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Ding Ding…Round Three.
I’m not sure if there is anyone out there that remembers me…or is prepared to admit it…but after a 12 month gap I am lacing up my shoes again. I graduated C25k six years ago and went on to graduate 10k aged 60 ish. I made some good friends on here and had great support. However a central ruke of my
I’m not sure if there is anyone out there that remembers me…or is prepared to admit it…but after a 12 month gap I am lacing up my shoes again. I graduated C25k six years ago and went on to graduate 10k aged 60 ish. I made some good friends on here and had great support. However a central ruke of my
Pm3eak
Graduate
in
Couch to 5K
2 months ago
Diagnosed almost 3 years ago
I am a 70 year old diagnosed in 8/21 with G9 on biopsy with initial imaging negative for metastatic disease. Underwent RP in 10/21 with seminal vesicle involvement. A few sampled nodes were negative. 5 months after surgery PSA climbed to 0.39 from 0.016 in first post op test. PSMA PET revealed a solitary
I am a 70 year old diagnosed in 8/21 with G9 on biopsy with initial imaging negative for metastatic disease. Underwent RP in 10/21 with seminal vesicle involvement. A few sampled nodes were negative. 5 months after surgery PSA climbed to 0.39 from 0.016 in first post op test. PSMA PET revealed a solitary
Retireddoc
in
Advanced Prostate Cancer
2 months ago
SBRT for radiorecurrent PCa
Does anyone know of current studies on this treatment? Which centers have the most expertise? Also, any studies which report on increased effectiveness with a short term course of ADT before SBRT?
Does anyone know of current studies on this treatment? Which centers have the most expertise? Also, any studies which report on increased effectiveness with a short term course of ADT before SBRT?
hwrjr
in
Advanced Prostate Cancer
2 months ago
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Is it safe to use red light / near infrared therapy if you have Graves' disease?
Hi all, First a little bit of background about me. I am 49, living in Ireland. I have Graves's disease diagnosed by an endocrinologist who did antibody test etc.. After diagnosis I underwent 18 months on Carbimazole and then came off for a couple of months but my T3 and T4 shot back up again (and TSH
Hi all, First a little bit of background about me. I am 49, living in Ireland. I have Graves's disease diagnosed by an endocrinologist who did antibody test etc.. After diagnosis I underwent 18 months on Carbimazole and then came off for a couple of months but my T3 and T4 shot back up again (and TSH
MyNameIsAugust
in
Thyroid UK
9 months ago
Thyroid, HRT
2 weeks ago I rang my GP in desperation, I told him I can't go on feeling like this, I asked to try HRT again, he asked what levo I was on was it 100mg, I said no I had increased it, he said he could stop my medication if I was increasing it without him saying I could.He wanted another blood test and
2 weeks ago I rang my GP in desperation, I told him I can't go on feeling like this, I asked to try HRT again, he asked what levo I was on was it 100mg, I said no I had increased it, he said he could stop my medication if I was increasing it without him saying I could.He wanted another blood test and
Dawney63
in
Thyroid UK
2 months ago
nsvt and HRT
hi I’m 46 and in menopause ,I’ve always had the odd flutter pvc pac but most recently last year felt what felt like eptopics in a row an awful feeling ,saw an EP and he put a 7 day heart monitor on me the results come back with a few episodes of nsvt longest episode 7 beats,had all test done which were
hi I’m 46 and in menopause ,I’ve always had the odd flutter pvc pac but most recently last year felt what felt like eptopics in a row an awful feeling ,saw an EP and he put a 7 day heart monitor on me the results come back with a few episodes of nsvt longest episode 7 beats,had all test done which were
Derose
in
Heart Rhythm Disorders Support
2 months ago
Thinking about stopping Xgeva
When my urologist suggested I see an oncologist I was immediately put on Abi and had a Dexa bone scan scheduled. That was August and scan was done Dec. In the meantime he started me on Xgeva because I had been on adt for 16 months. He agreed to 1 injection every 3 months after 6 months even though my
