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systemic sclerosis
Does anyone suffer from terrible heat in veins and arteries(skin) yet raynaud's at the same time? But can also be shaking with cold inside - if that makes sense! I have Sjogren's and Systemic sclerosis but all the Doctors ignore the intolerable symptom of hot and cold I suffer
Does anyone suffer from terrible heat in veins and arteries(skin) yet raynaud's at the same time? But can also be shaking with cold inside - if that makes sense! I have Sjogren's and Systemic sclerosis but all the Doctors ignore the intolerable symptom of hot and cold I suffer
sessull
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Hives from cold weather and after getting sun burn
Has any one else had this problem I started to get hives a few years ago when exposed to cold and now have it very badly after getting sunburned. Rash with large itchy lumps. Is this part of the PMR effect on the immune system.
Has any one else had this problem I started to get hives a few years ago when exposed to cold and now have it very badly after getting sunburned. Rash with large itchy lumps. Is this part of the PMR effect on the immune system.
BLUEPMR
in
PMRGCAuk
1 year ago
My Condition
I was diagnosed with Asthma and mild Bronchiectasis 2 years ago I had a cough for almost 35 years after a severe bout of bronchitis I eventually saw a lung consultant in Glasgow who diagnosed my condition I have had 3 lung scans and my condition is stable My asthma is cough and I have about 4 to 5
I was diagnosed with Asthma and mild Bronchiectasis 2 years ago I had a cough for almost 35 years after a severe bout of bronchitis I eventually saw a lung consultant in Glasgow who diagnosed my condition I have had 3 lung scans and my condition is stable My asthma is cough and I have about 4 to 5
leonierose
in
Lung Conditions Community Forum
1 year ago
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sudden Bronchiectasis exacerbation.
I was diagnosed with bronchiectasis about 5 years ago and have been on daily azithromycin tablets 250mcg which have been a life changer after getting chest infections on a monthly basis and basically living as an invalid for years. I felt stronger and more confident. Apart from a few colds and a flu
I was diagnosed with bronchiectasis about 5 years ago and have been on daily azithromycin tablets 250mcg which have been a life changer after getting chest infections on a monthly basis and basically living as an invalid for years. I felt stronger and more confident. Apart from a few colds and a flu
Weewheezer1
in
Lung Conditions Community Forum
1 year ago
Doctor about turn!!
having got down to 1 1/2 pramipexole, i was back to my old insomnia… waking constantly, legs going mad. So time to see Gp. My regular doc had refused to give me gabapentin due to addiction issues. So talked to a different GP. I explained i was no longer sleeping well and she offered me sleeping tablets
having got down to 1 1/2 pramipexole, i was back to my old insomnia… waking constantly, legs going mad. So time to see Gp. My regular doc had refused to give me gabapentin due to addiction issues. So talked to a different GP. I explained i was no longer sleeping well and she offered me sleeping tablets
Jukebox55
in
Restless Legs Syndrome
1 year ago
finally off of Ropinirole ,what next?
