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Genetic therapy: for solid malignancy hopefully soon
ok, I post them also because they are fellow Italians! But the platform is very promising even if clinical use has been approved only for glioma and glioblastoma at the moment. But there are clinical trials going on for solid tumors, prostate included. https://www.genenta.com/wp-content/uploads/2021
ok, I post them also because they are fellow Italians! But the platform is very promising even if clinical use has been approved only for glioma and glioblastoma at the moment. But there are clinical trials going on for solid tumors, prostate included. https://www.genenta.com/wp-content/uploads/2021
Maxone73
in
Advanced Prostate Cancer
6 months ago
Iron infusion
I had my first iron infusion yesterday. I will be going back next week for another one. I would appreciate any advice, thoughts or comments. I did mention to the hematologist that I would like to get my iron up to 300 but he said you will not attempt what he called “iron saturation”. His aim is to get
I had my first iron infusion yesterday. I will be going back next week for another one. I would appreciate any advice, thoughts or comments. I did mention to the hematologist that I would like to get my iron up to 300 but he said you will not attempt what he called “iron saturation”. His aim is to get
tagaxel
in
Restless Legs Syndrome
2 months ago
Epithelial Haemangiendothelioma - has anyone else been diagnosed with this rare cancer please?
Hello, Having been diagnosed with CLL back in February 2002 (age 50) I was successfully treated with FCR from August 2009 to February 2010 and remain MRD negative as at present. Breast cancer followed in April 2016, then bowel cancer in September 2018. A five year surveillance period followed the
Hello, Having been diagnosed with CLL back in February 2002 (age 50) I was successfully treated with FCR from August 2009 to February 2010 and remain MRD negative as at present. Breast cancer followed in April 2016, then bowel cancer in September 2018. A five year surveillance period followed the
alipali
in
CLL Support
3 months ago
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flare up
hi I’ve had diahorria and left side pain and mild nausea for a few days now . Keep thinking it’s better and it’s not ! Self employed but in clients houses so keep cancelling the ones that are home! Now got some appointments coming up some where no loo and feel I need to cancel , Is this a “flare up
hi I’ve had diahorria and left side pain and mild nausea for a few days now . Keep thinking it’s better and it’s not ! Self employed but in clients houses so keep cancelling the ones that are home! Now got some appointments coming up some where no loo and feel I need to cancel , Is this a “flare up
Purplewoman
in
IBS Network
2 months ago
Mastectomy after 7 years of MBC
I have had MBC for 7 years still on my first line of treatment (Ibrance/Letrozole) my PET scan in September showed the tumor in my breast has increased in size and the cancer has gone into a lymph node under my armpit. Today I met with a surgeon and will have a double mastectomy in early January. My
I have had MBC for 7 years still on my first line of treatment (Ibrance/Letrozole) my PET scan in September showed the tumor in my breast has increased in size and the cancer has gone into a lymph node under my armpit. Today I met with a surgeon and will have a double mastectomy in early January. My
Gmaoftriplets
in
SHARE Metastatic Breast Cancer
6 months ago
lactose intolerant
i can’t find any chat for this problem when searching so chose this site. i’m lactose intolerant but it doesn’t bother me much. only thing i avoid is normal milk. i have lactose free milk but yesterday finished and i’ve been having normal. i’ve noticed stomach ache bloating. can this be caused by this
i can’t find any chat for this problem when searching so chose this site. i’m lactose intolerant but it doesn’t bother me much. only thing i avoid is normal milk. i have lactose free milk but yesterday finished and i’ve been having normal. i’ve noticed stomach ache bloating. can this be caused by this
Junny123
in
Pain Concern
2 months ago
How fast is brain iron deficiency restored after IV iron?
Hello everyone.In January I got transcranial sonography done and they found brain iron deficiency. I had ferritin at 150, TS at 30% so they gave me 500mg ferric carboxymaltose. We are planning to repeat it. My question is, those who had BID diagnosed, after how many infusions did RLS pain go away? Did
Hello everyone.In January I got transcranial sonography done and they found brain iron deficiency. I had ferritin at 150, TS at 30% so they gave me 500mg ferric carboxymaltose. We are planning to repeat it. My question is, those who had BID diagnosed, after how many infusions did RLS pain go away? Did
vikkkk
in
Restless Legs Syndrome
2 months ago
Does anyone have this IBS’s symptoms ?
