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Crohn's flare up and RLS
I'm having a bad Crohn's flare up right now. All of my medication for RLS has stopped working. Oxycodone , iron, magnesium , non of it is helping. RLS has gone through the roof. Im also trying to reduce pramipexole, but I can't cope with anymore withdrawal right now. I'm past myself. Arthritis also
I'm having a bad Crohn's flare up right now. All of my medication for RLS has stopped working. Oxycodone , iron, magnesium , non of it is helping. RLS has gone through the roof. Im also trying to reduce pramipexole, but I can't cope with anymore withdrawal right now. I'm past myself. Arthritis also
pennygates
in
Restless Legs Syndrome
1 year ago
pain management
having lots of pain. Dr prescribed oxycodone. But i react poorly to this drug. After one low dose I have full body shakes, then high fever for about 12 hours. anyone suggest a pain med that is not codine based that i coukd try?
having lots of pain. Dr prescribed oxycodone. But i react poorly to this drug. After one low dose I have full body shakes, then high fever for about 12 hours. anyone suggest a pain med that is not codine based that i coukd try?
Fightinghard
in
Advanced Prostate Cancer
1 year ago
Oxycodone not working
Husband is taking 10mg Oxycodone at night with 100mg Pregablin Also 5mg 3 x a day and 100mg Pregablin in morning. Oxycodone seems to have stopped working and RLS is back at night. Daughters wedding next week and seriously looking like we will not make it. Any ideas on what else we can do, bearing
Husband is taking 10mg Oxycodone at night with 100mg Pregablin Also 5mg 3 x a day and 100mg Pregablin in morning. Oxycodone seems to have stopped working and RLS is back at night. Daughters wedding next week and seriously looking like we will not make it. Any ideas on what else we can do, bearing
Ephemera
in
Restless Legs Syndrome
1 year ago
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Update on my palliative care
I was taken ill last week. Unable to keep anything down which prevented my oral pain relief being effective. I rang the palliative nurses who told me to call my GP. My GP was very attentive and came to see me very quickly (Wednesday). He changed my meds and told me to try the new routine for a few days
I was taken ill last week. Unable to keep anything down which prevented my oral pain relief being effective. I rang the palliative nurses who told me to call my GP. My GP was very attentive and came to see me very quickly (Wednesday). He changed my meds and told me to try the new routine for a few days
ginkgo
in
The Roy Castle Lung Cancer Foundation
1 year ago
Can't reach Prof Walker
Hello 👋 Just a quick one, we have been trying to get in touch with Prof Walker as he seems to be the most recommended UK Dr for RLS, but we can't actually get through to his secretary. I have tried numerous emails and even been given a phone number which just rings out. Does anyone have any up to
Hello 👋 Just a quick one, we have been trying to get in touch with Prof Walker as he seems to be the most recommended UK Dr for RLS, but we can't actually get through to his secretary. I have tried numerous emails and even been given a phone number which just rings out. Does anyone have any up to
Monamiem
in
Restless Legs Syndrome
1 year ago
Starting pregabalin
I have received a letter from Leicester hospital following my consultation with a neurology Registrar. I am on 1100mg of Gabapentin suggested dose of Pregabalin is 75mg at 6.00pm and 75mg 30 minutes before bedtime, can be uptitrated as required. Does this sound right? I have zero confidence in registrar
I have received a letter from Leicester hospital following my consultation with a neurology Registrar. I am on 1100mg of Gabapentin suggested dose of Pregabalin is 75mg at 6.00pm and 75mg 30 minutes before bedtime, can be uptitrated as required. Does this sound right? I have zero confidence in registrar
Elsie77
in
Restless Legs Syndrome
1 year ago
Gabapentin withdrawal question
Can withdrawal from Gabapentin make RLS worse or rebound. Husband is on Gaba and Oxycodone. Trying to lower Gaba dose but last 4 nights RLS has started coming back worse each night. Been dropping 100mg per week for last two weeks.
Can withdrawal from Gabapentin make RLS worse or rebound. Husband is on Gaba and Oxycodone. Trying to lower Gaba dose but last 4 nights RLS has started coming back worse each night. Been dropping 100mg per week for last two weeks.
