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Endometriosis since I was 21
Hi guys, I’ve been diagnosed with endometriosis cysts in my left ovaries, one has grown and 2 are still small, now I have two on my right ovaries, I’m going for my prostap injection but I’m scared it’ll mess my insides up more as I’ve been on codeine nearly everyday, been to a&e so many times that I’
Hi guys, I’ve been diagnosed with endometriosis cysts in my left ovaries, one has grown and 2 are still small, now I have two on my right ovaries, I’m going for my prostap injection but I’m scared it’ll mess my insides up more as I’ve been on codeine nearly everyday, been to a&e so many times that I’
Ru1989
in
Endometriosis UK
1 year ago
5years in of a forecast 5 to 10 years expected survival - age 78 now.
DX 2017 metastatic PC T3 a/b on MR metastatic on bone scan [ 1 spine 1 pelvis ] psa 11.2 Gleason 9. Started Abi + pred and Prostap (lute)after 2 years stopped Abi due to heart problems tried Enza caused me to go zombie ( could have been stopping Prednisolone to quickly!) psa was 0.109 testosterone
DX 2017 metastatic PC T3 a/b on MR metastatic on bone scan [ 1 spine 1 pelvis ] psa 11.2 Gleason 9. Started Abi + pred and Prostap (lute)after 2 years stopped Abi due to heart problems tried Enza caused me to go zombie ( could have been stopping Prednisolone to quickly!) psa was 0.109 testosterone
Dondodoc
in
Advanced Prostate Cancer
1 year ago
Is Xtandi necessary or even helping me?
This may be a stupid question but it's been on my mind for a while. I started on Prostap (Lupron) last July and my testosterone dropped to less than 1.0 by October while on just that. My PSA was also below 1.0 by then. My MO started me on Xtandi towards the end of October and my T and PSA appear to
This may be a stupid question but it's been on my mind for a while. I started on Prostap (Lupron) last July and my testosterone dropped to less than 1.0 by October while on just that. My PSA was also below 1.0 by then. My MO started me on Xtandi towards the end of October and my T and PSA appear to
Benkaymel
in
Advanced Prostate Cancer
1 year ago
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Is Xtandi necessary or even helping me?
This may be a stupid question but it's been on my mind for a while. I started on Prostap (Lupron) last July and my testosterone dropped to less than 1.0 by October while on just that. My PSA was also below 1.0 by then. My MO started me on Xtandi towards the end of October and my T and PSA appear to
This may be a stupid question but it's been on my mind for a while. I started on Prostap (Lupron) last July and my testosterone dropped to less than 1.0 by October while on just that. My PSA was also below 1.0 by then. My MO started me on Xtandi towards the end of October and my T and PSA appear to
Benkaymel
in
Fight Prostate Cancer
1 year ago
Endo interfering with nerves?
HiExtensive endo was found during my lap in June 2021 - ovaries, bowel, diaphragm etc. I had my right ovary and tube removed. Four increasingly painful periods later, I reluctantly took my gynae' s advice and went on prostap for a year. It was great in that it stopped my periods, but I felt that the
HiExtensive endo was found during my lap in June 2021 - ovaries, bowel, diaphragm etc. I had my right ovary and tube removed. Four increasingly painful periods later, I reluctantly took my gynae' s advice and went on prostap for a year. It was great in that it stopped my periods, but I felt that the
Sloany
in
Endometriosis UK
1 year ago
endo and tummy tuck?
hi ladies, Has anyone had a tummy tuck With endo? I have endo in my c-section scar. I’ve had a laparoscopy and I don’t have endo anywhere else. I’m having a tummy tuck later this year which will remove my c-section scar and the surrounding tissue. I’m just a bit worried that it will spore further
hi ladies, Has anyone had a tummy tuck With endo? I have endo in my c-section scar. I’ve had a laparoscopy and I don’t have endo anywhere else. I’m having a tummy tuck later this year which will remove my c-section scar and the surrounding tissue. I’m just a bit worried that it will spore further
ZeeV34
in
Endometriosis UK
1 year ago
Endo with no bleeding?
