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No meds can help - ANY FURTHER OPTIONS - please?
Hello, there, everyone. I am one of the victims of Prolia. I have just turned 60 and am recovering from 5 vertebral fractures after stopping taking Prolia in October of 2017. I have already exhausted my bisphosphonate period (I was first diagnosed about 12 years ago) and unfortunately, after the fractures
Hello, there, everyone. I am one of the victims of Prolia. I have just turned 60 and am recovering from 5 vertebral fractures after stopping taking Prolia in October of 2017. I have already exhausted my bisphosphonate period (I was first diagnosed about 12 years ago) and unfortunately, after the fractures
DianeBM
in
Bone Health and Osteoporosis UK
6 years ago
Cortef for low Adrenals
Hi , any advice on taking cortef?? My adrenals are low and I am having trouble using T3 as it seems to put me into a hyper state (my heart does not like the t3 lol) any advice or shared experience regarding the cortef would be appreciated. thanks so much
Hi , any advice on taking cortef?? My adrenals are low and I am having trouble using T3 as it seems to put me into a hyper state (my heart does not like the t3 lol) any advice or shared experience regarding the cortef would be appreciated. thanks so much
Bellahorse
in
Thyroid UK
6 years ago
Forteo potential dangers
In Australia Forte has Black Box because during trials on rats it caused bone cancer. It should only used in extreme cases Also in Australia it can only be used for 18 months in your whole lifetime due to the risks (2 years in Europe ) Also due to lack of studies no one can tell you authoritively what
In Australia Forte has Black Box because during trials on rats it caused bone cancer. It should only used in extreme cases Also in Australia it can only be used for 18 months in your whole lifetime due to the risks (2 years in Europe ) Also due to lack of studies no one can tell you authoritively what
Prolianightmare
in
Bone Health and Osteoporosis UK
6 years ago
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Medication
I have been told I have osteoporosis of spine T score of -3 and z score -4 also had 5 Fractures of the spine lifting heavy object I had kyphoplasty on them so what I want to know are my Scores really bad and I appreciate I had fractures so do I need FORTEO
I have been told I have osteoporosis of spine T score of -3 and z score -4 also had 5 Fractures of the spine lifting heavy object I had kyphoplasty on them so what I want to know are my Scores really bad and I appreciate I had fractures so do I need FORTEO
Nemone65
in
Bone Health and Osteoporosis UK
6 years ago
FORTEO
Hi Has anybody used Forteo and if so did you have any side effects I am in the uk and have osteoporosis of the spine I have fractures of the spine which I had kyphoplasty surgery I have been on Forteo for 5 days now but I am more scared of side effects of this drug and loosing my hair Thanks
Hi Has anybody used Forteo and if so did you have any side effects I am in the uk and have osteoporosis of the spine I have fractures of the spine which I had kyphoplasty surgery I have been on Forteo for 5 days now but I am more scared of side effects of this drug and loosing my hair Thanks
Nemone65
in
Bone Health and Osteoporosis UK
6 years ago
What after Forteo??
