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Hi, I'm New - and so sick of RLS!
Hello Everyone, I've been lurking off and on but have not posted until today. I'm really glad to have found this group and am thankful to see so much information. I've been dealing with rls for years. I'm 57 and have been on ropinirole for over 10 years now. I started out on 2mg and for the last
Hello Everyone, I've been lurking off and on but have not posted until today. I'm really glad to have found this group and am thankful to see so much information. I've been dealing with rls for years. I'm 57 and have been on ropinirole for over 10 years now. I started out on 2mg and for the last
Moonmyst
in
Restless Legs Syndrome
1 year ago
morphine alternative- any thoughts?
had a review with my GP and mentioned that I am still waking up around 2am with RLS, albeit more manageable than before. She gave me prescription for 'MORPHINE 5MG MODIFIED-RELEASE TABLETS' and said to give this a try to get me through the night. Anybody tried these and are they going to cause me issues
had a review with my GP and mentioned that I am still waking up around 2am with RLS, albeit more manageable than before. She gave me prescription for 'MORPHINE 5MG MODIFIED-RELEASE TABLETS' and said to give this a try to get me through the night. Anybody tried these and are they going to cause me issues
Phantom38
in
Restless Legs Syndrome
1 year ago
Pleurisy
Hi all I was recently diagnosed with pneumonia and pleurisy and am on my fourth course of antibiotics They don’t seem to be working My question is regarding the pleurisy - can the pain move around the chest? Today the upper front of my chest is very sore whereas a few days ago it was the lower
Hi all I was recently diagnosed with pneumonia and pleurisy and am on my fourth course of antibiotics They don’t seem to be working My question is regarding the pleurisy - can the pain move around the chest? Today the upper front of my chest is very sore whereas a few days ago it was the lower
Dazzler57
in
Lung Conditions Community Forum
1 year ago
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Sore tongue
Hi folks, is a sore tongue part of UCTD? I've had sore patches (which grow and change shape, and are smooth in the middle) for some years, more on than off. I've assumed it is geographic tongue but that's supposed to be painless from what I've read. I also have a moderately dry mouth and wondering
Hi folks, is a sore tongue part of UCTD? I've had sore patches (which grow and change shape, and are smooth in the middle) for some years, more on than off. I've assumed it is geographic tongue but that's supposed to be painless from what I've read. I also have a moderately dry mouth and wondering
redmaggie
in
LUPUS UK
1 year ago
Flu jab
As flu vaccine season will soon be on us I was wondering if my husband will get a flu jab this year (I have asthma, therefore I qualify). In previous years he has been eligible but I believe the criteria has changed. Any thoughts?
As flu vaccine season will soon be on us I was wondering if my husband will get a flu jab this year (I have asthma, therefore I qualify). In previous years he has been eligible but I believe the criteria has changed. Any thoughts?
Mayneffy
in
Asthma Community Forum
1 year ago
Starting pregabalin
I have received a letter from Leicester hospital following my consultation with a neurology Registrar. I am on 1100mg of Gabapentin suggested dose of Pregabalin is 75mg at 6.00pm and 75mg 30 minutes before bedtime, can be uptitrated as required. Does this sound right? I have zero confidence in registrar
I have received a letter from Leicester hospital following my consultation with a neurology Registrar. I am on 1100mg of Gabapentin suggested dose of Pregabalin is 75mg at 6.00pm and 75mg 30 minutes before bedtime, can be uptitrated as required. Does this sound right? I have zero confidence in registrar
Elsie77
in
Restless Legs Syndrome
1 year ago
Clonazepam with Gabapentin
I've been following this forum for years. Thank you for your guidance. Years ago, a doctor prescribed pramipexole. It worked until it didn't. Weaned off and started Gabapentin. It helps somewhat. I take 600 + 600 three hours later, before bed, as suggested here. I recently met with a pulmonologist
I've been following this forum for years. Thank you for your guidance. Years ago, a doctor prescribed pramipexole. It worked until it didn't. Weaned off and started Gabapentin. It helps somewhat. I take 600 + 600 three hours later, before bed, as suggested here. I recently met with a pulmonologist
bbullions
in
Restless Legs Syndrome
1 year ago
which Magnesium?
