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A non-blog update
Sadly, I haven't been well enough to write a proper blog post that's up to my standards, but am functioning well enough to give a quick update. It's been a 1,013 days since my original prostate cancer diagnosis, so I missed the magic milestone of 1,000 days to do something special. It's also been about
Sadly, I haven't been well enough to write a proper blog post that's up to my standards, but am functioning well enough to give a quick update. It's been a 1,013 days since my original prostate cancer diagnosis, so I missed the magic milestone of 1,000 days to do something special. It's also been about
tom67inMA
in
Advanced Prostate Cancer
3 years ago
Zometa pain flare advice
Hi everyone, I'm posting on behalf of my Father (61 fit & healthy very active never ever sick, dx last Aug 2020, stage 4 multiple widespread bone mets & few lymph nodes, psa 84) immediately started decapeptyl injection every 3 months & zometa infusion. 9 rounds of chemo (taxotere) brought psa to 9.8
Hi everyone, I'm posting on behalf of my Father (61 fit & healthy very active never ever sick, dx last Aug 2020, stage 4 multiple widespread bone mets & few lymph nodes, psa 84) immediately started decapeptyl injection every 3 months & zometa infusion. 9 rounds of chemo (taxotere) brought psa to 9.8
Nickhmcg
in
Advanced Prostate Cancer
3 years ago
Help with a decision please
Hello everyone. I have posted not too long ago so I suppose this could be called a follow up. I said in my last post my g.p. refused iron infusion Temgesic and Oxycodone and didn’t seem specially interested and certainly knew nothing re. RL S I have sent her a very graphic letter on all that I go through
Hello everyone. I have posted not too long ago so I suppose this could be called a follow up. I said in my last post my g.p. refused iron infusion Temgesic and Oxycodone and didn’t seem specially interested and certainly knew nothing re. RL S I have sent her a very graphic letter on all that I go through
bedith6
in
Restless Legs Syndrome
3 years ago
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Ongoing updates--back pain, MRI, and AMG 509
I had MRIs done on the Lumbar, Thoracic, and Cervical spine. I ended up doing it at Jefferson Methodist Hospital. It took close to 4 hours and was an ordeal, but I managed to stay still and get very good images. The technician said he has never had anyone get through that long without moving or quitting
I had MRIs done on the Lumbar, Thoracic, and Cervical spine. I ended up doing it at Jefferson Methodist Hospital. It took close to 4 hours and was an ordeal, but I managed to stay still and get very good images. The technician said he has never had anyone get through that long without moving or quitting
Philly13
in
Advanced Prostate Cancer
3 years ago
Morning everybody. I am looking for a quality CBD oil Any experiences please 😊
I am soon to be starting Temgesic for my restless limbs. Can anyone recommend a good quality CBD oil to help with any restlessness I may experience crossing over from my current Oxycodone med? I recognise that I may not need it, but just in case. Also the pain doctor recommended that I occasionally
I am soon to be starting Temgesic for my restless limbs. Can anyone recommend a good quality CBD oil to help with any restlessness I may experience crossing over from my current Oxycodone med? I recognise that I may not need it, but just in case. Also the pain doctor recommended that I occasionally
smilingjane
in
Restless Legs Syndrome
3 years ago
Lidocaine patches.
