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Pluvicto side effects…
… are kicking my butt. I have my third round next week. I’m more fatigued than with chemo, bone pain, can’t eat, constipation — all the stuff. I’m even more concerned now because I was Rx-ed oxycodone and have increasingly been turning to that for temporary physical relief. I’m starting to think maybe
… are kicking my butt. I have my third round next week. I’m more fatigued than with chemo, bone pain, can’t eat, constipation — all the stuff. I’m even more concerned now because I was Rx-ed oxycodone and have increasingly been turning to that for temporary physical relief. I’m starting to think maybe
Arel8
in
Advanced Prostate Cancer
1 year ago
Dialysis / RLS
Wow, this sub is a lot more active than the Kidney Disease sub, one would think it would be the other way around. I guess RLS is a lot more prevalent than people think? I never experienced or even heard of RLS before starting dialysis but boy did it hit me hard. It's already hard to sleep while doing
Wow, this sub is a lot more active than the Kidney Disease sub, one would think it would be the other way around. I guess RLS is a lot more prevalent than people think? I never experienced or even heard of RLS before starting dialysis but boy did it hit me hard. It's already hard to sleep while doing
bumblebee_tuna
in
Restless Legs Syndrome
1 year ago
Visit to sleep clinic
I attended clinic (all geared up) to see consultant. Well it turned out that the appointment was with a triage nurse - not made clear on appointment papers. He was very professional and apologetic for the confusion. It soon became clear that he has the ear of the consultant who prescribes buprenorphine
I attended clinic (all geared up) to see consultant. Well it turned out that the appointment was with a triage nurse - not made clear on appointment papers. He was very professional and apologetic for the confusion. It soon became clear that he has the ear of the consultant who prescribes buprenorphine
Flora-Rose
in
Restless Legs Syndrome
1 year ago
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Looking for guidance on RLS and Parkinson's Management
Good Morning, Read this forum regularly... thank you for sharing ... Looking to learn more about RLS and Parkinson's, especially from persons with these two conditions particularly their medication management. My husband has both conditions, RLS since mid 2000s, Parkinson's since 2018. And we are
Good Morning, Read this forum regularly... thank you for sharing ... Looking to learn more about RLS and Parkinson's, especially from persons with these two conditions particularly their medication management. My husband has both conditions, RLS since mid 2000s, Parkinson's since 2018. And we are
gardening57
in
Restless Legs Syndrome
1 year ago
Oxycodone advice
Good morning, I have recently started on 5mg tablets of Oxycodone for my RLS I’m now up to 10mg 1 hour before bed they are helping but not enough yet so I’m going to increase to 15mg this week. I was hoping for some advice on timing of taking them before bed and any other tips for this medication
Good morning, I have recently started on 5mg tablets of Oxycodone for my RLS I’m now up to 10mg 1 hour before bed they are helping but not enough yet so I’m going to increase to 15mg this week. I was hoping for some advice on timing of taking them before bed and any other tips for this medication
Allatonce
in
Restless Legs Syndrome
1 year ago
oxycodone
I have had a complete hip replacement operation on 1st July. Since the my RLS has gone mad my foot twisting like a crazy windmill. I was given a ferritin infusion but it is still mad. I see Oxycodone may be causing this is there any alternative? I am on 5mg prolonged release twice a day and supplemented
I have had a complete hip replacement operation on 1st July. Since the my RLS has gone mad my foot twisting like a crazy windmill. I was given a ferritin infusion but it is still mad. I see Oxycodone may be causing this is there any alternative? I am on 5mg prolonged release twice a day and supplemented
Bluegerand
in
Restless Legs Syndrome
1 year ago
what to do
