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Sickle-cell anaemia
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ATG treatment /Rabbit antigens
Hi as previously explained I am awaiting bone marrow transplant. Have been told I will need rabbit antigens or ATG ahead of the process. From what the consultant has said it can cause lots of side effects eg high temp amongst other things. Has anybody else had this treatment? Thanks Joanne
Hi as previously explained I am awaiting bone marrow transplant. Have been told I will need rabbit antigens or ATG ahead of the process. From what the consultant has said it can cause lots of side effects eg high temp amongst other things. Has anybody else had this treatment? Thanks Joanne
Platelets2022
in
Leukaemia Support
2 years ago
breathlessness and bp
hi, looking for advice please. Had PA and AIG for 5 years, I inject myself and last 3 weeks have been having episodes of breathlessness/palpitations, have seen Gp and listened to my chest didn’t think heart, but have done lots of tests, not back yet. My BP is always low but at GP was high for me.
hi, looking for advice please. Had PA and AIG for 5 years, I inject myself and last 3 weeks have been having episodes of breathlessness/palpitations, have seen Gp and listened to my chest didn’t think heart, but have done lots of tests, not back yet. My BP is always low but at GP was high for me.
Jb01
in
Pernicious Anaemia Society
2 years ago
Can Pernicious Anemia cause Parkinson type symptoms?
This is my first post. I have found the information here really helpful. I was told 6 weeks ago my blood test showed a very low b12 level of 109 and i was likely to have Pernicious anemia. Because of neuro issues they told me injections every other day and if needed to continue until I improve then every
This is my first post. I have found the information here really helpful. I was told 6 weeks ago my blood test showed a very low b12 level of 109 and i was likely to have Pernicious anemia. Because of neuro issues they told me injections every other day and if needed to continue until I improve then every
Marlboro123
in
Pernicious Anaemia Society
2 years ago
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blood test bingo!
I've just been to Bristol stem cell department in preparation for a possible Stem cell transplant. I had to have 14 phials of blood taken for tests. Is this a record at one sitting? !!
I've just been to Bristol stem cell department in preparation for a possible Stem cell transplant. I had to have 14 phials of blood taken for tests. Is this a record at one sitting? !!
Scaredy_cat
in
MPN Voice
2 years ago
Self-injecting B12 1000mcg/2ml ampoules
I've sourced a ready supply of Hydroxocobalamin 1000mcg (brand name Hevert), but instead of coming in (what is for me) the usual 1ml ampoules, they come in the same strength of 1000mcg, but in 2ml injectable ampoules. Do/can/should I inject these as normal into my upper arm, or is this not the form with
I've sourced a ready supply of Hydroxocobalamin 1000mcg (brand name Hevert), but instead of coming in (what is for me) the usual 1ml ampoules, they come in the same strength of 1000mcg, but in 2ml injectable ampoules. Do/can/should I inject these as normal into my upper arm, or is this not the form with
CyclingDog
in
Pernicious Anaemia Society
2 years ago
Levothyroxine and iron prescription
hi everyone, Just been told I’ve got low iron by the dr from my bloods and was looking online that you can’t take levo and iron together and they have to be taken on an empty stomach. Please can someone confirm is this is correct? Thank you for your help.
hi everyone, Just been told I’ve got low iron by the dr from my bloods and was looking online that you can’t take levo and iron together and they have to be taken on an empty stomach. Please can someone confirm is this is correct? Thank you for your help.
RomyJean
in
Thyroid UK
2 years ago
Lyrica/Pregabalin side effects
I am currently taking Lyrica/pregabalin with side effects of fatigue, clumsiness and eye twitching. Has anyone had these side effects subside with time? I've been taking it for about a month now. It seems to work fairly well but not sure I can handle the side effects. I'm only on 25mg.
I am currently taking Lyrica/pregabalin with side effects of fatigue, clumsiness and eye twitching. Has anyone had these side effects subside with time? I've been taking it for about a month now. It seems to work fairly well but not sure I can handle the side effects. I'm only on 25mg.
charlie1234567890
in
Restless Legs Syndrome
2 years ago
Blood test update
Following on from my first private blood test in May, I went private and started NDT in June. Moving forward to date, retested this week and the results are disappointing and I still do not feel myself. Results are posted below. Any advice, much appreciated. I have been gluten free, since June and
Following on from my first private blood test in May, I went private and started NDT in June. Moving forward to date, retested this week and the results are disappointing and I still do not feel myself. Results are posted below. Any advice, much appreciated. I have been gluten free, since June and
SusieR68
in
Thyroid UK
2 years ago
RAI and its effects on fertility
My daughter has finally received results of blood test by consultant 22 July. This result also contains information on fertility. She had RAI December last year to treat hyperthyroid. I hope I can copy and paste result here and not too long. Rx hypothyroid planning fertility Rx Sample 0022A379895
My daughter has finally received results of blood test by consultant 22 July. This result also contains information on fertility. She had RAI December last year to treat hyperthyroid. I hope I can copy and paste result here and not too long. Rx hypothyroid planning fertility Rx Sample 0022A379895
Piombino
in
Thyroid UK
2 years ago
Vitamin B12 deficiency update
After waiting over 3 weeks for my Intrinsic Factor blood test - it’s normal Intrinsic Factor ABS 2.30 - so I am to take CyanocoMinn 50mg - 2 each day for 8 weeks and then more tests including celiac test. I am feeling incredibly tired and wiped out at the moment, which I just put down to PMR so hope
After waiting over 3 weeks for my Intrinsic Factor blood test - it’s normal Intrinsic Factor ABS 2.30 - so I am to take CyanocoMinn 50mg - 2 each day for 8 weeks and then more tests including celiac test. I am feeling incredibly tired and wiped out at the moment, which I just put down to PMR so hope
jules1955
in
PMRGCAuk
2 years ago
Here we go again!
