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SUV-Max
Hello , Ive been on Eligard , Zytiga , predizone 26 months . Im oligo with 1 tumor in pelvic lymph node that was radiated , then 25 fractions across the pelvic region . The tumor they radiated was at SUV-MAX 24 . All labs are good , not much of side effects . I thought about stopping the meds after
Hello , Ive been on Eligard , Zytiga , predizone 26 months . Im oligo with 1 tumor in pelvic lymph node that was radiated , then 25 fractions across the pelvic region . The tumor they radiated was at SUV-MAX 24 . All labs are good , not much of side effects . I thought about stopping the meds after
reconjj
in
Advanced Prostate Cancer
1 month ago
Dad 2nd BCR. Advice needed...
After a very late salvage radiation + 1 year Lupron. He has been off ADT for 1 year when PSA began to rise again. From 0.01 to 0.03 in less than 2 months then 0.05 after another 3 months. Is this indicative of an aggressive progression and metastasis? The oncologist said that the doubling time is not
After a very late salvage radiation + 1 year Lupron. He has been off ADT for 1 year when PSA began to rise again. From 0.01 to 0.03 in less than 2 months then 0.05 after another 3 months. Is this indicative of an aggressive progression and metastasis? The oncologist said that the doubling time is not
MsBoBo
in
Advanced Prostate Cancer
1 month ago
5 aRIs and PCa and recurrence.
I’m recurrent in prostate bed with three negative PSMA PET scans and essentially unchanged size of enhancing nodule over 18 months on three MRIs DUT and FIN began when PSA reached 0.36. In six weeks dropped to 0.26 after beginning DUT and FIN. they are affecting sensitivity of the PSMA scans. After
I’m recurrent in prostate bed with three negative PSMA PET scans and essentially unchanged size of enhancing nodule over 18 months on three MRIs DUT and FIN began when PSA reached 0.36. In six weeks dropped to 0.26 after beginning DUT and FIN. they are affecting sensitivity of the PSMA scans. After
LowT
in
Advanced Prostate Cancer
1 month ago
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is this what CR looks like?
Starting Nov 20 last year, I began a relugolix on-cycle. Here’s the PSA readings from that point: Nov 20 : 3.10 Jan 8: 0.31 Feb 27: 0.13 Apr 15: 0.08 So up to this point, the PSA is dropping nicely, as it always has with on-cycles; and as I would expect, since I’ve been a strong responder
Starting Nov 20 last year, I began a relugolix on-cycle. Here’s the PSA readings from that point: Nov 20 : 3.10 Jan 8: 0.31 Feb 27: 0.13 Apr 15: 0.08 So up to this point, the PSA is dropping nicely, as it always has with on-cycles; and as I would expect, since I’ve been a strong responder
lokibear0803
in
Advanced Prostate Cancer
1 month ago
Acute Autonomic Crisis
Hi everyone, I hope that you are having as pain free a day as possible. Just an update on my follow up appointment. I had probably one of the worst weeks of my life last week. Weaning off morphine and Citalopram, side effects from the Duloxitine and then such a bad flare up of the burning pain that
Hi everyone, I hope that you are having as pain free a day as possible. Just an update on my follow up appointment. I had probably one of the worst weeks of my life last week. Weaning off morphine and Citalopram, side effects from the Duloxitine and then such a bad flare up of the burning pain that
CecilyParsley
in
Pelvic Pain Support Network
10 months ago
Results from 4 Genomic labs
3 years ago we received a Foundation ONE Report giving us the report he has CDK12 mutation. He has been on Lupron, NUBEQA, and Zytiga. Over time they have failed. Recently, 4 lymph nodes were removed for thorough testing to make sure C had not mutated into Neuroendocrine. It had not. Actually, the
3 years ago we received a Foundation ONE Report giving us the report he has CDK12 mutation. He has been on Lupron, NUBEQA, and Zytiga. Over time they have failed. Recently, 4 lymph nodes were removed for thorough testing to make sure C had not mutated into Neuroendocrine. It had not. Actually, the
JolleySprings
in
Advanced Prostate Cancer
1 month ago
Worried about pulmonary fibrosis if radiating the metastasis in my shoulder blade
When I saw my radio-oncologist a few days ago and asked what is the risk for my lungs if we use radiation against the metastasis in my right shoulder blade. He said that there is a risk that it could cause fibrosis but that it does not impact breathing and that I should not worry. Today I decided to
When I saw my radio-oncologist a few days ago and asked what is the risk for my lungs if we use radiation against the metastasis in my right shoulder blade. He said that there is a risk that it could cause fibrosis but that it does not impact breathing and that I should not worry. Today I decided to
Mascouche
in
Advanced Prostate Cancer
1 month ago
PALB2 Stage 4 A prostate cancer treatment plan.
