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Sjogren-Larsson syndrome
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Phobias Magnified with PD
I’m new to this thread. I was hoping that someone may share the same struggle I’m having in the hopes they have conquered it. My struggle is the mental side. I was diagnosed 3 months ago with PD at the age of 50. My wife and I are fairly certain I’ve had PD for as long as 2 years. Over the past 2 years
I’m new to this thread. I was hoping that someone may share the same struggle I’m having in the hopes they have conquered it. My struggle is the mental side. I was diagnosed 3 months ago with PD at the age of 50. My wife and I are fairly certain I’ve had PD for as long as 2 years. Over the past 2 years
Griffin16
in
Cure Parkinson's
4 years ago
Split FET transfer during October
Hello lovely people,. Well we had our nurse's consultation by phone yesterday afternoon, I start Buserelin on the 24th to kick off our 2nd/3rd FET session. They want to do a split transfer. I am all over the place and we haven't even started yet. I am understandably unnerved by the whole split transfer
Hello lovely people,. Well we had our nurse's consultation by phone yesterday afternoon, I start Buserelin on the 24th to kick off our 2nd/3rd FET session. They want to do a split transfer. I am all over the place and we haven't even started yet. I am understandably unnerved by the whole split transfer
Yammie1973
in
Fertility Network UK
4 years ago
Temgesic - letter to the Consultant - raising the profile
If you take a look at my post 'Thought for the Day' you'll understand the context of this letter we sent to Mrs P's consultant. I'm urging suffers to write down their experiences and send it to their doctors. We sent this as an email together with the evidence for Temgesic success stories. I'm hoping
If you take a look at my post 'Thought for the Day' you'll understand the context of this letter we sent to Mrs P's consultant. I'm urging suffers to write down their experiences and send it to their doctors. We sent this as an email together with the evidence for Temgesic success stories. I'm hoping
puzzler1
in
Restless Legs Syndrome
4 years ago
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Buprenorphine/Subutex
Hi all-I’ve been able to find a clinic here locally in Oklahoma City that is working with me on the withdrawal from pramipexole. The quick background on my RLS is 30plus years deep with the highest dose of prami being 3.25 mg. Buprenorphine is working. I am now at .16 mg with bouts of breakthrough occasionally
Hi all-I’ve been able to find a clinic here locally in Oklahoma City that is working with me on the withdrawal from pramipexole. The quick background on my RLS is 30plus years deep with the highest dose of prami being 3.25 mg. Buprenorphine is working. I am now at .16 mg with bouts of breakthrough occasionally
erinjee
in
Restless Legs Syndrome
4 years ago
Lyrica - side effects
Hi I’ve just been reading some of the recent posts about medication for RLS. I can honestly say the only thing that worked for myself was co codomol a 60 mg dose before bed time. I have bowel complications ( high risk of blockage ) And found that this was making me too constipated so had to stop . I
Hi I’ve just been reading some of the recent posts about medication for RLS. I can honestly say the only thing that worked for myself was co codomol a 60 mg dose before bed time. I have bowel complications ( high risk of blockage ) And found that this was making me too constipated so had to stop . I
Esme2007
in
Restless Legs Syndrome
4 years ago
Smoking and Fluoxetine
After stopping the Fluoxetine and quitting smoking my restless legs have gone completely. Think the smoking has played a big part of the problem for many years (about 20) which gave me restless legs every other day at different times but when I started taking the Fluoxetine the condition was far more
After stopping the Fluoxetine and quitting smoking my restless legs have gone completely. Think the smoking has played a big part of the problem for many years (about 20) which gave me restless legs every other day at different times but when I started taking the Fluoxetine the condition was far more
Bengal5
in
Restless Legs Syndrome
4 years ago
Covid - how long til Xray shows improvement?
My mom has been on a ventilator now for 17 days. Everyday they do the X-ray and there is no improvement on the consolidation and now shows a small pleural effusion on the left lung. She also has subcutaneous emphysema. Ventilator back to 100 and she’s saturating 93%. I just really want her to turn the
My mom has been on a ventilator now for 17 days. Everyday they do the X-ray and there is no improvement on the consolidation and now shows a small pleural effusion on the left lung. She also has subcutaneous emphysema. Ventilator back to 100 and she’s saturating 93%. I just really want her to turn the
Color27
in
ICUsteps
4 years ago
Trazodone for RLS?
