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diagnosed
Was originally diagnosed 8 years ago. I have not had injections for 2 years due to covid so asked GP to restart them but wouldn’t without blood test etc. blood test has come back saying b12 is normal and intrinsic factor is negative so he is saying I don’t have PA anymore? And therefore won’t treat me
Was originally diagnosed 8 years ago. I have not had injections for 2 years due to covid so asked GP to restart them but wouldn’t without blood test etc. blood test has come back saying b12 is normal and intrinsic factor is negative so he is saying I don’t have PA anymore? And therefore won’t treat me
Moon1309
in
Pernicious Anaemia Society
2 years ago
When blood tests don't show the reality in lupus
im sure there are so many of you who have blood test after blood test that doesn't show the true and complete picture of what is going on. GPs don't give me the actual numbers bc I'm medical, instead they say normal or satisfactory which to me mean very little. And is their normal my normal? I know
im sure there are so many of you who have blood test after blood test that doesn't show the true and complete picture of what is going on. GPs don't give me the actual numbers bc I'm medical, instead they say normal or satisfactory which to me mean very little. And is their normal my normal? I know
LottieLou96
in
LUPUS UK
2 years ago
Iron panel results
In early Sept my ferritin came back: 25.9 (10-291) so I asked for an iron panel. I am a bit confused by the transferrin result as I have read that if low iron then transferrin should be high? Mine is below range. Oct 22: Ferritin: 28.9 (10-291) Iron serum: 13.7 (9-30.4) Transferrin: 2.42 (2.5
In early Sept my ferritin came back: 25.9 (10-291) so I asked for an iron panel. I am a bit confused by the transferrin result as I have read that if low iron then transferrin should be high? Mine is below range. Oct 22: Ferritin: 28.9 (10-291) Iron serum: 13.7 (9-30.4) Transferrin: 2.42 (2.5
Fizzyinch
in
Thyroid UK
2 years ago
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feeling like I’m on a boat… light headed dizzy after increasing b12 lozenges
hi again guys I’ve been taking b12 lozenges daily now 5000mcg x 5-6 a day to increase the dose while I wait for GPS to do their investigations… intrinsic factor came back at 1.63 but I know it’s not reliable. Waiting to see haematology and neurology privetly so don’t want to take too many more supplements
hi again guys I’ve been taking b12 lozenges daily now 5000mcg x 5-6 a day to increase the dose while I wait for GPS to do their investigations… intrinsic factor came back at 1.63 but I know it’s not reliable. Waiting to see haematology and neurology privetly so don’t want to take too many more supplements
Cookiedough2022
in
Pernicious Anaemia Society
2 years ago
Can buprenorphine cause augmentation
Hi I am back for help! we cannot source Temgesic in South Africa anymore so my husband is using the buprenorphine patch (sovenor) plus now adding gabapentin 900mg for the past 3 days. However he is having the most terrible time, has managed to sleep from 7:30 this morning for a few hours, up the whole
Hi I am back for help! we cannot source Temgesic in South Africa anymore so my husband is using the buprenorphine patch (sovenor) plus now adding gabapentin 900mg for the past 3 days. However he is having the most terrible time, has managed to sleep from 7:30 this morning for a few hours, up the whole
rchobby
in
Restless Legs Syndrome
2 years ago
Is it all about the range?
Hi everyone I was just reading up on thyroid globulin antibodies as I had a test done by Medichecks in Aug 2022 which had me within normal range and I was wondering whether people without thyroid problems had these antibodies too.
Thyroid Globulin Antibodies (TgAb) 48IU/L (reference <115)
Reading
Hi everyone I was just reading up on thyroid globulin antibodies as I had a test done by Medichecks in Aug 2022 which had me within normal range and I was wondering whether people without thyroid problems had these antibodies too.
Thyroid Globulin Antibodies (TgAb) 48IU/L (reference <115)
Reading
Souzy
in
Thyroid UK
2 years ago
Extreme hair loss!
Hello, I just started 25mcg of levothyroxine 5 days ago (new to this). My hair has been dramatically falling out for a while now but from day 2 of taking Teva levothyroxine it became twice as bad!!! I stopped taking it today as I will have no hair left at this rate, but cannot get in touch with my GP
Hello, I just started 25mcg of levothyroxine 5 days ago (new to this). My hair has been dramatically falling out for a while now but from day 2 of taking Teva levothyroxine it became twice as bad!!! I stopped taking it today as I will have no hair left at this rate, but cannot get in touch with my GP
PinkSquirrel100
in
Thyroid UK
2 years ago
Low folate without anaemia?
