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Not impressed
Doctor Jose Thomas who specialises in
Sleep
Disorders
and RLS wrote to my GPS surgery after my consultation with him in Cardiff on the 27th September The surgery hasn’t contacted me about the report and recommendations from Dr Thomas, they will have received it last week as I was copied in, so I made
Doctor Jose Thomas who specialises in
Sleep
Disorders
and RLS wrote to my GPS surgery after my consultation with him in Cardiff on the 27th September The surgery hasn’t contacted me about the report and recommendations from Dr Thomas, they will have received it last week as I was copied in, so I made
HipHop1972
in
Restless Legs Syndrome
7 months ago
New to the group
Anyway I now have a new Doctor who specializes in RLS,
sleep
disorders
. I will see him in 2 weeks. Obviously I have many questions. I have found many meds and advice that I never knew, So my question is I have been seeing this new treatment of this device that is used at night.
Anyway I now have a new Doctor who specializes in RLS,
sleep
disorders
. I will see him in 2 weeks. Obviously I have many questions. I have found many meds and advice that I never knew, So my question is I have been seeing this new treatment of this device that is used at night.
Karjbee1015
in
Restless Legs Syndrome
5 days ago
APNEA v RLS - something else
I have recently been diagnosed with Sleep Apnea & have been given a CPAP machine to use but it seems the drugs I take for RLS (Oxycodone & Gabapentin) are conflicting with the efficacy of the CPAP kit and not bring down my incidence of AHI during the night. The consultant has asked me to row back
I have recently been diagnosed with Sleep Apnea & have been given a CPAP machine to use but it seems the drugs I take for RLS (Oxycodone & Gabapentin) are conflicting with the efficacy of the CPAP kit and not bring down my incidence of AHI during the night. The consultant has asked me to row back
joepublic
in
Restless Legs Syndrome
11 months ago
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progynova prior IVF
hello! my doctor put on progynova 2 tablets x 3 times a day. I’m worrying that is way too much (12mg a day) my lining went from 2mm to 7mm . I took it for 21 days then 7 days of progestin, I just restarted progynova but this time the doctor said to take it for 8 weeks. Is it too much? Do you think that
hello! my doctor put on progynova 2 tablets x 3 times a day. I’m worrying that is way too much (12mg a day) my lining went from 2mm to 7mm . I took it for 21 days then 7 days of progestin, I just restarted progynova but this time the doctor said to take it for 8 weeks. Is it too much? Do you think that
Silvi23
in
Fertility Network UK
11 months ago
Ampyra
I have been on Ampyra/Dalfampridine for about 4 years. I am thinking of stopping as it is expensive. What effect may it have on my MS? does anyone have any thoughts?
I have been on Ampyra/Dalfampridine for about 4 years. I am thinking of stopping as it is expensive. What effect may it have on my MS? does anyone have any thoughts?
whwiechm
in
My MSAA Community
11 months ago
Asking employer for accommodations - yes, no, maybe?
Quick background:BCRed about 2.5 years after adjuvant RT to prostatic bed after RARP. Started Firmagon in May 2022 after nothing seen on PSMA PET/CT with PSA at 0.4. Switched to Orgovyx in November since injection site reaction was compromising QoL. Just before BCR was detected, I started taking adderall
Quick background:BCRed about 2.5 years after adjuvant RT to prostatic bed after RARP. Started Firmagon in May 2022 after nothing seen on PSMA PET/CT with PSA at 0.4. Switched to Orgovyx in November since injection site reaction was compromising QoL. Just before BCR was detected, I started taking adderall
farmanerd
in
Advanced Prostate Cancer
11 months ago
Neupro Patch
I saw a consultant in the UK a month or so ago and explained that my transition from Mirapexin to Pregabalin was not going well. At that time, I was taking 150mg Pregabalin and 4 x 0.088 Mirapexin and that at that level i was getting some relief but that any reduction from that in the Mirapexin left
I saw a consultant in the UK a month or so ago and explained that my transition from Mirapexin to Pregabalin was not going well. At that time, I was taking 150mg Pregabalin and 4 x 0.088 Mirapexin and that at that level i was getting some relief but that any reduction from that in the Mirapexin left
Ced60
in
Restless Legs Syndrome
11 months ago
CPAP Machines and Chest Infections