Hi my fellow sufferers :-( . I've been doing a lot of research online, and today I found something interesting. I've been taking Lexapro for my depression for several months now. For some reason a few weeks later my Doctor prescribed Trazodone and I didn't understand why she would prescribe two depression
Hi my fellow sufferers :-( . I've been doing a lot of research online, and today I found something interesting. I've been taking Lexapro for my depression for several months now. For some reason a few weeks later my Doctor prescribed Trazodone and I didn't understand why she would prescribe two depression
Micafe
in
Restless Legs Syndrome
4 years ago
*sensitive* Remember me? Thought I would share an update.
Hi all, I just wanted to post on this forum because I received amazing support from this community when I was going through multiple miscarriages from IVF. Through some of my lowest lows, there were members of this forum who talked me through with kind words of support. I also know that I always got
Hi all, I just wanted to post on this forum because I received amazing support from this community when I was going through multiple miscarriages from IVF. Through some of my lowest lows, there were members of this forum who talked me through with kind words of support. I also know that I always got
Violet180
in
Fertility Network UK
4 years ago
Do I have Sjögren’s?
Can you have Sjögren’s without having a positive blood test or positive lip biopsy? I have an extremely dry mouth, dry eyes, all over pain/aching, fatigue, and sleeping problems. I have been diagnosed with fibromyalgia because of the lack of positive tests but my dry mouth is so bad and it’s been going
Can you have Sjögren’s without having a positive blood test or positive lip biopsy? I have an extremely dry mouth, dry eyes, all over pain/aching, fatigue, and sleeping problems. I have been diagnosed with fibromyalgia because of the lack of positive tests but my dry mouth is so bad and it’s been going
Missspringsummer
in
The Australian Sjögren's Syndrome Association
4 years ago
Clonazepam
just been put on clonazepam 500mcg per day. this seems to help with RLS but does not keep me asleep all night I tried taking 2 tablets but side effects next day were terrible. i was prev on Zolpidem which were brilliant for sleep but not good for RLs so ended up on other medication for RLS. Still gtting
just been put on clonazepam 500mcg per day. this seems to help with RLS but does not keep me asleep all night I tried taking 2 tablets but side effects next day were terrible. i was prev on Zolpidem which were brilliant for sleep but not good for RLs so ended up on other medication for RLS. Still gtting
Mike-tyson
in
Restless Legs Syndrome
4 years ago
No sleep RLS
I'm going to sleep Dr. tomorrow, thank goodness. I am up all night no sleep, leg pain and itching. I have RLS and PLMD, Gabapenten does not work for me it makes me feel like I'm a zombie all day and ropinirole doesn't do anything anymore. I have taken some hydrcodonne, but it doesn't really work either
I'm going to sleep Dr. tomorrow, thank goodness. I am up all night no sleep, leg pain and itching. I have RLS and PLMD, Gabapenten does not work for me it makes me feel like I'm a zombie all day and ropinirole doesn't do anything anymore. I have taken some hydrcodonne, but it doesn't really work either
Seehowyour
in
Restless Legs Syndrome
4 years ago
Opinions please on whether anyone would increase their Ropinirole dose?
Hello everyone, Can I ask what you would all do in my situation as I am in a real dilemma.? I had been taking Ropinirole for a number of years before it started not to work and I couldn’t tolerate the extra dose (became agitated and panicked) I was then prescribed Pramipexole which worked for quite a
Hello everyone, Can I ask what you would all do in my situation as I am in a real dilemma.? I had been taking Ropinirole for a number of years before it started not to work and I couldn’t tolerate the extra dose (became agitated and panicked) I was then prescribed Pramipexole which worked for quite a
21years
in
Restless Legs Syndrome
4 years ago
What to do????
