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Richter's syndrome
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Does anyone know how long??
Hi, my hubby has an operation on 18th December to have a sperm retrieval procedure. I was wondering if anyone has had this and how long it would take from that procedure to start IVF?? Trying to keep positive thoughts that they are going to find something x
Hi, my hubby has an operation on 18th December to have a sperm retrieval procedure. I was wondering if anyone has had this and how long it would take from that procedure to start IVF?? Trying to keep positive thoughts that they are going to find something x
bec90
in
Fertility Network UK
6 years ago
15 nights into withdrawal
Hello! Yes, 15 nights into my withdrawal from Ropinirole and I'm down from 1.5mg to 0.75mg. Indeed, things were going so well that it had crossed my mind to start shortening the time between the reductions. But then, by the weekend the symptoms of RLS started coming on earlier in the evenings and being
Hello! Yes, 15 nights into my withdrawal from Ropinirole and I'm down from 1.5mg to 0.75mg. Indeed, things were going so well that it had crossed my mind to start shortening the time between the reductions. But then, by the weekend the symptoms of RLS started coming on earlier in the evenings and being
RosieRow
in
Restless Legs Syndrome
6 years ago
Rayos and Plaquenil and burning feet
I was wondering if anyone is on rayos and or plaquenil and experiencing sore and burning feet? My feet are painful to walk on them and they burn almost all the time. I am not diabetic and the foot dr. can't find anything wrong. That just leaves medication as being the problem. I have been on both of
I was wondering if anyone is on rayos and or plaquenil and experiencing sore and burning feet? My feet are painful to walk on them and they burn almost all the time. I am not diabetic and the foot dr. can't find anything wrong. That just leaves medication as being the problem. I have been on both of
Linny3
in
PMRGCAuk
6 years ago
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Worried about Down syndrome result
Hi Everyone, I am nearly 20 weeks pregnant and it's my first pregnancy , I am just worried about my result of Down syndrome. I did the combined test (CT) at week 17 and the result is 1.35% of increased risk and 98.65% of low risk, and I am scared to do the CVS or the Amniocentesis test because of their
Hi Everyone, I am nearly 20 weeks pregnant and it's my first pregnancy , I am just worried about my result of Down syndrome. I did the combined test (CT) at week 17 and the result is 1.35% of increased risk and 98.65% of low risk, and I am scared to do the CVS or the Amniocentesis test because of their
Tittina
in
Pregnancy and Parenting Support
6 years ago
Anaesthesia
Hello everyone! First of all, I want to thank everyone in this group for being involved and sharing your life. I will start sharing more. I have been diagnosed since Jan 2015 and I’m doing really well. I’m a 55 yr old female artist. Taking c/l 25/100 three times a day plus I’m on HDT therapy, taking
Hello everyone! First of all, I want to thank everyone in this group for being involved and sharing your life. I will start sharing more. I have been diagnosed since Jan 2015 and I’m doing really well. I’m a 55 yr old female artist. Taking c/l 25/100 three times a day plus I’m on HDT therapy, taking
StudioV
in
Cure Parkinson's
6 years ago
Eight days into withdrawal
Good morning all! Well, I've done the first eight days and it's been better than I had imagined. Last Monday night I reduced from 1.5mg Ropinirole to 1.25. I increased the codeine to approx 37mg - cutting a 15mg in half to go alongside a 30mg. Symptoms were worse in the evenings, but only occasionally
Good morning all! Well, I've done the first eight days and it's been better than I had imagined. Last Monday night I reduced from 1.5mg Ropinirole to 1.25. I increased the codeine to approx 37mg - cutting a 15mg in half to go alongside a 30mg. Symptoms were worse in the evenings, but only occasionally
RosieRow
in
Restless Legs Syndrome
6 years ago
Windwalker
I was posting regularly and lost track and now I have returned. My mom and her 9 sisters all had restless legs and some on them took Paragoric which you could buy over the counter as long as the druggist kept track and only sold you 3 ounces a week.. I don't think any of them abused the opiate which
I was posting regularly and lost track and now I have returned. My mom and her 9 sisters all had restless legs and some on them took Paragoric which you could buy over the counter as long as the druggist kept track and only sold you 3 ounces a week.. I don't think any of them abused the opiate which
Windwalker
in
Restless Legs Syndrome
6 years ago
Sleepless in California
I've been taking pramipexole for about 2 years and I've always suspected that it's causing me sleepless nights I can only sleep about 3 hours a night. Having a sleep study done at the hospital soon but after reading many of these posts I've known what the problem is for a long time and it is the pramipexole
I've been taking pramipexole for about 2 years and I've always suspected that it's causing me sleepless nights I can only sleep about 3 hours a night. Having a sleep study done at the hospital soon but after reading many of these posts I've known what the problem is for a long time and it is the pramipexole
Rlskid
in
Restless Legs Syndrome
6 years ago
Why have I never known of RLS-UK before now?
