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1 1/2yrs of treatment and I’m getting worse again.
Need advice. I’m concerned. I was diagnosed with PA (lack IF via blood test) a year and a half ago. I have been on daily Hydroxo injections since. I started at a high concentrated dose (I’m in US) of 5,000mcg day and dosed it down to 1,750mcg day. I maintained this dose for 6 plus months and still
Need advice. I’m concerned. I was diagnosed with PA (lack IF via blood test) a year and a half ago. I have been on daily Hydroxo injections since. I started at a high concentrated dose (I’m in US) of 5,000mcg day and dosed it down to 1,750mcg day. I maintained this dose for 6 plus months and still
lb9999
in
Pernicious Anaemia Society
2 months ago
Is it harmful to take Vitamin D & not Vitamin K?
I read that taking vitamin D while not supplementing with vitamin K also can be dangerous as it can lead to calcification of the arteries. I am on warfarin and have been told that I really need to up my Vitamin D, but what do I do about vitamin K?
I read that taking vitamin D while not supplementing with vitamin K also can be dangerous as it can lead to calcification of the arteries. I am on warfarin and have been told that I really need to up my Vitamin D, but what do I do about vitamin K?
gazaeee
in
Anticoagulation Support
2 months ago
First set of bloods after starting T3
Hello again everyone! I wonder if I could get some views please on my latest blood results before speaking to the consultant next week? I’ve now been taking T3 for 8 weeks. 5mcg twice a day. Thats along with 50mcg of levothyroxine. (It was 75 prior to starting T3) Bloods before that (February) were
Hello again everyone! I wonder if I could get some views please on my latest blood results before speaking to the consultant next week? I’ve now been taking T3 for 8 weeks. 5mcg twice a day. Thats along with 50mcg of levothyroxine. (It was 75 prior to starting T3) Bloods before that (February) were
Loopnova
in
Thyroid UK
2 months ago
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I'm currently under an endocrinologist, we discussed possible treatment also looking at other reasons why I'm tired(especially in afternoons) plus other usual symptoms associated with hypothyroidism, I've Ords & anti bodies & Doi2 deficiency. Currently on 100/125mcg alternate so far so good. In July
I'm currently under an endocrinologist, we discussed possible treatment also looking at other reasons why I'm tired(especially in afternoons) plus other usual symptoms associated with hypothyroidism, I've Ords & anti bodies & Doi2 deficiency. Currently on 100/125mcg alternate so far so good. In July
Humphre
in
Thyroid UK
2 months ago
Hair Loss on Yuflyma
Hi everyone I have been on Yuflyma for 6 weeks and have noticed an increasing amount of hair loss. I am also on Folic acid seven days a week as I was previously on Methotrexate , but stopped the methotrexate a few weeks ago. I had been on Methotrxate since May of last year, both tablets and then metoject
Hi everyone I have been on Yuflyma for 6 weeks and have noticed an increasing amount of hair loss. I am also on Folic acid seven days a week as I was previously on Methotrexate , but stopped the methotrexate a few weeks ago. I had been on Methotrxate since May of last year, both tablets and then metoject
MDWinter23
in
NRAS
2 months ago
Vit D duration
Hi all Hope everyone is doing ok.I’ve been supplementing Vit d for approximately 5-6 months.Question is,how long should I leave it before testing,and do most people just keep supplementing anyway? Cheers
Hi all Hope everyone is doing ok.I’ve been supplementing Vit d for approximately 5-6 months.Question is,how long should I leave it before testing,and do most people just keep supplementing anyway? Cheers
oily1601
in
Thyroid UK
9 months ago
Musings on stress relievers – I know what might help to alleviate stress, but why don’t I do them?
