Search
Search
About
Log in
Join
Experiences with
Sodium citrate
Posts
Communities
3,622 public posts
Filter results
Treatment after Lu /Pluvicto?
It seems that there is paucity of data related to the effectiveness of treatments after Lu/Pluvicto. I'm beginning to suspect that pubished survival benefits for Radium 223/Pluvicto and chemotherapy cannot be assumed to be anticipated if the patient has had Pluvicto. My husband has completed 6 sessions
It seems that there is paucity of data related to the effectiveness of treatments after Lu/Pluvicto. I'm beginning to suspect that pubished survival benefits for Radium 223/Pluvicto and chemotherapy cannot be assumed to be anticipated if the patient has had Pluvicto. My husband has completed 6 sessions
cancervictim
in
Advanced Prostate Cancer
9 months ago
Scary collapse
So with the lack of a definitive diagnosis I have assumed I have ‘a bowel condition’. All tests normal as of April this year. Uncontrollable diarrhoea and permanent loose movements over a number of years plus diverticulosis are my history apart from Diabetes (2) low B12 Hiatus Hernia previous Bladder
So with the lack of a definitive diagnosis I have assumed I have ‘a bowel condition’. All tests normal as of April this year. Uncontrollable diarrhoea and permanent loose movements over a number of years plus diverticulosis are my history apart from Diabetes (2) low B12 Hiatus Hernia previous Bladder
Nonameme
in
IBS Network
11 months ago
Traveling with Imodium
I am due to fly to France in September and take the occasional Imodium/loperamide to help with my IBS. I want to take some of these with me but I'm not sure of how to go about this. Has anyone taken this medication on a plane, can it go in your cabin bag. I have tried to google this but can't seem
I am due to fly to France in September and take the occasional Imodium/loperamide to help with my IBS. I want to take some of these with me but I'm not sure of how to go about this. Has anyone taken this medication on a plane, can it go in your cabin bag. I have tried to google this but can't seem
Su29
in
IBS Network
11 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Tainted Blood Sample - Additional Info
Did not anticipate another blood sample error yesterday using hematology clinic lab with the personal touch specifically to avoid errors. Finding the positive, it is good to know that it is not only potassium that can be skewed greatly from a bad/coagulated sample but also protein and liver AST (aspartate
Did not anticipate another blood sample error yesterday using hematology clinic lab with the personal touch specifically to avoid errors. Finding the positive, it is good to know that it is not only potassium that can be skewed greatly from a bad/coagulated sample but also protein and liver AST (aspartate
Mishie14
in
MPN Voice
1 year ago
ICU recovery nightmare
Was in ICU for 6 days following a seizure due to low sodium (92) due they think to stomach virus though still having investigations for Addisons. 2 ambulances, helicopter , CPR , a stroke originally suspected. No ICU diary kept by hospital , no discharge help, no rehab , no advice on how I would feel
Was in ICU for 6 days following a seizure due to low sodium (92) due they think to stomach virus though still having investigations for Addisons. 2 ambulances, helicopter , CPR , a stroke originally suspected. No ICU diary kept by hospital , no discharge help, no rehab , no advice on how I would feel
downthemoor
in
ICUsteps
1 year ago
Olaparib and Radium 223 synergy ?
I seem to recall seeing that there was a trial on seeing if there was synergy to taking Olaparib and Radium 223. But can not find it. Anyone have any knowledge of this? I'm BRCA2 mutated and currently taking Olaparib, and considering Radium 223. Thanks.
I seem to recall seeing that there was a trial on seeing if there was synergy to taking Olaparib and Radium 223. But can not find it. Anyone have any knowledge of this? I'm BRCA2 mutated and currently taking Olaparib, and considering Radium 223. Thanks.
