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Small lymphocytic lymphoma (SLL)
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Herclon under mediclaim
My wife has grade 4 HER positive metastatic breast cancer. The doctor has tried various medicines/ combinations and now she is on Herclon + Tykerb. I have a group mediclaim policy of Oriental Insurance through my office. The insurance company has declined claim on following grounds: 1. Infusion of Herclon
My wife has grade 4 HER positive metastatic breast cancer. The doctor has tried various medicines/ combinations and now she is on Herclon + Tykerb. I have a group mediclaim policy of Oriental Insurance through my office. The insurance company has declined claim on following grounds: 1. Infusion of Herclon
goyaldd
in
Breast Cancer India
7 years ago
Update for followers
I note I have 11 followers and I'm surprised I have not provided an update for quite a while. I started Obinutuzumab and venetoclax in march 2016 with 75 percent CLL in my bone marrow aged 47. I had some early challenges but by August I had only 0.08 percent! Mrd positive. Next bone marrow biopsy
I note I have 11 followers and I'm surprised I have not provided an update for quite a while. I started Obinutuzumab and venetoclax in march 2016 with 75 percent CLL in my bone marrow aged 47. I had some early challenges but by August I had only 0.08 percent! Mrd positive. Next bone marrow biopsy
Corin850
in
CLL Support
7 years ago
Tired
Was diagnosed with follicular lymphoma about 9 years ago. Left work for an hour a day for radiation treatment, then back to work (for 6 wks)Was told my lymphnodes were 'enlarged' 6 months ago, and to go back to onocologist in feb. I know this is the slowest growing lymphoma, but there hasn't been a
Was diagnosed with follicular lymphoma about 9 years ago. Left work for an hour a day for radiation treatment, then back to work (for 6 wks)Was told my lymphnodes were 'enlarged' 6 months ago, and to go back to onocologist in feb. I know this is the slowest growing lymphoma, but there hasn't been a
Tamela
in
Non Hodgkin's Lymphoma Friends
7 years ago
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What a shock
My non Hodgkin's lymphoma just turned into bone marrow cancer! Luckily I fell and ended up in the hospital. It took 8 days and a blood test to find out what suddenly made me so week and there it was! Now doing chemo and will have another bone marrow biopsy to see if any improvement. If not onto new
My non Hodgkin's lymphoma just turned into bone marrow cancer! Luckily I fell and ended up in the hospital. It took 8 days and a blood test to find out what suddenly made me so week and there it was! Now doing chemo and will have another bone marrow biopsy to see if any improvement. If not onto new
Jimmy82
in
Non Hodgkin's Lymphoma Friends
7 years ago
Official Diagnosis
After learning Dec 22nd I had biopsy results showing Anaplastic Large Cell Lymphoma, I finally received my true diagnosis after Bone Marrow Test and PET Scan. I have cutaneous T cell alk negative. My lesions, I only had 12 small lesions, maybe the size of a dime. 2 showed signs of active cancer the rest
After learning Dec 22nd I had biopsy results showing Anaplastic Large Cell Lymphoma, I finally received my true diagnosis after Bone Marrow Test and PET Scan. I have cutaneous T cell alk negative. My lesions, I only had 12 small lesions, maybe the size of a dime. 2 showed signs of active cancer the rest
Afleisch44
in
Non Hodgkin's Lymphoma Friends
7 years ago
2nd bout with Lymphoma - starting Bendeka, a new Bendamustine formulation
Starting Bendeka + rituximab + allopurinol tomorrow morning. Today is Sunday and I forgot to ask my oncologist if I should start the allopurinol the day before, or the day starting chemo. Does anyone have any experience with this? Thanks! [i] [/i] [i]Changed title to help others interested in Bendeka
Starting Bendeka + rituximab + allopurinol tomorrow morning. Today is Sunday and I forgot to ask my oncologist if I should start the allopurinol the day before, or the day starting chemo. Does anyone have any experience with this? Thanks! [i] [/i] [i]Changed title to help others interested in Bendeka
Howie40
in
CLL Support
7 years ago
Zydelig (idelalisib) first line... NO!
I have had a few emails and PMs asking about the use of Zydelig (idelalisib) for first line, since patients know I'm on this combined with rituxan. I direct you to the newly revised drug label, which states...