I have had 2 sleep study’s since diagnosis 10 years ago. Not just legs but lim and torso movements. First put on Ropinirole 2mg and slowly upped to 6mg then down to 4mg Used Ropinirole 4mg combined with gabapentin but made we feel very unwell and didn’t help with the rls. After another sleep study
I have had 2 sleep study’s since diagnosis 10 years ago. Not just legs but lim and torso movements. First put on Ropinirole 2mg and slowly upped to 6mg then down to 4mg Used Ropinirole 4mg combined with gabapentin but made we feel very unwell and didn’t help with the rls. After another sleep study
Allatonce
in
Restless Legs Syndrome
1 year ago
First IVF consult advice: Very high AMH, ovarian hyperstimulation syndrome
Hi everyoneI'm looking for a bit of advice - I've got my first appointment with our IVF consultant on the 6th April. I just had my results back from my AMH test and the information package for my protocol. My AMH was 80.2 pmol/L and they're pretty sure I'll get ovarian hyperstimulation - I had horrendous
Hi everyoneI'm looking for a bit of advice - I've got my first appointment with our IVF consultant on the 6th April. I just had my results back from my AMH test and the information package for my protocol. My AMH was 80.2 pmol/L and they're pretty sure I'll get ovarian hyperstimulation - I had horrendous
Chubbstep
in
Fertility Network UK
1 year ago
Switching from Methadone to buprenorphine
I’ve been taking Methadone for a little over 2 years after I augmented on Tramadol. I absolutely love how well the Methadone works. I rarely have symptoms and when I do get them a quick hot bath and I’m good again. The part I don’t like is the 20 pounds I’ve gained. It makes me feel hungry all the
I’ve been taking Methadone for a little over 2 years after I augmented on Tramadol. I absolutely love how well the Methadone works. I rarely have symptoms and when I do get them a quick hot bath and I’m good again. The part I don’t like is the 20 pounds I’ve gained. It makes me feel hungry all the
Poe7
in
Restless Legs Syndrome
1 year ago
Titrating off of Ropinirole
I've been on ropinirole for 10 years. Got up to 4mg in October 2023 and suddenly it became ineffective. Thank God, I found this site and tge amazing help that you all provide. I began to taper and now I'm down to 1mg. I've been trying to follow the recommendation of 1/2mg every 2 weeks.I also got
I've been on ropinirole for 10 years. Got up to 4mg in October 2023 and suddenly it became ineffective. Thank God, I found this site and tge amazing help that you all provide. I began to taper and now I'm down to 1mg. I've been trying to follow the recommendation of 1/2mg every 2 weeks.I also got
climber54
in
Restless Legs Syndrome
1 year ago
Help needed! 😔
Wondered if anyone could relate or any advice? OK so back in Dec 2021 I started with a runny nose, sneezing, blocked, and neuralgia - I thought I was getting a cold, so a few days passed and still all the same symptoms but I noticed my smell had started to go, which is strange because I've never really
Wondered if anyone could relate or any advice? OK so back in Dec 2021 I started with a runny nose, sneezing, blocked, and neuralgia - I thought I was getting a cold, so a few days passed and still all the same symptoms but I noticed my smell had started to go, which is strange because I've never really
Leey2k
in
Lung Conditions Community Forum
1 year ago
My CLL, where is the finishing line?
Just over a year ago my “Abnormal CLL” took off. I lost weight rapidly and my 22 cm spleen hurt. I was glad to be offered V+O and after a bad initial reaction settled into the routine. Then the sinusitis and upper respiratory tract infections set in and the cough…. Fair to say I have endured the year
Just over a year ago my “Abnormal CLL” took off. I lost weight rapidly and my 22 cm spleen hurt. I was glad to be offered V+O and after a bad initial reaction settled into the routine. Then the sinusitis and upper respiratory tract infections set in and the cough…. Fair to say I have endured the year
carolly
in
CLL Support
1 year ago
04 am UK time
Far from being a cause of distress as was the case with the untold misery of a month ago walking the house at night feeling that familiar dread that comes with severe sleep deprivation and feeling like you’re teetering on the edge of an abyss, I now feel a certain sense of euphoria knowing that I will
Far from being a cause of distress as was the case with the untold misery of a month ago walking the house at night feeling that familiar dread that comes with severe sleep deprivation and feeling like you’re teetering on the edge of an abyss, I now feel a certain sense of euphoria knowing that I will
HipHop1972
in
Restless Legs Syndrome
1 year ago
bad cough
I have a very bad cough I think it might be in the thc that I smoke 10 reefers a day I know it’s wrong but what am I to do?
I have a very bad cough I think it might be in the thc that I smoke 10 reefers a day I know it’s wrong but what am I to do?
Antcurt
in
Lung Conditions Community Forum
1 year ago
How to wean off of ropinirole and find a good doctor.