Hi I was initially on Benepali biologic for a year, it proved bery beneficial, changing my life really, however, stopped reaching therapeutic effect. Then px Adalimumab , which didnt seem to work. It took me a long time to recieve biologics, so i am reluctant to change to other meds. My doc wants me
Hi I was initially on Benepali biologic for a year, it proved bery beneficial, changing my life really, however, stopped reaching therapeutic effect. Then px Adalimumab , which didnt seem to work. It took me a long time to recieve biologics, so i am reluctant to change to other meds. My doc wants me
Cheryl20
in
NRAS
4 years ago
I'm having a restful time
I cant believe I've been rls free for the last maybe 7days.my husband says he notices that this does seem to happen like a cycle, I'm trying to sort out my diet ie. Gluten, alcohol, white bread etc. It's hard to do because I need to find alternatives but I'm gonna keep on with this trial, also I didnt
I cant believe I've been rls free for the last maybe 7days.my husband says he notices that this does seem to happen like a cycle, I'm trying to sort out my diet ie. Gluten, alcohol, white bread etc. It's hard to do because I need to find alternatives but I'm gonna keep on with this trial, also I didnt
Whymelord
in
Restless Legs Syndrome
4 years ago
Lupus and Sjogrens- and angular cheilitis
Hi all, it looks like I have secondary Sjogrens to my lupus sle. My hair is thinning at a rapid pace (😞) and now due to dry mouth I have mouth cuts (angular cheilitis I think it’s called) I’m not due to see my consultant rheumatologist until later in the year (but I did speak to a registrar last
Hi all, it looks like I have secondary Sjogrens to my lupus sle. My hair is thinning at a rapid pace (😞) and now due to dry mouth I have mouth cuts (angular cheilitis I think it’s called) I’m not due to see my consultant rheumatologist until later in the year (but I did speak to a registrar last
Sin123
in
LUPUS UK
4 years ago
UK RLS sufferers this is for you.
This week I received an Email from Professor David Nutt also from our Manerva ;] Buprenorphine in the form of TEMGESIC 200mcg is available from your GP also I suspect Norspan patches which is buprenorphine dosing starting at 5mg. Buprenorphine is a very superior drug it hangs onto very few receptors
This week I received an Email from Professor David Nutt also from our Manerva ;] Buprenorphine in the form of TEMGESIC 200mcg is available from your GP also I suspect Norspan patches which is buprenorphine dosing starting at 5mg. Buprenorphine is a very superior drug it hangs onto very few receptors
Shumbah
in
Restless Legs Syndrome
4 years ago
Has anyone augmented on Tramadol
I’ve read that augmentation on Tramadol is rare but I think I may be augmenting already. Did so on Recuip after about 8 months now after only 2 months same appears to be happening on Tramadol. I was so happy thinking I found something to help me. 50mg Tramadol and some THC Edibles and I was doing pretty
I’ve read that augmentation on Tramadol is rare but I think I may be augmenting already. Did so on Recuip after about 8 months now after only 2 months same appears to be happening on Tramadol. I was so happy thinking I found something to help me. 50mg Tramadol and some THC Edibles and I was doing pretty
mmb8083
in
Restless Legs Syndrome
4 years ago
Should I be taking this.
Hi everyone I’ve had loads of advice from this site and I’m still seeking it. I’ll give you a quick synopsis of what I’ve been going through and where I am now. I have had RLS what seems like forever. I took Ropinirole for 10 years, went through augmentation, developed a gambling problem and managed
Hi everyone I’ve had loads of advice from this site and I’m still seeking it. I’ll give you a quick synopsis of what I’ve been going through and where I am now. I have had RLS what seems like forever. I took Ropinirole for 10 years, went through augmentation, developed a gambling problem and managed
Scattypatty
in
Restless Legs Syndrome
4 years ago
Increase in steroids?
I have upped my steroids from 2 to 3 with Docs permission. Now I am thinking of taking a bit more ! My John is now terminal with metastasised lung cancer to the brain and now spine. He is in a hospice for pain relief but I think when that is sorted he will have to leave. I would like him to come home
I have upped my steroids from 2 to 3 with Docs permission. Now I am thinking of taking a bit more ! My John is now terminal with metastasised lung cancer to the brain and now spine. He is in a hospice for pain relief but I think when that is sorted he will have to leave. I would like him to come home
5lupins
in
PMRGCAuk
4 years ago
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