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Second Treatment -Feeling scared
My husband has CLL and finished FCR in April 2019. Due to low platelets, enlarged spleen and ALC doubling he needs to start his next treatment even though he feels wellV&R is the treatment starting on 15th May. I have researched extensively including within this group, and am aware of the treatment
My husband has CLL and finished FCR in April 2019. Due to low platelets, enlarged spleen and ALC doubling he needs to start his next treatment even though he feels wellV&R is the treatment starting on 15th May. I have researched extensively including within this group, and am aware of the treatment
Sanders9
in
CLL Support
4 months ago
Methotrexate and a head cold
Hi, I have been on methotrexate for 9 weeks and am starting with a head cold.Do I need to inform anyone? It's the first "illness" since starting methotrexate.
Hi, I have been on methotrexate for 9 weeks and am starting with a head cold.Do I need to inform anyone? It's the first "illness" since starting methotrexate.
pattypatchwork
in
LUPUS UK
4 months ago
Latest re -Lupus and Covid?
Hello All - I hope you all had a very happy Christmas. Does anyone know the latest position regarding Lupus patients testing positive for Covid please. My wife has had cold symptoms for the past couple of days and we decided to test for Covid this morning and we were both positive. My wife (who has
Hello All - I hope you all had a very happy Christmas. Does anyone know the latest position regarding Lupus patients testing positive for Covid please. My wife has had cold symptoms for the past couple of days and we decided to test for Covid this morning and we were both positive. My wife (who has
BeeManShrop
in
LUPUS UK
8 months ago
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New RLS member
First and foremost, I really have to thank all on here that contribute so much time and knowledge to those of us in need. It is very much appreciated. My basic history: I remember back in college around 1998, my calves would go crazy at night like spiders crawling under my skin. It would come and
First and foremost, I really have to thank all on here that contribute so much time and knowledge to those of us in need. It is very much appreciated. My basic history: I remember back in college around 1998, my calves would go crazy at night like spiders crawling under my skin. It would come and
Ddski5
in
Restless Legs Syndrome
8 months ago
today/tonight
this afternoon I am going to the casino to hang out with some friends from college. We’re going to shop at the outlets before checking into our air bnb and getting ready for the evening. Our plan is to gamble a bit and go to a nightclub after. Because of my anxiety I already plan on not drinking. But
this afternoon I am going to the casino to hang out with some friends from college. We’re going to shop at the outlets before checking into our air bnb and getting ready for the evening. Our plan is to gamble a bit and go to a nightclub after. Because of my anxiety I already plan on not drinking. But
Daisy425
in
Anxiety and Depression Support
8 months ago
Christmas Covid present…
My husband tested positive for Covid Christmas Day evening after feeling ill for a couple of days. I tested negative and felt ok. We avoided each other and masked up. Today, after a couple of disturbed nights and drained days I’ve tested positive. I am on 4mg pred. Do I need to contact the doctor re
My husband tested positive for Covid Christmas Day evening after feeling ill for a couple of days. I tested negative and felt ok. We avoided each other and masked up. Today, after a couple of disturbed nights and drained days I’ve tested positive. I am on 4mg pred. Do I need to contact the doctor re
Bluey-1
in
PMRGCAuk
8 months ago
covid
I had covid two weeks ago. Thankyou by the way for those who answered my post when I didn’t realise I had covid, I had pains which I thought were the pmr returning. I am recovering quite slowly, no longer feel rotten but very breathless ( I have asthma) and having pmr type pains. I don’t know what to
I had covid two weeks ago. Thankyou by the way for those who answered my post when I didn’t realise I had covid, I had pains which I thought were the pmr returning. I am recovering quite slowly, no longer feel rotten but very breathless ( I have asthma) and having pmr type pains. I don’t know what to
Yellow-dog
in
PMRGCAuk
8 months ago
I could have PMR…
I posted back in September for some invaluable advice from you lovely people. I suspected I might have PMR but after being in hospital and treated for ‘infection’ which is what the doctors said I had I thought no more about it. I had high inflammation markers which were thought to be due to infection
I posted back in September for some invaluable advice from you lovely people. I suspected I might have PMR but after being in hospital and treated for ‘infection’ which is what the doctors said I had I thought no more about it. I had high inflammation markers which were thought to be due to infection
MsWhistledown
in
PMRGCAuk
8 months ago
Taking Prolia with Rusolitinib (Jakafi)
I have been taking Jakafi (15 mg) twice a day for the last 3 years for my polycythemia vera. I also take blood thinners for my thrombocytosis since I have had blood clots in my lungs twice in the last 2 years. I have had osteoporosis for a while, but my T scores from bone density test are really
I have been taking Jakafi (15 mg) twice a day for the last 3 years for my polycythemia vera. I also take blood thinners for my thrombocytosis since I have had blood clots in my lungs twice in the last 2 years. I have had osteoporosis for a while, but my T scores from bone density test are really
Buggerbear
in
MPN Voice
4 months ago
Hair issues
hi I forgot to ask my rheum nurse about my hair. I’m on methotrexate and seems to be ok with no abnormal hair loss but since taking it I haven’t had my hair highlighted . Anybody advice with this ? I have left message on advice line but wondering others people’s experience. Thanks
hi I forgot to ask my rheum nurse about my hair. I’m on methotrexate and seems to be ok with no abnormal hair loss but since taking it I haven’t had my hair highlighted . Anybody advice with this ? I have left message on advice line but wondering others people’s experience. Thanks
Teddyboy17
in
NRAS
9 months ago
one year olds vaccines
Our grandson aged one is having jabs. I looked up and these are scheduled for one year olds. MMR is a weakened vaccine. Does anyone know if it’s safe to be around him as a immunosuppressed or where to find out in green book please ? Hib/MenC Pneumococcal conjugate vaccine (PCV13) Meningococcal
Our grandson aged one is having jabs. I looked up and these are scheduled for one year olds. MMR is a weakened vaccine. Does anyone know if it’s safe to be around him as a immunosuppressed or where to find out in green book please ? Hib/MenC Pneumococcal conjugate vaccine (PCV13) Meningococcal
Mozart150
in
NRAS
9 months ago
Free Covid tests for vulnerable
Does anyone know how we get free covid tests now that the government has stopped its postal service? I have looked on the NHS sites and there is no clear information. I also went to my local pharmacy and they had no idea about free tests.
