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Cutting out pop and takeaways sounds sensible. I cut out dairy products and most carbohydrates but I am cautious about recommending that as eating too much protein and not enough calcium to remove the amino acids may have caused the kidney stones which I have developed. I should think most of those who
Cutting out pop and takeaways sounds sensible. I cut out dairy products and most carbohydrates but I am cautious about recommending that as eating too much protein and not enough calcium to remove the amino acids may have caused the kidney stones which I have developed. I should think most of those who
DoctorRascal
2023 December
in
Weight Loss Support
6 months ago
After 25 days back on prednisone...
Thank you to all who advised on my previous post. I have almost completed the first month back on 20mg day of prednisone. The effect was immediate, pain gone, stiffness gone, fatigue better, am motivated and catching up with chores I had neglected for months. I feel more positive now, even started
Thank you to all who advised on my previous post. I have almost completed the first month back on 20mg day of prednisone. The effect was immediate, pain gone, stiffness gone, fatigue better, am motivated and catching up with chores I had neglected for months. I feel more positive now, even started
Biba5
in
PMRGCAuk
4 months ago
Tooth extraction
Hello first time posting on here, I've recently had my first zoledronic acid infusion for osteoporosis 4 weeks ago and now I need 2 teeth out and have been told I have to wait 3 months because of the infusion, I'm in pain all the time and also taking antibiotics for the 2nd time as keep getting infections
Hello first time posting on here, I've recently had my first zoledronic acid infusion for osteoporosis 4 weeks ago and now I need 2 teeth out and have been told I have to wait 3 months because of the infusion, I'm in pain all the time and also taking antibiotics for the 2nd time as keep getting infections
Slotmachine33
in
Bone Health and Osteoporosis UK
10 months ago
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Dental work and AA
I am having a tooth implant done this week, on Wednesday. The surgeon knows I take Alendronic Acid and has advised to not take it on the morning of the procedure. He also said it was okay to take (should take?) a 3 month holiday from Alendronic Acid. Have you heard of that? The procedure involves drilling
I am having a tooth implant done this week, on Wednesday. The surgeon knows I take Alendronic Acid and has advised to not take it on the morning of the procedure. He also said it was okay to take (should take?) a 3 month holiday from Alendronic Acid. Have you heard of that? The procedure involves drilling
LMali
in
PMRGCAuk
10 months ago
Boron
Hi AllHas anyone heard of taking boron supplements instead of alendronic acid? (I have some osteopenia and am on prednisolone for PMR.) Many thanks
Hi AllHas anyone heard of taking boron supplements instead of alendronic acid? (I have some osteopenia and am on prednisolone for PMR.) Many thanks
CaraDee
in
PMRGCAuk
10 months ago
Magnesium and the heart
I stopped taking my magnesium supplement (not prescribed) about a month ago in the hope that my persistent morning diarrhoea would clear up. It hasn't. But I have noticed, on my Fitbit records, that my sleep quality has gone right down, my resting heart rate has increased from 60 to 72, and my heart
I stopped taking my magnesium supplement (not prescribed) about a month ago in the hope that my persistent morning diarrhoea would clear up. It hasn't. But I have noticed, on my Fitbit records, that my sleep quality has gone right down, my resting heart rate has increased from 60 to 72, and my heart
Broseley
in
PMRGCAuk
10 months ago
Severe bleeding and high blood pressure on Tibolone
Hi everyone. I was wondering if anyone has had similar symptoms to what I’m having. I was started on Tibolone 5 weeks ago as an add back to Prostap SR while waiting for surgery 2 weeks ago I started bleeding heavily with massive clots. I called the consultant immediately but he was off. I spoke to
Hi everyone. I was wondering if anyone has had similar symptoms to what I’m having. I was started on Tibolone 5 weeks ago as an add back to Prostap SR while waiting for surgery 2 weeks ago I started bleeding heavily with massive clots. I called the consultant immediately but he was off. I spoke to
MaiDu
in
Endometriosis UK
10 months ago
PMR/Prednisolone/Alendronic Acid
Thank you all for your posts and will now try to reduce even more slowly. !5 mg of Prednisolone was not enough, so have now increased to 17.5mg and are again keeping fingers crossed. Would welcome views on long term (nearly 5 years) usage of Alendronic acid (I am male 79 years old) as I think that in
Thank you all for your posts and will now try to reduce even more slowly. !5 mg of Prednisolone was not enough, so have now increased to 17.5mg and are again keeping fingers crossed. Would welcome views on long term (nearly 5 years) usage of Alendronic acid (I am male 79 years old) as I think that in
Blacksley
in
PMRGCAuk
10 months ago
Muscle wasting?