Spoiler alert: This post is REALLY long! Stress seems to be a biggie for most of us in this day and age. Part of the human condition in general it would appear (thanks cave dwelling ancestors!) and also more specifically when dealing with PMR/GCA. As PMRpro and others often mention, it is frequently
Spoiler alert: This post is REALLY long! Stress seems to be a biggie for most of us in this day and age. Part of the human condition in general it would appear (thanks cave dwelling ancestors!) and also more specifically when dealing with PMR/GCA. As PMRpro and others often mention, it is frequently
ubaoz
in
PMRGCAuk
2 months ago
Questions for Endocrinologist
Today is the day, I am finally seeing an endocrinologist. Any suggestions of things to ask? Trying to be optimistic about the appointment but quietly cautious. Below are the questions I have so far: - FT3 measurement to ensure adequate conversion - Pregnancy monitoring and appropriate FT4 and TSH levels
Today is the day, I am finally seeing an endocrinologist. Any suggestions of things to ask? Trying to be optimistic about the appointment but quietly cautious. Below are the questions I have so far: - FT3 measurement to ensure adequate conversion - Pregnancy monitoring and appropriate FT4 and TSH levels
Curious123
in
Thyroid UK
2 months ago
Vitamin D and AF
This is from Chat GPT, what do you think? fact checked on google and other sites. Vitamin D has been studied extensively for its potential impact on heart health, particularly its relationship with atrial fibrillation (AF). The findings are somewhat mixed, but several key points emerge from recent
This is from Chat GPT, what do you think? fact checked on google and other sites. Vitamin D has been studied extensively for its potential impact on heart health, particularly its relationship with atrial fibrillation (AF). The findings are somewhat mixed, but several key points emerge from recent
Japaholic
in
Atrial Fibrillation Support
2 months ago
Post-private GP update
Evening. A few people asked me to post an update following on from my visit to a private GP today. Well, it certainly wasn’t what I’d expected, which is to say I hadn’t expected much to happen other than another another blood test being needed and possibly a plan of action. What actually happened
Evening. A few people asked me to post an update following on from my visit to a private GP today. Well, it certainly wasn’t what I’d expected, which is to say I hadn’t expected much to happen other than another another blood test being needed and possibly a plan of action. What actually happened
TheMudRunner
in
Thyroid UK
2 months ago
Gabapentin and Oxycodone
Hi I'm back, looking for more advice from the wise ones on HealthUnlocked. I recently came off Pramipexole and persuaded my (UK NHS) neurologist to prescribed Oxycodone/Nalazone. I take 10mgs in the morning and 20 about 7.00pm (any later and it doesn't work). This led to an improvement, but my sleep
Hi I'm back, looking for more advice from the wise ones on HealthUnlocked. I recently came off Pramipexole and persuaded my (UK NHS) neurologist to prescribed Oxycodone/Nalazone. I take 10mgs in the morning and 20 about 7.00pm (any later and it doesn't work). This led to an improvement, but my sleep
RLSHell
in
Restless Legs Syndrome
9 months ago
Fatigue
I was diagnosed with endo about a month ago after my first laparoscopy. I’ve had symptoms since I was about 15/16. One of the things I struggle with the most, that has been progressively getting worse, is feeling tired and fatigued all the time. I never have any energy and don’t feel like doing anything
I was diagnosed with endo about a month ago after my first laparoscopy. I’ve had symptoms since I was about 15/16. One of the things I struggle with the most, that has been progressively getting worse, is feeling tired and fatigued all the time. I never have any energy and don’t feel like doing anything
Purplepet23
in
Endometriosis UK
3 months ago
Elevated Vitamin B 12
i am embarrassed to write this ,,,my bloods cam back after six months of Urso and my ALP went from 385 to 175, AST and ALT are now normal. I was so excited…..then i saw my Vitamin V 12 result. ULN here is 652…mine was 1101. I was taking a very high supplement of 10 000 mcg/day! I also eat a lot of
i am embarrassed to write this ,,,my bloods cam back after six months of Urso and my ALP went from 385 to 175, AST and ALT are now normal. I was so excited…..then i saw my Vitamin V 12 result. ULN here is 652…mine was 1101. I was taking a very high supplement of 10 000 mcg/day! I also eat a lot of
Gaspereaux
in
British Liver Trust
2 months ago
Curious on medication
List of my meds.Methylated Vit B Selenium Zinc Vit D Levothyroxine Vit c with Rosehip Magnesium What order should I take these in, I'm wondering if some are counteracting others. I usually take B, Zinc & Selenium in a morning on am empty stomach. 8am Then around 10 take levo Lunchtime vit d an
List of my meds.Methylated Vit B Selenium Zinc Vit D Levothyroxine Vit c with Rosehip Magnesium What order should I take these in, I'm wondering if some are counteracting others. I usually take B, Zinc & Selenium in a morning on am empty stomach. 8am Then around 10 take levo Lunchtime vit d an
jodes86baldwin
in
Thyroid UK
2 months ago
Exhausted still after B12 injection.