Well...having had RLS and Period Limb Movement diagnosed in 2000 (following a chance conversation with a friend/colleague who worked in the sleep study dept of a large teaching hospital) although I certainly had symptoms from childhood, I have had UK hospital/ Consultant input since 2000 and from approx
Well...having had RLS and Period Limb Movement diagnosed in 2000 (following a chance conversation with a friend/colleague who worked in the sleep study dept of a large teaching hospital) although I certainly had symptoms from childhood, I have had UK hospital/ Consultant input since 2000 and from approx
UpandDownallnight
in
Restless Legs Syndrome
6 years ago
First Rheumatologist Appointment
Hi I am new to this. So I am 27 and have hyper mobility. Growing up I’ve had various ailments/ injuries etc but it hasn’t been till recent years that I’ve realised that they all could be linked to EDS. The list is long but to name a few: - full score on Beighton scale - unstable joints - joint
Hi I am new to this. So I am 27 and have hyper mobility. Growing up I’ve had various ailments/ injuries etc but it hasn’t been till recent years that I’ve realised that they all could be linked to EDS. The list is long but to name a few: - full score on Beighton scale - unstable joints - joint
Aqua9
in
Ehlers-Danlos Support UK
6 years ago
AUTOPHAGY. An important link to wellness
https://youtu.be/10jNZleNH9w Fasting and intermittent fasting are the keys to recycling the garbage in your cells and turning it into the raw materials to build new healthy cells. You can take the amyloid plaques that are killing your dopaminergic cells and causing your disease and turn them into amino
https://youtu.be/10jNZleNH9w Fasting and intermittent fasting are the keys to recycling the garbage in your cells and turning it into the raw materials to build new healthy cells. You can take the amyloid plaques that are killing your dopaminergic cells and causing your disease and turn them into amino
bassofspades
in
Cure Parkinson's
6 years ago
Tezx
Hi my name is Terry, i have suffered from RLS for a number of yrs on and off , however it got worse this year. I thought that maybe it was because i was slowly weaning myself off morphine sulphate as i have back problem and obviously thought it was a side effect but RLS still continues. My last GP prescribed
Hi my name is Terry, i have suffered from RLS for a number of yrs on and off , however it got worse this year. I thought that maybe it was because i was slowly weaning myself off morphine sulphate as i have back problem and obviously thought it was a side effect but RLS still continues. My last GP prescribed
Oscarsaurus
in
Restless Legs Syndrome
6 years ago
Raspberry leaf tea and ivf
I have read a mix of stories about RLT and I’m abit confused on if it’s safe to drink before my transfer (booked for Tuesday). I have been drinking it the past week to thicken my lining..well could be coincidence but something got it to where it needs to be. Anyway, on my scan on Tuesday I was told my
I have read a mix of stories about RLT and I’m abit confused on if it’s safe to drink before my transfer (booked for Tuesday). I have been drinking it the past week to thicken my lining..well could be coincidence but something got it to where it needs to be. Anyway, on my scan on Tuesday I was told my
kirstyblue
in
Fertility Network UK
6 years ago
Fibromyalgia and joint hypermobility
This may have been discussed but has anyone any advice. -i was diagnosed with fibromyalgia some 10 yrs ago but given family history and various symptoms I think I may have joint hypermobility. Have got another referral to see a rheumatologist soon and wondered how I should broach/discuss this. I seem
This may have been discussed but has anyone any advice. -i was diagnosed with fibromyalgia some 10 yrs ago but given family history and various symptoms I think I may have joint hypermobility. Have got another referral to see a rheumatologist soon and wondered how I should broach/discuss this. I seem
Lambsceugh07
in
Fibromyalgia Action UK
6 years ago
Another question from me - Long haul flight in IVF 2ww
