Search
Search
About
Log in
Join
Experiences with
Socioenvironmental therapy
Posts
Communities
16,515 public posts
Filter results
Do you try to keep your diagnosis private?
My wife has been a wonderful companion through my diagnosis and recent hospitalization from sepsis due to my 2nd biopsy. She almost lost me but I have returned to vigor and preparing for this journey through radiation and ADT next month. However, because I still work and am at a point where my business
My wife has been a wonderful companion through my diagnosis and recent hospitalization from sepsis due to my 2nd biopsy. She almost lost me but I have returned to vigor and preparing for this journey through radiation and ADT next month. However, because I still work and am at a point where my business
Eadgbe
in
Prostate Cancer Network
1 year ago
New Study - Men on adt for 6 months- 75% recover Testosterone BUT median time is 18 MONTHS!!!????-Orgovyxx may be different? Yes I Hope??
New Meta Analysis From Marcap Consortium says :
Men on adt for 6 months -75% recover Testosterone BUT the median recovery time is 18 months !!!
AND THE OTHER 25% -NEVER!??
I TOOK ORGOVYXX FOR 4 MONTHS ???? THEY SAY IT MAY BE DIFFERENT FOR ORGOVYXX??
P.S. Any studies
New Meta Analysis From Marcap Consortium says :
Men on adt for 6 months -75% recover Testosterone BUT the median recovery time is 18 months !!!
AND THE OTHER 25% -NEVER!??
I TOOK ORGOVYXX FOR 4 MONTHS ???? THEY SAY IT MAY BE DIFFERENT FOR ORGOVYXX??
P.S. Any studies
JWS13
in
Advanced Prostate Cancer
11 months ago
Testosterone
Hi everyone, I'm a long time ThyroidUK participant. Right now the thyroid replacement is good, vitamins, minerals, are all great. I'm very particular to ensure this. I use HRT (Triestrogen/progesterone) topical cream and have used since age 45 and I'm now 65. Here's the problem: in March
Hi everyone, I'm a long time ThyroidUK participant. Right now the thyroid replacement is good, vitamins, minerals, are all great. I'm very particular to ensure this. I use HRT (Triestrogen/progesterone) topical cream and have used since age 45 and I'm now 65. Here's the problem: in March
gabkad
in
Menopause and Perimenopause Support
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Dentist/Root canal
hey guys. I had the dentist yesterday and they told me I needed root canal on my lower back tooth. I’ve never had any fillings ect from the dentist so didn’t know what to expect. Anyway, they injected my mouth twice and I didn’t feel fully numb so they done another 2 injections which they said was the
hey guys. I had the dentist yesterday and they told me I needed root canal on my lower back tooth. I’ve never had any fillings ect from the dentist so didn’t know what to expect. Anyway, they injected my mouth twice and I didn’t feel fully numb so they done another 2 injections which they said was the
Littlechopsxo
in
Anxiety and Depression Support
1 year ago
Need some guidance
2 years ago my daughter who is 6 now was diagnosed of ADHD and started with 10 mg of vyvanse but rapidly pass to 20 mg and ended up taking 40mg, one pill in the morning and at noon. And also take 1 mg of guanfacine Er to help her sleep at night which some time works or we need to give her melatonin.
2 years ago my daughter who is 6 now was diagnosed of ADHD and started with 10 mg of vyvanse but rapidly pass to 20 mg and ended up taking 40mg, one pill in the morning and at noon. And also take 1 mg of guanfacine Er to help her sleep at night which some time works or we need to give her melatonin.
Purple008
in
CHADD's ADHD Parents Together
1 year ago
[b]HOW LONG TO GET YOUR TESTOSTERONE BACK TO NORMAL (4-500) AFTER 4 MOS Treatment WITH ORGOVYX. It is now 5 months post treatment with Orgovyx.[/b]
[i]
HOW LONG TO GET YOUR TESTOSTERONE BACK AFTER 4 MOS TX WITH ORGOVYX.
[/i] Finally 7 mos . Post 20 imrt TX, 5 months post 4 mos. tx with Orgovyx, got my final blood labs:
PSA .2 PSA free.1
,very happy with this!
Testosterone 79
-VERY UNHAPPY WITH THIS ( still symptomatic for
[i]
HOW LONG TO GET YOUR TESTOSTERONE BACK AFTER 4 MOS TX WITH ORGOVYX.
[/i] Finally 7 mos . Post 20 imrt TX, 5 months post 4 mos. tx with Orgovyx, got my final blood labs:
PSA .2 PSA free.1
,very happy with this!