I have read here of several different types of Magnesium to take for RLS. In my case it is Periodic Limb Movement as well. I take Magnesium Citrate 2x 100 mg. But I have heard people mention Magnesium Malate and Glycinate. Could Sue Johnson or anyone tell me which they think is best?
I have read here of several different types of Magnesium to take for RLS. In my case it is Periodic Limb Movement as well. I take Magnesium Citrate 2x 100 mg. But I have heard people mention Magnesium Malate and Glycinate. Could Sue Johnson or anyone tell me which they think is best?
Ruffabug
in
Restless Legs Syndrome
1 year ago
Methadone and cognition
I just had a cognition test and came out "low normal". I have felt the last couple years that my memory is not what it used to be so this is confirmation. However, I feel much more stupid on methadone. Could this be related to my dose? Take 10 mg around 10 pm, and then another 5 mg in the middle
I just had a cognition test and came out "low normal". I have felt the last couple years that my memory is not what it used to be so this is confirmation. However, I feel much more stupid on methadone. Could this be related to my dose? Take 10 mg around 10 pm, and then another 5 mg in the middle
ratfancy
in
Restless Legs Syndrome
1 year ago
Advice on increasing Pred for breathlessness and persistent cough
My GP told me that breathlessness is a symptom of PMR, so I can't seek her advice on how to manage this cough etc. Some people are saying that Eris Covid is around and it presents as a bad cough which does not show up as positive on home covid testing kits. I have had a persistent productive cough
My GP told me that breathlessness is a symptom of PMR, so I can't seek her advice on how to manage this cough etc. Some people are saying that Eris Covid is around and it presents as a bad cough which does not show up as positive on home covid testing kits. I have had a persistent productive cough
Motida
in
PMRGCAuk
1 year ago
ADAA PTSD Summit
Join us for our virtual PTSD summit on November 7th from 12:00 – 2:00 PM EST titled “Raising Our Hands: Supporting PTSD Identification, Diagnosis, and Treatment Across Diverse Communities.” This summit is hosted in collaboration with the Depression and Bipolar Support Alliance with the support of Otsuka
Join us for our virtual PTSD summit on November 7th from 12:00 – 2:00 PM EST titled “Raising Our Hands: Supporting PTSD Identification, Diagnosis, and Treatment Across Diverse Communities.” This summit is hosted in collaboration with the Depression and Bipolar Support Alliance with the support of Otsuka
ADAATeamRachel
Partner
in
Anxiety and Depression Support
11 months ago
Given new 500mg Hydroxycarbamide tablets today!?
Evening all, Was on Pegasus injections for over a year which ended up with a repeat side effect of pneumonia. Came off for 2 months & now have been prescribed 500mg Hydroxycarbamide Any advice would be greatly appreciated What time of day is best to take my 2 tablet dose? Thanks in advance Grant
Evening all, Was on Pegasus injections for over a year which ended up with a repeat side effect of pneumonia. Came off for 2 months & now have been prescribed 500mg Hydroxycarbamide Any advice would be greatly appreciated What time of day is best to take my 2 tablet dose? Thanks in advance Grant
Pappafraser
in
MPN Voice
1 year ago
Lost....
Hello,I deal with major depression and anxiety. I also do my best to deal with Complex PTSD everyday. The effects it has on me are severely ruining my marriage. I don't know what to do.
Hello,I deal with major depression and anxiety. I also do my best to deal with Complex PTSD everyday. The effects it has on me are severely ruining my marriage. I don't know what to do.
LostScorpio
in
Anxiety and Depression Support
11 months ago
Body massage is helps to reduce stress?
Stress can reduce by doing regular body massage.