I’m on the waiting list for diagnostic lap and just looking for some advice. My pain is always on the right side, behind my c-section scar. My daughter is coming up for 9. I have had the pain since then but had Mirena coil in between so it masked the symptoms. I’m worried that it can’t be Endo as I
I’m on the waiting list for diagnostic lap and just looking for some advice. My pain is always on the right side, behind my c-section scar. My daughter is coming up for 9. I have had the pain since then but had Mirena coil in between so it masked the symptoms. I’m worried that it can’t be Endo as I
Sunshine1310
in
Endometriosis UK
1 year ago
No endometriosis despite flank pain over a year after c section
Hi guys I'm so frustrated 1st lap yesterday bsge accredited surgeon and not one trace of endometriosis. I feel confused lost and still have pain in my right kidney which is only ever cyclical . Severe pain at ovulation and bleed. Something not right urine urgent and then slow I sit hours on the loo
Hi guys I'm so frustrated 1st lap yesterday bsge accredited surgeon and not one trace of endometriosis. I feel confused lost and still have pain in my right kidney which is only ever cyclical . Severe pain at ovulation and bleed. Something not right urine urgent and then slow I sit hours on the loo
Gem657
in
Endometriosis UK
1 year ago
Prostap injections side effects
hi. I had my first prostap injection 10 days ago. I’ve been in agony. Even worse than my normal endo pain and now severely heavy bleeding. Is this normal?? Feel so unwell
hi. I had my first prostap injection 10 days ago. I’ve been in agony. Even worse than my normal endo pain and now severely heavy bleeding. Is this normal?? Feel so unwell
thearoma4
in
Endometriosis UK
1 year ago
coil advise
hey me again, i had my endo review and honestly it didn’t go how i thought. so they have said to go in the coil or have surgery, which i was told i was too ‘fat’ for the surgery before seeing this doctor i’m really worried about the coil just because i’m not sure it will 100% stop my pain like
hey me again, i had my endo review and honestly it didn’t go how i thought. so they have said to go in the coil or have surgery, which i was told i was too ‘fat’ for the surgery before seeing this doctor i’m really worried about the coil just because i’m not sure it will 100% stop my pain like
ashleytt
in
Endometriosis UK
1 year ago
Should I go on Prostap/Zoladex?!
Hi, A very complex question, I know, but one that’s been eating me up since I had my surgery 3 months ago. I had a large endometrioma which sadly (likely due to how long I was waiting) had leaked so I have more areas on endo around my insides now. The surgeon said this was quiet bad and wants to put
Hi, A very complex question, I know, but one that’s been eating me up since I had my surgery 3 months ago. I had a large endometrioma which sadly (likely due to how long I was waiting) had leaked so I have more areas on endo around my insides now. The surgeon said this was quiet bad and wants to put
Louisehart1995
in
Endometriosis UK
1 year ago
C-Section Fears!!
hello! So it’s been confirmed today that I will be having a c section as my placenta is covering my cervix. I knew it was a possibility but now I know that it’s the reality I’m really worried! I’m more worried for my baby than the actual procedure as I’ll be 37+4 when he’s born. Does anyone have any
hello! So it’s been confirmed today that I will be having a c section as my placenta is covering my cervix. I knew it was a possibility but now I know that it’s the reality I’m really worried! I’m more worried for my baby than the actual procedure as I’ll be 37+4 when he’s born. Does anyone have any
ZiggyandBC
in
Fertility Network UK - Pregnancy Support
1 year ago
How soon after stopping Zoladex, prostap etc did you get your period ? And how soon after stopping did you stop using HRT?
Hi, How soon after coming off injection can I expect to get a period? Also wondering at what point did you stop HRT ?
Hi, How soon after coming off injection can I expect to get a period? Also wondering at what point did you stop HRT ?
