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Small lymphocytic lymphoma (SLL)
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Cancer Back again
I saw my DR again yesterday and I was in full remission after doing R-EPOCH and finishing in December. By the end of February, I had night sweats again, strong fatigue systems and could not eat. The DR was puzzled and now is scrambling for what to do next. Has anyone been in this situation? This is the
I saw my DR again yesterday and I was in full remission after doing R-EPOCH and finishing in December. By the end of February, I had night sweats again, strong fatigue systems and could not eat. The DR was puzzled and now is scrambling for what to do next. Has anyone been in this situation? This is the
CarenR
in
Non Hodgkin's Lymphoma Friends
7 years ago
Blood results concerns
Here are my blood results from yesterday. To "HIGHS" popped up that have never been there before. I've had the LOW abs lymph since chemo so I'm not worried about that. The NEW HIGHS are my concern. Never had before. I'm sick with an upper respiratory thing and on antibiotics so I hope that is
Here are my blood results from yesterday. To "HIGHS" popped up that have never been there before. I've had the LOW abs lymph since chemo so I'm not worried about that. The NEW HIGHS are my concern. Never had before. I'm sick with an upper respiratory thing and on antibiotics so I hope that is
momof12
in
CLL Support
7 years ago
Bendamustine/Rituxan
I am a 53 year old single male. I was diagnosed with CLL about 10 years ago. In recent months my WBC has raised to almost 200,000 and my platelets have dropped as well as my hemoglobin count. My oncologist is sending me to get a PET scan next week and believes I will have to start a regime of Bendamustine
I am a 53 year old single male. I was diagnosed with CLL about 10 years ago. In recent months my WBC has raised to almost 200,000 and my platelets have dropped as well as my hemoglobin count. My oncologist is sending me to get a PET scan next week and believes I will have to start a regime of Bendamustine
mejiae
in
CLL Support
7 years ago
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The fight of my life
I am a 65year old male, I was battling Mediastinal largeB cell lymphoma, all of 2016. I began having symptoms the last few months of 2015. Terrible night sweats, shortness of breath, severe fatigue, just never put two and two together. The second week of January 2016, I went into respiratory arrest
I am a 65year old male, I was battling Mediastinal largeB cell lymphoma, all of 2016. I began having symptoms the last few months of 2015. Terrible night sweats, shortness of breath, severe fatigue, just never put two and two together. The second week of January 2016, I went into respiratory arrest
oncloudnine
in
Non Hodgkin's Lymphoma Friends
7 years ago
Secondary BR Treatment
After being diagnosed in Jan 2013 went through immediate FCR which lasted eight months. This led to a three year remission after which the disease was again detected. Disease progression has been gradual but my Oncologist says further treatment with Retuxin/Bendamustine is very likely soon (he has been
After being diagnosed in Jan 2013 went through immediate FCR which lasted eight months. This led to a three year remission after which the disease was again detected. Disease progression has been gradual but my Oncologist says further treatment with Retuxin/Bendamustine is very likely soon (he has been
plett1234
in
CLL Support
7 years ago
Herclon(Trastuzumab) not paid by Insurance Company by saying that"Hospitalization is not Required to take this injection,hence not paid"
Dear Sirs, This is my 2nd letter on the same issue. I have Group Insurance Policy provided by my company. This is from National Insurance Co. Limited & managed by TPA- M/s E-Meditek TPA Ltd. My wife is a patient of breast cancer,most of treatment completed but mainenance Trastuzumab
Dear Sirs, This is my 2nd letter on the same issue. I have Group Insurance Policy provided by my company. This is from National Insurance Co. Limited & managed by TPA- M/s E-Meditek TPA Ltd. My wife is a patient of breast cancer,most of treatment completed but mainenance Trastuzumab
shashishekhar
in
Breast Cancer India
7 years ago
Advice for new lymphoma diagnosis
I just found out tonight my mother has lymphoma. Biopsy and another cat scan won't be done for 4 more days and they are sending her home. She lives in rural nova Scotia. Just looking for any advice regarding our next steps? Should we be seeking opinions in Halifax right away? Thanks
