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experience CLL Ibrutinib Colitis
May 2013 dexamethasone and
rituximab
. PCP pneumonia. September 2013 bendamustine and
rituximab
three times. January 2014 quite well but 40% CLL in bone marrow still. June 2014 started ibrutinib, 3 tablets per day.
May 2013 dexamethasone and
rituximab
. PCP pneumonia. September 2013 bendamustine and
rituximab
three times. January 2014 quite well but 40% CLL in bone marrow still. June 2014 started ibrutinib, 3 tablets per day.
Corin850
in
CLL Support
9 years ago
RA
Starting
Rituximab
. Anyone benefitted with this or had side effects?
Starting
Rituximab
. Anyone benefitted with this or had side effects?
Cangel
in
Arthritis Action
9 years ago
Waiting but not patiently
Still nothing despite numerous calls to helpline and biological nurse, regarding starting my
Rituximab
infusions. So had an appointment with the consultant today only yo oh and find the clinic had been cancelled and I wasn't informed grrrrrrr!
Still nothing despite numerous calls to helpline and biological nurse, regarding starting my
Rituximab
infusions. So had an appointment with the consultant today only yo oh and find the clinic had been cancelled and I wasn't informed grrrrrrr!
allanah
in
NRAS
9 years ago
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As Etta James said " at last"
So all good I hope and now fingers crossed that
Rituximab
is for me!!!
So all good I hope and now fingers crossed that
Rituximab
is for me!!!
allanah
in
NRAS
9 years ago
Rituximab minus MTX? Anyone on Rituximab but not taking MTX?
Are any of you on
Rituximab
but not taking Mtx as it upsets you? Do your consultants allow it? I know it is supposed to assist biologics etc making it easier to take effect, but I know it is
Rituximab
doing it for me and not Mtx as it was doing precious little on its own last year.
Are any of you on
Rituximab
but not taking Mtx as it upsets you? Do your consultants allow it? I know it is supposed to assist biologics etc making it easier to take effect, but I know it is
Rituximab
doing it for me and not Mtx as it was doing precious little on its own last year.
NeonkittyUK
in
NRAS
9 years ago
mumsynana6
I have had 4 cycles of
Rituximab
with some results but am now about to start on Abatercept which initially will be done by a nurse who will visit me at home and then I can do it myself weekly at home. Yay no more hospital infusions !!
I have had 4 cycles of
Rituximab
with some results but am now about to start on Abatercept which initially will be done by a nurse who will visit me at home and then I can do it myself weekly at home. Yay no more hospital infusions !!
mumsynana6
in
NRAS
9 years ago
Mycophenolate
To cut a long story short I ended up on
Rituximab
as the conventional treatment did not work. It was a wonder drug for me as I finally became well and was able to resume normal life. However, I have a new consultant who will no longer give me
Rituximab
and put me on Mycophenolate in October 2014.
To cut a long story short I ended up on
Rituximab
as the conventional treatment did not work. It was a wonder drug for me as I finally became well and was able to resume normal life. However, I have a new consultant who will no longer give me
Rituximab
and put me on Mycophenolate in October 2014.
phayes14
in
Vasculitis UK
9 years ago
Myelodysplasia (MDS)
Hi I haven't been on our community site for 2yrs since then I have had 4 cycles of FCR , unfortunately they stopped the last 2 cycles due to nutropenia now I have been dignosed with MDS ( Myelodysplasia ) is there anyone else that has this sorry about my spelling I have a bad bout of the flu. God bless
Hi I haven't been on our community site for 2yrs since then I have had 4 cycles of FCR , unfortunately they stopped the last 2 cycles due to nutropenia now I have been dignosed with MDS ( Myelodysplasia ) is there anyone else that has this sorry about my spelling I have a bad bout of the flu. God bless
chevy
in
CLL Support
9 years ago
Rituximab and hair loss
I am on my second round of
rituximab
now to treat lupus nephritis, having had the first 2 infusions in October, I had one last week and am due for another in a week. I was wondering now if anyone experienced hair loss from this?
I am on my second round of
rituximab
now to treat lupus nephritis, having had the first 2 infusions in October, I had one last week and am due for another in a week. I was wondering now if anyone experienced hair loss from this?
marni04
in
LUPUS UK
9 years ago
HOLY WHITE COUNT!!
