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Better Understanding
I knew and expressed here that I was fearful of crashing this winter as I have since 1995 to varying degrees. I had set a marker of April 01 as a measure. I was successful although I will wait until April 01 to see it in my rear view mirror, and have a celebration although I am already celebrating. Some
I knew and expressed here that I was fearful of crashing this winter as I have since 1995 to varying degrees. I had set a marker of April 01 as a measure. I was successful although I will wait until April 01 to see it in my rear view mirror, and have a celebration although I am already celebrating. Some
WIZARD6787
in
Pernicious Anaemia Society
4 months ago
advice, thoughts please, feeling rather desperate?!
hi I only got one response to my recent post which was so kind but no feedback so am trying again as I’m a bit stumped. I’d hoped going on NDT would relieve fibro symptoms and generally help me feel better, and give me more energy, but despite latest test results I don’t feel that much different. Certainly
hi I only got one response to my recent post which was so kind but no feedback so am trying again as I’m a bit stumped. I’d hoped going on NDT would relieve fibro symptoms and generally help me feel better, and give me more energy, but despite latest test results I don’t feel that much different. Certainly
Starseed56
in
Thyroid UK
4 months ago
B12 result after 6 months…
Hi, So initially in October I was diagnosed with what they suspect to be pernicious anaemia, I had a negative IF test but due to me having diabetes and no other factors which could indicate why I was so low in B12 they put it down to me having pernicious anaemia. I had 6 loading doses after which my
Hi, So initially in October I was diagnosed with what they suspect to be pernicious anaemia, I had a negative IF test but due to me having diabetes and no other factors which could indicate why I was so low in B12 they put it down to me having pernicious anaemia. I had 6 loading doses after which my
Nikkim236
in
Pernicious Anaemia Society
4 months ago
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B12 injections
Hi,I've been diagnosed with PA since 2021. I was on loading doses, then 3 monthly. This didn't agree with me and I was exhausted so I was moved from 3 months to 6 weeks. I was still finding myself wiped after 4 weeks ish so was moved to 3 weeks. During my 3 weekly treatment I began getting facial tingling
Hi,I've been diagnosed with PA since 2021. I was on loading doses, then 3 monthly. This didn't agree with me and I was exhausted so I was moved from 3 months to 6 weeks. I was still finding myself wiped after 4 weeks ish so was moved to 3 weeks. During my 3 weekly treatment I began getting facial tingling
GranolaLover60
in
Pernicious Anaemia Society
4 months ago
Test results
I had some blood tests as im feeling really exhausted running on empty and really cold all the time. I enclose the results which all look normal could it be low cortisol which I had done a year ago. I've been through major stress and operation plus other health problems. Vit D was 94.5 had done in Nov
I had some blood tests as im feeling really exhausted running on empty and really cold all the time. I enclose the results which all look normal could it be low cortisol which I had done a year ago. I've been through major stress and operation plus other health problems. Vit D was 94.5 had done in Nov
France92
in
Thyroid UK
4 months ago
what to ask GP
I’ve been on a low dose of Levo for about 3 years. It took ages to get up to 50mg a day as I’m really sensitive to it. Because of palpitations, tummy upsets etc I now split 50mg into two separate doses ; 25mg in morning and 25mg at night and I’ve been fine doing this since December last year. My test
I’ve been on a low dose of Levo for about 3 years. It took ages to get up to 50mg a day as I’m really sensitive to it. Because of palpitations, tummy upsets etc I now split 50mg into two separate doses ; 25mg in morning and 25mg at night and I’ve been fine doing this since December last year. My test
MyOrangeDog
in
Thyroid UK
4 months ago
Lanzoprazole and side effects
Hello, I am over 2 years past Ivor Lewis oesophagectomy and have been taking Lanzoprazole 15mg once a day, then Gavison at night. I’ve found that my folate and ferritin are low , probably caused by ppi use and wonder if anyone has managed to come off them. I know they have lots of potential bad effects
Hello, I am over 2 years past Ivor Lewis oesophagectomy and have been taking Lanzoprazole 15mg once a day, then Gavison at night. I’ve found that my folate and ferritin are low , probably caused by ppi use and wonder if anyone has managed to come off them. I know they have lots of potential bad effects
PopandMo
in
Oesophageal & Gastric Cancer
4 months ago
Hypo after all?