My Partner has stage 4A prostate cancer spread to the nodules and has the PALB2 gene. How effective is internal and external radiation and ADT as the first line of treatment? Why can't the drs start with PARP inhibitors and chemo which is the standard of care as a second line treatment? Is it because
My Partner has stage 4A prostate cancer spread to the nodules and has the PALB2 gene. How effective is internal and external radiation and ADT as the first line of treatment? Why can't the drs start with PARP inhibitors and chemo which is the standard of care as a second line treatment? Is it because
SherryKahn
in
Advanced Prostate Cancer
1 month ago
Cabazitaxel treatment
A shock diagnosis almost seven years ago. Then the merrygoround of surgery, radiation, chemotherapy, hormone treatment and slowly but surely the cancer progresses. Here I am, wondering where to go next and contemplating if chemo with cabazitaxel is the way to go. Does anyone have any experience with
A shock diagnosis almost seven years ago. Then the merrygoround of surgery, radiation, chemotherapy, hormone treatment and slowly but surely the cancer progresses. Here I am, wondering where to go next and contemplating if chemo with cabazitaxel is the way to go. Does anyone have any experience with
Luylu
in
Prostate Cancer Network
1 month ago
PCA Prognosis?
Hi All! I am due for my 4rd Lupron treatment and follow-up next week. My bloodwork is done and my PSA is still <.01 for 9 months now. I have BRCA 1 and 2. When my Urologist gave me my initial diagnosis after my biopsies (Gleason 4+3=7 and 11 of 12 biopsies positive). nHe gave me a full report
Hi All! I am due for my 4rd Lupron treatment and follow-up next week. My bloodwork is done and my PSA is still <.01 for 9 months now. I have BRCA 1 and 2. When my Urologist gave me my initial diagnosis after my biopsies (Gleason 4+3=7 and 11 of 12 biopsies positive). nHe gave me a full report
Sagewiz
in
Advanced Prostate Cancer
1 month ago
My prostate journey and testosterone side effects
I have been following this website for over a year now and have learned so much from others who have shared their journey that I feel compelled to share my story in hopes that it might help someone in their decision making process. First of all, a big thank you to everyone who posts on this site. The
I have been following this website for over a year now and have learned so much from others who have shared their journey that I feel compelled to share my story in hopes that it might help someone in their decision making process. First of all, a big thank you to everyone who posts on this site. The
PT49
in
Prostate Cancer Network
1 month ago
QoL Recent hike in Japan .. Mount Fuji
Been enjoying a hike near our vacation condo .. get out and move… I’m almost 3 months out after last ADT .. 5 months radiation a subtle feel of testosterone may be returning. Did 9 months ADT so still feeling the effects.. but have to say for every day I wake up at 6am tired and not feeling well.. I
Been enjoying a hike near our vacation condo .. get out and move… I’m almost 3 months out after last ADT .. 5 months radiation a subtle feel of testosterone may be returning. Did 9 months ADT so still feeling the effects.. but have to say for every day I wake up at 6am tired and not feeling well.. I
Yokohama2023
in
Advanced Prostate Cancer
1 month ago
any similar stories extensive metastatic prostate cancer
hello! I’ve been on here for a few weeks reading everyone’s posts, which have been helpful. My dad recently found out he has extensive Mets throughout his skeleton, although we have been battling this disease for almost 5 years now, things have taken a turn. He has been on ADT since January, and tolerating
hello! I’ve been on here for a few weeks reading everyone’s posts, which have been helpful. My dad recently found out he has extensive Mets throughout his skeleton, although we have been battling this disease for almost 5 years now, things have taken a turn. He has been on ADT since January, and tolerating
Concerneddaughter123
in
Advanced Prostate Cancer
1 month ago
So the odds we all read about... are they true?