I am new here. I just finished forteo, and don't want to do the Prolia shots or Fosamax pills. Too scary, read about too many awful side effects esp with the prolia. I have a Rx supplement Fosteum which is calcium, vit D, K2, and genestein. I didnt' really gain any bone on forteo, just stayed the
I am new here. I just finished forteo, and don't want to do the Prolia shots or Fosamax pills. Too scary, read about too many awful side effects esp with the prolia. I have a Rx supplement Fosteum which is calcium, vit D, K2, and genestein. I didnt' really gain any bone on forteo, just stayed the
purpleraindlk
in
Bone Health and Osteoporosis UK
6 years ago
Hope or hopeless
I’m not doing well after 17 months since diagnosed. Im 74 but had a fibromyalgia diagnosis for 36 years before GCA/PMR. On prednisone, Actemra, beginners Plaquinil, Forteo and pain meds. Very depressed from pain and unable nor do I want to do things. Cooking is a major challenge and so I don’t do
I’m not doing well after 17 months since diagnosed. Im 74 but had a fibromyalgia diagnosis for 36 years before GCA/PMR. On prednisone, Actemra, beginners Plaquinil, Forteo and pain meds. Very depressed from pain and unable nor do I want to do things. Cooking is a major challenge and so I don’t do
Leeleep
in
PMRGCAuk
6 years ago
Hello everyone
I have been here for just a couple of days, am still finding my way around. I was diagnosed with RRMS in 1994 and was doing very good up until about 6 years ago. That is when I had to quit work and go on disability. I have a wonderful neuro who has been with me since the start of my journey. Since becoming
I have been here for just a couple of days, am still finding my way around. I was diagnosed with RRMS in 1994 and was doing very good up until about 6 years ago. That is when I had to quit work and go on disability. I have a wonderful neuro who has been with me since the start of my journey. Since becoming
dearydear57
in
My MSAA Community
6 years ago
Elleste solo 1mg after hysterectomy- kept my ovaries- does it help sleep deprivation?
Was against HRT as overweight, have lost some weight and am struggling with lack of sleep due to flushes. Has anyone tried this dose and did it help? Thank you
Was against HRT as overweight, have lost some weight and am struggling with lack of sleep due to flushes. Has anyone tried this dose and did it help? Thank you
Jbht
in
Healthy Happy Woman
6 years ago
Anyone take Greek HC (IFET)?
I would like to hear from anyone who takes Greek hydrocortisone called I.F.E.T on the box. I want to know if it is generally as good as the brand Cortef which I am unable to find. Thanks in advance.
I would like to hear from anyone who takes Greek hydrocortisone called I.F.E.T on the box. I want to know if it is generally as good as the brand Cortef which I am unable to find. Thanks in advance.
truthseeker136
in
Thyroid UK
6 years ago
Low blood pressure while in AFib
I started an A Fib episode last night and this morning was still in a fib. Pulse never went higher than 120. But today I was in a fib all day and it is now 9:23 pm and still a fibbing. Blood pressure this morning was 107/79 with 77 pulse. Just checked it and now it is 90/73 with pulse of 96. Have never
I started an A Fib episode last night and this morning was still in a fib. Pulse never went higher than 120. But today I was in a fib all day and it is now 9:23 pm and still a fibbing. Blood pressure this morning was 107/79 with 77 pulse. Just checked it and now it is 90/73 with pulse of 96. Have never
Flaka
in
AF Association
6 years ago
Spiritual practice to overcome anxiety
I was just diagnosed with PAF about a month ago at the okay age of 68. This has been a bitter pill to swallow since I have had such excellent Health all my life. I currently take flecainide, Coreg, and aspirin to keep things under control. But I am hoping with some lifestyle changes to eventually be
I was just diagnosed with PAF about a month ago at the okay age of 68. This has been a bitter pill to swallow since I have had such excellent Health all my life. I currently take flecainide, Coreg, and aspirin to keep things under control. But I am hoping with some lifestyle changes to eventually be
Tesheron
in
AF Association
6 years ago
Can prednisone cause hives.
A few days ago when taking my daily dose of 25 mg prednisone I started to feel panicky, complete with the feeling of chest tightness and some difficulty swallowing. At first I dismissed it, knowing prednisone can cause panic attacks and I am prone to them. Next day same symptoms, but noticed hives in
A few days ago when taking my daily dose of 25 mg prednisone I started to feel panicky, complete with the feeling of chest tightness and some difficulty swallowing. At first I dismissed it, knowing prednisone can cause panic attacks and I am prone to them. Next day same symptoms, but noticed hives in
Skenjin
in
NRAS
6 years ago
Need advise please
I am in remission of endremetriosis for over a year . Since I had a full hysterectomy. I was on zolodex implants for 3 years every 28 days. The 6 month one I had a major reaction to. I had the nasal spray one in the beginning which gave me 5 years relief. Total 20 years with this disease. Then 2 years
I am in remission of endremetriosis for over a year . Since I had a full hysterectomy. I was on zolodex implants for 3 years every 28 days. The 6 month one I had a major reaction to. I had the nasal spray one in the beginning which gave me 5 years relief. Total 20 years with this disease. Then 2 years
Caravandreams
in
Fertility Network UK
6 years ago
Finally
No lupus RRMS had my fst series of solumedrol it's kicking my ass with late side effects but at least I know what expect next time. This will explain all the problems I've been experiencing. Good luck to all of you and thanks for the support.