good morning everyone. I’m 78, had all of the meds including 4 doses of Pluvicto. I have terrible pain in my right hip down to my knee. My PSA had come down to 10 but after the last dose of Pluvicto it’s back up to 17. I live on 3 oxycodone per day and the pain reduction is minimal. I’m starting to see
good morning everyone. I’m 78, had all of the meds including 4 doses of Pluvicto. I have terrible pain in my right hip down to my knee. My PSA had come down to 10 but after the last dose of Pluvicto it’s back up to 17. I live on 3 oxycodone per day and the pain reduction is minimal. I’m starting to see
JoeyDad
in
Advanced Prostate Cancer
1 year ago
Recovery after partial Knee Replacement
Firstly thank you to everyone who took the time to reply to my last post regarding post op fatigue. That does indeed seem to have passed. However, I am still struggling with trying to gauge how much pain relief I should be using and progress with exercises. It would be really useful to hear from anyone
Firstly thank you to everyone who took the time to reply to my last post regarding post op fatigue. That does indeed seem to have passed. However, I am still struggling with trying to gauge how much pain relief I should be using and progress with exercises. It would be really useful to hear from anyone
grumpygirl
in
NRAS
1 year ago
Oxcodone
Just to say to everyone who has kindly replied I have now read the front of the packet and I am actually on"Oxycontin 10mg prolonged release tablets Oxycodone hydrochloride" AND on the packet it also says "Take every 12 hours"
Just to say to everyone who has kindly replied I have now read the front of the packet and I am actually on"Oxycontin 10mg prolonged release tablets Oxycodone hydrochloride" AND on the packet it also says "Take every 12 hours"
Simkin
in
Restless Legs Syndrome
1 year ago
Oxycodone
Hello everyone & especially Sue & Jules. I have now had 4 blissful months sleep on 10mg of Oxycodone.I have now successfully reduced my gabapentin from 2,100 to 1,500mg. But am now starting to get one breakthrough session of rls a night & am worried it will get worse. Should I stop reducing the gabapentin
Hello everyone & especially Sue & Jules. I have now had 4 blissful months sleep on 10mg of Oxycodone.I have now successfully reduced my gabapentin from 2,100 to 1,500mg. But am now starting to get one breakthrough session of rls a night & am worried it will get worse. Should I stop reducing the gabapentin
Simkin
in
Restless Legs Syndrome
1 year ago
Sleep problems back.
Husband takes 10mg Oxycodone at night with 100mg Pregablin also 5mg Oxycodone 3 times during the day. This was helping but now he only sleeps for 2 hrs at night and seems to have RLS nearly all the time he is awake. Does he have opioid withdrawal now? Going to see specialist again in August. Any ideas
Husband takes 10mg Oxycodone at night with 100mg Pregablin also 5mg Oxycodone 3 times during the day. This was helping but now he only sleeps for 2 hrs at night and seems to have RLS nearly all the time he is awake. Does he have opioid withdrawal now? Going to see specialist again in August. Any ideas
Ephemera
in
Restless Legs Syndrome
1 year ago
Crohn's flare up and RLS
I'm having a bad Crohn's flare up right now. All of my medication for RLS has stopped working. Oxycodone , iron, magnesium , non of it is helping. RLS has gone through the roof. Im also trying to reduce pramipexole, but I can't cope with anymore withdrawal right now. I'm past myself. Arthritis also
I'm having a bad Crohn's flare up right now. All of my medication for RLS has stopped working. Oxycodone , iron, magnesium , non of it is helping. RLS has gone through the roof. Im also trying to reduce pramipexole, but I can't cope with anymore withdrawal right now. I'm past myself. Arthritis also
pennygates
in
Restless Legs Syndrome
1 year ago
pain management
having lots of pain. Dr prescribed oxycodone. But i react poorly to this drug. After one low dose I have full body shakes, then high fever for about 12 hours. anyone suggest a pain med that is not codine based that i coukd try?
having lots of pain. Dr prescribed oxycodone. But i react poorly to this drug. After one low dose I have full body shakes, then high fever for about 12 hours. anyone suggest a pain med that is not codine based that i coukd try?
