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Sinusitis (sinus infection)
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Covid Jab Next Week
As I’m classed as extremely vulnerable I’m pleased that I’m getting my covid jab next Thursday. Not going out into public places unless absolutely necessary is very boring. Hope you all get your jabs soon. and none of us get bad side effects. Best regards, Jean x
As I’m classed as extremely vulnerable I’m pleased that I’m getting my covid jab next Thursday. Not going out into public places unless absolutely necessary is very boring. Hope you all get your jabs soon. and none of us get bad side effects. Best regards, Jean x
Morrison10
in
Lung Conditions Community Forum
1 year ago
Update on covid-19 treatments & eligibility
We've updated our article on the COVID-19 treatments and their eligibility, which you can read here: https://www.lupusuk.org.uk/covid-19-treatments/ Most of the updates to the eligibility are not lupus-specific (for example they have added some respiratory conditions), but they have added some co-morbidities
We've updated our article on the COVID-19 treatments and their eligibility, which you can read here: https://www.lupusuk.org.uk/covid-19-treatments/ Most of the updates to the eligibility are not lupus-specific (for example they have added some respiratory conditions), but they have added some co-morbidities
Debbie_kinsey
Administrator
in
LUPUS UK
1 year ago
Starting over
Most of you know I haven't run much this year, also that I'm retiring, actually retired a little earlier than expected, then caught COVID. I worked right through the pandemic in a residential home, I stayed up all night caring for people with COVID, I worked extra hours when my coughing colleagues needed
Most of you know I haven't run much this year, also that I'm retiring, actually retired a little earlier than expected, then caught COVID. I worked right through the pandemic in a residential home, I stayed up all night caring for people with COVID, I worked extra hours when my coughing colleagues needed
SueAppleRun
60minGraduate
in
Bridge to 10K
1 year ago
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Dental extraction
It never rains……… Have had a herniated disc for the past four weeks with the dreaded sciatica accompanying it with glee but despite that I have felt better having gone back on my Filgotinib JAK after being off it after a month of bronchitis in April on antibiotics. However, and here’s the rub, the back
It never rains……… Have had a herniated disc for the past four weeks with the dreaded sciatica accompanying it with glee but despite that I have felt better having gone back on my Filgotinib JAK after being off it after a month of bronchitis in April on antibiotics. However, and here’s the rub, the back
Amnesiac3637
in
NRAS
10 months ago
Implantation failure?
Hello everyone, This was my first attempt of IVF and it has been (as everyone knows!) the most stressful time of my life. We tried to conceive naturally for quite a long time (about 6 years) and after being checked, apparently nothing is wrong with either of us. However, we've been recommended IVF/ICSI
Hello everyone, This was my first attempt of IVF and it has been (as everyone knows!) the most stressful time of my life. We tried to conceive naturally for quite a long time (about 6 years) and after being checked, apparently nothing is wrong with either of us. However, we've been recommended IVF/ICSI
Cridog
in
Fertility Network UK
10 months ago
HU and prefibrotic myelofibrosis
Recently diagnosed first with ET. put on 500mg hydroxyurea daily with platelets at 617. After bone marrow aspiration and biopsy, diagnosis changed to prefibrotic myelofibrosis. HU had brought platelets down to 270 but I suffered from bad side effects. Dr didn’t want to change med or dosage. I resisted
Recently diagnosed first with ET. put on 500mg hydroxyurea daily with platelets at 617. After bone marrow aspiration and biopsy, diagnosis changed to prefibrotic myelofibrosis. HU had brought platelets down to 270 but I suffered from bad side effects. Dr didn’t want to change med or dosage. I resisted
Apple238
in
CLL Support
1 year ago
Temgesic/Buprenorphine
Jelbea and Shumbah have both posted recently about Temgesic versus Buprenorphine and the different half life of these 2 medicines.Both have Buprenorphine hydrochloride as the active ingredient BUT Temgesic has a much shorter half life. This means it will have to be taken every 6 to 8 hours throughout
Jelbea and Shumbah have both posted recently about Temgesic versus Buprenorphine and the different half life of these 2 medicines.Both have Buprenorphine hydrochloride as the active ingredient BUT Temgesic has a much shorter half life. This means it will have to be taken every 6 to 8 hours throughout
Joolsg
in
Restless Legs Syndrome
11 months ago
Rebound COVID after Plaxovid.
