Search
Search
About
Log in
Join
Experiences with
Soma
Posts
Communities
655 public posts
Filter results
Tastebuds
Thank you for your replies to my Gemcitabine query very helpful. My next query is less worrying but very annoying since I started treatment last year I have had a definite change to my sense of smell and taste and being a real ‘foody’ I found this to be one of the more frustrating sides of this whole
Thank you for your replies to my Gemcitabine query very helpful. My next query is less worrying but very annoying since I started treatment last year I have had a definite change to my sense of smell and taste and being a real ‘foody’ I found this to be one of the more frustrating sides of this whole
Hidden
in
My Ovacome
6 years ago
One week out of hospital.....
A big THANK YOU to all those of you who offered me so much brilliant advice on how to adjust to living with a stoma . That has proven to be the easy bit bar the pain of my innards trying to re assemble themselves . This was my fourth , major abdominal operation and innards do not like to be touched and
A big THANK YOU to all those of you who offered me so much brilliant advice on how to adjust to living with a stoma . That has proven to be the easy bit bar the pain of my innards trying to re assemble themselves . This was my fourth , major abdominal operation and innards do not like to be touched and
angeladale
in
My Ovacome
6 years ago
Pregnancy & bowel cancer
I was 39weeks pregnant, thinking I was health otherwise. Though I had been having problems going to the toilet.. for weeks. I’d tried suppositories and laxatives from doc but nope and it was all put down to constipation during pregnancy. I thought I was having contractions and went to hospital to be
I was 39weeks pregnant, thinking I was health otherwise. Though I had been having problems going to the toilet.. for weeks. I’d tried suppositories and laxatives from doc but nope and it was all put down to constipation during pregnancy. I thought I was having contractions and went to hospital to be
Libra87
in
Colon Cancer Connected
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Hysterectomy / Gallbladder
Hi everyone, so I am seeing my gynae soon for a review, I have been on the waiting list for a hysterectomy, removal of both ovaries and excision. I am having daily bleeding, had TCRE and removal of polyps but didn't help. Large chocolate cysts on both ovaries and extensive endo/adhesions everywhere,
Hi everyone, so I am seeing my gynae soon for a review, I have been on the waiting list for a hysterectomy, removal of both ovaries and excision. I am having daily bleeding, had TCRE and removal of polyps but didn't help. Large chocolate cysts on both ovaries and extensive endo/adhesions everywhere,
Jabster
in
Endometriosis UK
6 years ago
Im new here
I am a student and my student life hasn't been normal. I got diagnosed with crowns where I was rushed in to hospital in an emergency with severe abdominal pain. Th at same day I was told that I would have to have an emergency surgery. This caused me to have a temporary stoma. Its been a year now since
I am a student and my student life hasn't been normal. I got diagnosed with crowns where I was rushed in to hospital in an emergency with severe abdominal pain. Th at same day I was told that I would have to have an emergency surgery. This caused me to have a temporary stoma. Its been a year now since
Goldengirl1995
in
Crohn's and Colitis Support
6 years ago
So Lost...?
Hi all, I'm new to the Endo group. I was diagnosed in February this year whilst having my appendix removed. They found stage 4 Endo. I woke up and was told one of my tubes was already completely closed and had endo in my bowel, uterus and bladder just from what they found during that surgery. I have
Hi all, I'm new to the Endo group. I was diagnosed in February this year whilst having my appendix removed. They found stage 4 Endo. I woke up and was told one of my tubes was already completely closed and had endo in my bowel, uterus and bladder just from what they found during that surgery. I have
SVTSophie
in
Endometriosis UK
6 years ago
Fistula Options: Contact Details needed for introduction to Surgeon/Team for potential ‘Second Opinion’
Hi. Help needed. Acting as secretary for best mate. Name Kevin. Age now: 55. Married father of two. Then: working full-time & living a full life. Problem: Failed hernia op > left with fistula. Remaining bowel is reconnected, but majority of faeces is passed through Fistula. Fistula and surrounding
Hi. Help needed. Acting as secretary for best mate. Name Kevin. Age now: 55. Married father of two. Then: working full-time & living a full life. Problem: Failed hernia op > left with fistula. Remaining bowel is reconnected, but majority of faeces is passed through Fistula. Fistula and surrounding
KevinNeedsHelp
in
Living with a Stoma
6 years ago
Possible lung infection???