Is this a PD sign? It happens anyway with age so how do you know what the root problem is? A few days ago I finished a treadmill workout in our shed and as I was walking away my legs gave out. Suddenly I was on the ground. Ultimately I was able to get up and shuffle into the house. I posted
Is this a PD sign? It happens anyway with age so how do you know what the root problem is? A few days ago I finished a treadmill workout in our shed and as I was walking away my legs gave out. Suddenly I was on the ground. Ultimately I was able to get up and shuffle into the house. I posted
kaypeeoh
in
Cure Parkinson's
6 months ago
Osteoporosis treatment
I have recently been diagnosed with PBC and am taking 1000mg ursodeoxycholic acid daily. I just had a routine bone density done and it resulted that I have osteopenia in my hips and osteoporosis in my spine. Doctor prescribed 2 Osteocare daily plus Bisphosphonate Acid once I have a bill of good dental
I have recently been diagnosed with PBC and am taking 1000mg ursodeoxycholic acid daily. I just had a routine bone density done and it resulted that I have osteopenia in my hips and osteoporosis in my spine. Doctor prescribed 2 Osteocare daily plus Bisphosphonate Acid once I have a bill of good dental
Dora57
in
PBC Foundation
10 months ago
Restless Legs Syndrome
I have RLS and take codeine 15mg at night. My ferritin level got too high last year so no longer on iron supplements. Wondering how successful ALA is and if it is what dose and what time to take it. Thanks in advance
I have RLS and take codeine 15mg at night. My ferritin level got too high last year so no longer on iron supplements. Wondering how successful ALA is and if it is what dose and what time to take it. Thanks in advance
Longwaytoofar
in
Restless Legs Syndrome
10 months ago
Weight gain and osteoporosis
I am in great discomfort because I have developed severe osteoporosis in the spine. I have compression fractures in three areas of the thoracic spine (T10, T11 and T12) and one area of the lumbar spine ( L1). I was diagnosed with GCA in September 2022 and have been on high doses of steroids until very
I am in great discomfort because I have developed severe osteoporosis in the spine. I have compression fractures in three areas of the thoracic spine (T10, T11 and T12) and one area of the lumbar spine ( L1). I was diagnosed with GCA in September 2022 and have been on high doses of steroids until very
Raga72
in
PMRGCAuk
10 months ago
I figured out how to tolerate antibiotics (trimethoprim in this case) without huge neuropathic pain flare!! (for real this time!)