Hi I’ve recently had some blood tests and it’s come back with a low folate level of 3.1 ug/l (range 3.9 - 20.0). My B12 was 429 ng/L MCV 97.2 (82 - 100) RBC 4.61 [4.5 - 5.9] My question is that as I don’t seem to be anaemic (well according to MCV / RBC anyway …), would I be likely to have any symptoms
Hi I’ve recently had some blood tests and it’s come back with a low folate level of 3.1 ug/l (range 3.9 - 20.0). My B12 was 429 ng/L MCV 97.2 (82 - 100) RBC 4.61 [4.5 - 5.9] My question is that as I don’t seem to be anaemic (well according to MCV / RBC anyway …), would I be likely to have any symptoms
Edso57
in
Pernicious Anaemia Society
2 years ago
Possible Pernicious Anemia
Hello all, I have been feeling ill for months now. As I write, it is August 2022, I was diagnosed with low iron stores, ferritin of 13 ug/l in March this year. I have been on tablets for the past 6 months or so. Although recently I have been experiencing, headaches, vomiting, weakness, dizzyness to name
Hello all, I have been feeling ill for months now. As I write, it is August 2022, I was diagnosed with low iron stores, ferritin of 13 ug/l in March this year. I have been on tablets for the past 6 months or so. Although recently I have been experiencing, headaches, vomiting, weakness, dizzyness to name
ae0200
in
Pernicious Anaemia Society
2 years ago
ET accelerated progression
hi. I have had ET since 2004, treated with varying doses of HU and in later years also Peg. Apart from unstable platelets I have been relatively symptom free. Until this year! I have definitely struggled with HU, getting terrible mouth sores. I had a bone marrow biopsy recently which has confirmed
hi. I have had ET since 2004, treated with varying doses of HU and in later years also Peg. Apart from unstable platelets I have been relatively symptom free. Until this year! I have definitely struggled with HU, getting terrible mouth sores. I had a bone marrow biopsy recently which has confirmed
Smdg
in
MPN Voice
2 years ago
Folate level
H i everyone, hope you are all well? I had my folate checked and my level came back as 2.9ng (3.1ng - 19.9ng reference range) Doctor said not to worry about it as it was only slightly under range. My question is even though I have B12 injections should my folate be in range and should the doctor
H i everyone, hope you are all well? I had my folate checked and my level came back as 2.9ng (3.1ng - 19.9ng reference range) Doctor said not to worry about it as it was only slightly under range. My question is even though I have B12 injections should my folate be in range and should the doctor
Purplestaffie
in
Thyroid UK
2 years ago
SERUM BLOOD TESTS
Good morning, I had a blood test 4/3/22. Just checked my results online. These were tested- Serum vitamin B12 level, Serum ferritin level , Serum folate level. The result is borderline & doesnt need any further action. Shall I contact the GP and follow it up?
Good morning, I had a blood test 4/3/22. Just checked my results online. These were tested- Serum vitamin B12 level, Serum ferritin level , Serum folate level. The result is borderline & doesnt need any further action. Shall I contact the GP and follow it up?
Florah
in
Thyroid UK
2 years ago
bloods vit count they claim normal ?
serum iron 19.6 umol/l iron binding 63 umol/l unbound iron binding 43 umol/l percentage iron saturation 31%alkaline phosphatease level 92 u/l plasma alanine aminotransferase level ? 18 u/l serum total bilirubin level 6 umol/l serum total protein level 69 g/l plasma globulin level 33 g/l serum
serum iron 19.6 umol/l iron binding 63 umol/l unbound iron binding 43 umol/l percentage iron saturation 31%alkaline phosphatease level 92 u/l plasma alanine aminotransferase level ? 18 u/l serum total bilirubin level 6 umol/l serum total protein level 69 g/l plasma globulin level 33 g/l serum
Hidden
in
Thyroid UK
2 years ago
Neurologists & hematologists in London for B12 neurological symptoms - recs pls?