Well after a rollercoaster of emotions over the last couple of weeks, lung lesions, probably a new primary lung cancer and then a possible infection, I’m now on steroids and high dose antibiotics. Hoping and praying that this clears whatever is on my lung. Feeling strange on the tabs to say the least
Well after a rollercoaster of emotions over the last couple of weeks, lung lesions, probably a new primary lung cancer and then a possible infection, I’m now on steroids and high dose antibiotics. Hoping and praying that this clears whatever is on my lung. Feeling strange on the tabs to say the least
Eriksendi
in
My Ovacome
6 years ago
cardiac arrest and brain injury - recovery
Hi, I am new here. My brother had cardiac arrest on July 25, and he is in ICU ever since. He was 19 days in coma, GCS 4, than raised to 5, he had no reflexes, no reaction to whatsoever, no pupil reaction or reaction to pain stimuli. Doctors were only saying to us that "miracles can happen, and that
Hi, I am new here. My brother had cardiac arrest on July 25, and he is in ICU ever since. He was 19 days in coma, GCS 4, than raised to 5, he had no reflexes, no reaction to whatsoever, no pupil reaction or reaction to pain stimuli. Doctors were only saying to us that "miracles can happen, and that
anonymous38
in
Headway
6 years ago
Repeated rupture of colostomy bag
Hi Dear ladies Its truely amazing the amount of knowledge you guys have my mom has a stoma currently she is on gem / carbo regiemn she has a peculiar problem her colostomy bag keeps rupturing leading to changing one almost every second day she says her stools are hard and they stick near the joint leading
Hi Dear ladies Its truely amazing the amount of knowledge you guys have my mom has a stoma currently she is on gem / carbo regiemn she has a peculiar problem her colostomy bag keeps rupturing leading to changing one almost every second day she says her stools are hard and they stick near the joint leading
Indujoshi
in
My Ovacome
6 years ago
Recto vaginal endo and stoma risk
Hi Ladies, I am currently debating whether or not to get surgery to treat recto vaginal endo. Could any of you tell me about your experiences, was it worth it? Did any of you have to have a stoma put it. The idea is really putting me off the surgery, but what are the chances you get it? Thank you!
Hi Ladies, I am currently debating whether or not to get surgery to treat recto vaginal endo. Could any of you tell me about your experiences, was it worth it? Did any of you have to have a stoma put it. The idea is really putting me off the surgery, but what are the chances you get it? Thank you!
123456789101117
in
Endometriosis UK
6 years ago
Rectovaginal endo and surgery
Hi all I’ve been diagnosed with stage 4 rectovaginal endometriosis and am currently waiting an operation on 19th Sept to have it removed. I have been told that it will be a major operation (3 hrs) which could result in me having a temporary stoma. I was wondering if anyone else has this condition
Hi all I’ve been diagnosed with stage 4 rectovaginal endometriosis and am currently waiting an operation on 19th Sept to have it removed. I have been told that it will be a major operation (3 hrs) which could result in me having a temporary stoma. I was wondering if anyone else has this condition
EKP31
in
Endometriosis UK
6 years ago
W5 r3
So after a very traumatic 5 weeks have resumed - repeated w5 r2 then did r3 - yay! Daughter ended up having 5 hour surgery to remove over a metre of colon followed by stoma bag. She was devastated beforehand but is now amazingly positive - it is reversible but she is not sure whether she would - with
So after a very traumatic 5 weeks have resumed - repeated w5 r2 then did r3 - yay! Daughter ended up having 5 hour surgery to remove over a metre of colon followed by stoma bag. She was devastated beforehand but is now amazingly positive - it is reversible but she is not sure whether she would - with
YogaRules
in
Couch to 5K
6 years ago
Change of plan .....