Recently, I had a flare up of Bronchiectasis. I was issued Doxy that has helped and I'm due for a CT Scan in a couple of weeks. I was pondering why it suddenly flared up and my wife suggested my CPAP machine. I thought I was pretty good at keeping the reservoir, hose and mask free from mould. However
Recently, I had a flare up of Bronchiectasis. I was issued Doxy that has helped and I'm due for a CT Scan in a couple of weeks. I was pondering why it suddenly flared up and my wife suggested my CPAP machine. I thought I was pretty good at keeping the reservoir, hose and mask free from mould. However
Curryandchips
in
Lung Conditions Community Forum
11 months ago
Xtandi (enzalutimide) SEs Part 2
Since I've increased my Xtandi from 80 mg to 160 mg, I am now experiencing a bad case of the jimmy legs (restless legs) at night. I take my Xtandi around 8 pm. I still work full time and I've read that taking it at night helps avoid the fatigue during the day. So far that seems to be the case with
Since I've increased my Xtandi from 80 mg to 160 mg, I am now experiencing a bad case of the jimmy legs (restless legs) at night. I take my Xtandi around 8 pm. I still work full time and I've read that taking it at night helps avoid the fatigue during the day. So far that seems to be the case with
MoonRocket
in
Advanced Prostate Cancer
4 months ago
FND diagnosis and not coping well with it
Saw neurologist today for my brain MRI results. Confirmed results as normal , no abnormalities seen. Wasn’t shown MRI which I thought I would . Diagnosed me with FND as symptoms not relative to any other neurological disorder. Been told no medication will help , it’s all in my sub conscious/mind and
Saw neurologist today for my brain MRI results. Confirmed results as normal , no abnormalities seen. Wasn’t shown MRI which I thought I would . Diagnosed me with FND as symptoms not relative to any other neurological disorder. Been told no medication will help , it’s all in my sub conscious/mind and
Maynan17
in
Functional Neurological Disorder - FND Hope
1 year ago
Taking hours to fall asleep
Gabapentin has controlled my RLS for last year or so. I only take 600 mg at bedtime for last 3/4 months now. I have recently started having difficulty falling asleep (no RLS, just wide awake for 3/4 hours). I thought about asking for a sleep aid from GP but didn't want to take anything that would aggrevate
Gabapentin has controlled my RLS for last year or so. I only take 600 mg at bedtime for last 3/4 months now. I have recently started having difficulty falling asleep (no RLS, just wide awake for 3/4 hours). I thought about asking for a sleep aid from GP but didn't want to take anything that would aggrevate
Opie__
in
Restless Legs Syndrome
4 months ago
Afib, sleep apnea and diverticulitis from aerophagia
Hi. I have afib and sleep apnea. As you know, some think that sleep apnea may be a causitive factor in afib. I have been using cpap and bipap machines for some years for the apnea, and have a problem of swallowing air (aerophagia). Before the improvements in cpap technology, I would wake up after a
Hi. I have afib and sleep apnea. As you know, some think that sleep apnea may be a causitive factor in afib. I have been using cpap and bipap machines for some years for the apnea, and have a problem of swallowing air (aerophagia). Before the improvements in cpap technology, I would wake up after a
nmack
in
Atrial Fibrillation Support
1 year ago
MSA or PSP - Parkinson's Plus
Hello,My brother is in mid 40s , diagnosed with Parkinson in 2020 after getting COVID-19. Since then, he has detoriated very rapidly. He has had MIBG scan recently which reveals he has PSP or MSA. We are very worried for him, at his age we weren't expecting this. Anyone in similar situation? What's the
Hello,My brother is in mid 40s , diagnosed with Parkinson in 2020 after getting COVID-19. Since then, he has detoriated very rapidly. He has had MIBG scan recently which reveals he has PSP or MSA. We are very worried for him, at his age we weren't expecting this. Anyone in similar situation? What's the
Sarah106
in
Cure Parkinson's
8 months ago
Reducing Augmentation
https://sleepreviewmag.com/
sleep
-
disorders
/movement-disorders/restless-legs-syndrome/reduce-augmentation-risk-restless-legs-syndrome/ A useful article on Dopamine Agonists and augmentation by Dr William Ondo.
https://sleepreviewmag.com/
sleep
-
disorders
/movement-disorders/restless-legs-syndrome/reduce-augmentation-risk-restless-legs-syndrome/ A useful article on Dopamine Agonists and augmentation by Dr William Ondo.