Fightinghard
in
Advanced Prostate Cancer
1 year ago
Oxycodone not working
Husband is taking 10mg Oxycodone at night with 100mg Pregablin Also 5mg 3 x a day and 100mg Pregablin in morning. Oxycodone seems to have stopped working and RLS is back at night. Daughters wedding next week and seriously looking like we will not make it. Any ideas on what else we can do, bearing
Husband is taking 10mg Oxycodone at night with 100mg Pregablin Also 5mg 3 x a day and 100mg Pregablin in morning. Oxycodone seems to have stopped working and RLS is back at night. Daughters wedding next week and seriously looking like we will not make it. Any ideas on what else we can do, bearing
Ephemera
in
Restless Legs Syndrome
1 year ago
Update on my palliative care
I was taken ill last week. Unable to keep anything down which prevented my oral pain relief being effective. I rang the palliative nurses who told me to call my GP. My GP was very attentive and came to see me very quickly (Wednesday). He changed my meds and told me to try the new routine for a few days
I was taken ill last week. Unable to keep anything down which prevented my oral pain relief being effective. I rang the palliative nurses who told me to call my GP. My GP was very attentive and came to see me very quickly (Wednesday). He changed my meds and told me to try the new routine for a few days
ginkgo
in
The Roy Castle Lung Cancer Foundation
1 year ago
Can't reach Prof Walker
Hello 👋 Just a quick one, we have been trying to get in touch with Prof Walker as he seems to be the most recommended UK Dr for RLS, but we can't actually get through to his secretary. I have tried numerous emails and even been given a phone number which just rings out. Does anyone have any up to
Hello 👋 Just a quick one, we have been trying to get in touch with Prof Walker as he seems to be the most recommended UK Dr for RLS, but we can't actually get through to his secretary. I have tried numerous emails and even been given a phone number which just rings out. Does anyone have any up to
Monamiem
in
Restless Legs Syndrome
1 year ago
Starting pregabalin
I have received a letter from Leicester hospital following my consultation with a neurology Registrar. I am on 1100mg of Gabapentin suggested dose of Pregabalin is 75mg at 6.00pm and 75mg 30 minutes before bedtime, can be uptitrated as required. Does this sound right? I have zero confidence in registrar
I have received a letter from Leicester hospital following my consultation with a neurology Registrar. I am on 1100mg of Gabapentin suggested dose of Pregabalin is 75mg at 6.00pm and 75mg 30 minutes before bedtime, can be uptitrated as required. Does this sound right? I have zero confidence in registrar
Elsie77
in
Restless Legs Syndrome
1 year ago
Gabapentin withdrawal question
Can withdrawal from Gabapentin make RLS worse or rebound. Husband is on Gaba and Oxycodone. Trying to lower Gaba dose but last 4 nights RLS has started coming back worse each night. Been dropping 100mg per week for last two weeks.
Can withdrawal from Gabapentin make RLS worse or rebound. Husband is on Gaba and Oxycodone. Trying to lower Gaba dose but last 4 nights RLS has started coming back worse each night. Been dropping 100mg per week for last two weeks.
Ephemera
in
Restless Legs Syndrome
1 year ago
Helpful information on Potassium for RLS relief
Here is a link on Potassium to help with the symptoms of RLS. I hope this is helpful for some. I take my dose along with Magnesium Glycinate around 8 pm, along with Magnesium oil on my legs. I’m also prescribed Oxycodone 5 mg every 6 hours, along with Baclofen for PLMD. Sometimes, I need to use compression
Here is a link on Potassium to help with the symptoms of RLS. I hope this is helpful for some. I take my dose along with Magnesium Glycinate around 8 pm, along with Magnesium oil on my legs. I’m also prescribed Oxycodone 5 mg every 6 hours, along with Baclofen for PLMD. Sometimes, I need to use compression
Wanman4
in
Restless Legs Syndrome
1 year ago
Oxycodone
Dear friends, I have to share with you that for the first time in simply YEARS I have been able to relax on the flights to the States to see our son & wife and even better I have enjoyed one month away with them with NO RLS. I simply can't believe it.A HUGE thank you to Sue, Joolsg and others who persuaded
Dear friends, I have to share with you that for the first time in simply YEARS I have been able to relax on the flights to the States to see our son & wife and even better I have enjoyed one month away with them with NO RLS. I simply can't believe it.A HUGE thank you to Sue, Joolsg and others who persuaded
Simkin
in
Restless Legs Syndrome
1 year ago
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