Stress can reduce by doing regular body massage.
jeffersonsam99
in
Anxiety and Depression Support
1 year ago
Dental extraction
It never rains……… Have had a herniated disc for the past four weeks with the dreaded sciatica accompanying it with glee but despite that I have felt better having gone back on my Filgotinib JAK after being off it after a month of bronchitis in April on antibiotics. However, and here’s the rub, the back
It never rains……… Have had a herniated disc for the past four weeks with the dreaded sciatica accompanying it with glee but despite that I have felt better having gone back on my Filgotinib JAK after being off it after a month of bronchitis in April on antibiotics. However, and here’s the rub, the back
Amnesiac3637
in
NRAS
1 year ago
Helpful information on Potassium for RLS relief
Here is a link on Potassium to help with the symptoms of RLS. I hope this is helpful for some. I take my dose along with Magnesium Glycinate around 8 pm, along with Magnesium oil on my legs. I’m also prescribed Oxycodone 5 mg every 6 hours, along with Baclofen for PLMD. Sometimes, I need to use compression
Here is a link on Potassium to help with the symptoms of RLS. I hope this is helpful for some. I take my dose along with Magnesium Glycinate around 8 pm, along with Magnesium oil on my legs. I’m also prescribed Oxycodone 5 mg every 6 hours, along with Baclofen for PLMD. Sometimes, I need to use compression
Wanman4
in
Restless Legs Syndrome
1 year ago
Stress for me the lead contributor to AF - professional help to reduce.
I have no doubt that having vagally induced Lone Paroxysmal AF that stress was the major factor that triggered my AF - both directly re business, teenage child issues, loss of parents, domestics and also indirectly, as a result of stress, eating too quickly generally, sometimes junk food to mention
I have no doubt that having vagally induced Lone Paroxysmal AF that stress was the major factor that triggered my AF - both directly re business, teenage child issues, loss of parents, domestics and also indirectly, as a result of stress, eating too quickly generally, sometimes junk food to mention
secondtry
in
AF Association
1 year ago
Altruist
My story won't apply to everyone, of course, but you may find a nugget worth considering. I've had mild RLS intermittently for forty years until it recently worsened. I'd always managed it with weighted heat, L-Tryptophan, magnesium glycinate, L-Theanine, and if necessary, a little pacing. At age 36,
My story won't apply to everyone, of course, but you may find a nugget worth considering. I've had mild RLS intermittently for forty years until it recently worsened. I'd always managed it with weighted heat, L-Tryptophan, magnesium glycinate, L-Theanine, and if necessary, a little pacing. At age 36,
Altruist
in
Restless Legs Syndrome
1 year ago
Join ADAA's PTSD Summit on Nov 7th!
The Anxiety and Depression Association of America invites you to attend our virtual PTSD summit on November 7th from 12:00 – 2:00 PM EST titled “Raising Our Hands: Supporting PTSD Identification, Diagnosis, and Treatment Across Diverse Communities.” This summit, hosted in collaboration with the Depression
The Anxiety and Depression Association of America invites you to attend our virtual PTSD summit on November 7th from 12:00 – 2:00 PM EST titled “Raising Our Hands: Supporting PTSD Identification, Diagnosis, and Treatment Across Diverse Communities.” This summit, hosted in collaboration with the Depression
ADAATeamRachel
Partner
in
Anxiety and Depression Support
11 months ago
flu symptoms with aps / stroke history
it’s my first time getting flu since my stroke a year ago. As an aps (and stroke) patient from my understanding of the condition, I am not immunosuppressed. But my flu whilst I haven’t had high fevers. I have felt my original stroke side effects come back - eg vestibular dizziness and it’s made the
it’s my first time getting flu since my stroke a year ago. As an aps (and stroke) patient from my understanding of the condition, I am not immunosuppressed. But my flu whilst I haven’t had high fevers. I have felt my original stroke side effects come back - eg vestibular dizziness and it’s made the
Sand1985
in
Hughes Syndrome APS Forum
1 year ago
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