So I took a COVID test yesterday just for the heck of it since having COVID starting March 26 and was treated with Paxlovid. Well to my surprise it came back positive. I tested negative after 6 days on paxlovid. I have zero symptoms. I called my oncologist and he is pulling me off the Venclexta for 2
So I took a COVID test yesterday just for the heck of it since having COVID starting March 26 and was treated with Paxlovid. Well to my surprise it came back positive. I tested negative after 6 days on paxlovid. I have zero symptoms. I called my oncologist and he is pulling me off the Venclexta for 2
Gradyboy
in
CLL Support
1 year ago
Asthma post COVID
I had asthma as a child and "grew out of it" - never needed an inhaler until 3 months ago. I was extremely active, an avid soccer player, hiking, biking, everything. I have been taking allergy shots all my life which helped make the asthma negligent. I got back to back colds in December-January, the
I had asthma as a child and "grew out of it" - never needed an inhaler until 3 months ago. I was extremely active, an avid soccer player, hiking, biking, everything. I have been taking allergy shots all my life which helped make the asthma negligent. I got back to back colds in December-January, the
JJ2370
in
Living with Asthma
1 year ago
Wrong diagnosis
Hi everyone, I don't post very much, a bit of a lurker but I will be leaving the group anyway but thought I would share my recent update. Three years ago after raised infection markers at my previous doctors I was diagnosed with PMR and put on 40mg steroids, tapering dose. I was not referred to see
Hi everyone, I don't post very much, a bit of a lurker but I will be leaving the group anyway but thought I would share my recent update. Three years ago after raised infection markers at my previous doctors I was diagnosed with PMR and put on 40mg steroids, tapering dose. I was not referred to see
Gyspysmum
in
PMRGCAuk
1 year ago
Shingles
I had shingles 7 years agoi am 69 and left me with the most terrible pain neurphatic pain is the worst i think no meds have helped me.i have RA lung fibrosis had cancer sjorgrens i think i canr expect more patologies.i recomend people to have the shingix vaccine because this pain is Agony!!
I had shingles 7 years agoi am 69 and left me with the most terrible pain neurphatic pain is the worst i think no meds have helped me.i have RA lung fibrosis had cancer sjorgrens i think i canr expect more patologies.i recomend people to have the shingix vaccine because this pain is Agony!!
Al1954
in
NRAS
10 months ago
I am so upset and don’t know where to go from here…
I went to the doctors with 3 months of pain while going for a pee, I have been on two antibiotics and none have worked. So, I made an appointment with the doctor to speak about what to do to help with the pain and find out why it was happening, or so I thought. I went in and her answer was go on the
I went to the doctors with 3 months of pain while going for a pee, I have been on two antibiotics and none have worked. So, I made an appointment with the doctor to speak about what to do to help with the pain and find out why it was happening, or so I thought. I went in and her answer was go on the
Sky342
in
Endometriosis UK
1 year ago
PSA and Covid
I’ve read a few times that PSA can become elevated for several months post Covid. Is this for real or just wishful thinking? Has anyone actually experienced this?
I’ve read a few times that PSA can become elevated for several months post Covid. Is this for real or just wishful thinking? Has anyone actually experienced this?