Ephemera
in
Restless Legs Syndrome
1 year ago
Helpful information on Potassium for RLS relief
Here is a link on Potassium to help with the symptoms of RLS. I hope this is helpful for some. I take my dose along with Magnesium Glycinate around 8 pm, along with Magnesium oil on my legs. I’m also prescribed Oxycodone 5 mg every 6 hours, along with Baclofen for PLMD. Sometimes, I need to use compression
Here is a link on Potassium to help with the symptoms of RLS. I hope this is helpful for some. I take my dose along with Magnesium Glycinate around 8 pm, along with Magnesium oil on my legs. I’m also prescribed Oxycodone 5 mg every 6 hours, along with Baclofen for PLMD. Sometimes, I need to use compression
Wanman4
in
Restless Legs Syndrome
1 year ago
Oxycodone
Dear friends, I have to share with you that for the first time in simply YEARS I have been able to relax on the flights to the States to see our son & wife and even better I have enjoyed one month away with them with NO RLS. I simply can't believe it.A HUGE thank you to Sue, Joolsg and others who persuaded
Dear friends, I have to share with you that for the first time in simply YEARS I have been able to relax on the flights to the States to see our son & wife and even better I have enjoyed one month away with them with NO RLS. I simply can't believe it.A HUGE thank you to Sue, Joolsg and others who persuaded
Simkin
in
Restless Legs Syndrome
1 year ago
Reducing pramipexole
I'm on day four reducing pramipexole. Gone down from 4x0.088 to 3x0.088. This is the worst night I've had for some time. I get some RLS every night, but this has increased in intensity, and not let up at all. Have had 5x5mg oxycodone immediate release spread throughout the day and tonight. Had strawberries
I'm on day four reducing pramipexole. Gone down from 4x0.088 to 3x0.088. This is the worst night I've had for some time. I get some RLS every night, but this has increased in intensity, and not let up at all. Have had 5x5mg oxycodone immediate release spread throughout the day and tonight. Had strawberries
pennygates
in
Restless Legs Syndrome
1 year ago
Gabapentin side effects
Update. Husband now on 15mg Oxycodone every night and starting to get 4 to 5 hours sleep (hooray) also taking 500mg Gabapentin 3 times a day. Still getting the lightheadiness side effect of Gaba all day. Does not get it when lying down only when walking. Any ideas how to stop this?? TIA
Update. Husband now on 15mg Oxycodone every night and starting to get 4 to 5 hours sleep (hooray) also taking 500mg Gabapentin 3 times a day. Still getting the lightheadiness side effect of Gaba all day. Does not get it when lying down only when walking. Any ideas how to stop this?? TIA
Ephemera
in
Restless Legs Syndrome
1 year ago
Prostate Cancer - Pain
So, I have advanced Pc. I’ve had 3 infusions of Pluvicto and I’m feeling ok. But, I continue to have pain in my right hip…this area had been radiated before. I can take Norco …it helps. Or I can take oxycodone, which knocks you out for a few hours. What do you guys do?
So, I have advanced Pc. I’ve had 3 infusions of Pluvicto and I’m feeling ok. But, I continue to have pain in my right hip…this area had been radiated before. I can take Norco …it helps. Or I can take oxycodone, which knocks you out for a few hours. What do you guys do?
JoeyDad
in
Advanced Prostate Cancer
1 year ago
Pennygates
I've recently had a worsening of my RLS symptoms. Now all day and night, with the odd hour of relief despite taking oxycodone (which I take for arthritic pain as well). I'm still taking Pramipexole as well. I also have extreme fatigue, and weakness (I have ME too, and Crohn's disease). It's got to the
I've recently had a worsening of my RLS symptoms. Now all day and night, with the odd hour of relief despite taking oxycodone (which I take for arthritic pain as well). I'm still taking Pramipexole as well. I also have extreme fatigue, and weakness (I have ME too, and Crohn's disease). It's got to the
pennygates
in
Restless Legs Syndrome
1 year ago
Oxycodone, Pramipexole and Codeine.
