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Getting No Help and feeling desperate
I have severe restless legs and am going around in circles with my doctor and neurologist. Being waiting months for a CPAP machine but now my doctor wants me to do another sleep study. I have been using kratom for years but now it's not really working for me and am close to packing it all in. I live
I have severe restless legs and am going around in circles with my doctor and neurologist. Being waiting months for a CPAP machine but now my doctor wants me to do another sleep study. I have been using kratom for years but now it's not really working for me and am close to packing it all in. I live
Jezee
in
Restless Legs Syndrome
6 months ago
Effects of Traditional Japanese Massage Therapy on Various Symptoms in Patients with Parkinson’s Disease:A Case-Series Study
Effects of Traditional Japanese Massage Therapy on Various Symptoms in Patients with Parkinson’s Disease:A Case-Series Study 2012 https://sci-hub.st/10.1089/acm.2011.0148
Abstract:
Objectives:
Massage therapy is one of the most commonly used complementary therapies for patients
Effects of Traditional Japanese Massage Therapy on Various Symptoms in Patients with Parkinson’s Disease:A Case-Series Study 2012 https://sci-hub.st/10.1089/acm.2011.0148
Abstract:
Objectives:
Massage therapy is one of the most commonly used complementary therapies for patients
Bolt_Upright
in
Cure Parkinson's
6 months ago
Sleep apnea and PMR
Over the last year my sleep has been poor, and finally I had an overnight sleep study, which revealed severe apnea. I'm pretty sure this is new to me and I did some reading. Apparently there is a nasty connection between apnea and PMR (and RA). One source: "The co-existence of sleep apnoea in rheumatic
Over the last year my sleep has been poor, and finally I had an overnight sleep study, which revealed severe apnea. I'm pretty sure this is new to me and I did some reading. Apparently there is a nasty connection between apnea and PMR (and RA). One source: "The co-existence of sleep apnoea in rheumatic
papadapadoo
in
PMRGCAuk
6 months ago
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Suggestions For Reducing 'Off' Time
I sent this message to my Neurologist from Mayo Clinic who works under Eric Ahlskog who wrote “The New Parkinson’s Disease Treatment Book”. I am looking for any suggestions regarding how I can reduce my ‘off’ times that are becoming more and more severe. I’m trying to hold off on the DBS surgery and
I sent this message to my Neurologist from Mayo Clinic who works under Eric Ahlskog who wrote “The New Parkinson’s Disease Treatment Book”. I am looking for any suggestions regarding how I can reduce my ‘off’ times that are becoming more and more severe. I’m trying to hold off on the DBS surgery and
tandolino
in
Cure Parkinson's
6 months ago
Suboxone works!
As I stated in my first post, in May, 2023, I have had severe RLS for many years. I suffered augmentation after taking 4 mg Mirapex daily. In September, 2023, my sleep study doctor, at The University of Michigan, prescribed Suboxone. Also known as Buprenorphine and Naloxone 2 mg/0.5 mg. It is a sublingual
As I stated in my first post, in May, 2023, I have had severe RLS for many years. I suffered augmentation after taking 4 mg Mirapex daily. In September, 2023, my sleep study doctor, at The University of Michigan, prescribed Suboxone. Also known as Buprenorphine and Naloxone 2 mg/0.5 mg. It is a sublingual
Happygrandmother
in
Restless Legs Syndrome
6 months ago
does anyone have experience of Benzatropine?
