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Further update on flare or muscle pain
Having made several visits to GP about back pain, I ended up being admitted to A and E 3 weeks ago because my blood pressure was 200plus/100plus, spent 24 hours sat in a wheelchair.This was after a 4 hour wait for ambulance in the early hours. Eventually moved to Acute Medical, the consultant there doubled
Having made several visits to GP about back pain, I ended up being admitted to A and E 3 weeks ago because my blood pressure was 200plus/100plus, spent 24 hours sat in a wheelchair.This was after a 4 hour wait for ambulance in the early hours. Eventually moved to Acute Medical, the consultant there doubled
sewinggranny
in
PMRGCAuk
1 year ago
Oxycodone, RLS
Morning everyone, another sleepless night. Where do we go from here? Now taking Oxycodone - 5mg in morning, 10mg at 9pm and another 5mg about 3am as well as 1400mg Gabapentin spread over evening. Nothing working. Cannot get Buprenorphine in our area because it is on red list. Really feel like we have
Morning everyone, another sleepless night. Where do we go from here? Now taking Oxycodone - 5mg in morning, 10mg at 9pm and another 5mg about 3am as well as 1400mg Gabapentin spread over evening. Nothing working. Cannot get Buprenorphine in our area because it is on red list. Really feel like we have
Ephemera
in
Restless Legs Syndrome
1 year ago
Covid
I am lying in hospital having been here for one month and having just had Covid. I had had PMR for 3 years and back up to 15 mg when back stopped working, had deep sciatica like pains in back and legs and could not rise from pillow nor walk to bathroom. Daughter dialled 111. My O2 of 85 got a 999 ambulance
I am lying in hospital having been here for one month and having just had Covid. I had had PMR for 3 years and back up to 15 mg when back stopped working, had deep sciatica like pains in back and legs and could not rise from pillow nor walk to bathroom. Daughter dialled 111. My O2 of 85 got a 999 ambulance
Abbeynan82
in
PMRGCAuk
1 year ago
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Bone Pain!
I'm experiencing some bone pain, again, on the upper wing of one of my hips. I'm waiting to get radiation--simulation early next week! In the mean time, I'm looking for a way to put the fire out enough for it to be less distracting. I'm on 4g of Acetaminophen daily and weaning off Oxycodone (down to
I'm experiencing some bone pain, again, on the upper wing of one of my hips. I'm waiting to get radiation--simulation early next week! In the mean time, I'm looking for a way to put the fire out enough for it to be less distracting. I'm on 4g of Acetaminophen daily and weaning off Oxycodone (down to
StePeteMN
in
Advanced Prostate Cancer
1 year ago
Hi Guys new here.
Hi guys I have had RSL for about 10 years and have been taking 0.25mg sifrol at night. I now have the same feeling in my left arm and it is getting worse, I have a lot of other medical issues as well and I am taking Mizart 40 mg for blood pressure , I was taking Amitriptyline 10 mgs as well for the nerve
Hi guys I have had RSL for about 10 years and have been taking 0.25mg sifrol at night. I now have the same feeling in my left arm and it is getting worse, I have a lot of other medical issues as well and I am taking Mizart 40 mg for blood pressure , I was taking Amitriptyline 10 mgs as well for the nerve
Dee5164
in
Restless Legs Syndrome
1 year ago
Oxycodone
Any ideas please. Started 10mg Oxycodone last Thursday, had 4 lovely nights sleep (8hrs each night) Now 3 nights, no sleep, RLS back with a vengence. HELP!! Still taking Gabapentin as well. Will it ever get better???
Any ideas please. Started 10mg Oxycodone last Thursday, had 4 lovely nights sleep (8hrs each night) Now 3 nights, no sleep, RLS back with a vengence. HELP!! Still taking Gabapentin as well. Will it ever get better???