davebliz
in
Advanced Prostate Cancer
9 months ago
B12 by injection 💉 - first steps . . . 👣
Hello All ! 😊 About to embark on the path of trialing B12 by injection as there seems plenty to confirm that those who do not benefit from supplementation, do ( - often enough!) see improvements via 💉s! Don't yet know if this will be available via the NHS, even citing credible info, of which there
Hello All ! 😊 About to embark on the path of trialing B12 by injection as there seems plenty to confirm that those who do not benefit from supplementation, do ( - often enough!) see improvements via 💉s! Don't yet know if this will be available via the NHS, even citing credible info, of which there
Sid_Arthur
in
Pernicious Anaemia Society
1 year ago
A List for Newly Diagnosed that My Wife did in 2022 please add to list if anything is missed or wrong or needs updating. TIA
I have to pack, moving trucks coming in AM…and Rest… She shared this on a farce book group page. This List Is Not Complete Please feel free to Message Chat Us with your Email as items on the listing example: ie: were deleted / removed by a healthunlocked admin. The original post keeps getting modified
I have to pack, moving trucks coming in AM…and Rest… She shared this on a farce book group page. This List Is Not Complete Please feel free to Message Chat Us with your Email as items on the listing example: ie: were deleted / removed by a healthunlocked admin. The original post keeps getting modified
Shorehousejam
in
Advanced Prostate Cancer
9 months ago
PMR & Stage II Polycystic Kidneys
PCP determined PMR based on my “tinman stiffness” and bloodwork showing crazy inflammation levels in late January, and started me on 20 mg of prednisone. An ultrasound and xray turned up polycystic kidneys with a too-large to pass stones. I’ve tapered to 15 mg of prednisone at this point, and am wondering
PCP determined PMR based on my “tinman stiffness” and bloodwork showing crazy inflammation levels in late January, and started me on 20 mg of prednisone. An ultrasound and xray turned up polycystic kidneys with a too-large to pass stones. I’ve tapered to 15 mg of prednisone at this point, and am wondering
Eleanor0123
in
PMRGCAuk
1 year ago
Advice about results please. T3 prescription Portugal?
Thank you to all the admin and everyone on this great resource for your time and knowledge. Saw Endo a couple of weeks ago in Algarve, pretty depressing experience. He says not possible to get T3 prescription in Portugal. Says I need to lower my medication and wants to put me on statins. Can I please
Thank you to all the admin and everyone on this great resource for your time and knowledge. Saw Endo a couple of weeks ago in Algarve, pretty depressing experience. He says not possible to get T3 prescription in Portugal. Says I need to lower my medication and wants to put me on statins. Can I please
Bubydizer
in
Thyroid UK
1 year ago
One year on Alendronate Sodium
I was hoping to get off of this medication after 1 year. I didn’t start it until a year after my 2021 Dexa scan. 2121 spine -3.2 ,fem neck -3.0, total hip -2.2 2022 Started Alendronate sodium 70 mgs weekly 2023 spine -2.9, fem neck -3.1, total hip -2.4 I wasn’t expecting a drastic change, but
I was hoping to get off of this medication after 1 year. I didn’t start it until a year after my 2021 Dexa scan. 2121 spine -3.2 ,fem neck -3.0, total hip -2.2 2022 Started Alendronate sodium 70 mgs weekly 2023 spine -2.9, fem neck -3.1, total hip -2.4 I wasn’t expecting a drastic change, but
Alisa25
in
Osteoporosis Support
1 year ago
Blood Results Advice
hi there, please can you help me I had my bloods taken about a month ago as I was having heart palpitations and extreme fatigue. I have also been attending a chiropractor over a year and he discovered I have a intolerance to gluten, grains choc and caffeine. I am off all those things over three months
hi there, please can you help me I had my bloods taken about a month ago as I was having heart palpitations and extreme fatigue. I have also been attending a chiropractor over a year and he discovered I have a intolerance to gluten, grains choc and caffeine. I am off all those things over three months
Soprano67
in
Thyroid UK
1 year ago
Adalimumab serious side effects, any advice?
I had my first injection last Saturday and won’t be having another! Sheer fluke blood tests were booked for Thursday and the GP rang me Thursday evening. Sodium levels had gone very low which could lead to a coma. I’m now taking SIS electrolytes to try and raise them with more blood tests next Tuesday
I had my first injection last Saturday and won’t be having another! Sheer fluke blood tests were booked for Thursday and the GP rang me Thursday evening. Sodium levels had gone very low which could lead to a coma. I’m now taking SIS electrolytes to try and raise them with more blood tests next Tuesday
netballnow
in
NRAS
1 year ago
Chemotherapy or Pluvicto
I just completed Radium 223 treatment. PSA has been doubling since I failed Zytiga. Last scans show progression. I am offered chemo or a trial with Pluvicto. The cancer is throughout my bones. What should I do. I have had chemo at the beginning of this journey and it worked then.