My doctor prescribed Benzatropine for dystonia, he didn’t have time to explain at my visiting. Also I know what he prescribed until I see it at CVS pharmacy. I googled it, seems I should stop taking other med include Amantadine and Rasagiline . Does anyone have knowledge and experience of Benzatropine
My doctor prescribed Benzatropine for dystonia, he didn’t have time to explain at my visiting. Also I know what he prescribed until I see it at CVS pharmacy. I googled it, seems I should stop taking other med include Amantadine and Rasagiline . Does anyone have knowledge and experience of Benzatropine
Grandsonlover
in
Cure Parkinson's
6 months ago
Cortisol saliva test results
I’ve just had my third cortisol saliva test done and am interested to get advice from the experts on here eg the very knowledgeable humanbean! It basically tells the story of how I feel. Unable to get out of bed without a cup of tea. Able to do some light jobs/activities in the morning. Tired after
I’ve just had my third cortisol saliva test done and am interested to get advice from the experts on here eg the very knowledgeable humanbean! It basically tells the story of how I feel. Unable to get out of bed without a cup of tea. Able to do some light jobs/activities in the morning. Tired after
CornishChick
in
Thyroid UK
6 months ago
Farmed salmon and PLMD
Hi everyone I would again be grateful for your help on this wonderful site I have severe RLS and severe PLMD. I take 1500 mgs gaberpentin and 750 micros clonazepam every night .Normally i wake up twice a night,,twitching away, go for a 30 minutes walk, and, if i am lucky, I can get back to
Hi everyone I would again be grateful for your help on this wonderful site I have severe RLS and severe PLMD. I take 1500 mgs gaberpentin and 750 micros clonazepam every night .Normally i wake up twice a night,,twitching away, go for a 30 minutes walk, and, if i am lucky, I can get back to
thorp
in
Restless Legs Syndrome
7 months ago
Further to my post of 9 months ago
Hi Until December last I was taking 40 mg iron bisglycinate with orange juice every two days. Since this had little impact on my RLS I increased the iron dose to 40mg every day from December until now. As yet I have noticed little change to my RLS symptoms. A blood test this month showed my ferritin
Hi Until December last I was taking 40 mg iron bisglycinate with orange juice every two days. Since this had little impact on my RLS I increased the iron dose to 40mg every day from December until now. As yet I have noticed little change to my RLS symptoms. A blood test this month showed my ferritin
Rameau
in
Restless Legs Syndrome
7 months ago
Duloxetine to Mirtazapine
I been on Gabapentin from 23.02.24 and was previously on Pramipexole but had compulsive eating so asked to change. I stopped Pramipexole straight away and moved to Gabapentin and went from 300mg three times a day to 900mg three times a day and not really helped me. Spoke to Dr today who’s decided I should
I been on Gabapentin from 23.02.24 and was previously on Pramipexole but had compulsive eating so asked to change. I stopped Pramipexole straight away and moved to Gabapentin and went from 300mg three times a day to 900mg three times a day and not really helped me. Spoke to Dr today who’s decided I should
Puggy1910
in
Restless Legs Syndrome
7 months ago
First Post from New Member
Hi everyone!, My name is Lisa. I can't believe there's a group of people who I can reach out to that know the hell I live with. I was diagnosed about RLS & PLMD about 25 years ago. I was 32. I've had 3 sleep studies done. I guess as with everyone, it was a bunch of trials and errors with
Hi everyone!, My name is Lisa. I can't believe there's a group of people who I can reach out to that know the hell I live with. I was diagnosed about RLS & PLMD about 25 years ago. I was 32. I've had 3 sleep studies done. I guess as with everyone, it was a bunch of trials and errors with
Leeserann
in
Restless Legs Syndrome
7 months ago
How much more can I take ?
Its a year now since I started the worst journey of my life getting off Ropinrole but I did it and Im proud . Yes daytime and evenings are much better but nights are still pure hell . I have had one nights sleep in a year and that was 1til 6am .Interestingly I was out that evening and only had 600 mgs
Its a year now since I started the worst journey of my life getting off Ropinrole but I did it and Im proud . Yes daytime and evenings are much better but nights are still pure hell . I have had one nights sleep in a year and that was 1til 6am .Interestingly I was out that evening and only had 600 mgs
Huntingleroy
in
Restless Legs Syndrome
7 months ago
Not sure whether I should be pleased or disappointed. Sleep study results