I was diagnosed a year ago with pernicious anemia. I find that literally half an hour after my injection I'm back to being exhausted again. I do also have RA so do get a lot of tiredness from that and the bucket load of medication I take. I did mention it to the nurse when I had my last injection
I was diagnosed a year ago with pernicious anemia. I find that literally half an hour after my injection I'm back to being exhausted again. I do also have RA so do get a lot of tiredness from that and the bucket load of medication I take. I did mention it to the nurse when I had my last injection
Dolly260
in
Pernicious Anaemia Society
2 months ago
Back to life thanks to this forum! GP Next steps though - further levo increase?
You've been so helpful. Your collective knowledge has led to a diagnosis of (ords) hashimotos, my levo being upped to 75mg and I'm pain free for the first time in 5 YEARS! Thank you. I feel alive again. I armed myself with printed NICE guidelines and facts/ research and GP didn't resist this time and
You've been so helpful. Your collective knowledge has led to a diagnosis of (ords) hashimotos, my levo being upped to 75mg and I'm pain free for the first time in 5 YEARS! Thank you. I feel alive again. I armed myself with printed NICE guidelines and facts/ research and GP didn't resist this time and
CherryPie2
in
Thyroid UK
2 months ago
So fed up
Had Thyroid 10 years now, plus depression recently I have been feeling fatigue cold tired exhausted, soft nails, I know I am not depressed, I know my body, had test done in March came back normal, full blood count, iron, ferritin etc the lot came back normal, but was told folic acid was low, started
Had Thyroid 10 years now, plus depression recently I have been feeling fatigue cold tired exhausted, soft nails, I know I am not depressed, I know my body, had test done in March came back normal, full blood count, iron, ferritin etc the lot came back normal, but was told folic acid was low, started
topgirl26
in
Thyroid UK
2 months ago
Vertigo 3 months after starting the B12 treatment
Hi, I got vertigo today. It has been 3 months after I started treatment for B12 and D deficiency. I understand that people have mentioned about reversing symptoms but wanted to check if someone else has faced vertigo and completely recovered from it. Which medicine did you take for vertigo apart?
Hi, I got vertigo today. It has been 3 months after I started treatment for B12 and D deficiency. I understand that people have mentioned about reversing symptoms but wanted to check if someone else has faced vertigo and completely recovered from it. Which medicine did you take for vertigo apart?
Trialerror
in
Pernicious Anaemia Society
2 months ago
List of medications to avoid?
Hi all, hope we're all getting our natural Vitamin D on this sunny Sunday☀️? I understand there are some medications that can badly affect us B12 deficients - certain antibiotics for instance. Is there a definitive list available? I've searched this forum but can't find anything. I'd really like to
Hi all, hope we're all getting our natural Vitamin D on this sunny Sunday☀️? I understand there are some medications that can badly affect us B12 deficients - certain antibiotics for instance. Is there a definitive list available? I've searched this forum but can't find anything. I'd really like to
Myoldcat
in
Pernicious Anaemia Society
2 months ago
Is it really necessary to take Alendronic Acid with these results?
I am 72 years old and have been diagnosed with osteoporosis/osteoporotic (Iam not sure which as the report refers to both). The results of my tests and recommendations are as follows:- Indication: PTH Risk Factor: Excess alcohol, fractured wrist age 64, maternal hip fracture, Secondary Osteoporosis
I am 72 years old and have been diagnosed with osteoporosis/osteoporotic (Iam not sure which as the report refers to both). The results of my tests and recommendations are as follows:- Indication: PTH Risk Factor: Excess alcohol, fractured wrist age 64, maternal hip fracture, Secondary Osteoporosis
NowandAgain
in
Bone Health and Osteoporosis UK
9 months ago
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