FCR lite for relapsed SLL: After having CR for... - CLL Support

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FCR lite for relapsed SLL

mag1309 profile image
6 Replies

After having CR for 5 years, oncologist decided to start treatment in next few days. Primary driver is node size and weight loss. My 1st line of treatment was 6 cycles of FCR.

Ibrunitib is available but it's very expensive. Probably this medicine will be in reach for common man in 2-3 years time.

Finally, we have opted for FCR lite and keep BR for future I.e for old age as I am 44 now.

Chemo is starting from 6th April. Hope body will respond well for FCR-lite.

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mag1309
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6 Replies
ballyhoo profile image
ballyhoo

hope all the best.

Bubnojay profile image
Bubnojay

Hi Mag1309

Just want to wish you success with FCR lite, hope it achieves a good remission.

Best wishes

Bubnjay1

hopefulbunny profile image
hopefulbunny

The very best of good wishes sent to you. Xxx

benmarto profile image
benmarto

It seems that ibrutinib is not approved for second line therapy in the UK - correct? It is in the US.

mag1309 profile image
mag1309 in reply tobenmarto

I am in India. Ibunitib is approved but very expensive. So my planned following best case.

- FCR lite- Starting tomorrow

- on replapse (around age 50 ), go for BR or Ibrunitib. At that time, Ibrunitib will be covered in insurance and affordable also.

Young patient need to go through many therpies before they loose hope.:-(

benmarto profile image
benmarto in reply tomag1309

You might look into a clinical trial. Are you in England? Are there many trials active there? One option would be acalabrutinib trial (2nd generation BTKI).

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