Ephemera
in
Restless Legs Syndrome
1 year ago
Pain Management after spine surgeries
Had lumbar and cervical fusions in the last few years due to arthritis, rheum and osteo. The surgeries were to correct for pinched nerves which caused severe muscle weakness. Weakness has mostly been resolved, but pain is still an issue. I was on and off oxycodone, but now using Butrans lowest
Had lumbar and cervical fusions in the last few years due to arthritis, rheum and osteo. The surgeries were to correct for pinched nerves which caused severe muscle weakness. Weakness has mostly been resolved, but pain is still an issue. I was on and off oxycodone, but now using Butrans lowest
mifel
in
Pain Concern
1 year ago
Oxycodone
Hello Sue, Joolsg & all you lovely people,Today I rang my GP to ask if he would up my oxycodone from 5mg to 10mg. I was all ready with the information you had all sent me from your own experiences as ammunition but he just said "yes"! Obviously he talked through the pros & cons and I did say that my
Hello Sue, Joolsg & all you lovely people,Today I rang my GP to ask if he would up my oxycodone from 5mg to 10mg. I was all ready with the information you had all sent me from your own experiences as ammunition but he just said "yes"! Obviously he talked through the pros & cons and I did say that my
Simkin
in
Restless Legs Syndrome
1 year ago
Oxycodone
Morning Joolsg & Sue & everyoneMy latest dilemma is: as you know I am on 5mg oxycodone & 2,100 Gabapentin. The first 4 weeks on oxycodone was bliss and I slept. Hurrah! So, with the agreement of my GP I took one less 100mg gabapentin and 2 weeks later I took another 100mg gabapentin less. Sadly my
Morning Joolsg & Sue & everyoneMy latest dilemma is: as you know I am on 5mg oxycodone & 2,100 Gabapentin. The first 4 weeks on oxycodone was bliss and I slept. Hurrah! So, with the agreement of my GP I took one less 100mg gabapentin and 2 weeks later I took another 100mg gabapentin less. Sadly my
Simkin
in
Restless Legs Syndrome
1 year ago
Tappering off Oxy and help with Insomnia
I am trying to wean myself off percocet and just stay on Horizant 1200 mg and also use medical marihuana as needed for RLS. Percocet is being used for augmentation from being on Pramipexole for 10 years and for some back pain. I have been on Percocet 10 mg nightly for 8 months and want to start weaning
I am trying to wean myself off percocet and just stay on Horizant 1200 mg and also use medical marihuana as needed for RLS. Percocet is being used for augmentation from being on Pramipexole for 10 years and for some back pain. I have been on Percocet 10 mg nightly for 8 months and want to start weaning
kturenne
in
Restless Legs Syndrome
1 year ago
Opioids
Good morning one & all I am, as you know, now on 2,100 gabapentin taken in divided doses in the evenings to no avail. Today I spoke to my GP and to my amazement he is happy to start me on low dose oxycodone (to take at night). Thank you so much Sue & Jools for suggesting I sent him all the articles
Good morning one & all I am, as you know, now on 2,100 gabapentin taken in divided doses in the evenings to no avail. Today I spoke to my GP and to my amazement he is happy to start me on low dose oxycodone (to take at night). Thank you so much Sue & Jools for suggesting I sent him all the articles
Simkin
in
Restless Legs Syndrome
1 year ago
rotary cuff tear and rls
I dislocated my shoulder and it looks like I will have to have surgery. I have been reading about rotary cuff surgery and it could be a long recovery with a lot of pain. I am worried about having rls after the surgery. Im not sure how the orthopedic feels about pain meds. I am now taking oxycodone
I dislocated my shoulder and it looks like I will have to have surgery. I have been reading about rotary cuff surgery and it could be a long recovery with a lot of pain. I am worried about having rls after the surgery. Im not sure how the orthopedic feels about pain meds. I am now taking oxycodone
lorri214
in
Restless Legs Syndrome
1 year ago
Second line standard of care treatment - weekly Paclitaxel - any experiences?
hello everyone I thought I’d seek experiences from those of you who have had the weekly Paclitaxel as second line recurrent HGSOC. I was diagnosed in Nov 2021, had chemo (6 rounds Paclitaxel/carboplatin) and debulking surgery then PARP s. Was NED but had recurrence in Nov 2022. I’m now on weekly
hello everyone I thought I’d seek experiences from those of you who have had the weekly Paclitaxel as second line recurrent HGSOC. I was diagnosed in Nov 2021, had chemo (6 rounds Paclitaxel/carboplatin) and debulking surgery then PARP s. Was NED but had recurrence in Nov 2022. I’m now on weekly
Narna1
in
My Ovacome
1 year ago
Oxycodone not working well
I have been alternating between Tramadol and Oxycodone for awhile now. I do pretty well on the Tramadol but after a month or so,, sometimes sooner, it isn’t as effective so I switch off to oxycodone. I don’t do near as well on the oxy and am wondering if it’s a dosage issue, a timing issue, or maybe
I have been alternating between Tramadol and Oxycodone for awhile now. I do pretty well on the Tramadol but after a month or so,, sometimes sooner, it isn’t as effective so I switch off to oxycodone. I don’t do near as well on the oxy and am wondering if it’s a dosage issue, a timing issue, or maybe
SleeplessinOR
in
Restless Legs Syndrome
1 year ago
Well, so much for feeling normal....
