Introducing myself to Group

[PHILCAM]

My name is Phil.

My wife Janet is 87 and has recently been diagnosed with atypical Parkinsons.

We tried meds - NeuPro and Rytary BUT - because of the bad side effects (at least bad for Janet who weighs 86 lbs) - we have stopped both now

The biggest issue is balance - - and falling backwards - breaking bones - which is scary

So we are in the endless LOOP on healing bones using pain killers - which has its own issues

We now trying Neuralli MP - a probiotic - PS128

We just ordered the SYMBYX helmet - red light

Janet is currently getting speech therapy once a week - her voice has softned

I need help in trying to slow this thing down

[Bolt_Upright]

I'm sorry you all are going through this. The fastest and friendliest way to learn the most about PD is to join the Zoom calls MBAnderson is so nice to host. Lots of nice experienced people who will welcome you with warmth and kindness.

us02web.zoom.us/j/833522248...

Thursdays, 7 PM – 8 PM-ish, US Central Daylight Time (GMT–6.)

Sundays, 11 am – 12 PM-ish, US CDT.

[chartist]

Hi PHILCAM,

You might also consider adding vitamin B1 (Thiamine) as many members have had good results using it to reduce their PD symptoms significantly. It doesn't work for everyone, but even the gold standard doesn't work for everyone. It can be challenging for some people to find their optimal dose of B1, but with time and persistence, many are able to find their optimal dose and best effects of B1. B1 has an excellent safety profile and has proven compatible with most PD prescription medications.

Here is a list of benefits that have been reported on this forum from members successfully using B1 :

healthunlocked.com/cure-par...

Art

[Edge999]

try a ketogenic diet

[park_bear]

I second the recommendation for vitamin B1 which is also known as high dose thiamine. Also cinnamon and Qigong. Implement the thiamine and the cinnamon one at a time and see how one works before proceeding with the other:

• High-dose thiamine. Dosing instructions and other information at the links. Allow four months for full effect: b1parkinsons.org/

healthunlocked.com/cure-par...

healthunlocked.com/cure-par....

facebook.com/groups/parkins...

A good source of thiamine HCl is here: vitacost.com/vitacost-vitam...

• Cinnamon. Allow two months for full effect. My report healthunlocked.com/cure-par...

• Qigong. My story here: healthunlocked.com/cure-par...

[LeharLover62]

Hubby had the falling backwards problem and was able to fix it with physical therapy. For disease progression, give ambroxol a try. It’s hard to get but we order it over German Amazon. Sorry to hear about her diagnosis…it’s not easy.

[Fava-1]

Have you tried any natural foods to boost dopamine. Both Vinca Fava Beans ,and Mucuna Puriens have wonderful ability to help Parkinsons

[TomGreen]

file:///C:/Users/Larry/Downloads/NAH-1612-online.pdf. You can open this web site with a BRAVE Browser.

[kaufmanhighnote]

I can sympathize with your wife's situation. I have also an atypical form of Parkinson's called PSP [Progressive Supranuclear Palsy]. Unfortunately, no usual Parkinson medication works for PSP. My problem with mobility is freezing-of-gait and balance. This site is full of non-medical ideas to explore. Such as exercises and devises. I do regularly standard exercises and I am currently starting a program of intensive exercise. I am also looking into mechanical divises such as vibro-tactile gloves, the Beech band, and foot stimulation. All of these ideas can be found in this site. By the way, I am 85 and was diagnosed with PSP in 2020.