I've been posting about this on and off all year trying to get some answers. Anyway, I'll keep it short. I've been unable to tolerate Trimethoprim or Doxycycline without the both causing unbearable neuropathic pain (burning, stinging, tingling, etc). I tried multiple times and failed to continue after
I've been posting about this on and off all year trying to get some answers. Anyway, I'll keep it short. I've been unable to tolerate Trimethoprim or Doxycycline without the both causing unbearable neuropathic pain (burning, stinging, tingling, etc). I tried multiple times and failed to continue after
Whoa182
in
Pernicious Anaemia Society
10 months ago
Awful day
So yesterday was the worst day I’ve had in a long time. I’ve been bleeding almost constantly since February. I’ve been on zoladex and now Prostap for 18 months. No improvement, in fact seems worse on Prostap. I get the letter no one wants, your smear test is due. Oh great can’t do that in my state. But
So yesterday was the worst day I’ve had in a long time. I’ve been bleeding almost constantly since February. I’ve been on zoladex and now Prostap for 18 months. No improvement, in fact seems worse on Prostap. I get the letter no one wants, your smear test is due. Oh great can’t do that in my state. But
MrsPaddingtonBear
in
Endometriosis UK
10 months ago
Xtandi (enzalutimide) SEs Part 2
Since I've increased my Xtandi from 80 mg to 160 mg, I am now experiencing a bad case of the jimmy legs (restless legs) at night. I take my Xtandi around 8 pm. I still work full time and I've read that taking it at night helps avoid the fatigue during the day. So far that seems to be the case with
Since I've increased my Xtandi from 80 mg to 160 mg, I am now experiencing a bad case of the jimmy legs (restless legs) at night. I take my Xtandi around 8 pm. I still work full time and I've read that taking it at night helps avoid the fatigue during the day. So far that seems to be the case with
MoonRocket
in
Advanced Prostate Cancer
5 months ago
Risedronate Update
Having had a long break after stopping Alendronic Acid, I started Risedronate on 2nd June 23. For the first few weeks I was fine. No noticeable side effects. (After the terrible time with AA you can appreciate I was overjoyed.) However about 3 weeks ago the same symptoms started creeping back.
Having had a long break after stopping Alendronic Acid, I started Risedronate on 2nd June 23. For the first few weeks I was fine. No noticeable side effects. (After the terrible time with AA you can appreciate I was overjoyed.) However about 3 weeks ago the same symptoms started creeping back.
Calamintha
in
Bone Health and Osteoporosis UK
10 months ago
Obeticholic Acid..weight gain
Has anyone noticed weight gain or not being able to lose weight since taking Ocaliva (Obeticholic Acid) please?
Has anyone noticed weight gain or not being able to lose weight since taking Ocaliva (Obeticholic Acid) please?
Oludeniz2017
in
British Liver Trust
10 months ago
Taking hours to fall asleep
Gabapentin has controlled my RLS for last year or so. I only take 600 mg at bedtime for last 3/4 months now. I have recently started having difficulty falling asleep (no RLS, just wide awake for 3/4 hours). I thought about asking for a sleep aid from GP but didn't want to take anything that would aggrevate
Gabapentin has controlled my RLS for last year or so. I only take 600 mg at bedtime for last 3/4 months now. I have recently started having difficulty falling asleep (no RLS, just wide awake for 3/4 hours). I thought about asking for a sleep aid from GP but didn't want to take anything that would aggrevate
Opie__
in
Restless Legs Syndrome
5 months ago
Night sweats etc.
I am tapering down from 30mg pred since April 2022 and I am now down to 3mg (4mg alternate days). I am finding I am having a lot of night sweats. Has anyone found else had this problem and if so how long it lasts for? I have to add that I have recently been diagnosed with osteoporosis, and didn't know
I am tapering down from 30mg pred since April 2022 and I am now down to 3mg (4mg alternate days). I am finding I am having a lot of night sweats. Has anyone found else had this problem and if so how long it lasts for? I have to add that I have recently been diagnosed with osteoporosis, and didn't know
Washingup
in
PMRGCAuk
10 months ago
Dietary Approaches to Improve Efficacy and Control Side Effects of Levodopa Therapy in Parkinson's Disease: A Systematic Review
I was researching supplement BCAA provided by my husband's functional medicine MD. I was surprised to find one of the ingredients was listed as a major contraindication with levodopa. L-Phenylalanine. Dug a little deeper and it related to protein and impact on levodopa. Found an interesting article
I was researching supplement BCAA provided by my husband's functional medicine MD. I was surprised to find one of the ingredients was listed as a major contraindication with levodopa. L-Phenylalanine. Dug a little deeper and it related to protein and impact on levodopa. Found an interesting article
Sydney75
in
Cure Parkinson's
7 months ago
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