Testosterone 79
-VERY UNHAPPY WITH THIS ( still symptomatic for
JWS13
in
Advanced Prostate Cancer
10 months ago
Questions about protocol changes regarding ADT from 2nd opinion.
I was diagnosed with PC about 2 months ago. I received a 2nd opinion from John's Hopkins today and all cores had a different (slightly lower) Gleason scores than my local testing gave. However I do have the evidence of adenocarcinoma in the prostate and am starting on this road through RT (with an OAR
I was diagnosed with PC about 2 months ago. I received a 2nd opinion from John's Hopkins today and all cores had a different (slightly lower) Gleason scores than my local testing gave. However I do have the evidence of adenocarcinoma in the prostate and am starting on this road through RT (with an OAR
Eadgbe
in
Prostate Cancer Network
1 year ago
Progression
My Oncologist says that after 4+ years of ADT, I am showing signs of castrative resistance. He also said that I am currently Low volume, low PSA Oligmatistic. Can someone translate. I had a PSMA scan a couple of weeks ago and the Radiation Oncologist said that I had a positive response. Thanks
My Oncologist says that after 4+ years of ADT, I am showing signs of castrative resistance. He also said that I am currently Low volume, low PSA Oligmatistic. Can someone translate. I had a PSMA scan a couple of weeks ago and the Radiation Oncologist said that I had a positive response. Thanks
NDJIM
in
Advanced Prostate Cancer
1 year ago
Greg thru the keyhole.
I´ve chosen this title as I am going to give you a look at my life as it is, as it was when diagnosed and how I am moving forward as many people have been asking about my regime. I will keep to the facts . I am 74 this Nov and have tremor dominant PD. About 6 yr ago my GP suggested I get checked by
I´ve chosen this title as I am going to give you a look at my life as it is, as it was when diagnosed and how I am moving forward as many people have been asking about my regime. I will keep to the facts . I am 74 this Nov and have tremor dominant PD. About 6 yr ago my GP suggested I get checked by
gregorio
in
Cure Parkinson's
1 year ago
Progesterone: oestrogen ratio
Hi all I recently got my oestrogen and progesterone levels done by medichecks.I was hoping they worked out the actual ratio of oestrogen to progesterone but they don't so now I'm confused. The 2 results are calculated in different values (pmol/L Vs nmol/L) which makes it hard to interpret if one of
Hi all I recently got my oestrogen and progesterone levels done by medichecks.I was hoping they worked out the actual ratio of oestrogen to progesterone but they don't so now I'm confused. The 2 results are calculated in different values (pmol/L Vs nmol/L) which makes it hard to interpret if one of
Hollybushroad
in
Menopause and Perimenopause Support
1 year ago
Armpits? Yeah, armpits.
18 months ADT and my armpit hair has slowly, but finally, gone 😫.True, it's not a dramatic loss compared to the sacred memory of a hard erection! But a symptom is a symptom, and they all seem to have complications. After the hair had mostly become a memory, I started having a strange sensation in there
18 months ADT and my armpit hair has slowly, but finally, gone 😫.True, it's not a dramatic loss compared to the sacred memory of a hard erection! But a symptom is a symptom, and they all seem to have complications. After the hair had mostly become a memory, I started having a strange sensation in there
Lewellen
in
Advanced Prostate Cancer
1 year ago
Thyroid Trust Talk by Professor Karol Sikora
Professor Karol Sikora is giving a talk on ‘The Key to getting the best care: Making the system work for you’ on Monday 19th June 2023. https://www.thyroidtrust.org/events-listings.html (this is a link to the latest talks so will go out of date) I think this will be a very useful talk as we need
Professor Karol Sikora is giving a talk on ‘The Key to getting the best care: Making the system work for you’ on Monday 19th June 2023. https://www.thyroidtrust.org/events-listings.html (this is a link to the latest talks so will go out of date) I think this will be a very useful talk as we need
jimh111
in
Thyroid UK
1 year ago
Surgical Castration ?
I have been on Eligard for two months. Prior to starting ADT my Triglycerides were 100 (May 2023). After only two months of Eligard they are thru the roof (495). Since I have metastatic PC they tell me that I will be on ADT for life. I am considering surgical orchiectomy since there are fewer metabolic
I have been on Eligard for two months. Prior to starting ADT my Triglycerides were 100 (May 2023). After only two months of Eligard they are thru the roof (495). Since I have metastatic PC they tell me that I will be on ADT for life. I am considering surgical orchiectomy since there are fewer metabolic
Bigmaristuff
in
Advanced Prostate Cancer
1 year ago
ADT or not?