HI all, Well W&W is finally over (that wasnt very long) I started my clinical trial of iFCR and so far so good. Not noticing and side effects of the ibrutinib. FCR starts tuesday so we will see the shit hit the fan then :) He is the crazy part for all of you concerned about how high your white count
HI all, Well W&W is finally over (that wasnt very long) I started my clinical trial of iFCR and so far so good. Not noticing and side effects of the ibrutinib. FCR starts tuesday so we will see the shit hit the fan then :) He is the crazy part for all of you concerned about how high your white count
enelson3
in
CLL Support
9 years ago
My first rituximab infusion
Just wanted to post that I received my first infusion today, went well and had no reaction at all. Just felt very tired and ready for a good sleep tonight........ Obviously don't know what tomorrow will bring but am optimistic xx
Just wanted to post that I received my first infusion today, went well and had no reaction at all. Just felt very tired and ready for a good sleep tonight........ Obviously don't know what tomorrow will bring but am optimistic xx
beckybooboo
in
NRAS
9 years ago
IVIG for bone marrow suppression?
Hi everyone Is IVIG useful when you are bone marrow suppression by FCR treatment or progression of CLL? Do anyone have such experience? Miee
Hi everyone Is IVIG useful when you are bone marrow suppression by FCR treatment or progression of CLL? Do anyone have such experience? Miee
Miee
in
CLL Support
9 years ago
Post Chemo Effects
I finished my chemo treatment - Bendamustine &
Rituximab
- in February and I'm delighted that it was successful although my white cell count is still low. But the problem I have is that for the last couple of months I have, especially in the evenings, what I call a 'prickly' feeling on/in my skin.
I finished my chemo treatment - Bendamustine &
Rituximab
- in February and I'm delighted that it was successful although my white cell count is still low. But the problem I have is that for the last couple of months I have, especially in the evenings, what I call a 'prickly' feeling on/in my skin.
jaypax
in
CLL Support
9 years ago
participate in online study cll Aus
Hi everyone, I'm in Sydney, Australia and recently completed an anonymous phone survey regarding listing of Ibrutinib on PBS. The survey was asking about cll patients' overall experience of the disease, diagnosis and thoughts on treatment options. You need not have had treatment already to participate
Hi everyone, I'm in Sydney, Australia and recently completed an anonymous phone survey regarding listing of Ibrutinib on PBS. The survey was asking about cll patients' overall experience of the disease, diagnosis and thoughts on treatment options. You need not have had treatment already to participate
Chrisfer
in
CLL Support
9 years ago
Rituximab Infusion to treat Scleroderma/IPF
Has anyone had
Rituximab
Infusions to treat Scleroderma/IPF? Did you feel OK after each infusion?
Has anyone had
Rituximab
Infusions to treat Scleroderma/IPF? Did you feel OK after each infusion?
SMS2006
in
Lung Conditions Community Forum
9 years ago
Low red blood cell count
Hi All, Went to have first of two
rituximab
infusions only to find my red blood cells are very low low (7.5). I still had the infusion but my consultant phoned my two days later to explain low cell count and has called me in for a further blood test and says we will take it from there.
Hi All, Went to have first of two
rituximab
infusions only to find my red blood cells are very low low (7.5). I still had the infusion but my consultant phoned my two days later to explain low cell count and has called me in for a further blood test and says we will take it from there.
Shine44
in
LUPUS UK
9 years ago
Rituximab
The best may yet be ahead of us as stage three trials are underway http://simmaronresearch.com/2015/01/chronic-fatigue-syndrome-
rituximab
-fluge-mella/ with the biggest trial that is actually four trials in one.
The best may yet be ahead of us as stage three trials are underway http://simmaronresearch.com/2015/01/chronic-fatigue-syndrome-
rituximab
-fluge-mella/ with the biggest trial that is actually four trials in one.
Ian123
in
Ramsays Disease
9 years ago
FLAIR Trial - ErnieUK More Dehydration Round 5 FCR
Decision was made then to go ahead with the
Rituximab
and start the F + C Chemotherapy, and then sort the red cells the next day (gulp).
Decision was made then to go ahead with the
Rituximab
and start the F + C Chemotherapy, and then sort the red cells the next day (gulp).
Ernest2
in
CLL Support
9 years ago
Taste buds
Following six treatments with fcr i now seem to have lost my sence of taste and smell is this normal.
Following six treatments with fcr i now seem to have lost my sence of taste and smell is this normal.
d011y
in
CLL Support
9 years ago
Chlorambucil
Hi All, Any one having some feed back on this medicine? Is it better option than FCR? Regards
Hi All, Any one having some feed back on this medicine? Is it better option than FCR? Regards
AAli
in
CLL Support
9 years ago
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