Search
Search
About
Log in
Join
Experiences with
Sjogren-Larsson syndrome
Posts
Communities
3,269 public posts
Filter results
Advise on taking Mirtazapine
been to visit Gp today with very low mood , I did ask for Bupropion, they would not prescribe and have given me Mirtazapine, over the last few days I have managed to reduce my pramipexole by half and have been taking , codeine phosphorus along with paracetamol, the RLS has not gotten any worse , but
been to visit Gp today with very low mood , I did ask for Bupropion, they would not prescribe and have given me Mirtazapine, over the last few days I have managed to reduce my pramipexole by half and have been taking , codeine phosphorus along with paracetamol, the RLS has not gotten any worse , but
Hidden
in
Restless Legs Syndrome
5 months ago
RLS sufferer
My 83 year old husband has had RLS for many years. He reads these comments but doesn’t respond to them so I am responding for him. He was prescribed Gabapentin early on which worked for awhile. He has been on Ropinirole for a very long time. The RLS spread to other parts of his body and occurred during
My 83 year old husband has had RLS for many years. He reads these comments but doesn’t respond to them so I am responding for him. He was prescribed Gabapentin early on which worked for awhile. He has been on Ropinirole for a very long time. The RLS spread to other parts of his body and occurred during
Farmboy1
in
Restless Legs Syndrome
5 months ago
concerned
ok friends if you have read any of my post you know that I have been taking Ropinirole for over 20 years and after reading some of the information from the RLS foundation and here I realized I was augmenting. After much searching I found a great doctor that is going to take me through augmentation which
ok friends if you have read any of my post you know that I have been taking Ropinirole for over 20 years and after reading some of the information from the RLS foundation and here I realized I was augmenting. After much searching I found a great doctor that is going to take me through augmentation which
6236
in
Restless Legs Syndrome
5 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Ropinerole
I've been on Gabapentin and Ropinerole for 25 years, and finally got off due to the terrible effects of augmentation. I've been on Lyrica now for about 6 months, and other than not having daytime symptoms, my nights have been worse than ever. I was at a motel recently, and took one Ropinerole because
I've been on Gabapentin and Ropinerole for 25 years, and finally got off due to the terrible effects of augmentation. I've been on Lyrica now for about 6 months, and other than not having daytime symptoms, my nights have been worse than ever. I was at a motel recently, and took one Ropinerole because
Marzipana
in
Restless Legs Syndrome
5 months ago
Carbomer eye gel
Good morning. I was at the ophthalmologist yesterday getting umpteen scans and things due to taking hydroxychloroquine. I have very dry eyes once the UV starts to increase (usually February so bang on time). The ophthalmologist gave me carbomer eye gel to use before I go to bed and told me to continue
Good morning. I was at the ophthalmologist yesterday getting umpteen scans and things due to taking hydroxychloroquine. I have very dry eyes once the UV starts to increase (usually February so bang on time). The ophthalmologist gave me carbomer eye gel to use before I go to bed and told me to continue
Whippet_lady
in
LUPUS UK
5 months ago
Update after stopping sertraline
hi everyone, Just an update. I posted here a few weeks ago. RLS had got worse and I have needed escalating doses of ropinorole . I’m 51 yo and have had RLS in pregnancy and it resurfaced in the past 5-7 years, in perimenopause. My mood symptoms were incorrectly diagnosed as anxiety, rather than being
hi everyone, Just an update. I posted here a few weeks ago. RLS had got worse and I have needed escalating doses of ropinorole . I’m 51 yo and have had RLS in pregnancy and it resurfaced in the past 5-7 years, in perimenopause. My mood symptoms were incorrectly diagnosed as anxiety, rather than being
Petru
in
Restless Legs Syndrome
5 months ago
Buprenorphine triggers RLS (briefly)?