3 moths age and daily I wake up with severe pain in my stomach like I feel very hungry . My endoscopy was negative of any thing . My question does anyone suffer from this symptoms who has IBS please ? Thank you.
3 moths age and daily I wake up with severe pain in my stomach like I feel very hungry . My endoscopy was negative of any thing . My question does anyone suffer from this symptoms who has IBS please ? Thank you.
Raneena
in
IBS Network
2 months ago
long term omeprazole use
I was taking omeprazole for about 15 years and stopped in December last year, as I had done some research and found out it can affect stomach acid. No one told me to stop taking it. I don’t even know why I was put on it in the first place, up I think it was for IBS. I haven’t had any acid reflux or indigestion
I was taking omeprazole for about 15 years and stopped in December last year, as I had done some research and found out it can affect stomach acid. No one told me to stop taking it. I don’t even know why I was put on it in the first place, up I think it was for IBS. I haven’t had any acid reflux or indigestion
Chickens44
in
Pernicious Anaemia Society
2 months ago
Need Help For My GP…
I am having an ongoing discussion with my GP about giving me the dose I need for my deficiency (EOD). It has been mainly positive so far, during my appointment yesterday he did acknowledge that he knew little about this malady, he would also need to chat to his partners and get advice from a specialist
I am having an ongoing discussion with my GP about giving me the dose I need for my deficiency (EOD). It has been mainly positive so far, during my appointment yesterday he did acknowledge that he knew little about this malady, he would also need to chat to his partners and get advice from a specialist
B12again
in
Pernicious Anaemia Society
2 months ago
carbo/gem
I was diagnosed high grade stage 3c peritoneal in Autumn 2021, I have had carbo/taxol/avastin, debulking surgery. Followed by avastin alone which did not work, then carbo/caelyx which worked very well. I have had just over a year on Niraparib but sadly it is no longer working. I am due to start
I was diagnosed high grade stage 3c peritoneal in Autumn 2021, I have had carbo/taxol/avastin, debulking surgery. Followed by avastin alone which did not work, then carbo/caelyx which worked very well. I have had just over a year on Niraparib but sadly it is no longer working. I am due to start
NewtonEmma1900
in
My Ovacome
2 months ago
Has anyone tried pulsed electric magnetic field therapy for PMR relief?
I am having trouble tapering. Can't seem to get much below 15 mg; went down to 10 mg but still having some pain in the mornings. So increased dosage on advice of rheumy. At this rate, I'll be on prednisone for a long, long time. So wondering if anyone has tried alternative treatments to try to get
I am having trouble tapering. Can't seem to get much below 15 mg; went down to 10 mg but still having some pain in the mornings. So increased dosage on advice of rheumy. At this rate, I'll be on prednisone for a long, long time. So wondering if anyone has tried alternative treatments to try to get
lsplumb
in
PMRGCAuk
2 months ago
facial pain after suro
hi all I had surgery 15th June 2022 to remove a large tumour. I have had a few problems after including facial paralysis on my right side after but it literally normal now. I had a lot of injections. My right eye is completely dry and they did a nerve transplant to try and correct this. So have been
hi all I had surgery 15th June 2022 to remove a large tumour. I have had a few problems after including facial paralysis on my right side after but it literally normal now. I had a lot of injections. My right eye is completely dry and they did a nerve transplant to try and correct this. So have been
Elephant0
in
Acoustic Neuroma Support
6 months ago
Lynparza for bone/liver mets - success?
Hello! Unfortunately, my PET scan revealed bone progression and 4 new liver lesions. I will be switching from Enhertu (was on Enhertu for a year) to lynparza/ olaparib. Has anyone had success with a parp helping get rid of bone/ liver metastasis for stage 4 breast cancer? Or keeping things stable?