Hello everyone, this is my first post, though I’ve been gleaning pearls of wisdom from this site for a couple of years, so thank you all! I’m a 60-year-old male. I’ve had chronic fatigue since 1988; tight forehead pain and a horrible “saturated brain” feeling since the late 1990s (brought on by reading
Hello everyone, this is my first post, though I’ve been gleaning pearls of wisdom from this site for a couple of years, so thank you all! I’m a 60-year-old male. I’ve had chronic fatigue since 1988; tight forehead pain and a horrible “saturated brain” feeling since the late 1990s (brought on by reading
KingJohnVII
in
Thyroid UK
4 months ago
blood test results
hello just got some blood test results back Iron 5.7 (5.8/34.5) Ferritin 10.03 (9.9-120) B12 303 (196-771) Folic acid 5.6 (3.8-26.8) Vitamin D 62 (50-375) Tsh 2.1 (0.3-5.5) Hbac1 40 (0-42) Glucose 4.1 (4-6) I am constantly hungry all the tired I’m always craving food tsh has come down a bit
hello just got some blood test results back Iron 5.7 (5.8/34.5) Ferritin 10.03 (9.9-120) B12 303 (196-771) Folic acid 5.6 (3.8-26.8) Vitamin D 62 (50-375) Tsh 2.1 (0.3-5.5) Hbac1 40 (0-42) Glucose 4.1 (4-6) I am constantly hungry all the tired I’m always craving food tsh has come down a bit
Pinkbarbie20
in
Thyroid UK
4 months ago
Made my decision about ablation and very interesting article
Firstly, to my surprise I have an ablation booked for April 9th. But.....after doing much reading and talking to my EP I think I am going to decline at this time. What made my mind up is the article I have attached below which I think some of you will find very interesting. It talks about the PVI and
Firstly, to my surprise I have an ablation booked for April 9th. But.....after doing much reading and talking to my EP I think I am going to decline at this time. What made my mind up is the article I have attached below which I think some of you will find very interesting. It talks about the PVI and
Vicmeister
in
Atrial Fibrillation Support
4 months ago
Angular Cheilitis?
Just wondering if anyone suffers from Angular Cheilitis with their RA keep getting it and mentioning to the GP but he just ignored it. I've had my B12 checked and it was ok. I've read sulfasalazine can cause it. I'm also on Benepali jab once a week. Ive also read it could be folate levels but I think
Just wondering if anyone suffers from Angular Cheilitis with their RA keep getting it and mentioning to the GP but he just ignored it. I've had my B12 checked and it was ok. I've read sulfasalazine can cause it. I'm also on Benepali jab once a week. Ive also read it could be folate levels but I think
Haz58
in
NRAS
4 months ago
what does urine colour indicate?
Hi everyone. Just a quick question! I am on a cruise holiday at present and am SI 3 x 1.5 hydro b12 daily. My pee is a light lemon and clear so no sign of the excess b12 being pee'd out as far as colour goes. Does this mean that my body is utilizing all of what I am SI?? I am still experiencing neuropathy
Hi everyone. Just a quick question! I am on a cruise holiday at present and am SI 3 x 1.5 hydro b12 daily. My pee is a light lemon and clear so no sign of the excess b12 being pee'd out as far as colour goes. Does this mean that my body is utilizing all of what I am SI?? I am still experiencing neuropathy
brenanddave
in
Pernicious Anaemia Society
4 months ago
Goitre and antibodies but bloods all fine
Hi, I developed a fairly big lump in my neck in July 23. Did the 2 week wait thing and had an ultrasound and saw an ENT consultant. They diagnosed a thyroid nodule and said it looked normal with no need for FNA. Consultant asked for endo to see me and I am still waiting for this or any acknowledgment
Hi, I developed a fairly big lump in my neck in July 23. Did the 2 week wait thing and had an ultrasound and saw an ENT consultant. They diagnosed a thyroid nodule and said it looked normal with no need for FNA. Consultant asked for endo to see me and I am still waiting for this or any acknowledgment
LibertyCake
in
Thyroid UK
4 months ago
new to RLS
hi, I’ve been trying to understand what RLS is and what treatments to have. The neurologist tells me I have RLS, my symptoms are tingling sensation, sometime pins and needles in both feet and calves. I have it all day, everyday. I notice it when resting and don’t when standing and walking. My B12
hi, I’ve been trying to understand what RLS is and what treatments to have. The neurologist tells me I have RLS, my symptoms are tingling sensation, sometime pins and needles in both feet and calves. I have it all day, everyday. I notice it when resting and don’t when standing and walking. My B12
Rosecup
in
Restless Legs Syndrome
4 months ago
Suspected Pernicious Anemia - what next?
