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Experiences with
Small lymphocytic lymphoma (SLL)
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Bone Marrow Biopsy ?
My husband is about to have round 5 of BR chemotherapy tomorrow ...after his CT scan last week his Consultant said blood results, lymph nodes , spleen are all good ...I asked approximately how long patients usually have before they need more treatment and she said about 2 to 4 years ( I hoped it would
My husband is about to have round 5 of BR chemotherapy tomorrow ...after his CT scan last week his Consultant said blood results, lymph nodes , spleen are all good ...I asked approximately how long patients usually have before they need more treatment and she said about 2 to 4 years ( I hoped it would
alice111
in
CLL Support
8 years ago
Anyone been on Triptorelin during their treatment?
Hi everyone, I've just finished R-CHOP chemotherapy and am recovering after 7 months of treatment. I was on Triptorelin for 4 months to temporarily stop my ovaries from working (and protect them from chemo). I've been off it since September and have been waiting for my periods to come but there hasn't
Hi everyone, I've just finished R-CHOP chemotherapy and am recovering after 7 months of treatment. I was on Triptorelin for 4 months to temporarily stop my ovaries from working (and protect them from chemo). I've been off it since September and have been waiting for my periods to come but there hasn't
Guppy1
in
Lymphoma Canada
8 years ago
recently diagnosed with CLL
In Jan 2015 I went to the hospital with a platelet count of 1,000. The doctor told me I had ITP and treated me for 10 months with steroids, IVIG, and Nplate shots. After 3 more hospitalizations, I changed doctors in November. The new doc started me on Rituxan, continued the weekly Nplate, and scheduled
In Jan 2015 I went to the hospital with a platelet count of 1,000. The doctor told me I had ITP and treated me for 10 months with steroids, IVIG, and Nplate shots. After 3 more hospitalizations, I changed doctors in November. The new doc started me on Rituxan, continued the weekly Nplate, and scheduled
ohiojim
in
CLL Support
8 years ago
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Mantle Cell Lymphoma - Patient and Caregiver Survey
We need your help! Lymphoma Canada is preparing a submission to the panCanadian Oncology Drug Review (pCODR) for: IBRUTINIB (IMBRUVICA) FOR THE TREATMENT OF PATIENTS WITH RELAPSED/REFRACTORY MANTLE CELL LYMPHOMA (MCL). You can help by completing our survey, which will provide us with the patient
We need your help! Lymphoma Canada is preparing a submission to the panCanadian Oncology Drug Review (pCODR) for: IBRUTINIB (IMBRUVICA) FOR THE TREATMENT OF PATIENTS WITH RELAPSED/REFRACTORY MANTLE CELL LYMPHOMA (MCL). You can help by completing our survey, which will provide us with the patient
LCAdmin
Lymphoma Canada
in
Lymphoma Canada
8 years ago
Why 1 in 5 cancer clinical trials fizzle
[/i]"Clinical trials are the scientific soul of cancer-cure advances, but nearly 20 percent of these publicly funded studies fail to draw enough patients to render verdicts on experimental therapies, investigators reported Tuesday. That failure rate represents stalled progress in the pursuit of better
[/i]"Clinical trials are the scientific soul of cancer-cure advances, but nearly 20 percent of these publicly funded studies fail to draw enough patients to render verdicts on experimental therapies, investigators reported Tuesday. That failure rate represents stalled progress in the pursuit of better
AussieNeil
Partner
in
CLL Support
9 years ago
flow cytometry
In May 2015 I had this result: - Immunophenotypic evidence of persistent chronic
lymphocytic
leukemia /
small
lymphocytic
lymphoma
(CLL/SLL, ~49.7% of total), CD38(-) and ZAP-70(-). See comment.
In May 2015 I had this result: - Immunophenotypic evidence of persistent chronic
lymphocytic
leukemia /
small
lymphocytic
lymphoma
(CLL/SLL, ~49.7% of total), CD38(-) and ZAP-70(-). See comment.
