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End of FLAIR trail- question of dosage of Ibrutinib
I have now completed the 6 month combination of Ibrutinib and
Rituximab
on FLAIR trial. Main problem was severe joint and muscle pain, finally stopped Ib for a week- see previous post) After that 1 week on 1/3 dose, then a month on 2/3 and all well. Bloods looking good this week.
I have now completed the 6 month combination of Ibrutinib and
Rituximab
on FLAIR trial. Main problem was severe joint and muscle pain, finally stopped Ib for a week- see previous post) After that 1 week on 1/3 dose, then a month on 2/3 and all well. Bloods looking good this week.
romarin
in
CLL Support
8 years ago
itp
I had itp since I was 6 year old they try everything from bone marrow to removing my spleen to steroids one thing that I found out that helps me is
rituximab
then I get it it last for about 9 months
I had itp since I was 6 year old they try everything from bone marrow to removing my spleen to steroids one thing that I found out that helps me is
rituximab
then I get it it last for about 9 months
falanw
in
ITP Support Association
8 years ago
Second knee 8 days on or something
Maybe it's the painkillers but I'm grateful for the respite as next load of
rituximab
isn't due til end of May.
Maybe it's the painkillers but I'm grateful for the respite as next load of
rituximab
isn't due til end of May.
cathie
in
NRAS
8 years ago
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TRIAL OR NOT TO TRIAL, THAT IS THE QUESTION?????
In my last post I mentioned that It looks likely that I will be starting treatment in June. IN the meanwhile, I have been in touch with the consultant who I went to for a second opinion just after diagnosis. He can see me next week with the possibility of starting a trial .... FLAIR. I have read so
In my last post I mentioned that It looks likely that I will be starting treatment in June. IN the meanwhile, I have been in touch with the consultant who I went to for a second opinion just after diagnosis. He can see me next week with the possibility of starting a trial .... FLAIR. I have read so
Bethan49
in
CLL Support
8 years ago
Severe pain so may have to stop Ibrutinib
Many thanks to all who responded to my query re Ibrutinib and Ibuprofen. In the end consultant said not a good idea. Im any case I am still suffering severe muscle pains and have dropped down to only 1/3 dose. If pains continue will have to stop Ibrutinib. Very disappointing. My blood results have improved
Many thanks to all who responded to my query re Ibrutinib and Ibuprofen. In the end consultant said not a good idea. Im any case I am still suffering severe muscle pains and have dropped down to only 1/3 dose. If pains continue will have to stop Ibrutinib. Very disappointing. My blood results have improved
romarin
in
CLL Support
8 years ago
Rituximab Side effects....or not?!
Hello I had my first
Rituximab
infusion (second cycle) last Friday 8/4, for the first couple of days I felt exhausted but that was probably due to the extra anti-histamine.
Hello I had my first
Rituximab
infusion (second cycle) last Friday 8/4, for the first couple of days I felt exhausted but that was probably due to the extra anti-histamine.
3LittleBirds2
in
NRAS
8 years ago
New to this world of CLL
Hi everyone! I am 60 years old and was diagnosed with CLL on April 25th after many blood tests and a biopsy of the right axillary node. I am very active and adventurous... The last couple of years I had lost my zeal for life and was tired all the time. A lump had come up on the back of my neck.. I
Hi everyone! I am 60 years old and was diagnosed with CLL on April 25th after many blood tests and a biopsy of the right axillary node. I am very active and adventurous... The last couple of years I had lost my zeal for life and was tired all the time. A lump had come up on the back of my neck.. I
Jonidleo
in
CLL Support
8 years ago
Mycophenolate
Anyway, a couple of meds that we can try were mentioned, namely -
rituximab
, azathioprime, gold injections and mycophenolate, which is the one that we've decided to try.
Anyway, a couple of meds that we can try were mentioned, namely -
rituximab
, azathioprime, gold injections and mycophenolate, which is the one that we've decided to try.
wishbone
in
NRAS
8 years ago
Shingles
Due to have the second of my 2
rituximab
infusions for RA last Thursday but started with shingles, yet again! So infusion cancelled and am on antiviral treatment for seven days. Has anyone else had a problem with cancelled treatments? How long can be left between infusions for it still to work?
Due to have the second of my 2
rituximab
infusions for RA last Thursday but started with shingles, yet again! So infusion cancelled and am on antiviral treatment for seven days. Has anyone else had a problem with cancelled treatments? How long can be left between infusions for it still to work?
Scorer
in
NRAS
8 years ago
So it looks like the roller coaster is about to begin...
Only 9 months into diagnosis and W&W, it looks like chemo is about to begin. Symptoms have recently become more problematic with huge nodes in neck restricting my movement, groiin very sore and abdomen tender ion right side. Energy levels have dropped dramatically. Scan shows enlargement of all
Only 9 months into diagnosis and W&W, it looks like chemo is about to begin. Symptoms have recently become more problematic with huge nodes in neck restricting my movement, groiin very sore and abdomen tender ion right side. Energy levels have dropped dramatically. Scan shows enlargement of all
Bethan49
in
CLL Support
8 years ago
Weight gain -is there any stopping it?
I recently had my first two infusions of
rituximab
. It seems the disease itself and all those medications predispose one to weight gain and I've proved that, putting on about 3 stone in the last couple of years.
I recently had my first two infusions of
rituximab
. It seems the disease itself and all those medications predispose one to weight gain and I've proved that, putting on about 3 stone in the last couple of years.
