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Doxycycline
I am on
rituximab
and having various frequent infections because of it, this one being a chest infection.
I am on
rituximab
and having various frequent infections because of it, this one being a chest infection.
joannebond360
in
LUPUS UK
7 years ago
At last!
It's been six weeks since my second infusion of
Rituximab
. I have now managed to stop taking painkillers as of the middle of last week. Seem to be improving daily.
It's been six weeks since my second infusion of
Rituximab
. I have now managed to stop taking painkillers as of the middle of last week. Seem to be improving daily.
Ellieellie
in
NRAS
7 years ago
Diagnosed with Panca Vasculitis, Rhumatoid, and Osteoarthritis
I took 3 treatments of cyclophosphamide and it caused nodules to pop up on my fingers so he stopped them and started me on the
Rituximab
. He gave me 2 treatments of it and then told me my Vasculitis was in remission.
I took 3 treatments of cyclophosphamide and it caused nodules to pop up on my fingers so he stopped them and started me on the
Rituximab
. He gave me 2 treatments of it and then told me my Vasculitis was in remission.
deebeau
in
Vasculitis UK
7 years ago
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FCR, IBRUTINIB, VENETOCLAX what next...Stem Cell or CAR-T
Happy Easter everyone! So on this journey since Dec. 2010 and we can't seem to hit that remission "sweet spot" that we read about in the stats or trials - is it us or just the reality of how everyone's battle is unique in the world of CLL? We started V at the end of Feb. 2017 (as I posted our experience
Happy Easter everyone! So on this journey since Dec. 2010 and we can't seem to hit that remission "sweet spot" that we read about in the stats or trials - is it us or just the reality of how everyone's battle is unique in the world of CLL? We started V at the end of Feb. 2017 (as I posted our experience
NMMP
in
CLL Support
7 years ago
Trouble weaning off steroids
Then after several admissions into hospital, I was approved to go on biological infusion
Rituximab
back in October 2016. It has been about 4 months now since the infusions and blood tests show that
Rituximab
is working and so we have started weaning off the steroids again.
Then after several admissions into hospital, I was approved to go on biological infusion
Rituximab
back in October 2016. It has been about 4 months now since the infusions and blood tests show that
Rituximab
is working and so we have started weaning off the steroids again.
LydiaG
in
LUPUS UK
7 years ago
Rituximab infusion on Monday
Anyhow, on Monday I am having my first
Rituximab
infusion. ..it's a biologic drug. They are hoping it might save me a transplant in the future. At the moment my body attacks itself &is working it's way around organs.
Anyhow, on Monday I am having my first
Rituximab
infusion. ..it's a biologic drug. They are hoping it might save me a transplant in the future. At the moment my body attacks itself &is working it's way around organs.
madonbrew
in
Early CKD Support
7 years ago
Onwards and upwards
I started my first injection of
Rituximab
in early February. My skin has been very dry and this injection seemed to exacerbate it but it has now gone back to normal. I have no other symptoms and am now feeling like my old self.
I started my first injection of
Rituximab
in early February. My skin has been very dry and this injection seemed to exacerbate it but it has now gone back to normal. I have no other symptoms and am now feeling like my old self.
Hidden
in
Non Hodgkin's Lymphoma Friends
7 years ago
Chronic sinusitis following FCR?
My husband was diagnosed with CLL 6 years ago, Trisomy 12, a middle of the road but not common form. A year later he had FCR with great results but the remission lasted only 3 1/2 years. For the last year and a half he has had chronic sinusitis and for the last several months it has been serious. He
My husband was diagnosed with CLL 6 years ago, Trisomy 12, a middle of the road but not common form. A year later he had FCR with great results but the remission lasted only 3 1/2 years. For the last year and a half he has had chronic sinusitis and for the last several months it has been serious. He
Jls123
in
CLL Support
7 years ago
FCR and Bladder irritation
Hello All, I just thought I would pose a quick question to ask if these symptoms I have are common place or unrelated to FCR. I have just finished my 6th (and last) cycle of FCR just over a week ago. This last weekend I have started to need to go to toilet (pee) more often. I feel as
Hello All, I just thought I would pose a quick question to ask if these symptoms I have are common place or unrelated to FCR. I have just finished my 6th (and last) cycle of FCR just over a week ago. This last weekend I have started to need to go to toilet (pee) more often. I feel as
Rich316
in
CLL Support
7 years ago
Flying with Lupus/ITP
I was diagnosed with ITP and Lupus but as my medication is working for the Lupus and after having
rituximab
for the ITP last year I've now been discharged by the haematology department but I'm still seeing my specialist for Lupus.
I was diagnosed with ITP and Lupus but as my medication is working for the Lupus and after having
rituximab
for the ITP last year I've now been discharged by the haematology department but I'm still seeing my specialist for Lupus.
Sami1982
in
LUPUS UK
7 years ago
2nd episode of ITP - Question about speed of onset.
My current platelet count is a little over 200, initially it was 1 and then had prednisone, platelets, IVG and then a 4 week course of
Rituximab
administered.