I have noticed this three times in the last few weeks, after being on suboxone (sub-lingual strips) for last 2 months. Within 5 minutes of taking the suboxone, my RLS will kick in (generally at a medium-ish intensity). I've not rode it out to see how long it lasts - I've taken some cannabis to lessen
I have noticed this three times in the last few weeks, after being on suboxone (sub-lingual strips) for last 2 months. Within 5 minutes of taking the suboxone, my RLS will kick in (generally at a medium-ish intensity). I've not rode it out to see how long it lasts - I've taken some cannabis to lessen
707twitcher
in
Restless Legs Syndrome
5 months ago
Buprenorphine/Naloxone (Suboxone)
Hello. I am in Canada and I, and my four siblings, have suffered with RLS, most of our lives. I am 68 now and have struggled with RLS since I was in my late 20’s. I have been through it all and done it all including 6 years on pramipexole, augmentation and horrible detox. Gabapentin did not work,
Hello. I am in Canada and I, and my four siblings, have suffered with RLS, most of our lives. I am 68 now and have struggled with RLS since I was in my late 20’s. I have been through it all and done it all including 6 years on pramipexole, augmentation and horrible detox. Gabapentin did not work,
Cashews
in
Restless Legs Syndrome
5 months ago
Hi all
Morning everyone well I finally got a doctor to actually listen to my symptoms and after a full examination off knees and elbows he said I've got restless leg syndrome only took 23 years not bad lol my doctor prescribed ropinirole i asked about any other medication he said thsts the best.
Morning everyone well I finally got a doctor to actually listen to my symptoms and after a full examination off knees and elbows he said I've got restless leg syndrome only took 23 years not bad lol my doctor prescribed ropinirole i asked about any other medication he said thsts the best.
Glenr78
in
Restless Legs Syndrome
5 months ago
Pramipexole - update
PROGRESS - have done 15 days on one Pramipexole tablet per night. About to change to half a tablet. SLEEP - managing OK PAIN - I was hoping for Buprenorphine; Dr gave me CoCodamol. Have to say it is not touching the augmentation/ withdrawal pain. CONCERN- I need better pain relief to get through
PROGRESS - have done 15 days on one Pramipexole tablet per night. About to change to half a tablet. SLEEP - managing OK PAIN - I was hoping for Buprenorphine; Dr gave me CoCodamol. Have to say it is not touching the augmentation/ withdrawal pain. CONCERN- I need better pain relief to get through
Lineker
in
Restless Legs Syndrome
5 months ago
Checking medication
Hi, I was chatting to a colleague today about their restless legs which have been unbearable lately. Their doctor put them on Perindopril for high blood pressure, Amiodipine- a calcium channel blocker, and Fenofibrate for high cholesterol. He thought they made his legs so much worse (his doctor doesn't
Hi, I was chatting to a colleague today about their restless legs which have been unbearable lately. Their doctor put them on Perindopril for high blood pressure, Amiodipine- a calcium channel blocker, and Fenofibrate for high cholesterol. He thought they made his legs so much worse (his doctor doesn't
restlessstoz
in
Restless Legs Syndrome
5 months ago
Belbuca vs. Suboxone
I’m in the US (CA). I’ve been on Suboxone for two months and it handles my RLS quite well. I’m currently taking about .4 mg (1/5 of a 2mg strip) nightly. I’ve gotten over the tiredness that arose for the first month or so, but the constipation is no fun. I’ve read one study that says buccal applications
I’m in the US (CA). I’ve been on Suboxone for two months and it handles my RLS quite well. I’m currently taking about .4 mg (1/5 of a 2mg strip) nightly. I’ve gotten over the tiredness that arose for the first month or so, but the constipation is no fun. I’ve read one study that says buccal applications
707twitcher
in
Restless Legs Syndrome
5 months ago
Opioids for refractory RLS-Dr Berkowski
https://www.relacshealth.com/blog/will-i-get-addicted-to-opioids-from-my-restless-legs-syndrome-treatment-part-iii?ss_source=sscampaigns&ss_campaign_id=65c80ed59e631007b462c07d&ss_email_id=65c9436ef626c803f327b04d&ss_campaign_name=Will+I+Get+Addicted+to+Opioids+from+RLS+Treatment%3F%3A+Part+III%3B+Blog
https://www.relacshealth.com/blog/will-i-get-addicted-to-opioids-from-my-restless-legs-syndrome-treatment-part-iii?ss_source=sscampaigns&ss_campaign_id=65c80ed59e631007b462c07d&ss_email_id=65c9436ef626c803f327b04d&ss_campaign_name=Will+I+Get+Addicted+to+Opioids+from+RLS+Treatment%3F%3A+Part+III%3B+Blog
Joolsg
in
Restless Legs Syndrome
5 months ago
Covid restless leg