When my urologist suggested I see an oncologist I was immediately put on Abi and had a Dexa bone scan scheduled. That was August and scan was done Dec. In the meantime he started me on Xgeva because I had been on adt for 16 months. He agreed to 1 injection every 3 months after 6 months even though my
Professorgary
in
Advanced Prostate Cancer
2 months ago
Next step
x Summer of 2020.59 yr old. Spent 2021 on AS eventually psa went from 6.5 to 10 day of RALP. 2/14/22 GL 7a T3aN0M0 post psa at 3 months .04. Stayed until at one year .08 . At 18 months .1 now 2 years out .22 I had a neg psma scan but psa is low so false neg is very real. I have continually asked
x Summer of 2020.59 yr old. Spent 2021 on AS eventually psa went from 6.5 to 10 day of RALP. 2/14/22 GL 7a T3aN0M0 post psa at 3 months .04. Stayed until at one year .08 . At 18 months .1 now 2 years out .22 I had a neg psma scan but psa is low so false neg is very real. I have continually asked
Elbers123
in
Advanced Prostate Cancer
2 months ago
On treating micro-metastatic disease
I watched a video posted by PCRI recently on YouTube. In the video entitled "Treating micro-metastatic disease", Dr Mark Scholz mentioned that undergoing one year of ADT is sufficient post radiation. Thereafter just monitor the PSA for any rise, and use PSMA PET scan to locate any cancer and to radiate
I watched a video posted by PCRI recently on YouTube. In the video entitled "Treating micro-metastatic disease", Dr Mark Scholz mentioned that undergoing one year of ADT is sufficient post radiation. Thereafter just monitor the PSA for any rise, and use PSMA PET scan to locate any cancer and to radiate
John347
in
Advanced Prostate Cancer
2 months ago
Should I be asking for an increase in Levo?
I have an appt with my endo on Thursday to discuss my latest results and those from last August and April when I was taking different amounts of levo. I always follow the suggested procedure of stopping Vit B complex a week before, early blood test and not taking levo for 24 hours. My most recent
I have an appt with my endo on Thursday to discuss my latest results and those from last August and April when I was taking different amounts of levo. I always follow the suggested procedure of stopping Vit B complex a week before, early blood test and not taking levo for 24 hours. My most recent
Feelingrubbish
in
Thyroid UK
2 months ago
Thyroxine-binding globulin
Hi, Please note I have not had a Thyroid diagnosis and am not on any meds. As part of a well woman check I had thyroid blood tests. Results are as follows- TSH-1.72 mlU/L (0.35-5.5) FT4-17.9 pmol/l (11.9-21.6) FT3-4.92 pmol/l (3.1-6.8) Anti-Tg-115.0) Anti-TPO-34.0) TBG-24.5ug/ml (6.3-22.7
Hi, Please note I have not had a Thyroid diagnosis and am not on any meds. As part of a well woman check I had thyroid blood tests. Results are as follows- TSH-1.72 mlU/L (0.35-5.5) FT4-17.9 pmol/l (11.9-21.6) FT3-4.92 pmol/l (3.1-6.8) Anti-Tg-115.0) Anti-TPO-34.0) TBG-24.5ug/ml (6.3-22.7
ValDee88
in
Thyroid UK
2 months ago
PSA uptick
Quick background, my dad was diagnosed with metastatic PCa in 2018. Initially treated with docetaxel + ADT. His PSA has been at/near undetected (<0.01-0.02) for several years, but recently there has been an uptick to 0.08 (similar on a recheck, so not lab error). Obviously still low-level, but concerning
Quick background, my dad was diagnosed with metastatic PCa in 2018. Initially treated with docetaxel + ADT. His PSA has been at/near undetected (<0.01-0.02) for several years, but recently there has been an uptick to 0.08 (similar on a recheck, so not lab error). Obviously still low-level, but concerning
mediocra
in
Advanced Prostate Cancer
2 months ago
Zoladex experience
Just wanted to hear other people's experiences on Zoladex if possible because I don't know if my symptoms are all in my head or I'm just being made to feel that way by the consultant. Who's only advice every time I go for a review every couple of months day just keep going with it a little bit longer
Just wanted to hear other people's experiences on Zoladex if possible because I don't know if my symptoms are all in my head or I'm just being made to feel that way by the consultant. Who's only advice every time I go for a review every couple of months day just keep going with it a little bit longer
x_b_x
in
Endometriosis UK
2 months ago
Reason for ADT
Why is ADT used after SBRT? If radiation kills the cancer or makes it impossible to reproduce, then why do some doctors recommend ADT?