I am now on oxycodone 20mg tablets, 20mg morning and 20mg at night. I was on 8 Codeine phosphate 30mg tablets a day and one Pramipexole 0.52mg modified release tablets at night. Now I am on the oxycodone I do not take the codeine phosphate tab or the Pramipexole tablet. I cannot take the pramipexol
I am now on oxycodone 20mg tablets, 20mg morning and 20mg at night. I was on 8 Codeine phosphate 30mg tablets a day and one Pramipexole 0.52mg modified release tablets at night. Now I am on the oxycodone I do not take the codeine phosphate tab or the Pramipexole tablet. I cannot take the pramipexol
JoeR
in
Restless Legs Syndrome
1 year ago
Rebound from Oxy
I’m taking oxycodone for my RLS, it works well although it wears off fast. The main issue I have with it is that I get rebound symptoms as it wears off and they are worse than my usual symptoms. Does anyone else experience this?
I’m taking oxycodone for my RLS, it works well although it wears off fast. The main issue I have with it is that I get rebound symptoms as it wears off and they are worse than my usual symptoms. Does anyone else experience this?
SleeplessinOR
in
Restless Legs Syndrome
1 year ago
pain in back
my biggest problem is the pain whilst walking. I have polymyalgia too but don’t think it’s this. It’s taking over my life I cry most days now. I want cortosteriod injected. Anyone got any opinions or advice. I’m waiting noon scan. Iv had X-rays no change in few years. I had 4 vertebrae fracture thst
my biggest problem is the pain whilst walking. I have polymyalgia too but don’t think it’s this. It’s taking over my life I cry most days now. I want cortosteriod injected. Anyone got any opinions or advice. I’m waiting noon scan. Iv had X-rays no change in few years. I had 4 vertebrae fracture thst
Uglow
in
Bone Health and Osteoporosis UK
1 year ago
Temgesic/Buprenorphine
Hello everyone - especially those of you on Temgesic or buprenorphine in sublingual form. Shumbah posted recently about the short half life of Temgesic as opposed to plain buprenorphine hydrochloride. At that time I did not respond as I was back on oxycodone as per suggestion of my neurologist. However
Hello everyone - especially those of you on Temgesic or buprenorphine in sublingual form. Shumbah posted recently about the short half life of Temgesic as opposed to plain buprenorphine hydrochloride. At that time I did not respond as I was back on oxycodone as per suggestion of my neurologist. However
Jelbea
in
Restless Legs Syndrome
1 year ago
Constipation
Joolsg am sure you said a good cure for constipation when I am on oxycodone (10mg) ?? Simkin
Joolsg am sure you said a good cure for constipation when I am on oxycodone (10mg) ?? Simkin
Simkin
in
Restless Legs Syndrome
1 year ago
oxycodone withdrawal - any advice?
hello - I am in need of advice I am currently taking 150 pregabalin and 20mg Targinact which is 12 hour release oxycodone. Not only is this not working at all (had physically kicking legs from 9pm to 4am yesterday….) but I get severe withdrawal effects from the oxycodone - palpitations, panic, shaking
hello - I am in need of advice I am currently taking 150 pregabalin and 20mg Targinact which is 12 hour release oxycodone. Not only is this not working at all (had physically kicking legs from 9pm to 4am yesterday….) but I get severe withdrawal effects from the oxycodone - palpitations, panic, shaking
Drls
in
Restless Legs Syndrome
1 year ago
Re oxycodone
Hi. Also have periodic limb movement disorder and restless legs. 45 years now. I take oxycodone hydrochloride at bedtime and during the day. 5 ml. Combined with gabapentin and ropinirole I sleep very well. 8 hours and somtimes longer. I also have a spinal stenosis. This is the second one. Op last year
Hi. Also have periodic limb movement disorder and restless legs. 45 years now. I take oxycodone hydrochloride at bedtime and during the day. 5 ml. Combined with gabapentin and ropinirole I sleep very well. 8 hours and somtimes longer. I also have a spinal stenosis. This is the second one. Op last year
slim1953
in
Restless Legs Syndrome
1 year ago
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