I just found out tonight my mother has lymphoma. Biopsy and another cat scan won't be done for 4 more days and they are sending her home. She lives in rural nova Scotia. Just looking for any advice regarding our next steps? Should we be seeking opinions in Halifax right away? Thanks
Hal2628
in
Non Hodgkin's Lymphoma Friends
7 years ago
Oxford update
Hi All I was at Oxford on Thursday it was nice to catch up with Dr Anna Schuh My Bloods were ok but I am now early stage B still all that means is more fundraising and still a way to go, Dr Schuh mentioned when I asked about the new treatments that in the next 2-3 years the will look to move away
Hi All I was at Oxford on Thursday it was nice to catch up with Dr Anna Schuh My Bloods were ok but I am now early stage B still all that means is more fundraising and still a way to go, Dr Schuh mentioned when I asked about the new treatments that in the next 2-3 years the will look to move away
TheFlyer
in
CLL Support
7 years ago
Rituxan (Rituximab) round two three for and five
Hey guys Last month I had my 2nd infusion which I hand an awful reaction (Backpain extreme sweating and vomiting) and this was only within 15 of the infusion starting. it was decided by my Rheumatologist that we ould not continue with the treatment as the reaction could be worse the next time. I
Hey guys Last month I had my 2nd infusion which I hand an awful reaction (Backpain extreme sweating and vomiting) and this was only within 15 of the infusion starting. it was decided by my Rheumatologist that we ould not continue with the treatment as the reaction could be worse the next time. I
wotshernameagain
in
LUPUS UK
7 years ago
REJECTION OF CLAIM
Expenses of Rs.46646.46 are on account of FIRMAGON INJECTIONS which are prescribed treatment for prostate Cancer by TPA by treating them under post thus restricting it to 10% of sum assured which is fully utilized for other expenses.I wish to bring it to your notice that in case of Mr. Ramesh Bhai L
Expenses of Rs.46646.46 are on account of FIRMAGON INJECTIONS which are prescribed treatment for prostate Cancer by TPA by treating them under post thus restricting it to 10% of sum assured which is fully utilized for other expenses.I wish to bring it to your notice that in case of Mr. Ramesh Bhai L
aksingal
in
Breast Cancer India
7 years ago
Bewildered
Hi I'm trying to find all there is to know about Burkitt lymphoma, my brother was diagnosed in September 16 since then he's gone through all sorts, docs not keen to talk much but know there's still a long way to go, any positives out there, would love to speak to survivors.
Hi I'm trying to find all there is to know about Burkitt lymphoma, my brother was diagnosed in September 16 since then he's gone through all sorts, docs not keen to talk much but know there's still a long way to go, any positives out there, would love to speak to survivors.
Turton
in
Non Hodgkin's Lymphoma Friends
7 years ago
Post transplant feedback
Hello again. I am three months post stem cell transplant for NHL that crossed the blood brain barrier into my CNS. There are many restrictions for me and I wondered who else was in the same boat? Thank you.
Hello again. I am three months post stem cell transplant for NHL that crossed the blood brain barrier into my CNS. There are many restrictions for me and I wondered who else was in the same boat? Thank you.
Jennchap1
in
Non Hodgkin's Lymphoma Friends
7 years ago
My introduction
I was diagnosed with B cell CLL in 2001 and took FCR in 2003 and then had relaps in 2012 , so took BR in 2013 and again in 2016 March took RCV chemo. Now fr past 3 weeks started Ibnutrib treatment, 2x140 GMs PD. So wanted to gain experience from my bros n Sis , suffering from this diseases
I was diagnosed with B cell CLL in 2001 and took FCR in 2003 and then had relaps in 2012 , so took BR in 2013 and again in 2016 March took RCV chemo. Now fr past 3 weeks started Ibnutrib treatment, 2x140 GMs PD. So wanted to gain experience from my bros n Sis , suffering from this diseases
Anilbhard
in
CLL Support
7 years ago
Urine odor has changed
I shared that I am still in Rituxin treatment every 3 months for Mantle Cel NHL until July 2017. Something I have noticed is a foul odor of my urine. Sometimes burning. Had it tested and no infection. I try to drink only water and occasional ginger ale. no changes in other medications. Has anyone
I shared that I am still in Rituxin treatment every 3 months for Mantle Cel NHL until July 2017. Something I have noticed is a foul odor of my urine. Sometimes burning. Had it tested and no infection. I try to drink only water and occasional ginger ale. no changes in other medications. Has anyone
Judyhoneycomb
in
Non Hodgkin's Lymphoma Friends
7 years ago
New here...