Does anyone know how we get free covid tests now that the government has stopped its postal service? I have looked on the NHS sites and there is no clear information. I also went to my local pharmacy and they had no idea about free tests.
Jenny_F
in
MPN Voice
8 months ago
Tested Positive for Covid today. On pirtobrutinib
Just tested positive for covid this morning. Have low grade fever, sore throat, cough, not constant, achey all over. I’m on pirtobrutinib, wrote my specialist. Anyone had covid recently? First time was 2021, much worse, I had monoclonal antibody at the hospital. I really don’t want to go to ER as
Just tested positive for covid this morning. Have low grade fever, sore throat, cough, not constant, achey all over. I’m on pirtobrutinib, wrote my specialist. Anyone had covid recently? First time was 2021, much worse, I had monoclonal antibody at the hospital. I really don’t want to go to ER as
ReneeSusan
in
CLL Support
8 months ago
Hashimotos, low TSH, normal t4, Feeling so ill
I have had Hashimotos for 25 years, GP advised that is hypothyroidism, and have been on T4 levothyroxine replacement for 25 years. Before that I was ok for 2 years Before that I had raging Graves hyperthyroidism for 2 years ( they gave me 200% recommend dose of carbimazole my resting heart rate went
I have had Hashimotos for 25 years, GP advised that is hypothyroidism, and have been on T4 levothyroxine replacement for 25 years. Before that I was ok for 2 years Before that I had raging Graves hyperthyroidism for 2 years ( they gave me 200% recommend dose of carbimazole my resting heart rate went
Brn2BWild
in
Thyroid UK
8 months ago
Not sure what to do!
Had shingles about a month ago, it’s cleared up now, started after taking abatacept first injection, had anti virals, not sure now if I should go back on it, also take MTX which wasn’t working good after being on it for 16 years, funny thing is my crp came back at 3 after having shingles and anti
Had shingles about a month ago, it’s cleared up now, started after taking abatacept first injection, had anti virals, not sure now if I should go back on it, also take MTX which wasn’t working good after being on it for 16 years, funny thing is my crp came back at 3 after having shingles and anti
Kate2628
in
NRAS
1 year ago
stomach acid
I don't understand this stomach acid 'thing'. I take a proton pump inhibitor for high stomach acid but people insist that as you get older you're stomach acid reduce. I'm 79. Also that doctors erroneously mistake low stomach acid for high!! What is going on? Any thoughts
I don't understand this stomach acid 'thing'. I take a proton pump inhibitor for high stomach acid but people insist that as you get older you're stomach acid reduce. I'm 79. Also that doctors erroneously mistake low stomach acid for high!! What is going on? Any thoughts
fiftyone
in
Thyroid UK
9 months ago
The Plot Thickens…
I posted a few days ago about shoulder pain. It has got worse and is in both shoulders and is affecting my neck. It is far worse in the morning. My Osteopath gave me a private doctor’s contact details so I could see them for a cortisone injection. I had the appointment this morning and it turned out
I posted a few days ago about shoulder pain. It has got worse and is in both shoulders and is affecting my neck. It is far worse in the morning. My Osteopath gave me a private doctor’s contact details so I could see them for a cortisone injection. I had the appointment this morning and it turned out
MsWhistledown
in
Thyroid UK
8 months ago
Mental Health
Hi. Up until now which is a week after i had a heart attack and stent fitted, ive been a bit up and down but now im finding myself speculating on my future especially to do with work. I work in train maintenance and its heavy going, stressful with shift work and long hours and ezposure to diesel fumes
Hi. Up until now which is a week after i had a heart attack and stent fitted, ive been a bit up and down but now im finding myself speculating on my future especially to do with work. I work in train maintenance and its heavy going, stressful with shift work and long hours and ezposure to diesel fumes
BaronFrankenstein
in
British Heart Foundation
8 months ago
Post covid asthma diagnoses
Hi there, I’d really like to hear from anyone who has been diagnosed with asthma after getting covid, or anyone with any thoughts! I got covid in feb 22 and since then have had several episodes of severe chest infections which always require antibiotics and steroids. I’ve check my inhaler technique
Hi there, I’d really like to hear from anyone who has been diagnosed with asthma after getting covid, or anyone with any thoughts! I got covid in feb 22 and since then have had several episodes of severe chest infections which always require antibiotics and steroids. I’ve check my inhaler technique
ButterflyPurple
in
Asthma Community Forum
8 months ago
6 month old baby Covid
Hi all, unfortunately I tested positive for Covid on Christmas Eve, and today my baby 6 months old has also tested positive. He’s got a slight temperature 37.7 and just sleeping on our laps constantly, he’s having little bits of milk here and there but just sleeping mainly. I’m worried - any advice?
Hi all, unfortunately I tested positive for Covid on Christmas Eve, and today my baby 6 months old has also tested positive. He’s got a slight temperature 37.7 and just sleeping on our laps constantly, he’s having little bits of milk here and there but just sleeping mainly. I’m worried - any advice?
PrincessGurn1984
in
Pregnancy and Parenting Support
8 months ago
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