Hello! Unfortunately, my PET scan revealed bone progression and 4 new liver lesions. I will be switching from Enhertu (was on Enhertu for a year) to lynparza/ olaparib. Has anyone had success with a parp helping get rid of bone/ liver metastasis for stage 4 breast cancer? Or keeping things stable?
miconrad
in
SHARE Metastatic Breast Cancer
6 months ago
Zencor & XmAb
My MO discussed a clinical trial for me today if I qualify with the required genetic markers. My most recent PSMA scan showed further progression of metastasis in bone and lymph nodes and my PSA has increased fairly rapidly. Currently taking both Orgovyx & Nubeqa. I'm hoping some of the smart and
My MO discussed a clinical trial for me today if I qualify with the required genetic markers. My most recent PSMA scan showed further progression of metastasis in bone and lymph nodes and my PSA has increased fairly rapidly. Currently taking both Orgovyx & Nubeqa. I'm hoping some of the smart and
AllenMarco
in
Advanced Prostate Cancer
6 months ago
is there any hope for me
I haven’t posted much about my journey. I am in the USA. I have never been in true remission. I am braca neg, her2 negative, folate on at 60 % HGS. No mutations in cancer tumor or me. Diagnosed Dec 2019 stage 3c now stage 4 metastasis Here is how much I have fought: Dec2019 full debunking surgery
I haven’t posted much about my journey. I am in the USA. I have never been in true remission. I am braca neg, her2 negative, folate on at 60 % HGS. No mutations in cancer tumor or me. Diagnosed Dec 2019 stage 3c now stage 4 metastasis Here is how much I have fought: Dec2019 full debunking surgery
Summergold2
in
My Ovacome
6 months ago
Alicia Morgans, MD, on PCa in Older Men – Determining frailty or fitness will help guide treatment decisions, MedPageToday, 11/27/2023
Those who dig deep into research methodologies know well the inherent biases that riddle much scientific and medical research. [i](See my postscript reference below) [/i]Clinical trials are not exceptions to these biases and, as drug companies look to produce the best outcomes for their clinical trials
Those who dig deep into research methodologies know well the inherent biases that riddle much scientific and medical research. [i](See my postscript reference below) [/i]Clinical trials are not exceptions to these biases and, as drug companies look to produce the best outcomes for their clinical trials
cujoe
in
Fight Prostate Cancer
6 months ago
virtual appointment
Hi, I’m hoping and would be grateful for any advice from this knowledgeable group.. I’m due to have a virtual 6 monthly review tomorrow following blood tests and US. I have been diagnosed with cryptogenic cirrhosis with no known cause. This was following a fibroscan result of 17kpa. When I had the
Hi, I’m hoping and would be grateful for any advice from this knowledgeable group.. I’m due to have a virtual 6 monthly review tomorrow following blood tests and US. I have been diagnosed with cryptogenic cirrhosis with no known cause. This was following a fibroscan result of 17kpa. When I had the
0range5520
in
British Liver Trust
2 months ago
Stay positive
Diagnosed march 2021. Debunking surgery 12 rounds chemo. Then onto Zedula . All good until November 2022 more chemo for recurrence then Avastin . My Ca125 stable but just crept up to 36 so need scan and if any signs perhaps more chemo.I have coped really well no real side effects just inally lost
Diagnosed march 2021. Debunking surgery 12 rounds chemo. Then onto Zedula . All good until November 2022 more chemo for recurrence then Avastin . My Ca125 stable but just crept up to 36 so need scan and if any signs perhaps more chemo.I have coped really well no real side effects just inally lost
Guenivere
in
My Ovacome
6 months ago
Iron and ferritin advice requested
I have recently had a full set of iron and ferritin blood tests completed and would like some advice on the numbers, please (prior to these tests, only my ferritin levels have been tested). They result from early morning fasting with no iron supplements for one week. My serum ferritin was 160 µg/L.
I have recently had a full set of iron and ferritin blood tests completed and would like some advice on the numbers, please (prior to these tests, only my ferritin levels have been tested). They result from early morning fasting with no iron supplements for one week. My serum ferritin was 160 µg/L.
MrVimes
in
Restless Legs Syndrome
2 months ago
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