JamesHughs
in
Advanced Prostate Cancer
1 year ago
prednisolone 3 week course followd by surgery
Hi please can anyone advise how long to wait in between a prednisolone course and surgery ? I have heard from the nurses that if you have an IM steroid injection they postpone surgery for 6 to 8 weeks to allow the imunosuppresant effects to wear off before surgery. my RA consultant seems to think
Hi please can anyone advise how long to wait in between a prednisolone course and surgery ? I have heard from the nurses that if you have an IM steroid injection they postpone surgery for 6 to 8 weeks to allow the imunosuppresant effects to wear off before surgery. my RA consultant seems to think
lindyloo2018
in
NRAS
1 year ago
flu symptoms with aps / stroke history
it’s my first time getting flu since my stroke a year ago. As an aps (and stroke) patient from my understanding of the condition, I am not immunosuppressed. But my flu whilst I haven’t had high fevers. I have felt my original stroke side effects come back - eg vestibular dizziness and it’s made the
it’s my first time getting flu since my stroke a year ago. As an aps (and stroke) patient from my understanding of the condition, I am not immunosuppressed. But my flu whilst I haven’t had high fevers. I have felt my original stroke side effects come back - eg vestibular dizziness and it’s made the
Sand1985
in
Hughes Syndrome APS Forum
10 months ago
bronchiastasis
hi I have bronchiastasis and new to it even though consultant thinks I’ve probably had it since childhood, I also have brittle asthma ( fingers crossed, been under control for years). Since 2019 I’ve had double pneumonia 3 times, sepsis twice and currently sat on a ward waiting for a scan for a possible
hi I have bronchiastasis and new to it even though consultant thinks I’ve probably had it since childhood, I also have brittle asthma ( fingers crossed, been under control for years). Since 2019 I’ve had double pneumonia 3 times, sepsis twice and currently sat on a ward waiting for a scan for a possible
Numptybrain
in
Lung Conditions Community Forum
10 months ago
Pnuemonia post ablation
Hi. Not sure if anyone can advise me I am three weeks post AV node ablation (Pace and Ablate) I was in hospital extra four days because of breathlessness and dehydration. I had a chest crackle but thought no more about it on leaving hospital. Had a rough week felt really ill finally went to GP who
Hi. Not sure if anyone can advise me I am three weeks post AV node ablation (Pace and Ablate) I was in hospital extra four days because of breathlessness and dehydration. I had a chest crackle but thought no more about it on leaving hospital. Had a rough week felt really ill finally went to GP who
Lamplight37
in
AF Association
1 year ago
Stopping MTX as Covid positive
Flew to Finland and ended up feeling unwell after the flight, until finally testing Covid positive for the first time last Tuesday 4th April. That was my MTX day so I gave it a miss that day (I'm on 20mg injectable for psoriatic arthritis). So, still not feeling 100% but getting better each day. I've
Flew to Finland and ended up feeling unwell after the flight, until finally testing Covid positive for the first time last Tuesday 4th April. That was my MTX day so I gave it a miss that day (I'm on 20mg injectable for psoriatic arthritis). So, still not feeling 100% but getting better each day. I've
Manzana1
in
NRAS
1 year ago
cellulitis again….
Ugh! Woke up at 5am bank holiday weekend and realised I have cellulitis… No GP cover so 40 minutes holding for NHS 111 and now on 2 hour wait for GP call back to get some antibiotics. Why does it always turn up at the most inconvenient time? Tried to explain to the call handler that, although I can
Ugh! Woke up at 5am bank holiday weekend and realised I have cellulitis… No GP cover so 40 minutes holding for NHS 111 and now on 2 hour wait for GP call back to get some antibiotics. Why does it always turn up at the most inconvenient time? Tried to explain to the call handler that, although I can
Lyndy
in
LSN
1 year ago
spring Covid vaccine
I’ve had all the necessary covid vaccinations but had my 2nd covid infection during the first week in March. I see in the news that the spring covid vaccine is available for those on steroids. I’m currently on 13mg of pred having started on 15mg in February. Is it likely that I will be asked to get
I’ve had all the necessary covid vaccinations but had my 2nd covid infection during the first week in March. I see in the news that the spring covid vaccine is available for those on steroids. I’m currently on 13mg of pred having started on 15mg in February. Is it likely that I will be asked to get
Lclmlbls
in
PMRGCAuk
1 year ago
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