Thank you all so much for your advice. My husband recalled I had lidocaine patches for a previous problem so today I have put on patch and along with oxycodone and paracetamol have coped better today. Still got pain but slightly less acute. I let you all know how tomorrow goes. More of the same I’m
Thank you all so much for your advice. My husband recalled I had lidocaine patches for a previous problem so today I have put on patch and along with oxycodone and paracetamol have coped better today. Still got pain but slightly less acute. I let you all know how tomorrow goes. More of the same I’m
Uglow
in
Bone Health and Osteoporosis UK
3 years ago
Als symptoms
I couldn’t find a relevant group to post so I hope someone here can help. I’ve been having some symptoms for about 8 weeks now. I had a hospital stay and took oxycodone for two weeks a few days after being homeI had a headache and get off balance for weeks, with strange sensations down my left arm, face
I couldn’t find a relevant group to post so I hope someone here can help. I’ve been having some symptoms for about 8 weeks now. I had a hospital stay and took oxycodone for two weeks a few days after being homeI had a headache and get off balance for weeks, with strange sensations down my left arm, face
Sarah0192
in
Neuropathy Support
3 years ago
Weening off oxycodone targinact
Iam trying to wean off oxycodone targinact20mg twice a day iam now taking 10 g at night and 5mg in the morning but have awfull withdraw symptons and very depressed as the medi ation was not lasting the 12hrs my rls has come back awful,and having no sleep feeling as if life n ot worth living should
Iam trying to wean off oxycodone targinact20mg twice a day iam now taking 10 g at night and 5mg in the morning but have awfull withdraw symptons and very depressed as the medi ation was not lasting the 12hrs my rls has come back awful,and having no sleep feeling as if life n ot worth living should
Hidden
in
Restless Legs Syndrome
3 years ago
Neck Rigidity relief??
Hi All, I’m hoping someone might me able to help. My dad was diagnosed with PSP in March this year, he has lots of other health issues (diabetes, kidney transplant, neuropathy, heart issues) He’s suffered for a long time and we think his other health issues have masked the PSP He’s suffering really
Hi All, I’m hoping someone might me able to help. My dad was diagnosed with PSP in March this year, he has lots of other health issues (diabetes, kidney transplant, neuropathy, heart issues) He’s suffered for a long time and we think his other health issues have masked the PSP He’s suffering really
HipsterChick
in
PSP Association
3 years ago
Life after Ropinirole.
Hello. I've had RLS my whole life. 30 years ago I was put on prozac for depression. My RLS got a bit worse but it wasn't a huge problem until I started hormone replacement. My symptoms became chronic and I started taking Ropinirole without any knowledge of the horrors of this drug. Three years ago, after
Hello. I've had RLS my whole life. 30 years ago I was put on prozac for depression. My RLS got a bit worse but it wasn't a huge problem until I started hormone replacement. My symptoms became chronic and I started taking Ropinirole without any knowledge of the horrors of this drug. Three years ago, after
Birdland
in
Restless Legs Syndrome
3 years ago
Fractured vertebrae
Hi all having a bit of a tough time! I fractured my vertebrae no really sure how! But that was 2 months ago. The pain has got worse all around lung area. Iv had X-rays to confirm. I not sure if pmr pain or vertebrae. Painkillers not touching it. Oxycodone and paracetamol. Anyone got any advice please
Hi all having a bit of a tough time! I fractured my vertebrae no really sure how! But that was 2 months ago. The pain has got worse all around lung area. Iv had X-rays to confirm. I not sure if pmr pain or vertebrae. Painkillers not touching it. Oxycodone and paracetamol. Anyone got any advice please
Uglow
in
PMRGCAuk
3 years ago
My sister has been diagnosed with ovarian cancer. I'm new here so would appreciate any information given.