Hi, i have Stage 4 PCA, Gleason 5+4 so I am on Degaralix and Enzalutamide. I tend to refer to this treatment as ADT as shorthand because to my mind they both reduce testosterone. I wonder if I’m misusing ADT or does it matter?
Hi, i have Stage 4 PCA, Gleason 5+4 so I am on Degaralix and Enzalutamide. I tend to refer to this treatment as ADT as shorthand because to my mind they both reduce testosterone. I wonder if I’m misusing ADT or does it matter?
FortyWinks
in
Advanced Prostate Cancer
1 year ago
What the heck is wrong with me?
I haven't posted in awhile. I was turned down a second time for disability. My depression is to a point I don't want to talk anybody. The letter said "I maybe sad and forgetful" SAD! SAD! FORGETFUL! FORGETFUL! Everyday I deal with an illness that attacks my will live. I've had 21 rounds of old school
I haven't posted in awhile. I was turned down a second time for disability. My depression is to a point I don't want to talk anybody. The letter said "I maybe sad and forgetful" SAD! SAD! FORGETFUL! FORGETFUL! Everyday I deal with an illness that attacks my will live. I've had 21 rounds of old school
Raggedy-Ann
in
Anxiety and Depression Support
1 year ago
Trodelvy and dizziness
Hello everyone! I haven’t posted in awhile because I have been trying to make it through my new chemo regime. I am on Trodelvy and seemed to hit the jackpot in experiencing lots of the side affects. I have had one full cycle of it. ( 2 doses at 100 percent strength). Lots of nausea that I don’t
Hello everyone! I haven’t posted in awhile because I have been trying to make it through my new chemo regime. I am on Trodelvy and seemed to hit the jackpot in experiencing lots of the side affects. I have had one full cycle of it. ( 2 doses at 100 percent strength). Lots of nausea that I don’t
Ticket123
in
SHARE Metastatic Breast Cancer
1 year ago
UserName Change Search Link
I just changed my username name from the impersonal "JHMX" to "JohnInTheMiddle". Among other things I liked the TV show Malcolm in the Middle. And when I signed up it was in that kind of crazy time of DX that many people here will recognize. But as I become familiar with the stories and exploration here
I just changed my username name from the impersonal "JHMX" to "JohnInTheMiddle". Among other things I liked the TV show Malcolm in the Middle. And when I signed up it was in that kind of crazy time of DX that many people here will recognize. But as I become familiar with the stories and exploration here
JohnInTheMiddle
in
Advanced Prostate Cancer
1 year ago
ADT duration data measures
odd query but when reading studies and research on ADT duration they refer to months or years - I am curious as the implants are often prescribed monthly or 3 monthly but that actually means 4 weekly or 12 weekly with such ADT as goserelin - so are the studies that say 4, 6, 18, 24, 36 months referring
odd query but when reading studies and research on ADT duration they refer to months or years - I am curious as the implants are often prescribed monthly or 3 monthly but that actually means 4 weekly or 12 weekly with such ADT as goserelin - so are the studies that say 4, 6, 18, 24, 36 months referring
SimMartin
in
Advanced Prostate Cancer
1 year ago
RLS - Q&A
Hi RLS survivors I am continuing my Pregabalin journey and wanted to check in with this community to ask out loud various questions circling around my head. The good news is that Pregabalin is making a difference. I get some relief from jumpy legs at night even on a low dose (75mg) What I am experiencing
Hi RLS survivors I am continuing my Pregabalin journey and wanted to check in with this community to ask out loud various questions circling around my head. The good news is that Pregabalin is making a difference. I get some relief from jumpy legs at night even on a low dose (75mg) What I am experiencing
careerSquirrel
in
Restless Legs Syndrome
1 year ago
Synthetic Hormones, Chemo & Radiotherapy
Hello, I am 60 years old, female,in the U.K., have had Primary Myelofibrosis for 20 years, treated with Aspirin & HU until recently, now switched to Anagrelide. I have recently been diagnosed with breast cancer, due to have lumpectomy next month, then there will be decisions to make about further treatments
Hello, I am 60 years old, female,in the U.K., have had Primary Myelofibrosis for 20 years, treated with Aspirin & HU until recently, now switched to Anagrelide. I have recently been diagnosed with breast cancer, due to have lumpectomy next month, then there will be decisions to make about further treatments
CraftySpider
in
MPN Voice
1 year ago
1
...
97
98
99
100
Next page
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
4520 results
Thyroid UK
2406 results
Endometriosis UK
1878 results
View top 10 communities
Sort by
Most Relevant
Newest