My current platelet count is a little over 200, initially it was 1 and then had prednisone, platelets, IVG and then a 4 week course of
Rituximab
administered.
garyjacksteer
in
ITP Support Association
7 years ago
FCR lite for relapsed SLL
After having CR for 5 years, oncologist decided to start treatment in next few days. Primary driver is node size and weight loss. My 1st line of treatment was 6 cycles of FCR. Ibrunitib is available but it's very expensive. Probably this medicine will be in reach for common man in 2-3 years time. Finally
After having CR for 5 years, oncologist decided to start treatment in next few days. Primary driver is node size and weight loss. My 1st line of treatment was 6 cycles of FCR. Ibrunitib is available but it's very expensive. Probably this medicine will be in reach for common man in 2-3 years time. Finally
mag1309
in
CLL Support
7 years ago
Post FCR - stopping Aciclovir
I finished FCR just over 3 months ago. I actually only had 5 sessions as I had responded so well. For the first 6 weeks or so, I was on cloud nine, but then all my muscles started aching. I felt like an old woman when getting out of bed in the morning, or getting up from a chair. My GP said lots
I finished FCR just over 3 months ago. I actually only had 5 sessions as I had responded so well. For the first 6 weeks or so, I was on cloud nine, but then all my muscles started aching. I felt like an old woman when getting out of bed in the morning, or getting up from a chair. My GP said lots
Grannajan
in
CLL Support
7 years ago
Feeling worse after FCR treatment.
Anyone here had FCR treatment? I have post chemo questions. I have a question...post-chemo question. Did you feel mentally different? Some days I feel so down and so blah, it's hard to explain. I don't feel like myself. Like I strain to smile and put so much energy into smiling and it feels fake but
Anyone here had FCR treatment? I have post chemo questions. I have a question...post-chemo question. Did you feel mentally different? Some days I feel so down and so blah, it's hard to explain. I don't feel like myself. Like I strain to smile and put so much energy into smiling and it feels fake but
sunflwerchild
in
CLL Support
7 years ago
Bilimumab infusions
Starting bilimumab infusions soon for my SLE.Was having
rituximab
infusions but kept getting neutropenic after it.Anyone else having bilimumab?
Starting bilimumab infusions soon for my SLE.Was having
rituximab
infusions but kept getting neutropenic after it.Anyone else having bilimumab?
englishrose67
in
LUPUS UK
7 years ago
New to the group (not at all new to CLL!). Thought I'd say hello...
As this is a public forum, I don't want to go into specifics about how I did it (you can PM me if you wanna know), but I took steps to reduce the side effects of the chemo (I didn't know very much about
Rituximab
or Fludarabine but I'd heard about Cyclophosphamide and I knew enough to know that it was
As this is a public forum, I don't want to go into specifics about how I did it (you can PM me if you wanna know), but I took steps to reduce the side effects of the chemo (I didn't know very much about
Rituximab
or Fludarabine but I'd heard about Cyclophosphamide and I knew enough to know that it was
Hidden
in
CLL Support
7 years ago
How should I feel.
I've had two infusions of
Rituximab
the second being on the 12th January this year. I know it takes up to 16 weeks to notice a difference but I am just wondering how I know it is working? I still have aches and my arms, shoulders and hands are still sore. Knees ache as well as being stiff.
I've had two infusions of
Rituximab
the second being on the 12th January this year. I know it takes up to 16 weeks to notice a difference but I am just wondering how I know it is working? I still have aches and my arms, shoulders and hands are still sore. Knees ache as well as being stiff.
Ellieellie
in
NRAS
7 years ago
Worried about the numbers about to start FCR
Hello, After optimistically signing up to the FLAIR trial last week, we got the call yesterday to say Mum had been randomised to receive FCR which was a little disappointing. We were told that they are still awaiting all results, but her CLL infiltration was very high at 75%. I am now worried sick that
Hello, After optimistically signing up to the FLAIR trial last week, we got the call yesterday to say Mum had been randomised to receive FCR which was a little disappointing. We were told that they are still awaiting all results, but her CLL infiltration was very high at 75%. I am now worried sick that
Pinkvixon
in
CLL Support
7 years ago
Platelet count going down
When the count reached 48 I had 4
Rituximab
infusions in November 2016. After the 2nd infusion the count was back to 130. They continued with 2 more treatments and the count was down to 106. and continues:12/21- 87, 1/9 - 81, 2/2 - 73.
When the count reached 48 I had 4
Rituximab
infusions in November 2016. After the 2nd infusion the count was back to 130. They continued with 2 more treatments and the count was down to 106. and continues:12/21- 87, 1/9 - 81, 2/2 - 73.
budm
in
CLL Support
7 years ago
First Online Electronic Blood Test Results on Patients Know Best
Just writing to say I've just accessed my first set of blood test results electronically via the online system provided by organisation "Patients Know Best: https://www.patientsknowbest.com/ I think this has been rolled out to a number of Health authorities, I'm with OUH. Please reply if you are also
Just writing to say I've just accessed my first set of blood test results electronically via the online system provided by organisation "Patients Know Best: https://www.patientsknowbest.com/ I think this has been rolled out to a number of Health authorities, I'm with OUH. Please reply if you are also
Ernest2
in
CLL Support
7 years ago
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