Some of you may have read my long story on the Enhertu infusion. I have it in my lungs, spine and then it spread to my liver and the next treatment (Xeloda, I think) and after three months still progression. If you have the time, grab a cup of coffee and read. OR, if you are having trouble sleeping
Some of you may have read my long story on the Enhertu infusion. I have it in my lungs, spine and then it spread to my liver and the next treatment (Xeloda, I think) and after three months still progression. If you have the time, grab a cup of coffee and read. OR, if you are having trouble sleeping
kearnan
in
SHARE Metastatic Breast Cancer
1 year ago
Buprenorphine affect cortisol levels?
Hello RLS colleagues Some of you may remember that I was prescribed a low dose of Buprenorphine to alleviate my (almost) lifelong RLS last year. Before that I was prescribed Oxycodone for a year or so. The Buprenirphine works well and completely covers my RLS. I was diagnosed with ME/CFS 2 years
Hello RLS colleagues Some of you may remember that I was prescribed a low dose of Buprenorphine to alleviate my (almost) lifelong RLS last year. Before that I was prescribed Oxycodone for a year or so. The Buprenirphine works well and completely covers my RLS. I was diagnosed with ME/CFS 2 years
smilingjane
in
Restless Legs Syndrome
1 year ago
Didn’t make it to trial B96 - second line chemotherapy- paclitaxol
hello everyone I posted a few weeks ago and found responses very useful so I thought I would ask again to gather any useful advice from this wealth of experience. At New year I became symptomatic with acities, tummy pain , vomiting, unable to eat etc.. This is a recurrence of HGSOC 3c post chemo/debulking
hello everyone I posted a few weeks ago and found responses very useful so I thought I would ask again to gather any useful advice from this wealth of experience. At New year I became symptomatic with acities, tummy pain , vomiting, unable to eat etc.. This is a recurrence of HGSOC 3c post chemo/debulking
Narna1
in
My Ovacome
1 year ago
Will IMRT give some relief to very painful bone mets?
My husband is in excruciating pain from the numerous pca bone mets on the spine, shoulder, chest and is now doing 20 IMRT sessions for palliative pain relief. We have done several chemo combination over the past 5yrs but cancer just kept progressing. This is his first ever radiation since diagnosis
My husband is in excruciating pain from the numerous pca bone mets on the spine, shoulder, chest and is now doing 20 IMRT sessions for palliative pain relief. We have done several chemo combination over the past 5yrs but cancer just kept progressing. This is his first ever radiation since diagnosis
dvcarola2
in
Advanced Prostate Cancer
1 year ago
Mandibular (trigeminal) nerve interference... relief?
For over a week I have experienced discomfort in my left ear and jaw, with some headache also on the left side. Over the weekend the discomfort worsened a bit to the point of occasional "pain." (The issue is not one of intense pain, thankfully, but mostly of persistent ongoing discomfort of a minor headache
For over a week I have experienced discomfort in my left ear and jaw, with some headache also on the left side. Over the weekend the discomfort worsened a bit to the point of occasional "pain." (The issue is not one of intense pain, thankfully, but mostly of persistent ongoing discomfort of a minor headache
noahware
in
Advanced Prostate Cancer
1 year ago
Back on Oxycodone
I had been taking Temgesic 700 mcg daily for a few months after buprenorphine patches. At this level I still had breakthrough RL and also a very dry mouth, hoarseness and some difficulty swallowing dry food. Prof. Walker had suggested that I go back on oxycodone which I had taken for two years - changing
I had been taking Temgesic 700 mcg daily for a few months after buprenorphine patches. At this level I still had breakthrough RL and also a very dry mouth, hoarseness and some difficulty swallowing dry food. Prof. Walker had suggested that I go back on oxycodone which I had taken for two years - changing
Jelbea
in
Restless Legs Syndrome
2 years ago
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