Joolsg
in
Restless Legs Syndrome
1 year ago
Anyone tried Sulbutiamine to help with fatigue etc?? If so how did you get on??
Just had a broad spectrum blood test as I still feel like I have just been dug up from the local cemetery … Everything seems fine (Liver, kidneys, B12, adrenals, they even mentioned my bones) … But I (As most of us poor lot do) feel like crap, and utterly fatigued .. Now I’m looking into some stuff like
Just had a broad spectrum blood test as I still feel like I have just been dug up from the local cemetery … Everything seems fine (Liver, kidneys, B12, adrenals, they even mentioned my bones) … But I (As most of us poor lot do) feel like crap, and utterly fatigued .. Now I’m looking into some stuff like
Quasarlis
in
Thyroid UK
1 year ago
Does anyone use ‘Active Iron’ in UK?
I searched for ferrous bisglycinate on Amazon UK which came up with Active Iron 25mg. I’ve now received it and found it contains ferrous sulfate 25mg! Now I don’t know if this is the right product or dose. Can anyone help?
I searched for ferrous bisglycinate on Amazon UK which came up with Active Iron 25mg. I’ve now received it and found it contains ferrous sulfate 25mg! Now I don’t know if this is the right product or dose. Can anyone help?
Dires
in
Restless Legs Syndrome
1 year ago
Morning check in
Well the melatonin was a little bit of help bur still woke up every 2 hours ... talk to anxiety support contacted my doctor about using prescription sleep aid. He's starting me on trazadonne 50 MG..will take before bedtime any suggestions... also gonna get word search fill in books to help during
Well the melatonin was a little bit of help bur still woke up every 2 hours ... talk to anxiety support contacted my doctor about using prescription sleep aid. He's starting me on trazadonne 50 MG..will take before bedtime any suggestions... also gonna get word search fill in books to help during
jojo15210
in
Anxiety and Depression Support
5 months ago
tirosint 50
Hi everyone, Up till now I have been taking Thybon T3 only but my doctor wanted me to add T4 , so I added Tirosint 50. I did feel tired so I reduced my T3 slightly. My question is, do I take the T4 with the T3 in the morning, or before? I also take T3 in evening. I am trying to do bloods, tried twice
Hi everyone, Up till now I have been taking Thybon T3 only but my doctor wanted me to add T4 , so I added Tirosint 50. I did feel tired so I reduced my T3 slightly. My question is, do I take the T4 with the T3 in the morning, or before? I also take T3 in evening. I am trying to do bloods, tried twice
jand123
in
Thyroid UK
1 year ago
Guidelines
Hi I'm wondering if there are guidelines in the UK regarding TSH numbers by which a doctor is advised treatment should be an option? I did my first private blood test in 2017 and the doctors remarks were to see my GP regarding treatment for an underactive thyroid. I was so pleased to finally have clarification
Hi I'm wondering if there are guidelines in the UK regarding TSH numbers by which a doctor is advised treatment should be an option? I did my first private blood test in 2017 and the doctors remarks were to see my GP regarding treatment for an underactive thyroid. I was so pleased to finally have clarification
Linac
in
Thyroid UK
1 year ago
Periodic Limb Movement Disorder
Hello everyone. Several weeks ago I started taking Pregabalin whilst weaning off Pramipexole. I’m now on 150mg of Pregab. 3 weeks ago, I took my last Pram! Yayyyyyy!!!!! Since then, the RLS has almost completely gone, which is a lovely result. However, my night time PLMD is quite bad. Sleep deprivation
Hello everyone. Several weeks ago I started taking Pregabalin whilst weaning off Pramipexole. I’m now on 150mg of Pregab. 3 weeks ago, I took my last Pram! Yayyyyyy!!!!! Since then, the RLS has almost completely gone, which is a lovely result. However, my night time PLMD is quite bad. Sleep deprivation
Theonlypetied
in
Restless Legs Syndrome
1 year ago
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