Why is ADT used after SBRT? If radiation kills the cancer or makes it impossible to reproduce, then why do some doctors recommend ADT?
Victor615
in
Prostate Cancer Network
2 months ago
biochemical recurrence after RP. +post leukemia
RP surgery 3/2020. Psa levels stable less than .01 for two years. 6/23 thru 12/23 levels have been .18 to .41. Complication 8/22 diagnosed with AML Leukemia. 5 rounds of chemo and a bone marrow transplant on 1/5/2023. Leukemia is now in complete remission, my blood dna is my donor’s - 40 year
RP surgery 3/2020. Psa levels stable less than .01 for two years. 6/23 thru 12/23 levels have been .18 to .41. Complication 8/22 diagnosed with AML Leukemia. 5 rounds of chemo and a bone marrow transplant on 1/5/2023. Leukemia is now in complete remission, my blood dna is my donor’s - 40 year
junkwerc
in
Prostate Cancer Network
2 months ago
6 months after MRI Guided SBRT at MSK
After a year and a half of Active Surveillance, my cancer progressed to GL 4+3 and I decided to have MRI Guided SBRT in August at Memorial Sloan Kettering in NYC under the care of Dr. Sean McBride. I had 5 sessions over 10 days and each lasted about an hour. The entire team at MSK was wonderful and
After a year and a half of Active Surveillance, my cancer progressed to GL 4+3 and I decided to have MRI Guided SBRT in August at Memorial Sloan Kettering in NYC under the care of Dr. Sean McBride. I had 5 sessions over 10 days and each lasted about an hour. The entire team at MSK was wonderful and
rosenjpj
in
Advanced Prostate Cancer
2 months ago
A Clinical Trial saved my Life ..12 years a Survivor of Advanced Metastatic Prostate Cancer, Stage 4.
When Alfred Samuels was diagnosed with advanced prostate cancer in 2012, it felt as if his world had fallen apart overnight. Doctors said surgery wasn’t an option for him because the cancer had spread beyond his prostate, and he started to lose hope. But then he joined a clinical trial and began treatment
When Alfred Samuels was diagnosed with advanced prostate cancer in 2012, it felt as if his world had fallen apart overnight. Doctors said surgery wasn’t an option for him because the cancer had spread beyond his prostate, and he started to lose hope. But then he joined a clinical trial and began treatment
alsam
in
Understanding Clinical Trials
2 months ago
Help Needed! Have I got Pernicious Anaemia?
I hope this isn't too long and/or too boring. I suspect I have PA but as with a lot of people here, no-one seems to take B12 deficiency seriously. I also have hypothyroidism so as my symptoms got increasingly worse over the past few years, I blamed my thyroid - the two conditions have many symptoms
I hope this isn't too long and/or too boring. I suspect I have PA but as with a lot of people here, no-one seems to take B12 deficiency seriously. I also have hypothyroidism so as my symptoms got increasingly worse over the past few years, I blamed my thyroid - the two conditions have many symptoms
Grannypants
in
Pernicious Anaemia Society
2 months ago
how often should you have a Dexa scan ?
I had one when I was first diagnosed with PMR about 6 years ago. Since then I have tapered down the pred but couldn’t get below 2 mgs until … I restarted HRT. I have now managed to taper to zero for the last 2 weeks and fingers crossed, I’m hoping that’s it ! Mindful it could always creep back of course
I had one when I was first diagnosed with PMR about 6 years ago. Since then I have tapered down the pred but couldn’t get below 2 mgs until … I restarted HRT. I have now managed to taper to zero for the last 2 weeks and fingers crossed, I’m hoping that’s it ! Mindful it could always creep back of course
Seekingasolution
in
PMRGCAuk
3 months ago
Targeting Mets w SBRT- what’s your experience?
Have any of you guys had any luck targeting distant metastases with SBRT after your mets remained small or dormant while on ADT but after PSMA scans had showed more in number than olago (more than five mets)? My PSMA scan in January 2022 showed 10 scattered small mets so our area SBRT (Cyberknife) radiation
Have any of you guys had any luck targeting distant metastases with SBRT after your mets remained small or dormant while on ADT but after PSMA scans had showed more in number than olago (more than five mets)? My PSMA scan in January 2022 showed 10 scattered small mets so our area SBRT (Cyberknife) radiation
SeattleDan
in
Advanced Prostate Cancer
3 months ago
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