I have been told since Easter that the nasty pelvic tumour which had broken into my rectum could not be removed . We had put all our hope into the gemcitibane /cisplatin shrinking the thing , but everything else has shrunk , or is stable ...but for the THING !!!! I have awful loo problems , dreadful
I have been told since Easter that the nasty pelvic tumour which had broken into my rectum could not be removed . We had put all our hope into the gemcitibane /cisplatin shrinking the thing , but everything else has shrunk , or is stable ...but for the THING !!!! I have awful loo problems , dreadful
angeladale
in
My Ovacome
6 years ago
Parastomal Hernia Repair
I have a medium to large parastomal hernia which has been causing partial blockages and pain. I have decided to have a parastomal hernia repair and booked a date for the operation. I just wish to know what the after effects are. Does the stoma get smaller and cause leakages. Do I get pain in the long
I have a medium to large parastomal hernia which has been causing partial blockages and pain. I have decided to have a parastomal hernia repair and booked a date for the operation. I just wish to know what the after effects are. Does the stoma get smaller and cause leakages. Do I get pain in the long
Travella
in
Living with a Stoma
6 years ago
Stoma
Has anyone had to have a stoma due to endometriosis getting in the bowel? I had it confirmed last week that I would have to have this procedure. Hopefully it's only for 6-9 months. Feeling really scared and been really teary. I'm on hormone jabs and HRT ( 7 months so far )
Has anyone had to have a stoma due to endometriosis getting in the bowel? I had it confirmed last week that I would have to have this procedure. Hopefully it's only for 6-9 months. Feeling really scared and been really teary. I'm on hormone jabs and HRT ( 7 months so far )
Sarahdione
in
Endometriosis UK
6 years ago
Scan results .....
Well today was the day of latest ca125 test and scan results. I finished my treatment last November for stage 3b PPC. My ca 125 had been between 10 to 12 since finishing treatment but 2 months ago following abdo pain and feeling generally rubbish rose to 29. It was retested a month later and had dropped
Well today was the day of latest ca125 test and scan results. I finished my treatment last November for stage 3b PPC. My ca 125 had been between 10 to 12 since finishing treatment but 2 months ago following abdo pain and feeling generally rubbish rose to 29. It was retested a month later and had dropped
Eriksendi
in
My Ovacome
6 years ago
Bleeding on Zoladex
Hi, first post but have viewed many posts on the site. I have severe endo, diagnosed in 2012 although suffered since early teens and I’m now 34! Had various laparoscopies and a laparotomy. Went in to have two ovarian cysts removed last November, surgeon perforated my bowel, had a stoma for 7 months (
Hi, first post but have viewed many posts on the site. I have severe endo, diagnosed in 2012 although suffered since early teens and I’m now 34! Had various laparoscopies and a laparotomy. Went in to have two ovarian cysts removed last November, surgeon perforated my bowel, had a stoma for 7 months (
Annie0702
in
Endometriosis UK
6 years ago
Pain in cannula site after chemo
Hi, I’ve just had my first carbo/taxol chemo session yesterday. The cannula was causing me some pain in my right hand but the nurse flushed the site. It then began swelling after 2 and half hours so they removed it and put a new cannula in the left hand. I’ve been up during the night as the pain in
Hi, I’ve just had my first carbo/taxol chemo session yesterday. The cannula was causing me some pain in my right hand but the nurse flushed the site. It then began swelling after 2 and half hours so they removed it and put a new cannula in the left hand. I’ve been up during the night as the pain in
Labrador6
in
My Ovacome
6 years ago
Pull through operation/anoplasty
Hi everyone, My daughter needed anoplasty and dilations due to her bowel not connecting properly to the anus. I have never been able to find another family whose child has been through the same operation, I was wondering if anyone here has? I have found stoma groups or groups for imperforate anus but
Hi everyone, My daughter needed anoplasty and dilations due to her bowel not connecting properly to the anus. I have never been able to find another family whose child has been through the same operation, I was wondering if anyone here has? I have found stoma groups or groups for imperforate anus but
Piccola
in
ERIC
6 years ago
1
...
16
17
18
...
33
Next page
10
20
30
Filter results
Clear filters
Posted in
All communities
My Ovacome
197 results
Endometriosis UK
128 results
Living with a Stoma
89 results
View top 10 communities
Sort by
Most Relevant
Newest