GCA/PMR for over 5 years. Pred down to 6mg . Been taken off Tocilizumab but can’t tolerate other steroid sparers. Had appointment with Rheumie and blood test. CRP high so PET scan arranged. She has put me back up to 40mg as inflammation showing in all usual places. It feels like back to square 1. Has
GCA/PMR for over 5 years. Pred down to 6mg . Been taken off Tocilizumab but can’t tolerate other steroid sparers. Had appointment with Rheumie and blood test. CRP high so PET scan arranged. She has put me back up to 40mg as inflammation showing in all usual places. It feels like back to square 1. Has
broomfield28
in
PMRGCAuk
2 years ago
Iron testing - results O.K.?
Just had my iron retested, having done it incorrectly the first time. This time, I stopped taking iron 48 hrs. before and fasted after midnight. I think the results look as though iron's not my problem. Can some more knowledgeable member let me know if that appears to be correct? Thanks! Results
Just had my iron retested, having done it incorrectly the first time. This time, I stopped taking iron 48 hrs. before and fasted after midnight. I think the results look as though iron's not my problem. Can some more knowledgeable member let me know if that appears to be correct? Thanks! Results
RestlessC
in
Restless Legs Syndrome
2 years ago
Update on Daughter's Ferritin levels
Hi just an update from the other day,I had posted about my daughter havi low ferritin of 11. She has just let me know her ferritin is now 52😲can't quite believe it. She's going to get D checked and ask which blood tests she's had.She was only taking the Iron Protein Plus (life extension) so these
Hi just an update from the other day,I had posted about my daughter havi low ferritin of 11. She has just let me know her ferritin is now 52😲can't quite believe it. She's going to get D checked and ask which blood tests she's had.She was only taking the Iron Protein Plus (life extension) so these
caroash
in
Thyroid UK
2 years ago
Thyroid Hormone Use in Mood Disorders: Revisiting the Evidence
Discussion about using thyroid hormones in psychology and psychiatry is all too rare. For that reason, even short papers like this have their own value. It is not that there haven't been papers - but there aren't that many and, by the time we see them, they can appear as if they are historical documents
Discussion about using thyroid hormones in psychology and psychiatry is all too rare. For that reason, even short papers like this have their own value. It is not that there haven't been papers - but there aren't that many and, by the time we see them, they can appear as if they are historical documents
helvella
Thyroid UK
in
Thyroid UK
2 years ago
folate
Hi I’ve been on b12 injections for years now and I have them every 8 weeks, but the past couple of years the Drs have found I’ve had about 3 folate deficiencies, I take 3 months of folic acid and then told that’s all I need and then few months later might have an unrelated blood test and find I’m deficient
Hi I’ve been on b12 injections for years now and I have them every 8 weeks, but the past couple of years the Drs have found I’ve had about 3 folate deficiencies, I take 3 months of folic acid and then told that’s all I need and then few months later might have an unrelated blood test and find I’m deficient
Leigh33
in
Pernicious Anaemia Society
2 years ago
Pernicious Anemia - Self Injecting
I have ordered VB12 from Germany which has just arrived. I’m not sure what size needles to order and wondered if someone could advise me please? I’m 70kgs and plan to SI in my thighs. What size needle should I use?
I have ordered VB12 from Germany which has just arrived. I’m not sure what size needles to order and wondered if someone could advise me please? I’m 70kgs and plan to SI in my thighs. What size needle should I use?
Chelsea01
in
Pernicious Anaemia Society
2 years ago
Interactions between vitamin b12 and vitamin b6 tablets.
Hello everyone, I am currently on cyanocobalamin injections, can I also take vitamin b6 tablets? Response from experienced persons please.
Hello everyone, I am currently on cyanocobalamin injections, can I also take vitamin b6 tablets? Response from experienced persons please.
Agala
in
Pernicious Anaemia Society
2 years ago
Anemia
Hi all Has anyone had an iron infusion while suffering from Pmr and taking steroids 🌺
Hi all Has anyone had an iron infusion while suffering from Pmr and taking steroids 🌺
Nanny71
in
PMRGCAuk
2 years ago
Some help with interpreting iron panel please.
My mum is supplementing with iron. Crp hs 0.48 (0-5) Iron 29,9 (5.8-34.5) Tibc 62.7 (45-81) Uibc 30.9 (24.2-70.1) Transferrin 47.5 (20-50) Ferritin 298.6 (13-150) It looks as though she should’ve stopped a while back. Any insight with what these numbers are now saying and mean would be helpful
My mum is supplementing with iron. Crp hs 0.48 (0-5) Iron 29,9 (5.8-34.5) Tibc 62.7 (45-81) Uibc 30.9 (24.2-70.1) Transferrin 47.5 (20-50) Ferritin 298.6 (13-150) It looks as though she should’ve stopped a while back. Any insight with what these numbers are now saying and mean would be helpful
musicaljune
in
Thyroid UK
2 years ago
Adrenals or Not Adrenals
Well, further to my post last week, I've had the results of both my faecal occult blood test (for new re-occurring digestive issues) and BNP blood test (for indications of heart failure) and all have come back normal with no further action required. The extreme fatigue has improved significantly
Well, further to my post last week, I've had the results of both my faecal occult blood test (for new re-occurring digestive issues) and BNP blood test (for indications of heart failure) and all have come back normal with no further action required. The extreme fatigue has improved significantly
Kendrew
in
PMRGCAuk
2 years ago
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