When my husband (age 52) was diagnosed with metastatic prostate cancer two and a half years ago, he was told the outlook was "grim." Everything we read told us once it moves to the bone (his has) then you're looking at months, not years, of life left. He had TEMPUS done, which was basically the oncologist
When my husband (age 52) was diagnosed with metastatic prostate cancer two and a half years ago, he was told the outlook was "grim." Everything we read told us once it moves to the bone (his has) then you're looking at months, not years, of life left. He had TEMPUS done, which was basically the oncologist
Anatalya
in
Advanced Prostate Cancer
1 month ago
PSA Nadir 6 Months After Primary RT Correlates With Prostate Cancer Outcomes — Or does it?, MedPage Today May 22, 2024
[i]This article from MedPage Today is reproduced in full along with the link to the full access editorial comment is also provided. However, it has numerous hyperlinks to the the research cited within. The link to the MedPage article provides those links. [/i] [i]* * *[/i]
PSA Nadir 6 Months After
[i]This article from MedPage Today is reproduced in full along with the link to the full access editorial comment is also provided. However, it has numerous hyperlinks to the the research cited within. The link to the MedPage article provides those links. [/i] [i]* * *[/i]
PSA Nadir 6 Months After
cujoe
in
Fight Prostate Cancer
1 month ago
Prostate biopsy from rib ?
My dad , 83 , diagnosed with pc with mets to bones as per mri and psma. Not done biopsy yet as nervous to put dad through it and one oncologist said it’s not needed as the treatment would be ADT but then 3 other oncologists say it’s good to get it done as we would know what exactly we dealing with
My dad , 83 , diagnosed with pc with mets to bones as per mri and psma. Not done biopsy yet as nervous to put dad through it and one oncologist said it’s not needed as the treatment would be ADT but then 3 other oncologists say it’s good to get it done as we would know what exactly we dealing with
Tinkudi
in
Advanced Prostate Cancer
1 month ago
Request for Input
Before I leave this wonderful group I'd like to pick your individual/collective brains. Since it's too late to help my husband, I'm looking for info that I can pass on to my son and 6 grandsons so they might better understand this awful cancer should they ever get it. I'm also providing a bit more info
Before I leave this wonderful group I'd like to pick your individual/collective brains. Since it's too late to help my husband, I'm looking for info that I can pass on to my son and 6 grandsons so they might better understand this awful cancer should they ever get it. I'm also providing a bit more info
Shamrock46
in
Advanced Prostate Cancer
1 month ago
Help with "sick day rules"
Hello, It's been a while. I am struggling and need some dose guidance please. My normal dose is 10mg per day. I delivered Mark to hospital on Sunday for a planned Total Knee Replacement which took place on Monday morning. He's doing very well, no pain (typical of him lol) and he was discharged yesterday
Hello, It's been a while. I am struggling and need some dose guidance please. My normal dose is 10mg per day. I delivered Mark to hospital on Sunday for a planned Total Knee Replacement which took place on Monday morning. He's doing very well, no pain (typical of him lol) and he was discharged yesterday
IdasMum
in
PMRGCAuk
8 months ago
Does urinary frequency/urgency diminish after cessation of ADT?
I’m on the last month of a one year course of Orgovyx/Nubeqa for 4+3, 4.7PSA (now .006), Decipher .88. Brachyboost with pelvic SBRT 8/23 at UCLA My bladder volume at baseline was 500-600 ml (even hit 700 once). But over the months it has steadily decreased to currently 200-300ml. 350 if I really torture
I’m on the last month of a one year course of Orgovyx/Nubeqa for 4+3, 4.7PSA (now .006), Decipher .88. Brachyboost with pelvic SBRT 8/23 at UCLA My bladder volume at baseline was 500-600 ml (even hit 700 once). But over the months it has steadily decreased to currently 200-300ml. 350 if I really torture
SongofFred
in
Prostate Cancer Network
1 month ago
High risk Decipher score, what now?
Hello, Im a 61 year old man, IIB, T2c, no mo, classified as unfavorable intermediate. I just finished my last day of 28 days of VMAT, ( total 70gy) ,last Weds day on May 15. Minimal SE so far. I also have 5 months in on ADT , Lupron, 1month, 1month , and 3 month shot. So I was feel pretty good
Hello, Im a 61 year old man, IIB, T2c, no mo, classified as unfavorable intermediate. I just finished my last day of 28 days of VMAT, ( total 70gy) ,last Weds day on May 15. Minimal SE so far. I also have 5 months in on ADT , Lupron, 1month, 1month , and 3 month shot. So I was feel pretty good
Surfer33
in
Prostate Cancer Network
1 month ago
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