Well no calls over weekend as promised by Rheumy secretary so I called her 9 am again not founding as cheery as normal as I glared again. So I said I'm in radiotherapy today do call before 2 pm.
2 pm came and went and I saw the radiotherapy consultant who agreed I need more radiotherapy to my left hand ASAP.
In the middle of this Rheumy called, told radio guy I was dorry but was waiting on this call and why. They said go round now to rheumatology .
Got a porter to push and off we went, waited an hour, got an apology for the whole thing eg jot getting infusion even tho he wrote prescription the day I saw him and for not bring told about clinic cancellation.
Fair enough so plan Tutuximab starts next Wednesday! Stay on Arava and methotrexate too. Restart steroid 15 mg orally.
So all good I hope and now fingers crossed that Rituximab is for me!!!
Written by
allanah
To view profiles and participate in discussions please or .
Oh Allanah I so hope so for you your sake. What a monumental stuff up. I thought I was the only one that attracted that many gremlins. Good Luck and everything crossed for you
Sounds like Fawlty Towers Hospital wing. But brilliant that things are now set up for next Wednesday, I hope it goes really well with new drug.
I hope it works for you after all this. Good luck. Farm
You've had a right old time with things Allanah, glad you're finally making some progress with the hospital problems. Hope new drug works well for you, lynda xx
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.