Hi All When I embark on round 2 I have a works conference in the US for 4 days during the 2ww. It will be 7 days after 5det or 9 days after 3det. At the moment I have my flights booked but don't really want to go, its a big p1ss up which I clearly won't be partaking in and I am worried about jet lag
Hi All When I embark on round 2 I have a works conference in the US for 4 days during the 2ww. It will be 7 days after 5det or 9 days after 3det. At the moment I have my flights booked but don't really want to go, its a big p1ss up which I clearly won't be partaking in and I am worried about jet lag
Hidden
in
Fertility Network UK
6 years ago
Starting to withdraw from Ropinirole
Hello, my fellow sufferers. Well, I've taken the plunge. Last night I reduced the 1.5mg of Ropinirole I've been taking for three months back to the 1.25mg I was having three months ago. My GP has been very sympathetic, admitted that I know more about it than I do, and has given me codeine for the past
Hello, my fellow sufferers. Well, I've taken the plunge. Last night I reduced the 1.5mg of Ropinirole I've been taking for three months back to the 1.25mg I was having three months ago. My GP has been very sympathetic, admitted that I know more about it than I do, and has given me codeine for the past
RosieRow
in
Restless Legs Syndrome
6 years ago
Timing of drugs - update
So all of this worry and concern about timings of our drugs etc, getting mixed up initially (going an hour the other way for my alarm setting!), then fixing it all before I went to sleep.... I realised that I have been taking my middle of the day progynova exactly an hour late every single day since
So all of this worry and concern about timings of our drugs etc, getting mixed up initially (going an hour the other way for my alarm setting!), then fixing it all before I went to sleep.... I realised that I have been taking my middle of the day progynova exactly an hour late every single day since
Hidden
in
Fertility Network UK
6 years ago
Other’s opinions
Was just messaging my bff saying how I think my Mum thinks we are silly going for IVF. Story is I fell pregnant in Sep 18 but had MMC. The month I fell was the only normal 28 day cycle I had with ov on day 14. Not been able to get pregnant since and in April was prescribed Clomid to get the ovulation
Was just messaging my bff saying how I think my Mum thinks we are silly going for IVF. Story is I fell pregnant in Sep 18 but had MMC. The month I fell was the only normal 28 day cycle I had with ov on day 14. Not been able to get pregnant since and in April was prescribed Clomid to get the ovulation
Rivaligure
in
Fertility Network UK
6 years ago
Clonidine to counteract alertness from Opioid
Hi - After taking mirapex for 10 years and then augmenting, withdrawal etc, (many of you know the awful drill,) I was prescribed low dose oxycodone which resolves the RLS symptoms completely, but seems to cause inability to sleep or alerting. I have now been prescribed clonidine to help with the restlessness
Hi - After taking mirapex for 10 years and then augmenting, withdrawal etc, (many of you know the awful drill,) I was prescribed low dose oxycodone which resolves the RLS symptoms completely, but seems to cause inability to sleep or alerting. I have now been prescribed clonidine to help with the restlessness
Walras
in
Restless Legs Syndrome
6 years ago
Iron supplements and levadopa.
Discovered this little snippet, on my travels in the ether. Hope it helps some people. "Iron supplements can decrease the availability of several medications, including levodopa, which is used to treat restless leg syndrome and Parkinson's disease and levothyroxine, which is used to treat a low-functioning
Discovered this little snippet, on my travels in the ether. Hope it helps some people. "Iron supplements can decrease the availability of several medications, including levodopa, which is used to treat restless leg syndrome and Parkinson's disease and levothyroxine, which is used to treat a low-functioning
Madlegs1
in
Restless Legs Syndrome
6 years ago
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