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ED & zero libido
Three years on from diagnosis and nearly three year of no sexual function. A big loss between my wife and I thought we don’t really talk about it. My GP prescribes viagra but without the desire, little effect. Also given a pump but something makes me resistant to try it. Having said all this I have
Three years on from diagnosis and nearly three year of no sexual function. A big loss between my wife and I thought we don’t really talk about it. My GP prescribes viagra but without the desire, little effect. Also given a pump but something makes me resistant to try it. Having said all this I have
FortyWinks
in
Advanced Prostate Cancer
8 months ago
Exciting Announcement
Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator Cancer Copilot -- https
Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator Cancer Copilot -- https
Darryl
Partner
in
Prostate Cancer Network
5 months ago
Exciting Announcement
Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator Cancer Copilot -- https
Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator Cancer Copilot -- https
Darryl
Partner
in
Advanced Prostate Cancer
5 months ago
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which steroids and what dosage.
Don’t know if the steroid Dexamethosone would be appropriate for brain cancer but your doctor should know. It is given to me every 21 days at Docetaxel chemo infusion for PCa and absolutely eliminates pains. Can last for 12-18 hours. Ask your doc about it. Mike Seattle
Don’t know if the steroid Dexamethosone would be appropriate for brain cancer but your doctor should know. It is given to me every 21 days at Docetaxel chemo infusion for PCa and absolutely eliminates pains. Can last for 12-18 hours. Ask your doc about it. Mike Seattle
Leader4077
in
Advanced Prostate Cancer
5 months ago
I wonder if anyone knows why or has experienced a rise on PSA level (from 70 to 274), 6 months after radiation therapy (VMAT x 26 sessions)?
Before and after radiation therapy, dad was taking Bicalutamide 50 mg and Alfuzosin50 mg together with a quarterly Leuprorelin injection. This month (October), after receiving his Leuprorelin injection, Urologist advised to stop taking Bicalutamide as it is no longer effective due to hormone resistance
Before and after radiation therapy, dad was taking Bicalutamide 50 mg and Alfuzosin50 mg together with a quarterly Leuprorelin injection. This month (October), after receiving his Leuprorelin injection, Urologist advised to stop taking Bicalutamide as it is no longer effective due to hormone resistance
Iloveyoudad
in
Advanced Prostate Cancer
8 months ago
Confusing CT scan results
My PSA has been rising slowly after prostate removal two years ago. Was at zero months after and slowly rising at .02,.03. .05, .06. .09 and then .13. My doctor ordered CT and bone scans. Bone scan came back clear and then CT scan showed a few things in bones and a nonspecific mass outside the liver
My PSA has been rising slowly after prostate removal two years ago. Was at zero months after and slowly rising at .02,.03. .05, .06. .09 and then .13. My doctor ordered CT and bone scans. Bone scan came back clear and then CT scan showed a few things in bones and a nonspecific mass outside the liver
Jens99
in
Advanced Prostate Cancer
5 months ago
Diagnosed today with an acoustic Neuroma.
Hi Everyone. I have just been told this morning that my MRI confirmed an acoustic neuroma. The ENT Doctor said he is now referring me to a specialist in Manchester. Can anyone tell me what to expect now ? Did anyone have any treatment for it ? Thank you.
Hi Everyone. I have just been told this morning that my MRI confirmed an acoustic neuroma. The ENT Doctor said he is now referring me to a specialist in Manchester. Can anyone tell me what to expect now ? Did anyone have any treatment for it ? Thank you.
Reddington__
in
Acoustic Neuroma Support
5 months ago
Just joined the club no one wants to be a member of in April 2023 - can Gleason 9 be cured ?