PLMD (Passive limb movement disorder) = a little twitchy in the legs at night, but nothing significant (Personal thought, I think of cats twitching during sleep – nothing to worry about?)-negligible RLS (restless Leg Syndrome) = Willis Eckborn Syndrome =EARLS (European alliance RLS) -(personal note
PLMD (Passive limb movement disorder) = a little twitchy in the legs at night, but nothing significant (Personal thought, I think of cats twitching during sleep – nothing to worry about?)-negligible RLS (restless Leg Syndrome) = Willis Eckborn Syndrome =EARLS (European alliance RLS) -(personal note
Spurdog1
in
Restless Legs Syndrome
7 months ago
Do B Complex vitamins upset the stomach? Advice please
Morning all. Can I please ask for ways to take B complex that won't upset stomach. I bought Igennus Super B complex and took 1 tablet about 30 mins after eating dinner. The next day I had an upset stomach and felt more exhausted that usual the way you can get with a stomach upset. I haven't taken any
Morning all. Can I please ask for ways to take B complex that won't upset stomach. I bought Igennus Super B complex and took 1 tablet about 30 mins after eating dinner. The next day I had an upset stomach and felt more exhausted that usual the way you can get with a stomach upset. I haven't taken any
Irish_Gal
in
Thyroid UK
7 months ago
Modafinil - thoughts
I am nervous in posting this. Please Admins jump in and close / moderate if needed etc. I think modafinil has helped me get through low thyroid. There did not seem to be much on the web about modafinil and thyroid. A post on reddit I think, says it used to be prescribed to support thyroid in US but
I am nervous in posting this. Please Admins jump in and close / moderate if needed etc. I think modafinil has helped me get through low thyroid. There did not seem to be much on the web about modafinil and thyroid. A post on reddit I think, says it used to be prescribed to support thyroid in US but
Sleepman
in
Thyroid UK
7 months ago
Restless sleep
My husband was diagnosed with PSP in 2020. His sleep has become more restless lately kicking his legs, throwing his arms up and removing sheets and duvet then asking me to cover him up. He wears a CPAP mask but cannot always tolerate wearing it so pulls it off, something he would never do. All of this
My husband was diagnosed with PSP in 2020. His sleep has become more restless lately kicking his legs, throwing his arms up and removing sheets and duvet then asking me to cover him up. He wears a CPAP mask but cannot always tolerate wearing it so pulls it off, something he would never do. All of this
Licquoricelover
in
PSP Association
7 months ago
Question about the Symptoms - FND and/or Insomnia.
I'm beginning to relate to the symptoms, but I'm still unsure whether they are
simply
down to insomnia and poor
sleep
due to Tinnitus 24/7. A lot of it could easily be related to Ménières, which I haven't ruled out, listening fatigue.
I'm beginning to relate to the symptoms, but I'm still unsure whether they are
simply
down to insomnia and poor
sleep
due to Tinnitus 24/7. A lot of it could easily be related to Ménières, which I haven't ruled out, listening fatigue.
daverussell
in
Functional Neurological Disorder - FND Hope
9 months ago
Repost results
Im taking teva levothyroxine 100mcgThybon t3, 15mcg, split 3 x 5mcg dose Magnesium glycinate 650mg Vit D3,k2 mk-7, 5000iu Any advice very much appreciated 🌸🌸🌸🌸🌸🌸🌸
Im taking teva levothyroxine 100mcgThybon t3, 15mcg, split 3 x 5mcg dose Magnesium glycinate 650mg Vit D3,k2 mk-7, 5000iu Any advice very much appreciated 🌸🌸🌸🌸🌸🌸🌸
Geegee777
in
Thyroid UK
7 months ago
CPAP first time user - your experience please, 4G etc
I picked up a Resmed CPAP machine with a nasal only mask yesterday from our local Guildford (Surrey) NHS hospital to hopefully remove my mild sleep apnoea and stop me waking around 3 times every night. Any comments on member's experience would be appreciated. In particular before I start, do members
I picked up a Resmed CPAP machine with a nasal only mask yesterday from our local Guildford (Surrey) NHS hospital to hopefully remove my mild sleep apnoea and stop me waking around 3 times every night. Any comments on member's experience would be appreciated. In particular before I start, do members
secondtry
in
Atrial Fibrillation Support
7 months ago
adalimumab
I’ve been taking this Biologic for about six months now alongside high dose methotrexate injections which I have had for a couple of years. Since starting Biologic I have a sticky blocked nose and frequently blood in tissues when I blow my nose. My husband says I’m snoring really loudly and he has
I’ve been taking this Biologic for about six months now alongside high dose methotrexate injections which I have had for a couple of years. Since starting Biologic I have a sticky blocked nose and frequently blood in tissues when I blow my nose. My husband says I’m snoring really loudly and he has
Amb1xkr
in
NRAS
7 months ago
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