bonbeat
in
CLL Support
9 years ago
Rituximab and bendamustine
Hi all fellow cllers. Is anyone else on rituximab and bendamustine at the moment? I just started last Thursday- a half dose of each of them on 2 successive days. Feeling totally steamrollered for Christmas now!! I did have fludarabine and rituximab nearly 5 years ago with great results. Has anyone
Hi all fellow cllers. Is anyone else on rituximab and bendamustine at the moment? I just started last Thursday- a half dose of each of them on 2 successive days. Feeling totally steamrollered for Christmas now!! I did have fludarabine and rituximab nearly 5 years ago with great results. Has anyone
Donegal
in
CLL Support
9 years ago
Elevated LDH
Hello to all. I've been reading posts on the site for months and have found it so helpful. I was diagnosed with CLL two years ago and went through 6 cycles of BR. Now in remission, but my last blood test show an elevated LDH (328). My hemotologist has me coming back to retest in four months rather than
Hello to all. I've been reading posts on the site for months and have found it so helpful. I was diagnosed with CLL two years ago and went through 6 cycles of BR. Now in remission, but my last blood test show an elevated LDH (328). My hemotologist has me coming back to retest in four months rather than
margella
in
CLL Support
9 years ago
Weekly Paclitaxel protocol
Dear all, My mother (post surgery) is on the following adjuvant chemotherapy regimen: 1. Taxol - Paclitaxel (70mg/m2) weekly for 12 week. [This comes out to be paclitaxel 100mg weekly as her BSA is 1.48] 2. Herceptin - Trastuzumab 150mg (weekly) for 52 weeks. No prior anthracyclin or any other chemotherapy
Dear all, My mother (post surgery) is on the following adjuvant chemotherapy regimen: 1. Taxol - Paclitaxel (70mg/m2) weekly for 12 week. [This comes out to be paclitaxel 100mg weekly as her BSA is 1.48] 2. Herceptin - Trastuzumab 150mg (weekly) for 52 weeks. No prior anthracyclin or any other chemotherapy
anshul_15
in
Breast Cancer India
9 years ago
Bloodwise news
Blood cancer drugs kept on the Cancer Drugs Fund We're delighted to announce that NHS England have confirmed that two blood cancer treatments will continue to be available to NHS patients via the Cancer Drugs Fund. The treatments were delisted from the CDF in September, but have been readmitted following
Blood cancer drugs kept on the Cancer Drugs Fund We're delighted to announce that NHS England have confirmed that two blood cancer treatments will continue to be available to NHS patients via the Cancer Drugs Fund. The treatments were delisted from the CDF in September, but have been readmitted following
Hidden
in
CLL Support
9 years ago
Brain Aneurysms, Brain Tumours & Stage 3 Non Hodgkins Lymphoma in less than 3 months....my carer, Husband and Father!
Zero support, mentally, or physically. His daughter, now 25 was diagnosed with 6cm Brain Aneurysm this time last year, and still recovering from coiling that has slowed the aneurysm a little. Yet, my hubby 47, is blanked, repeatedly told not to worry...it's doubtful my hubby, his daughter and his
Zero support, mentally, or physically. His daughter, now 25 was diagnosed with 6cm Brain Aneurysm this time last year, and still recovering from coiling that has slowed the aneurysm a little. Yet, my hubby 47, is blanked, repeatedly told not to worry...it's doubtful my hubby, his daughter and his
Claire71uk
in
Pain Concern
9 years ago
Possible genetic key in Diffuse Large B-cell lymphoma (DLBCL) may explain why some patients don't respond to treatment
Oxford researchers funded by the UK blood cancer charity Bloodwise, [i]"have found that high levels of shortened forms of a protein, known as FOXP1, in a patient's lymphoma cells enable the cancer to evade the immune system, potentially nearly halving survival rates for these patients"[/i]: http://www.medicalnewstoday.com
Oxford researchers funded by the UK blood cancer charity Bloodwise, [i]"have found that high levels of shortened forms of a protein, known as FOXP1, in a patient's lymphoma cells enable the cancer to evade the immune system, potentially nearly halving survival rates for these patients"[/i]: http://www.medicalnewstoday.com
AussieNeil
Partner
in
CLL Support
9 years ago
Variability in platelet count
I am ten weeks into the clinical trial with ACP-196 and all is going well. My white count rose and peaked at about day 60 and has decreased 25% to today (day 85). I arbitrarily put a cubic polynomial through these data. https://www.desmos.com/calculator/x6fbswb2lq But the platelets are all over the
I am ten weeks into the clinical trial with ACP-196 and all is going well. My white count rose and peaked at about day 60 and has decreased 25% to today (day 85). I arbitrarily put a cubic polynomial through these data. https://www.desmos.com/calculator/x6fbswb2lq But the platelets are all over the
Ramses
in
CLL Support
9 years ago
CLL relapse and Bendamustine
Hi, My dad has CLL and is possibly going to need more chemo in the next couple of months. The consultant said it would be Bendamustine but I've read that this drug is possibly going to be delisted in November. Please can anyone advise on an alternative if it is delisted or is it possible to get the
Hi, My dad has CLL and is possibly going to need more chemo in the next couple of months. The consultant said it would be Bendamustine but I've read that this drug is possibly going to be delisted in November. Please can anyone advise on an alternative if it is delisted or is it possible to get the
Sara2013
in
CLL Support
9 years ago
Another new one
Just found your group and thought I'd say hello. No major issues at the moment but it's always good to stay connected. I was diagnosed in 2009, required treatment earlier this year, and am now in a partial remission. I had bendamustine, Rituxan, and Idelalisib as part of a clinical trial but failed
Just found your group and thought I'd say hello. No major issues at the moment but it's always good to stay connected. I was diagnosed in 2009, required treatment earlier this year, and am now in a partial remission. I had bendamustine, Rituxan, and Idelalisib as part of a clinical trial but failed
Eagle5327
in
CLL Support
9 years ago
Plant-derived compound shows activity against Non Hodgkin Lymphoma (NHL). CLL is a NHL.