I just completed Radium 223 treatment. PSA has been doubling since I failed Zytiga. Last scans show progression. I am offered chemo or a trial with Pluvicto. The cancer is throughout my bones. What should I do. I have had chemo at the beginning of this journey and it worked then.
Islandboy2021
in
Advanced Prostate Cancer
9 months ago
Child-Pugh Score for Cirrhosis Mortality
Under the scoring rate for ascites..Absent Slight Moderate Basically I was extremely bad when diagnosed but now absent but only via sodium and fluid restrictions and diuretics. Which would you count as your score?
Under the scoring rate for ascites..Absent Slight Moderate Basically I was extremely bad when diagnosed but now absent but only via sodium and fluid restrictions and diuretics. Which would you count as your score?
Male47
in
British Liver Trust
1 year ago
Zanubrutinib and water intake and sodium level
I am a 78 year old woman who has been on a very long watch and wait since 1999. I was diagnosed in 1998 and given a small amount of prednisone and chlorambucil and have received nothing since except ivig which started in June2021 due to infections. My watch and wait is over as I will be starting treatment
I am a 78 year old woman who has been on a very long watch and wait since 1999. I was diagnosed in 1998 and given a small amount of prednisone and chlorambucil and have received nothing since except ivig which started in June2021 due to infections. My watch and wait is over as I will be starting treatment
Bethsaida
in
CLL Support
1 year ago
Advice about diarrhoea symptoms please
I have had very little assistance from my GP in relation to my Pernicious Anaemia with gastric parietal cell antibodies diagnosis earlier this year. GP reluctantly agreed 5 loading doses but no more than three monthly injections after that, even though I have neurological symptoms. I have been supplementing
I have had very little assistance from my GP in relation to my Pernicious Anaemia with gastric parietal cell antibodies diagnosis earlier this year. GP reluctantly agreed 5 loading doses but no more than three monthly injections after that, even though I have neurological symptoms. I have been supplementing
yorkshiregirl4
in
Pernicious Anaemia Society
1 year ago
Could I try BAT to restore sensitivity to previously used antiandrogen treatments.
I failed Abiraterone and SOC doesn't allow the switch to Enzalutamide. I was reading on the use of BAT to resensitize mCRPC. Would this be a therapy that could work or is it too late now that I have failed. I know its not SOC but I am running out of choices and looking for some clarity. Its basically
I failed Abiraterone and SOC doesn't allow the switch to Enzalutamide. I was reading on the use of BAT to resensitize mCRPC. Would this be a therapy that could work or is it too late now that I have failed. I know its not SOC but I am running out of choices and looking for some clarity. Its basically
Islandboy2021
in
Advanced Prostate Cancer
10 months ago
Enzalutamide any advice/tips for dealing with side effects
Stage 4 PCA for last 3 years. Had 6 cycles of Chemo and then Abiraterone for 18+ months (PSA dropped to 0.2 then more recently rose to 58 in June '23 ). Abiraterone eventually stopped working and I was able to join Radium 223 trial. Completed 5 of 6 cycles of Radium 223, then elected to stop since scans
Stage 4 PCA for last 3 years. Had 6 cycles of Chemo and then Abiraterone for 18+ months (PSA dropped to 0.2 then more recently rose to 58 in June '23 ). Abiraterone eventually stopped working and I was able to join Radium 223 trial. Completed 5 of 6 cycles of Radium 223, then elected to stop since scans
Ronnie7C
in
Advanced Prostate Cancer
10 months ago
Mouthwash
Mouthwash is a really hard one as often it has glycols in it. My dentist said sometimes we can wash our mouths out with salt water and this helps when we have bad breath. and I am going to try listerine total care: Ingredients: sodium fluoride, water, alcohol, sorbital, paloxamer 407, eucalyptol flavor
Mouthwash is a really hard one as often it has glycols in it. My dentist said sometimes we can wash our mouths out with salt water and this helps when we have bad breath. and I am going to try listerine total care: Ingredients: sodium fluoride, water, alcohol, sorbital, paloxamer 407, eucalyptol flavor
memedeeme
in
Allergic to Glycols
1 year ago
1
...
18
19
20
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
1011 results
IBS Network
383 results
Advanced Prostate Cancer
315 results
View top 10 communities
Sort by
Most Relevant
Newest