My younger sister was diagnosed with ovarian cancer at the begining of March this year. What an absolute shock that was. Obviously devastated. I have joined this forum to try to understand the treatments and just what she is going through. She was diagnosed with stage 3c, and I have to say they were
My younger sister was diagnosed with ovarian cancer at the begining of March this year. What an absolute shock that was. Obviously devastated. I have joined this forum to try to understand the treatments and just what she is going through. She was diagnosed with stage 3c, and I have to say they were
nettiebobs
in
My Ovacome
3 years ago
Oxycodone
Oxycodone is not working so well and have trouble getting to sleep and staying asleep so have increased dosage by 5ml
Oxycodone is not working so well and have trouble getting to sleep and staying asleep so have increased dosage by 5ml
Hidden
in
Restless Legs Syndrome
3 years ago
CBD oil/Grapefruit effect
Hello all, just wanted to draw attention to something that could be quite important. I have been using cbd oil recently with a little success on my rls symptoms but going through augmentation so it's really not powerful enough to cut the mustard. Doc prescribed me 5mg oxycodone to take twice a day which
Hello all, just wanted to draw attention to something that could be quite important. I have been using cbd oil recently with a little success on my rls symptoms but going through augmentation so it's really not powerful enough to cut the mustard. Doc prescribed me 5mg oxycodone to take twice a day which
Nettles68
in
Restless Legs Syndrome
3 years ago
transdermal fentanyl vs methadone
I've been MIA because of duress. I wrote about a week ago and want to thank everyone for their responses. I'm on overload and in an altered state since we are trying to once again customize my husband's pain management treatment. He's been on oxycontin and oxycodone along with gabapentin. We are in
I've been MIA because of duress. I wrote about a week ago and want to thank everyone for their responses. I'm on overload and in an altered state since we are trying to once again customize my husband's pain management treatment. He's been on oxycontin and oxycodone along with gabapentin. We are in
Bluebird11
in
Advanced Prostate Cancer
3 years ago
Hysterectomy in Dec 20 bowel issues and right side pain since just a loss what to do next
I had a hysterectomy full one in December 2020 confirming adenmyosis. Two weeks after surgery severe right hand side pain occurred and after an X-ray and ct bowels confirmed as impacted. Lots of hospital stays and distended bowel. Colonoscopy done 20 biopsies all clear and some inflammation in top and
I had a hysterectomy full one in December 2020 confirming adenmyosis. Two weeks after surgery severe right hand side pain occurred and after an X-ray and ct bowels confirmed as impacted. Lots of hospital stays and distended bowel. Colonoscopy done 20 biopsies all clear and some inflammation in top and
Rainbowblues
in
Pelvic Pain Support Network
3 years ago
Methadone used for PCa bone met pain...
We've been struggling with gone pain. There isn't more that can be done. We've had some scans that show a lot of progression. We are 14 years into Stage iv.. something we are grateful for, THOUGH, this is really tough.. Methadone is being recommended. I am looking for information about how active
We've been struggling with gone pain. There isn't more that can be done. We've had some scans that show a lot of progression. We are 14 years into Stage iv.. something we are grateful for, THOUGH, this is really tough.. Methadone is being recommended. I am looking for information about how active
Bluebird11
in
Advanced Prostate Cancer
3 years ago
opioid replacement
My mom has MS and been dealing with severe leg pain for about 20 years. She was prescribed Oxycodone in the early 2000's and her dosage gradually increased since then. Now she is at a point where the Doctor doesnt want to increase the dosage saying it could be dangerous. She asked me to find some on
My mom has MS and been dealing with severe leg pain for about 20 years. She was prescribed Oxycodone in the early 2000's and her dosage gradually increased since then. Now she is at a point where the Doctor doesnt want to increase the dosage saying it could be dangerous. She asked me to find some on
Symbiose
in
My MSAA Community
3 years ago
RLS after hip surgery
I have been on this site for a long time. I recently had hip replacement surgery and have had a severe increase in my RLS. The opiates that I take (methadone 10mg po every 8 hours and up to 20mg oxycodone po per day for breakthrough RLS) used to work wonderfully, but since I have this hip replacement
I have been on this site for a long time. I recently had hip replacement surgery and have had a severe increase in my RLS. The opiates that I take (methadone 10mg po every 8 hours and up to 20mg oxycodone po per day for breakthrough RLS) used to work wonderfully, but since I have this hip replacement
Hidden
in
Restless Legs Syndrome
3 years ago
Can buprenophine help with rls
So, because i am an addict the oxycodone was unsuccessful, I took all the 2 weeks pills in about 4 days then bought street morphine sulphate (susbitol) to get through the rest of the 10 days, well it didn't take long to build up an 800mg a day habit, I took one 200mg tablet over the last 19 hrs I am
So, because i am an addict the oxycodone was unsuccessful, I took all the 2 weeks pills in about 4 days then bought street morphine sulphate (susbitol) to get through the rest of the 10 days, well it didn't take long to build up an 800mg a day habit, I took one 200mg tablet over the last 19 hrs I am
velosolex
in
Restless Legs Syndrome
3 years ago
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