My husband is on 8 mg of ropinirole ER a day (4 in morning and 4 in evening. He has been taking it for over 15 years and whenever he would start getting augmentation, he would just increase the dose. That always worked but it’s way too much. We just moved to Florida and cannot find a good doctor for
My husband is on 8 mg of ropinirole ER a day (4 in morning and 4 in evening. He has been taking it for over 15 years and whenever he would start getting augmentation, he would just increase the dose. That always worked but it’s way too much. We just moved to Florida and cannot find a good doctor for
Sandalsforever
in
Restless Legs Syndrome
1 year ago
Gabapentin
I am currently taking 5 300mg Gabapentin a day. I'm also taking 0.5 mg of pramipexole 5 times a day and hydrocodone 3 times a day which helps. Gabapentin alone didn't help me but I hope it does you.
I am currently taking 5 300mg Gabapentin a day. I'm also taking 0.5 mg of pramipexole 5 times a day and hydrocodone 3 times a day which helps. Gabapentin alone didn't help me but I hope it does you.
Blu34
in
Restless Legs Syndrome
1 year ago
Any substitute for Bupropion?
Hi All. I was on Citalopram for depression, but that made my RLS worse. So Professor Walker at Queens Square suggested Bupropion as a substitute. I have just found out from my Pharmacy that Bupropion is no longer manufactured (so they say). I e-mailed Professor Walker yesterday for another substitute
Hi All. I was on Citalopram for depression, but that made my RLS worse. So Professor Walker at Queens Square suggested Bupropion as a substitute. I have just found out from my Pharmacy that Bupropion is no longer manufactured (so they say). I e-mailed Professor Walker yesterday for another substitute
67Waterman
in
Restless Legs Syndrome
1 year ago
Seeking advice for changing from Temgesic to Gabapentin for treating my refractory RLS.
I have moved to a new area and need to change Doctor. I had a double appt last week and the new Doctor refused to prescribe Temgesic. I have been taking tbis medication successfully for 2 years now. I am having my medical records sent through to the new medical practice. I thought I should look into
I have moved to a new area and need to change Doctor. I had a double appt last week and the new Doctor refused to prescribe Temgesic. I have been taking tbis medication successfully for 2 years now. I am having my medical records sent through to the new medical practice. I thought I should look into
Jules1953
in
Restless Legs Syndrome
1 year ago
Bronchiectasis persistent cough
I was diagnosed with Bronchiectasis last week. I am on Carbocisteine 2 x 3 times a day. What's depressing me is my cough. Its dreadful the first hour of the day , I'm coughing up lots of sputum and wrenching . I'm having frequent coughing episodes during the day as well coughing up more sputum , I have
I was diagnosed with Bronchiectasis last week. I am on Carbocisteine 2 x 3 times a day. What's depressing me is my cough. Its dreadful the first hour of the day , I'm coughing up lots of sputum and wrenching . I'm having frequent coughing episodes during the day as well coughing up more sputum , I have
Enable
in
Lung Conditions Community Forum
1 year ago
Any tips pls ..? Dad's really tired of is cough - that's now a mix of dry (mainly) and some mucous
Hi, the mucous is not really coming out now. But the dry cough is new. The hospital checked for an infection (given the dry cough), but didn't spot anything which is a relief.
So, my question is really about how best to handle a cough that's dry , with just a little mucous ..?
He's using codeine
Hi, the mucous is not really coming out now. But the dry cough is new. The hospital checked for an infection (given the dry cough), but didn't spot anything which is a relief.
So, my question is really about how best to handle a cough that's dry , with just a little mucous ..?
He's using codeine
Vip1
in
The Roy Castle Lung Cancer Foundation
1 year ago
Constipation
Hi I was recently prescribed lactulose for my constipation/bulking problem having had ibs for years but only officially diagnosed 6 months ago. I have symptoms very day which gives me anxiety as to how my day will go. First 5 days taking lactulose wasn't bad, symptoms much less toilet better. Last few
Hi I was recently prescribed lactulose for my constipation/bulking problem having had ibs for years but only officially diagnosed 6 months ago. I have symptoms very day which gives me anxiety as to how my day will go. First 5 days taking lactulose wasn't bad, symptoms much less toilet better. Last few
ruskin10
in
IBS Network
1 year ago
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