I haven't raised
Phuket
in
My Ovacome
5 years ago
Repeat surgery after recurrance
Hello Ladies I am interested to know how many have you have been offered or had surgery after recurrance, especially if you recurred less than a year after first line treatment. I recurred after 3 months and am on weekly Taxol due to be reviewed soon. Surgery has not been mentioned and I haven't raised
Hello Ladies I am interested to know how many have you have been offered or had surgery after recurrance, especially if you recurred less than a year after first line treatment. I recurred after 3 months and am on weekly Taxol due to be reviewed soon. Surgery has not been mentioned and I haven't raised
Phuket
in
OvaCare
5 years ago
Happy Birthday 🥳 and Oncologist update.....
Hi my lovelies, To start with my special person is 4 tomorrow (4 years since diagnosis) 4 years we didn’t think we’d see so Happy Birthday to her 🎉🥳🎉🥳 Oncologist update: she’s having a 6 week break from all chemo and everything a permanent drain will be installed when ascities builds up next (probably
Hi my lovelies, To start with my special person is 4 tomorrow (4 years since diagnosis) 4 years we didn’t think we’d see so Happy Birthday to her 🎉🥳🎉🥳 Oncologist update: she’s having a 6 week break from all chemo and everything a permanent drain will be installed when ascities builds up next (probably
CallmeMum
in
My Ovacome
5 years ago
Levothyroxine and Atorvastatin
Can anyone tell me if there is any interaction between Levothyroxine & atorvastatin. My 76 year old mum had been on Levothyroxine for over 25 years at 75mg and has been fine. Her cholesterol was high a few years ago and they put her on Atorvastatin. She showed symptoms of her thyroid medication not
Can anyone tell me if there is any interaction between Levothyroxine & atorvastatin. My 76 year old mum had been on Levothyroxine for over 25 years at 75mg and has been fine. Her cholesterol was high a few years ago and they put her on Atorvastatin. She showed symptoms of her thyroid medication not
Lynny66
in
Thyroid UK
5 years ago
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