Doc says that our goal is a cure despite the fact that I am a Gleason 9 with Decipher score of 1 , the highest for metatastic spread. (PSMA PET was negative.) The highest my PSA has ever been was 5.48 in December 2022 and it dropped to .09 with Testosterone of 14 in August two months after a shot of
Doc says that our goal is a cure despite the fact that I am a Gleason 9 with Decipher score of 1 , the highest for metatastic spread. (PSMA PET was negative.) The highest my PSA has ever been was 5.48 in December 2022 and it dropped to .09 with Testosterone of 14 in August two months after a shot of
68Guitar
in
Advanced Prostate Cancer
8 months ago
What they don't tell you about Androgen Deprivation Therapy (ADT, hormone therapy) unedited version
https://youtu.be/zYWbaEx4x4U What do you want to know about Androgen Deprivation Therapy (ADT, hormone therapy)? Learn from this interview with the massively knowledgeable researcher Richard Wassersug, Ph. D., and his colleague and coauthor, Lauren Walker, Ph.D. And consider clicking the link
https://youtu.be/zYWbaEx4x4U What do you want to know about Androgen Deprivation Therapy (ADT, hormone therapy)? Learn from this interview with the massively knowledgeable researcher Richard Wassersug, Ph. D., and his colleague and coauthor, Lauren Walker, Ph.D. And consider clicking the link
Darryl
Partner
in
Advanced Prostate Cancer
8 months ago
Abemaciclib
Hi, I’ve just commenced Abemaciclib as part of my adjuvant treatment for high risk breast cancer (grade 3, stage 2a, 2 lymph nodes involved). I’ve already had lumpectomy, lymph node clearance, 6 rounds of chemotherapy, having IV bisophates 6 monthly for 3 years and I’m currently taking Letrozole and
Hi, I’ve just commenced Abemaciclib as part of my adjuvant treatment for high risk breast cancer (grade 3, stage 2a, 2 lymph nodes involved). I’ve already had lumpectomy, lymph node clearance, 6 rounds of chemotherapy, having IV bisophates 6 monthly for 3 years and I’m currently taking Letrozole and
Multigravida1956
in
SHARE Breast Cancer Support
8 months ago
PLUVICTO.................
Getting ready for my 5th infusion of Pluvicto. The side effects usually ground me for two to three weeks, and i always say that i am through, and can't stand anymore. When i started, my PSA was 42 + a point. It went down to 22+ a point and as of today it is 10.6. I have been boarding my dog,
Getting ready for my 5th infusion of Pluvicto. The side effects usually ground me for two to three weeks, and i always say that i am through, and can't stand anymore. When i started, my PSA was 42 + a point. It went down to 22+ a point and as of today it is 10.6. I have been boarding my dog,
PianoMan3048
in
Men's Health Forum
5 months ago
Just completed a whole gland TULSA procedure
This was salvage treatment after failure of SBRT by MRIdian in Mar 2020.PSA nadir after SBRT was 2.4 and it rose to 5.3 just 3 years later, when a PSMA scan showed 2 possible tumours within the gland. A subsequent biopsy confirmed local tumour recurrence with Gleason 4+4. Interventional radiotherapy
This was salvage treatment after failure of SBRT by MRIdian in Mar 2020.PSA nadir after SBRT was 2.4 and it rose to 5.3 just 3 years later, when a PSMA scan showed 2 possible tumours within the gland. A subsequent biopsy confirmed local tumour recurrence with Gleason 4+4. Interventional radiotherapy
Packidge
in
Advanced Prostate Cancer
7 months ago
Results on Cervix
PRAISE GOD NEGATIVE!!! My gynecologist/oncologist said that we will see what the next Petscan looks like. If it still lights up then we will do a biopsy. Not sure why it is showing up on Petscan. She said some times urine can back up in the cervix 🤔🤔🤔. And this will cause it to show up. Otherwise
PRAISE GOD NEGATIVE!!! My gynecologist/oncologist said that we will see what the next Petscan looks like. If it still lights up then we will do a biopsy. Not sure why it is showing up on Petscan. She said some times urine can back up in the cervix 🤔🤔🤔. And this will cause it to show up. Otherwise
Gentelforce
in
SHARE Metastatic Breast Cancer
8 months ago
Are Lymph nodes a filter?