ever since I was diagnosed with Covid 13 days ago I have been in extreme pain and restless leg so bad that I can’t sleep I can’t walk nothing helps I’m in constant pain I haven’t even been able to see my child cause I’m so miserable doctors have ran ever test n everything comes back normal they have
ever since I was diagnosed with Covid 13 days ago I have been in extreme pain and restless leg so bad that I can’t sleep I can’t walk nothing helps I’m in constant pain I haven’t even been able to see my child cause I’m so miserable doctors have ran ever test n everything comes back normal they have
Ciciskinner
in
Restless Legs Syndrome
5 months ago
newly diagnosed
Hi all, I was diagnosed around two days ago with fibromyalgia and hypermobility syndrome (eds), although I’ve been struggling for a while now, I’m struggling to take in the diagnosis, I was just wondering if anyone had any advice to give or suggestions on what to do next. Thanks in advance :) x
Hi all, I was diagnosed around two days ago with fibromyalgia and hypermobility syndrome (eds), although I’ve been struggling for a while now, I’m struggling to take in the diagnosis, I was just wondering if anyone had any advice to give or suggestions on what to do next. Thanks in advance :) x
Pink_piglet
in
Fibromyalgia Action UK
5 months ago
Pregabalin
Has anyone had any experience of pregabalin becoming less effective? I was taking the maximum dose of 450 mg but I started to have breakthrough symptoms. I went to the GP who appeared horrified that I was taking Pregabalin. She said I must reduce it until I was not taking anymore and at the same time
Has anyone had any experience of pregabalin becoming less effective? I was taking the maximum dose of 450 mg but I started to have breakthrough symptoms. I went to the GP who appeared horrified that I was taking Pregabalin. She said I must reduce it until I was not taking anymore and at the same time
gobojo
in
Restless Legs Syndrome
5 months ago
scared and worried
I will have to admit that I am very concerned about coming off the Ropinirole! After reading some of the experiences that some people have had it makes me wonder what will I go through. I know I’ve said this before but I’m just not sure I can do it. If I had some good support and help it would make it
I will have to admit that I am very concerned about coming off the Ropinirole! After reading some of the experiences that some people have had it makes me wonder what will I go through. I know I’ve said this before but I’m just not sure I can do it. If I had some good support and help it would make it
6236
in
Restless Legs Syndrome
5 months ago
systemic sclerosis
Does anyone suffer from terrible heat in veins and arteries(skin) yet raynaud's at the same time? But can also be shaking with cold inside - if that makes sense! I have Sjogren's and Systemic sclerosis but all the Doctors ignore the intolerable symptom of hot and cold I suffer
Does anyone suffer from terrible heat in veins and arteries(skin) yet raynaud's at the same time? But can also be shaking with cold inside - if that makes sense! I have Sjogren's and Systemic sclerosis but all the Doctors ignore the intolerable symptom of hot and cold I suffer
sessull
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
hcg test negative first FET @ 26 years old only one embryo
hello all if u have all been following my journey . It has been quite difficult , lost my baby at 21 weeks to fetal anomaly - no genetic conditions on my end or husbands end . It was a 3 day fresh transfer and worked first time we were so happy. it was a difficult time and had some hope in the
hello all if u have all been following my journey . It has been quite difficult , lost my baby at 21 weeks to fetal anomaly - no genetic conditions on my end or husbands end . It was a 3 day fresh transfer and worked first time we were so happy. it was a difficult time and had some hope in the
Hidden
in
Fertility Network UK
8 months ago
My Labs are back- recommendations pretty please.
Quick summary- RLS for last 20yrs but self endured with no meds until Covid hit and exacerbated symptoms x100. Went to sleep MD and he just started with scripting meds….Gabapentin, Pregabalin, Busibar, Doxepin, Requip, Lunesta. None of these really worked…Requip kinda did but then it did not. So
Quick summary- RLS for last 20yrs but self endured with no meds until Covid hit and exacerbated symptoms x100. Went to sleep MD and he just started with scripting meds….Gabapentin, Pregabalin, Busibar, Doxepin, Requip, Lunesta. None of these really worked…Requip kinda did but then it did not. So
Ddski5
in
Restless Legs Syndrome
5 months ago
1
...
8
9
10
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Restless Legs Syndrome
1431 results
Fertility Network UK
359 results
PMRGCAuk
133 results
View top 10 communities
Sort by
Most Relevant
Newest