[i]1 INDICATIONS AND USAGE[/i]
[i]1.1 Relapsed Chronic Lymphocytic Leukemia[/i
I have had a few emails and PMs asking about the use of Zydelig (idelalisib) for first line, since patients know I'm on this combined with rituxan. I direct you to the newly revised drug label, which states...
[i]1 INDICATIONS AND USAGE[/i]
[i]1.1 Relapsed Chronic Lymphocytic Leukemia[/i
Cllcanada
Top Poster CURE Hero
in
CLL Support
7 years ago
Recently diagnosed at 36 years old
Hello all! I was recently diagnosed with either a marginal zone lymphoma or CLL--they are uncertain which exact one because it is stage 0 and there are no swollen nodes or anything to biopsy to be sure. Phenotype is CD 5 negative and CD 10 negative FMC7 and Pax5 positive and CD23 positive. FISH shows
Hello all! I was recently diagnosed with either a marginal zone lymphoma or CLL--they are uncertain which exact one because it is stage 0 and there are no swollen nodes or anything to biopsy to be sure. Phenotype is CD 5 negative and CD 10 negative FMC7 and Pax5 positive and CD23 positive. FISH shows
Smarker
in
Non Hodgkin's Lymphoma Friends
7 years ago
large B-cell lymphoma
My name is Larry soon to be 63, thanks for allowing me into your group. I was diagnosed with diffuse large B-cell lymphoma in March of 2016, It developed in my lower jaw effecting 2 teeth which were extracted. After all the scans and test for staging, it was determined that the lymphoma was local to
My name is Larry soon to be 63, thanks for allowing me into your group. I was diagnosed with diffuse large B-cell lymphoma in March of 2016, It developed in my lower jaw effecting 2 teeth which were extracted. After all the scans and test for staging, it was determined that the lymphoma was local to
Larwil
in
Non Hodgkin's Lymphoma Friends
7 years ago
Bendamustine vs FCR
My consultant is discussing treatment options with me. Been in W and W for almost 6 years but now my ALC is over145 and my haemaglobin is drifting down below 120. He is suggesting that Bendamustine with Rituximab will be a better option for me than FCR because of some particular presentation of my condition
My consultant is discussing treatment options with me. Been in W and W for almost 6 years but now my ALC is over145 and my haemaglobin is drifting down below 120. He is suggesting that Bendamustine with Rituximab will be a better option for me than FCR because of some particular presentation of my condition
Clovelly
in
CLL Support
7 years ago
Mantle cel Non Hodgkin's Lymphoma
I was diagnosed April 2014, stage IV. Had Rchop and now on Rituxin. Spleen enlarged, nodules from neck to groin included. Was in bone marrow. In remission. Neuropathy in feet and need cane to walk, sometimes walker at night. Bad taste in mouth all the time. Foul urine odor. Fatigue.
I was diagnosed April 2014, stage IV. Had Rchop and now on Rituxin. Spleen enlarged, nodules from neck to groin included. Was in bone marrow. In remission. Neuropathy in feet and need cane to walk, sometimes walker at night. Bad taste in mouth all the time. Foul urine odor. Fatigue.
Judyhoneycomb
in
Non Hodgkin's Lymphoma Friends
7 years ago
Chronic lymphocytic leukemia
Hi I'm new here and have been researching. This is my story. Late oct. 2016 during a routine mammogram an enlarged lymphnode was seen under my left arm. After an ultra sound and a needle biopsy I was diagnosed with low grade B cell lymphoma. Oncologist wanted an excisional biopsy so had a lymphnode
Hi I'm new here and have been researching. This is my story. Late oct. 2016 during a routine mammogram an enlarged lymphnode was seen under my left arm. After an ultra sound and a needle biopsy I was diagnosed with low grade B cell lymphoma. Oncologist wanted an excisional biopsy so had a lymphnode
Grandmajoanie
in
CLL Support
7 years ago
CD8 T Cell Lymphoma in skin tissue and muscle
Diagnosed Nov 15 with above without suffering from any of the normal symptons, had 6 courses of CHOP treatment, finished Mar 16. Scan revealed I was in complete remission. Had to undergo stem cell transplant in May/Jun 16. Didn't suffer some of the side effects but wouldn't wish on my worst enemy. Further
Diagnosed Nov 15 with above without suffering from any of the normal symptons, had 6 courses of CHOP treatment, finished Mar 16. Scan revealed I was in complete remission. Had to undergo stem cell transplant in May/Jun 16. Didn't suffer some of the side effects but wouldn't wish on my worst enemy. Further
squashman
in
Non Hodgkin's Lymphoma Friends
7 years ago
Southwestern Ontario Chapter Peer-to-Peer Support Meeting
Living the “New Normal” A cancer diagnosis brings with it worry, fear and often a realignment of priorities. Questions such as how do I move forward, what changes do I need to make, where do I begin and how do I go about it drift in and out of thought. Often individuals refer to this as the new normal
Living the “New Normal” A cancer diagnosis brings with it worry, fear and often a realignment of priorities. Questions such as how do I move forward, what changes do I need to make, where do I begin and how do I go about it drift in and out of thought. Often individuals refer to this as the new normal
LCAdmin
Lymphoma Canada
in
Lymphoma Canada
7 years ago
CLL and B Cell lymphoma
My mom at 87 was diagnosed with B Cell lymphoma and passed March of 2016. A year plus after being diagnosed. I was diagnosed with CLL July 2016 at 58yrs old. Are they associated in any way? My doctor says no.