Do lymph nodes simply act as a temporary filter to prevent cancer from spreading too far? I was curious about this because I have 4th stage prostate cancer, and my Lymph had swelled to the size of a golfball. When I took the ADT, my PSA went from 1000, down to 6, and all evidence of cancer disappeared
Do lymph nodes simply act as a temporary filter to prevent cancer from spreading too far? I was curious about this because I have 4th stage prostate cancer, and my Lymph had swelled to the size of a golfball. When I took the ADT, my PSA went from 1000, down to 6, and all evidence of cancer disappeared
Aldo62
in
Advanced Prostate Cancer
5 months ago
I got some doubts about the know-how of my oncologist
I met with my oncologist last Friday and either I am confused or she is. I am open for both scenario. :) This post is sort of a follow-up on another I did back in August: https://healthunlocked.com/advanced-prostate-cancer/posts/149892314/need-help-in-understanding-psa-level-recurrence-after-treatment
I met with my oncologist last Friday and either I am confused or she is. I am open for both scenario. :) This post is sort of a follow-up on another I did back in August: https://healthunlocked.com/advanced-prostate-cancer/posts/149892314/need-help-in-understanding-psa-level-recurrence-after-treatment
Mascouche
in
Advanced Prostate Cancer
8 months ago
12 months post HDR Brachytherapy
I am now at twelve months post HRD Brachytherapy (no ADT) which was done with Dr Chang at UCLA. For the benefit of the group, below are the results: Urinary bother is very modest - some slowness in the morning on some mornings, otherwise same as pre-treatment Sexual function is at baseline in terms
I am now at twelve months post HRD Brachytherapy (no ADT) which was done with Dr Chang at UCLA. For the benefit of the group, below are the results: Urinary bother is very modest - some slowness in the morning on some mornings, otherwise same as pre-treatment Sexual function is at baseline in terms
Lingbed
in
Prostate Cancer Network
8 months ago
side effects on Anastrazole
I was diagnosed with stage 1 breast cancer in 2019 and I'm still feeling very tired and breathless and can't do much at all without a rest, is this the norm?
I was diagnosed with stage 1 breast cancer in 2019 and I'm still feeling very tired and breathless and can't do much at all without a rest, is this the norm?
Ca1amity
in
My Breast Cancer Community
8 months ago
BAT Patient Guide
I was re-reading Dr. Denmeade's BAT Patient Guide (well worth checking out) and came across the following quote near the end. Thus far, Denmeade seems to have done his own, smaller trials. "A larger randomized study comparing overall patient survival following treatment with sequential BAT → Xtandi
I was re-reading Dr. Denmeade's BAT Patient Guide (well worth checking out) and came across the following quote near the end. Thus far, Denmeade seems to have done his own, smaller trials. "A larger randomized study comparing overall patient survival following treatment with sequential BAT → Xtandi
dhccpa
in
Advanced Prostate Cancer
8 months ago
Prostate cancer but normal PSA?
HI All. I had my first ever PSA at the age of 62 and it came in at over 26. I took a repeat and it came in at 25, then a week later I took another and it was 29. I had a biopsy that came back positive (cancer in 11 of 12 samples) and even though both my CT and bone. However, they indicated that since
HI All. I had my first ever PSA at the age of 62 and it came in at over 26. I took a repeat and it came in at 25, then a week later I took another and it was 29. I had a biopsy that came back positive (cancer in 11 of 12 samples) and even though both my CT and bone. However, they indicated that since
Sagewiz
in
Advanced Prostate Cancer
8 months ago
Mr Geoff Lloyd
Diagnosed in 2010 with advanced PC. Prostatectomy in 2011 followed by the "all clear". PSA refused to disappear and so RT followed. PSA still present and PC nodules found in my lung in 2021. I then had a 6 session course of chemotherapy and have been on Abiaterone and Demoxosone drugs ever since.Nodules
Diagnosed in 2010 with advanced PC. Prostatectomy in 2011 followed by the "all clear". PSA refused to disappear and so RT followed. PSA still present and PC nodules found in my lung in 2021. I then had a 6 session course of chemotherapy and have been on Abiaterone and Demoxosone drugs ever since.Nodules
Churchman123
in
Advanced Prostate Cancer
5 months ago
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