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Bone Health
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No meds can help - ANY FURTHER OPTIONS - please?

Hello, there, everyone. I am one of the victims of Prolia. I have just turned 60 and am recovering from 5 vertebral fractures after stopping taking Prolia in October of 2017. I have already exhausted my bisphosphonate period (I was first diagnosed about 12 years ago) and unfortunately, after the fractures (September 2018) the doctor gave me another Prolia shot, to hold me until I could get the Forteo set up (it's prohibitively expensive). I am now scheduled to start Forteo soon - as soon as I get the money together - BUT I have to think ahead. I obviously can never go back on Prolia. Are there any other drugs that treat osteoporosis that anyone knows of? (No HRT - can't take that). As far as I know there are only bisphosphonates, denosumab and parathyroid. It infuriates me that patients aren't WARNED about the "drug prison" you end up in when you take Prolia. You can never go off it, once you take it. I am very angry.

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Oh Diane I feel for you! I had three Prolia-related fractures (due to a doctor-caused delay in receiving a shot). Right now I fear I'll be serving a "life sentence" in "Prolia Prison" for the "crime" of listening to my doctors! The only strategy they have suggested is going on injectable Reclast for a short time to get off Prolia, and then who knows. And Reclast is pretty scary looking drug too! It may be that stopping Reclast is not as destructive as stopping Prolia but I just don't know. I fear that Prolia has basically destroyed any prospects I might otherwise have had for a reasonably comfortable old age!

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What is Reclast?

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As I understand it (and I am not a doctor) Reclast is the US name for zoledronic acid, a bisphosphonate drug that is injected. It is made by Novartis and you can learn more at that company’s website. I would like to know what experiences others have had with it. But at first glance it looked pretty scary to me.

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I've had all the bi phosphonates I'm allowed to have I'm afraid

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How long a time was your delayed Prolia injection?

Also, how long after your last injection did you have 3 fractures.

Why did the Doctor delay your next one.

They know they should not be delayed without changing to another osteoporosis drug.

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Are you in the UK?

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Canada.

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I am desperately sorry. Have you seen Herons posts? Xx.

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No...what or who is Heron?

Would my situation be different if I were in the UK?

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HeronS is a member here. Have a look at her posts. She reversed her poor bone density with Nordic poles and weighed best and diet. She has posted loads of fact sheets. Cxxx

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Thank you. ..I will go look. Very much appreciated! !

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I'm sorry - I cant find HeronS! i'm so new at this forum...how do I find a member?

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This is one posting from HeronNS . healthunlocked.com/boneheal...

Type HeronNS in the search box and her other posts should show up.

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thanks

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You would have the choice of taking strontium ranelate (Protelos) if you were in the UK which I do not think is available in Canada.

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Probably not, they are not clued up here, particularly the physio therapists. First thing they will say is "see how far forward you can bend". This is an absolute no no. I have given up now and just take supplements and stand on the LivMD plate for 10 to 20 minutes a day.

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thank god my physiotherapist isn't that stupid. She specializes in osteoporosis injuries and basically treats me like I'm made of blown glass

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Glad to hear that and as it should be but not in the UK.

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I had a Physiatrist ask me to bend over too. This is a no no.

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You took bisphosphates before the Prolia and still got rebound fractures after stopping the Prolia? I think the Forteo will help you. I took it nightly for 24 months and built bone density. Then I was given the Prolia. After two shots I just couldn’t stand the all over pain anymore and stopped it. I’ve had 7 rebound fractures over the last 18 months. I hate Amgen and my doctor both.

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Bisphosphonates also cause fractures because they harden old bone and then it becomes brittle and can snap at any time.

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I know...I was always upset that they put me on them

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Were you put on another osteoporosis drug by your Dr. When he or she knew you wanted to stop?

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nope. This was 2017 and apparently, the warning about the rebound fractures only came out in 2018.

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Hi. I have had sponteous no trauma 6 vertebral and other fractures from Prolia cessation.IA rib and nyvsternum cracked just from sitti g down...!No warnings given but there were warnings and documented cases from Dr Lacy in Switzerland back in .2016 He said that that medical profressionals needed to be informed urgently. Nothing happened

..most medicos pharmacists still do know about rebound fracture risjk.This is a disgrace. I liken it to a vehicle recall where a fault creates risk of injury...eg. the faulty airbags.. owners were contacted individually worldwide...This should have happened with Prolia. There are no proper compulsory reporting mechanisms for such serious injuries caused by drugs yet there are for vehicles.Amgen makes more from Prolia..which incidentally is a rebranded cancer drug.... than the gdp of some countries...billions... It is now pushing men to take it and expanding their drug pyshing into Japan...

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Shocking

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Join the forum in the US, they are far more clued up about OP inspire.com/groups/national...

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Look up the natural supplement AlgaeCal. It sounds promising, and in any case sure can’t be as bad as these bone eating drugs they are handing out like candy.

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This might interest you. This has been going on for so long, that Merck's license has expired so all the other pharmas are cashing in selling the poisonous stuff under a different name abcnews.go.com/Politics/sup...

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