My mom at 87 was diagnosed with B Cell lymphoma and passed March of 2016. A year plus after being diagnosed. I was diagnosed with CLL July 2016 at 58yrs old. Are they associated in any way? My doctor says no.
Teddy405
in
CLL Support
7 years ago
Melodyj
Hi just new to this website. I'm reading some of the posts and I am a Non-Hodgkin's follicular lymphoma patients I am in remission one year and still undergoing maintenance treatments until next November 2017. My lymphoma what stage 3A as in no symptoms however my symptoms mimic menopause and fibromyalgia
Hi just new to this website. I'm reading some of the posts and I am a Non-Hodgkin's follicular lymphoma patients I am in remission one year and still undergoing maintenance treatments until next November 2017. My lymphoma what stage 3A as in no symptoms however my symptoms mimic menopause and fibromyalgia
Melodyj
in
Non Hodgkin's Lymphoma Friends
7 years ago
Trevor 93, Follicular Lymphoma since 2013
Hello, just signed up so I will introduce myself. Trevor, 69 , married with 2 grownup children( 45 - 39) . I had my cancerous Prostate removed in May 2013 , they also removed a lymph node from my groin as it was noticed to be swollen. When I left hospital i was told i had Follicular Lymphoma. I see
Hello, just signed up so I will introduce myself. Trevor, 69 , married with 2 grownup children( 45 - 39) . I had my cancerous Prostate removed in May 2013 , they also removed a lymph node from my groin as it was noticed to be swollen. When I left hospital i was told i had Follicular Lymphoma. I see
Trevor93
in
Non Hodgkin's Lymphoma Friends
7 years ago
Marginal NHL
I'm an 11 year survivor of breast cancer, chemo & radiation. A year ago after total hip replacement surgery, I was informed that Stage 4 NH Lymphoma was found in my bone marrow. Surprise, surprise! Further testing has called it marginal, currently non aggressive. Doctors stating that Chemo may be the
I'm an 11 year survivor of breast cancer, chemo & radiation. A year ago after total hip replacement surgery, I was informed that Stage 4 NH Lymphoma was found in my bone marrow. Surprise, surprise! Further testing has called it marginal, currently non aggressive. Doctors stating that Chemo may be the
appleannie
in
Non Hodgkin's Lymphoma Friends
7 years ago
NHL battle
Hi all, I was diagnosed with follicular NHL in 2008, splenectomy, chop treatment, two years of retuxin, 2012 recurrence two more years of retuxin, and zevalin treatment. Doing well so far. Ct scan in June. Life is good.
Hi all, I was diagnosed with follicular NHL in 2008, splenectomy, chop treatment, two years of retuxin, 2012 recurrence two more years of retuxin, and zevalin treatment. Doing well so far. Ct scan in June. Life is good.
Allen8855
in
Non Hodgkin's Lymphoma Friends
7 years ago
Newly Dx
Just diagnosed with primary cutaneous marginal zone b cell lymphoma. I'll be starting radiation in a couple weeks. Anyone else have this? I never even heard of it before my dx.
Just diagnosed with primary cutaneous marginal zone b cell lymphoma. I'll be starting radiation in a couple weeks. Anyone else have this? I never even heard of it before my dx.
RoadkillShellie77
in
Non Hodgkin's Lymphoma Friends
7 years ago
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