Amber83
in
Endometriosis UK
2 years ago
Keyhole surgery
Hi Guys, I haven’t had my periods it has been nearly a year due to taking prostap injection. However, my surgery was done in oct and my injections were stop. I want to try for a child but I can’t get pregnant due to not ovulating since I haven’t got my periods. Anyone else had the same experience.
Hi Guys, I haven’t had my periods it has been nearly a year due to taking prostap injection. However, my surgery was done in oct and my injections were stop. I want to try for a child but I can’t get pregnant due to not ovulating since I haven’t got my periods. Anyone else had the same experience.
FMohammed
in
Endometriosis UK
2 years ago
On Prostap but worried about starting Tibolone
Hi all - this looks like a really helpful group xx I have been given prostap 3 monthly injection as now on list for a full hysterectomy due to fibroids . Consultant also prescribed Tibolone but when I read the data sheet it terrified me and I haven’t took any yet. I’m feeling more depressed than ever
Hi all - this looks like a really helpful group xx I have been given prostap 3 monthly injection as now on list for a full hysterectomy due to fibroids . Consultant also prescribed Tibolone but when I read the data sheet it terrified me and I haven’t took any yet. I’m feeling more depressed than ever
Batwoman3
in
Endometriosis UK
2 years ago
Prostap - FET
Hi all Today I had my prostap injection in preparation for my FET. However I’ve been having slight cramps which I thought is probably due to my period being 5 days away (this will probably be delayed due to Prostap) but now I’m worrying because we had intercourse on 22nd Dec which would have been just
Hi all Today I had my prostap injection in preparation for my FET. However I’ve been having slight cramps which I thought is probably due to my period being 5 days away (this will probably be delayed due to Prostap) but now I’m worrying because we had intercourse on 22nd Dec which would have been just
TurquoiseWater
in
Fertility Network UK
2 years ago
Bruising after laparoscopy
Hi, I’m 3 days post op, obviously some bruising after laparoscopy would be normal, but I seem to have excessive bruising in the centre of my stomach, also still very bloated. I had a laparoscopy 12 years ago and 2 c-sections since then and not had bruising like this. Just wondered if others have
Hi, I’m 3 days post op, obviously some bruising after laparoscopy would be normal, but I seem to have excessive bruising in the centre of my stomach, also still very bloated. I had a laparoscopy 12 years ago and 2 c-sections since then and not had bruising like this. Just wondered if others have
CeCeT
in
Endometriosis UK
1 year ago
Advice on Prostap injection
Hi, Quick question: I'm on a mock cycle with a clinic in Spain and need to have a prostap injection on the 30th Dec by a professional. Has anyone done this before? Anyone know where you can get this done in London? Thanks X
Hi, Quick question: I'm on a mock cycle with a clinic in Spain and need to have a prostap injection on the 30th Dec by a professional. Has anyone done this before? Anyone know where you can get this done in London? Thanks X
Hopecontinues
in
Fertility Network UK
2 years ago
Rectal fluttering
I’m at my wits end today…started on prostap, this is my second month on it. My “period” has arrived with massively increased pain (way more than usual) and the blood is more black tissue that’s being expelled which, I hate to say it, really smells horrid. Is this normal?! Also today I’ve noticed when
I’m at my wits end today…started on prostap, this is my second month on it. My “period” has arrived with massively increased pain (way more than usual) and the blood is more black tissue that’s being expelled which, I hate to say it, really smells horrid. Is this normal?! Also today I’ve noticed when
Medicalmenopause
in
Endometriosis UK
2 years ago
Mattresses for Newborn
Hello! I’m due to have my first baby late March but may need a c section a few weeks earlier so trying to get things sorted. My brother and his wife have given us their travel cot and bedside crib as their baby has just turned 6 months so doesn’t need them. I know we can’t use the mattresses and
Hello! I’m due to have my first baby late March but may need a c section a few weeks earlier so trying to get things sorted. My brother and his wife have given us their travel cot and bedside crib as their baby has just turned 6 months so doesn’t need them. I know we can’t use the mattresses and
ZiggyandBC
in
Pregnancy and Parenting Support
1 year ago
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