Hi all - Can anyone recommend a good neurologist & hematologist in London to consult with privately about my B12 treatment/symptoms? I’ve recently been found to be B12 deficient (150), high MMA, I’m 40 yrs old. I just finished getting injections over 2 weeks. My symptoms have worsened a lot during
Hi all - Can anyone recommend a good neurologist & hematologist in London to consult with privately about my B12 treatment/symptoms? I’ve recently been found to be B12 deficient (150), high MMA, I’m 40 yrs old. I just finished getting injections over 2 weeks. My symptoms have worsened a lot during
PA_newbie
in
Pernicious Anaemia Society
2 years ago
Blood Iron results
Hello everyone. My long awaited appointment at the gp surgery finally arrived and I was seen by a somewhat inexperienced health care assistant who suggested I drink a glass of tonic water before bed to help with my RLS! When I tried to explain my research, this forum and the Mayo Clinic algorithm
Hello everyone. My long awaited appointment at the gp surgery finally arrived and I was seen by a somewhat inexperienced health care assistant who suggested I drink a glass of tonic water before bed to help with my RLS! When I tried to explain my research, this forum and the Mayo Clinic algorithm
rlsagain
in
Restless Legs Syndrome
2 years ago
advice please regarding my 14 year old granddaughter
Hi was looking for some advice. My daughter in law has posted the following on the B12 Facebook group. So a few months ago my daughter had what I thought was a sezure so taken her to my gp who did bloods and said her iron was really low so she had taken iron tablets for 3 months but still feels no
Hi was looking for some advice. My daughter in law has posted the following on the B12 Facebook group. So a few months ago my daughter had what I thought was a sezure so taken her to my gp who did bloods and said her iron was really low so she had taken iron tablets for 3 months but still feels no
Lincsangel1
in
Pernicious Anaemia Society
2 years ago
Starting (again)on 23rd August
Helllo MPN friends, I thought I would just give you an update after my SCT was postponed in June. My new admission date is 23rd August and of course I am nervous in case anything else goes wrong! I have felt well for the last few weeks and my blood counts have held up quite well although dropping
Helllo MPN friends, I thought I would just give you an update after my SCT was postponed in June. My new admission date is 23rd August and of course I am nervous in case anything else goes wrong! I have felt well for the last few weeks and my blood counts have held up quite well although dropping
Otterfield
in
MPN Voice
2 years ago
privet blood tests and privet specialist
can anyone help with the best places to get a privet blood test for intrinsic factor , MMA etc? I am in the uk . GP has sent for some but are taking ages to come back and it seems the levels can vary so much so like to investigate for myself… thanks in advanced. also can anyone message me privately
can anyone help with the best places to get a privet blood test for intrinsic factor , MMA etc? I am in the uk . GP has sent for some but are taking ages to come back and it seems the levels can vary so much so like to investigate for myself… thanks in advanced. also can anyone message me privately
Cookiedough2022
in
Pernicious Anaemia Society
2 years ago
Off Tocilizumab after six months
I don't know where to start. My history will show I have GCA and PMR all diagnosed in 2019 after several misdiagnoses, and started treatment with Pred 15mg and then up to 25mg which helped the PMR and the GCA somewhat. I was then put on 20mg of Mexthetrate which did not agree with me. I change my
I don't know where to start. My history will show I have GCA and PMR all diagnosed in 2019 after several misdiagnoses, and started treatment with Pred 15mg and then up to 25mg which helped the PMR and the GCA somewhat. I was then put on 20mg of Mexthetrate which did not agree with me. I change my
redhouts
in
PMRGCAuk
2 years ago
Iron blood test result - confusing
Hi all, Recent iron test (fasted, no supplements for iron in months): Iron: 36.1 (r5.8 - 34.5) Ferritin: 60.1 (r13 - 150) So my ferritin is a little low, but why then is the iron in my blood over the normal range? Should I be worried? I can't take supplements with such a high iron result? Do I need
Hi all, Recent iron test (fasted, no supplements for iron in months): Iron: 36.1 (r5.8 - 34.5) Ferritin: 60.1 (r13 - 150) So my ferritin is a little low, but why then is the iron in my blood over the normal range? Should I be worried? I can't take supplements with such a high iron result? Do I need
Suzanneharb
in
Thyroid UK
2 years ago
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