Hello, I am very glad to have found this forum as I have been researching B12D and PA a lot recently. I became familiar with the society’s website and found it so helpful. I am 29F in the US and I suspect I have Pernicious Anemia. This is what I know so far (sorry in advance if this post rambles on)
Hello, I am very glad to have found this forum as I have been researching B12D and PA a lot recently. I became familiar with the society’s website and found it so helpful. I am 29F in the US and I suspect I have Pernicious Anemia. This is what I know so far (sorry in advance if this post rambles on)
Marlowekat
in
Pernicious Anaemia Society
4 months ago
folate dropping
I have been injecting since July 2023, thanks to you all, I knew to check my ferritin when I felt something else was off…since no doctor thought it necessary. It was 14. Now I am on iron supplements. My folate has always been >24. However, since starting the iron, my folate has dropped to 15 (still
I have been injecting since July 2023, thanks to you all, I knew to check my ferritin when I felt something else was off…since no doctor thought it necessary. It was 14. Now I am on iron supplements. My folate has always been >24. However, since starting the iron, my folate has dropped to 15 (still
MuppDog
in
Pernicious Anaemia Society
4 months ago
Prep for egg collection- impryl or coq10?
hi lovely warriors, I hope you’re all keeping strong and positive on your journeys xx We are preparing for new fresh cycle , the consultant advised to take impryl (for both me and husband) and 200 mg coq10 x 3 a day. Today I was reading Impryl website and it says not to mix with coq10. Now I’m wondering
hi lovely warriors, I hope you’re all keeping strong and positive on your journeys xx We are preparing for new fresh cycle , the consultant advised to take impryl (for both me and husband) and 200 mg coq10 x 3 a day. Today I was reading Impryl website and it says not to mix with coq10. Now I’m wondering
Hopewhite
in
Fertility Network UK
4 months ago
Questions about TSH and advice on results over the past year much appreciated
Hi everybody, I've posted several times lately and I just wanted to ask for advice on thyroid related issues. I had COVID 3 times from June 22 - Jan 23 and was symptomatic each time. I did have a diagnosis of Fibromyalgia in 2018 but had been feeling a lot better in 2020 until I got COVID. Above
Hi everybody, I've posted several times lately and I just wanted to ask for advice on thyroid related issues. I had COVID 3 times from June 22 - Jan 23 and was symptomatic each time. I did have a diagnosis of Fibromyalgia in 2018 but had been feeling a lot better in 2020 until I got COVID. Above
Heybella
in
Thyroid UK
4 months ago
Daughter, still really not great and cannot get through to medics
Short one as , well, I am buggered. Brain not working , so here to pick brains. As per not really getting anywhere with Gp. They have sent me a form to arrange repeat bloods, usually children are booked into walk in centre next door fairly quickly , but booking myself that isn't an option. So they
Short one as , well, I am buggered. Brain not working , so here to pick brains. As per not really getting anywhere with Gp. They have sent me a form to arrange repeat bloods, usually children are booked into walk in centre next door fairly quickly , but booking myself that isn't an option. So they
Polo22
in
Pernicious Anaemia Society
4 months ago
3 am protocol for T3, please tell me about it?
Please could you tell me what I need to know about the 3 am protocol for T3? Does there need to be a gradual transition from split dosing? Anything else I should know? I have been on T3 only for some years and recently have been very tired and depressed, for me the usual symptoms of being hypo. T3
Please could you tell me what I need to know about the 3 am protocol for T3? Does there need to be a gradual transition from split dosing? Anything else I should know? I have been on T3 only for some years and recently have been very tired and depressed, for me the usual symptoms of being hypo. T3
thyr01d
in
Thyroid UK
4 months ago
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