No lupus RRMS had my fst series of solumedrol it's kicking my ass with late side effects but at least I know what expect next time. This will explain all the problems I've been experiencing. Good luck to all of you and thanks for the support.
I814u24u
in
LUPUS UK
6 years ago
Finally
After almost three years and multiple doctors I finally have a diagnoses of RRMS. Now they want do genetic testing for what I don't know, it's expensive and I'm not going to pay for it. I get my first round of solumedrol Monday. Wish me luck. It's got allot of side effects. I'm very apprehensive
After almost three years and multiple doctors I finally have a diagnoses of RRMS. Now they want do genetic testing for what I don't know, it's expensive and I'm not going to pay for it. I get my first round of solumedrol Monday. Wish me luck. It's got allot of side effects. I'm very apprehensive
I814u24u
in
LUPUS UK
6 years ago
LUNG INVOLEMENT IN CFS/FIBRO
Hi, My name is Nancy and I am new here. Have had fibro/cfs for 30 yrs Things have changed … Now I am having swallowing disorder. Had barium swallow/ manometry...all tests show that my esophagus has little motility. So I cough to the point of going to ER, and prednisone and IV solumedrol help to stop
Hi, My name is Nancy and I am new here. Have had fibro/cfs for 30 yrs Things have changed … Now I am having swallowing disorder. Had barium swallow/ manometry...all tests show that my esophagus has little motility. So I cough to the point of going to ER, and prednisone and IV solumedrol help to stop
JChris
in
Fibromyalgia Action UK
6 years ago
No diagnosis - treating symptoms only help please
After my latest test results I've accepted that my symptoms will be treated but not my thyroid. To be fair to my gp, she did all the tests including anti bodies and T3 and they show nothing that indicates a thyroid problem. I'm convinced there is one but I'll just have to be further down the line before
After my latest test results I've accepted that my symptoms will be treated but not my thyroid. To be fair to my gp, she did all the tests including anti bodies and T3 and they show nothing that indicates a thyroid problem. I'm convinced there is one but I'll just have to be further down the line before
josiebloggs
in
Thyroid UK
6 years ago
MS giving flu like symptoms
Hi everyone, I was wondering if anyone ever feels like they have the flu but really don’t? In the past I’ve realized that I start to have flu like symptoms prior & during a relapse which is not fun at all. The last several days my head feel heavy, I have a constant headache or dull pain behind my eyes
Hi everyone, I was wondering if anyone ever feels like they have the flu but really don’t? In the past I’ve realized that I start to have flu like symptoms prior & during a relapse which is not fun at all. The last several days my head feel heavy, I have a constant headache or dull pain behind my eyes
Eveliz
in
My MSAA Community
6 years ago
i was admitted with 4000 platelet count!!!
2 years back 2016 jaundice hepatatis A striked me den through it the bilribrium level reached to 51 count and then my haemglobin level came down to 4 frm 13 or 11. i was admitted and transfused blood twice.and was given treatment for autoimmuno disease and jaundice i was given predinasolone from 60mg
2 years back 2016 jaundice hepatatis A striked me den through it the bilribrium level reached to 51 count and then my haemglobin level came down to 4 frm 13 or 11. i was admitted and transfused blood twice.and was given treatment for autoimmuno disease and jaundice i was given predinasolone from 60mg
Platelet4000
in
ITP Support Association
6 years ago
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