Experiences with

Scoliosis

is there a group for people with adult scoliosis and chronic pain

Does anyone else have scoliosis and MPN jak2. I'm in so much shoulder pain and neck pain. Have tried a lot of pain killers, not very helpful. Wondered what other people took.

I am 63 and was told I have a mild thoracic scoliosis. I have had multiple imaging done the last 3 years due to cervical and lumbar pain and out of the blue my last xray noted the scoliosis. Not much can be done about it but was wondering if this indicative of my poor bone density?

Hi, I am an adult with scoliosis of the spine. My curvature is severe, but I am well otherwise. I have not opted for surgery. I could not see scoliosis listed as one of the conditions in the 'Neuro Support' information. Is this forum for people with scoliosis? Would appreciate any feedback.

I know this is my rotational scoliosis because of the painful lump that protrudes from the right side of my lower back and x-rays done by a chiropractor. My GP will not refer me to a Scoliosis Specialist, saying that the Pain Clinic have ‘sorted this out’.

So I was diagnosed in 2000.I have scoliosis, I had an industrial in 1985 and as a result have on going pain. I have severe and anxiety and have had since childhood due to my mother's mental health. I worked up to 3 years ago. I'm nearly 59. But I now know I can't go back to work.

But lots of symptoms are from my fibromyalgia and scoliosis. But the rheumatoid arthritis makes me feel better as was thinking all sorts of things. My left leg from my toes up to my hips keeps me awake at night. Still do 3/4 hour walks every day. So not to bad.

Eg - RA with secondary Sjögrens, Fibromyalgia, FND, severely degenerative disc disease with kyphosis/ rotational scoliosis, ME/CFS. I’ve just been referred again (7th time) by an Rheumatologist (my old one just left) and now I don’t think I’m physically able to do it again.

I read lots of papers around a high percent of patients developing scoliosis ? Do we have anyone in the community who had this surgery when they were 11 months old or know someone who had it done ? Thanks S

I'm not sure if the hospital knows I have scoliosis or not. As I was on alendrolic acid and my dentist didn't know. Until he saw my gum had disappeared. No one seems to know about the other. My bones are so cold and painful I just don't seem to know what to do.

Due to chronic pain, herniated disks, scoliosis and other health conditions need help cleaning house.

And he knows about my scoliosis and fibromyalgia. So pain is something I live with anyway. At least he listened. That helps a lot.

I finally went through the Scoliosis Surgery that I had scheduled and canceled a couple of times. I had been on Buprenorphine for over a year and was RLS free. The minute I woke up from my surgery, that ugly monster showed up again. This time I could not even move, much less walk.

presently on daily 12mg preds for PMR; osteoporosis; severe lumbar scoliosis and bone on bone diagnosis that cannot be treated with facet joint injections. Has anyone with similar on this forum had spine surgery to fuse spinal bones and dealt with PMR and preds OK?

She has scoliosis like me and is walking doubled over in pain. What else is there but her to get them. Chemist doesn't deliver anymore unless you pay £12. A month. No one can afford that a year. Things are going in the wrong direction.

In addition to PD, I have osteoporosis , and scoliosis . I have been taking C/L only on Sunday mornings so I can sit still in SS and church. I was diagnosed in 2016 and due to potential SE, have not taken C/L daily As. I progress, it’s getting harder, but I am determined to avoid it if possible.

I am 62 female with severe osteoporosis scoliosis and kyphosis suffered T12 spinal fracture. After being on Alendronic Acid weekly tablet for 2 years I am now being prescribed Teriparatide.

like so many on here I have far too many health issues ie, Fibro, colitis, a heart attack last year, scoliosis and cervical spinal stenosis, enough to cope with for sure but I also have severe RLS!

Although the meds seem to be keeping most of the PMR at bay it is complicated in that I have spinal stenosis.Cervical and lumbar as well as degenerative scoliosis ,so I already have weakness and numbness in my legs/feet However,prior to PMR I was still quite active, but the longer the PMR goes on the

I was born w/scoliosis-curvature off to the right. This is what I’ve Waiting for 🎉🎉🎉