Neriah
in
NRAS
8 years ago
Hip Replacement
He's had the Cyclo, Aza, Meth, & Myco, now on
Rituximab
which seems to be tackling it after 5 years. He's had a triple heart bypass, squamous cell carcinoma on his head, and a few other things go wrong during this time, but hey ho, he's still here and smiling (most of the time).
He's had the Cyclo, Aza, Meth, & Myco, now on
Rituximab
which seems to be tackling it after 5 years. He's had a triple heart bypass, squamous cell carcinoma on his head, and a few other things go wrong during this time, but hey ho, he's still here and smiling (most of the time).
Nadine99
in
Vasculitis UK
8 years ago
FCR Rounds 5-6
Hi All, Having completed 4 rounds of FCR on the FLAIR trial I unfortunately been hospitalised on the last 2 occasions(rounds 3+4) with some some form of unspecified infection, temperature 38.2 on admission and subsequent blood results showing neutrophils at 0.2-0.4 on both admissions. I had round 4
Hi All, Having completed 4 rounds of FCR on the FLAIR trial I unfortunately been hospitalised on the last 2 occasions(rounds 3+4) with some some form of unspecified infection, temperature 38.2 on admission and subsequent blood results showing neutrophils at 0.2-0.4 on both admissions. I had round 4
jackhammer
in
CLL Support
8 years ago
'Rituximab cough '
Can I ask has anyone experienced a persistent cough, shortness of breath and fatigue after long term use of
Rituximab
? I have just read about '
Rituximab
cough' and wondered if this is what I'm experiencing ?
Can I ask has anyone experienced a persistent cough, shortness of breath and fatigue after long term use of
Rituximab
? I have just read about '
Rituximab
cough' and wondered if this is what I'm experiencing ?
Essex-jill
in
Vasculitis UK
8 years ago
Thoughts / experiences of Mycophenolate ?
Unfortunately I've relapsed after having 2 and 1/2 years remission from
Rituximab
. I had remission of 2 and a half years from 2010 to 2013?then had
Rituximab
again and got 2 and a half years remission again from 2013 till Feb this year.
Unfortunately I've relapsed after having 2 and 1/2 years remission from
Rituximab
. I had remission of 2 and a half years from 2010 to 2013?then had
Rituximab
again and got 2 and a half years remission again from 2013 till Feb this year.
AnthonyHeard
ITP Support Association
in
ITP Support Association
8 years ago
Under 50 and had FCR?
I am 44 11q and unmuted. I had 18 nodes enlarged and started treatment shortly after diagnosis. I start my last treatment soon. I would like to hear from others who might be similar to me on how long it was until the CLL returned and you needed treatment again. Thanks!
I am 44 11q and unmuted. I had 18 nodes enlarged and started treatment shortly after diagnosis. I start my last treatment soon. I would like to hear from others who might be similar to me on how long it was until the CLL returned and you needed treatment again. Thanks!
Mnance
in
CLL Support
8 years ago
5 vs 6 rounds of FCR
Shortly after my 5th treatment I became sick. Despite 4 rounds of antibiotics I could not shake it and my last treatment was delayed until I was well. Unfortunately I ended up in the hospital with pneumonia where I am now. It has now been 7 weeks since my last treatment. My recent PET/CT scan shows
Shortly after my 5th treatment I became sick. Despite 4 rounds of antibiotics I could not shake it and my last treatment was delayed until I was well. Unfortunately I ended up in the hospital with pneumonia where I am now. It has now been 7 weeks since my last treatment. My recent PET/CT scan shows
Mnance
in
CLL Support
8 years ago
RITUXIMAB
After recent setbacks on Tocilizumab/ MTX the rheumatology team would like to try me on
RITUXIMAB
. Having read some of the posts here and visited many
Rituximab
web sites, I have reached the conclusion this is not a drug to be taken lightly.
After recent setbacks on Tocilizumab/ MTX the rheumatology team would like to try me on
RITUXIMAB
. Having read some of the posts here and visited many
Rituximab
web sites, I have reached the conclusion this is not a drug to be taken lightly.
harryhunt43
in
NRAS
8 years ago
Follicular Lymphoma Patients and Caregivers Survey
Lymphoma Canada is preparing a submission to the panCanadian Oncology Drug Review (pCODR) for: Idelalisib (Zydelig) for the treatment of patients with follicular lymphoma who have received at least two prior systemic regimens and are refractory to both
rituximab
and an alkylating agent.
Lymphoma Canada is preparing a submission to the panCanadian Oncology Drug Review (pCODR) for: Idelalisib (Zydelig) for the treatment of patients with follicular lymphoma who have received at least two prior systemic regimens and are refractory to both
rituximab
and an alkylating agent.
LCAdmin
Lymphoma Canada
in
Lymphoma Canada
8 years ago
My success with Imbruvica (ibrutinib
I've posted before that for almost all of 2015 I was treated for ITB. My platelet counts ranged up and down from 2 to 50 all year. In December I switched to another doctor and he did a bone marrow biopsy and told me on Christmas Eve that I have CLL. He immediately started me on FCR, but after two
I've posted before that for almost all of 2015 I was treated for ITB. My platelet counts ranged up and down from 2 to 50 all year. In December I switched to another doctor and he did a bone marrow biopsy and told me on Christmas Eve that I have CLL. He immediately started me on FCR, but after two
ohiojim
in
CLL Support
8 years ago
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