[i]"The active compound in a plant extract has shown promise for treating non-Hodgkin lymphomas (NHLs), according to researchers. The compound, withaferin A, is a steroidal lactone isolated from the Ayruvedic medicinal plant Ashwagandha (Withania somnifera) : : Withaferin A exhibited activity in several
[i]"The active compound in a plant extract has shown promise for treating non-Hodgkin lymphomas (NHLs), according to researchers. The compound, withaferin A, is a steroidal lactone isolated from the Ayruvedic medicinal plant Ashwagandha (Withania somnifera) : : Withaferin A exhibited activity in several
AussieNeil
Partner
in
CLL Support
9 years ago
FDA updates warning about Bendamustine (Trenda)
The FDA issued a statement, warning healthcare professionals not to use the chemotherapy drug Treanda Injection (bendamustine hydrochloride) with closed system transfer devices (CSTDs), adapters, and syringes containing polycarbonate or acrylonitrile-butadiene-styrene (ABS). In an expanding world of
The FDA issued a statement, warning healthcare professionals not to use the chemotherapy drug Treanda Injection (bendamustine hydrochloride) with closed system transfer devices (CSTDs), adapters, and syringes containing polycarbonate or acrylonitrile-butadiene-styrene (ABS). In an expanding world of
ThreeWs
in
CLL Support
9 years ago
MRD negative
After 6 rounds of FCR (2 rounds of 5 x days F&C, and 4 rounds with just 3 days of taking the tablets) we got the results of my husband's bone marrow biopsy yesterday. It was the best possible news - he is MRD negative ( minimal residual disease) ie complete remission. It was tough, but obviously worth
After 6 rounds of FCR (2 rounds of 5 x days F&C, and 4 rounds with just 3 days of taking the tablets) we got the results of my husband's bone marrow biopsy yesterday. It was the best possible news - he is MRD negative ( minimal residual disease) ie complete remission. It was tough, but obviously worth
Fowey2009
in
CLL Support
9 years ago
Joe Parzych,
Am a relapsed CLL patient, residing in West suburban Chicago. First diagnosed in 2008, and receive care at Nithwestern Hospital in Chicago. Started participation of clinical trial March 2014, ABT-199 and Rituxan. In remission since December 2014. Feeling very good.
Am a relapsed CLL patient, residing in West suburban Chicago. First diagnosed in 2008, and receive care at Nithwestern Hospital in Chicago. Started participation of clinical trial March 2014, ABT-199 and Rituxan. In remission since December 2014. Feeling very good.
Parzych
in
CLL Support
9 years ago
Melanoma Risk Increased in CLL/SLL Patients
[i]Results of a new study have indicated that the risk of developing melanoma may be almost doubled among survivors of chronic
lymphocytic
leukemia (CLL)/
small
lymphocytic
lymphoma
(SLL) who were treated with certain chemotherapeutic agents or who had specific immune-related medical conditions.
[i]Results of a new study have indicated that the risk of developing melanoma may be almost doubled among survivors of chronic
lymphocytic
leukemia (CLL)/
small
lymphocytic
lymphoma
(SLL) who were treated with certain chemotherapeutic agents or who had specific immune-related medical conditions.
AussieNeil
Partner
in
CLL Support
9 years ago
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