Diagnosed in July 2014- RCHOP treated in Pittsburgh at the Mario Lemieux Center for Blood Cancers. Relapsed in November of 2015, received RICE then BEAM before April 2016 auto stem cell transplant.
Diagnosed in July 2014- RCHOP treated in Pittsburgh at the Mario Lemieux Center for Blood Cancers. Relapsed in November of 2015, received RICE then BEAM before April 2016 auto stem cell transplant.
Mrjackwagon
in
Non Hodgkin's Lymphoma Friends
7 years ago
Hi! I'm new.
Hello-I have been fighting Non-Hodgkins Lymphoma since I was 35, and for almost 12 years. I had R-CHOP in the beginning, Bendamustine and VinChristine 8 years ago, and am on a Rituxan regiment every three months now. I continue to feel fatigue. Does anyone else feel this way in a similar situation as
Hello-I have been fighting Non-Hodgkins Lymphoma since I was 35, and for almost 12 years. I had R-CHOP in the beginning, Bendamustine and VinChristine 8 years ago, and am on a Rituxan regiment every three months now. I continue to feel fatigue. Does anyone else feel this way in a similar situation as
MsMindy
in
Non Hodgkin's Lymphoma Friends
7 years ago
Platelet count going down
I have CLL Received chemo first time, 2 treatment 1st. 9/14 & 9/15, 2015. The next treatment was 10/27 & 10/28. All was good until 7/2016 when my platelet started to drop. When the count reached 48 I had 4 Rituximab infusions in November 2016. After the 2nd infusion the count was back to 130. They
I have CLL Received chemo first time, 2 treatment 1st. 9/14 & 9/15, 2015. The next treatment was 10/27 & 10/28. All was good until 7/2016 when my platelet started to drop. When the count reached 48 I had 4 Rituximab infusions in November 2016. After the 2nd infusion the count was back to 130. They
budm
in
CLL Support
7 years ago
Anyone taking Rifampicin?
Hi everyone, I saw the specialist this afternoon, as an itcher not cured by cholestyramine I was prescribed Naltrexone which gave me some very unpleasant side effects. I now have a two month supply of Rifampicin which I understand is an anti biotic. I think anti biotics can destroy the good gut bacteria
Hi everyone, I saw the specialist this afternoon, as an itcher not cured by cholestyramine I was prescribed Naltrexone which gave me some very unpleasant side effects. I now have a two month supply of Rifampicin which I understand is an anti biotic. I think anti biotics can destroy the good gut bacteria
butterflyEi
in
PBC Foundation
7 years ago
Excellent Overview of Immunotherapies and Other Treatments for Lymphoma
This is a great summary of the range of treatment options currently available for lymphoma, including CLL. I found it enlightening and full of hope. Enjoy! Geoff https://youtu.be/JAlEDi2rugE
This is a great summary of the range of treatment options currently available for lymphoma, including CLL. I found it enlightening and full of hope. Enjoy! Geoff https://youtu.be/JAlEDi2rugE
Eagle5327
in
CLL Support
7 years ago
Malt Lymphoma
Hi all i had an abcess under my left breas in Sept 2016 my gp treated with antibiotics after two lots she decided to send me for xray my left lung showed abnormalities so was asked to go to see Dr at Hospital who arranged a PET scan this came back showing a cancer in my left lung and small one in the
Hi all i had an abcess under my left breas in Sept 2016 my gp treated with antibiotics after two lots she decided to send me for xray my left lung showed abnormalities so was asked to go to see Dr at Hospital who arranged a PET scan this came back showing a cancer in my left lung and small one in the
MALSTAN
in
Non Hodgkin's Lymphoma Friends
7 years ago
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